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Text of the page (random words):
out how i can transfer from the wheelchair to the toilet bowl we really can t think of any easy way we still can t figure it out and i want to pee already bahala na while i was transferring to the toilet bowl the lower part of my left leg kind of hit my wheelchair i have a big tumor inside it and although it doesn t really hurt that leg reacts and jerks every time that happens it happened and fortunately it happened when i was about to sit on the bowl and so i have to transfer from the toilet bowl to the wheelchair my mom lifted me up again my left leg felt so weak and i can feel my mom s brittle bones and i was afraid t to tighten my hold on her brittle bones i tried holding on to the flat wall but my hand just slipped we were about to fall and then my mom pushed me on the wheelchair so that i won t land on the floor i was slouched on the wheelchair my butt on the air only my hips up to my back were touching the wheelchair i haven t wore my underwear and shorts yet and the worst part is my mother s hips back and spine were aching thankfully the janitress was on standby outside the cubicle door when my mom opened it to ask for help because i was still slouched and hanging on the wheelchair without underwear and shorts because of their lack of sensitivity and concern for the pwds my mom s weak and brittle bones that are often in pain became weaker and she need to undergo rehabilitation therapy she has lupus also the so called pwd cubicle is not big enough the wheelchair can t navigate properly if this happened to us how about the other pwds who will be using that so called pwd toilet cubicle the management kept saying that there are the pwd toilets on the other floor levels and why not on the 4th floor then i don t think it s not that hard to attach bars on the toilet wall that the pwds can hold on to i am really looking forward for you to take action and investigate on this it s not only for my sake or my mom but for the pwds who will also use that toilet in the future sincerely maria kathrina lopez yarza how can i transfer from my wheelchair to the toilet bowl wiwing wiwi na ko talagang talaga ___________________ we are also filing a complaint against the fisher mall management for my mom s injury ___________________ i depend a lot on her since i am partially paralyzed totally deaf and half blind and her mobility after that incident is quite restricted now what if i fell from my wheelchair during that incident i repeat maliit na cubicle lang siguro para sa fisher mall kaya ang dali nilang balewalain pero malaking bagay ito para sa mga pwd ___________________ so ncda wrote a letter to fisher mall quezon city mayor s office and also forwarded my letter to them ___________________ they placed a pwd sticker on the door of the cubicle tabingi pa my mom said may 4 2018 even though her hips were still in pain due to the accident my mom went to fisher mall to file a file a formal complaint again they accepted it this time the letter but i but not their mistake my mom saw the so called pwd cubicle of the said toilet and they already placed small bars on the wall and pwd on the door i repeat small bars maybe they were thinking pwede na yan still there s not enough railings and it s not big enough to fit a wheelchair when we went there the following day after the accident may 22 2nd day of the powerlifting competition my sister even folded my wheelchair while i was seated on the toilet bowl so that she can move around and assist me while i was peeing t hey placed small grab bars inside the cr cubicle that is intended daw for mothers and housewives and not for pwds ___________________ letter from dizon dizon associates all the way from baguio city one for my mom one for me may 21 2018 my mom and i both received a copy furnished letter addressed to ncda from fisher mall s lawyer lies excuses sarcasm insults lack of sensitiveness those were the contents of the letter on that particular occasion the person on duty offered to accompany the mother and daughter to the pwd restroom but the offer was sternly rebuffed talaga lang ha aok this is very insulting whatever share posted by unknown 12 52 am 0 comments monday april 23 2018 you are pwd unfriendly fisher mall i decided not to make my unlove letter to fisher mall because don t like hate and i choose action instead my mom tried filing a complaint to fisher mall management the next day to no avail wala sunday we went back to fisher mall for the second day event my mom went to the ladies cr to look for the janitress who helped us and sign as witness to the photos we took inside the cubicle but she referred my mom to a person from an admin office representative according to ms jendrean lo a tenant relations officer that wide door cubicle is intended for pwd but my mom reitererated how can you say it s for pwd not a single railing inside then ms lo said mam sa ibang floors po may pwd cr all floors must have pwd cr and to think that 4th floor is where their events hall are so we filed a complaint directly to national council on disability affairs ncda and here s the draft of my letter dear ncda greetings last april 21 2018 i have learned that fisher mall in quezon city is pwd unfriendly because it hurt my feelings and hurt my mom s lower back spine i am a pwd my mom is a pwd both of us have orthopedic disability we went to fisher mall to watch the national open age group raw powerlifting completion that was held on the event hall on the mall s 4th floor while watching the event i told my mom that i need to pee and asked her to bring me to the toilet luckily my dad was there to push my wheelchair because the toilet is a bit far from the event hall and since my mom uses a cane to walk it ll be hard for her to push my wheelchair alone so we reached the toilet area there is no pwd toilet good thing there s a designated cubicle for pwd good thing or so i thought since it is a women s toilet my dad can t go inside so it was only me and my mom and that s alright because she s been assisting me in a pwd toilet for years and it s not that hard since there are bars that we can hold on to that helps us in keeping our balance with a flat wall and nothing to hold on to except my frail mother we were looking around and tried to figure out how i can transfer from the wheelchair to the toilet bowl we really can t think of any easy way we still can t figure it out and i want to pee already bahala na while i was transferring to the toilet bowl the lower part of my left leg kind of hit my wheelchair i have a big tumor inside it and although it doesn t really hurt that legs reacts and jerks every time that happens it happened and fortunately it happened when i was about to sit on the bowl and so i have to transfer from the toilet bowl to the wheelchair my mom lifted me up again my left leg felt so weak and i can feel my mom s brittle bones and i was afraid to hold on to tighten my hold on her brittle bone i tried holding on to the flat wall but it just slipped we were about to fall and then my mom pushed me on the wheelchair so that i won t land on the floor i was slouched on the wheelchair my butt on the air only my hips up to my back were touching the wheelchair i haven t wore my underwear and shorts yet and the worst part is my mother s hips back and spine were aching thankfully the janitress was on standby outside the cubicle s door when my mom opened it to ask for help because i was still slouched and hanging on the wheelchair without underwear and shorts because of their lack of sensitivity and concern for the pwds my mom s weak bones that are often in pain became weaker and she need to undergo rehabilitation therapy also the so called pwd cubicle is not big enough the wheelchair can t navigate properly pwd door if this happened to us how about the other pwds who will be using that so called pwd toilet cubicle the management kept saying that there are the pwd toilets on the other floor levels and why not on the 4th floor then i don t think it s not that hard to attach bars on the toilet wall that the pwds can hold on to i am really looking forward for you to take action and investigate on this it s not only for my sake or my mom but for the pwds who will also use that toilet in the future sincerely maria kathrina lopez yarza we are also filing a complaint against the fisher mall management for my mom s injury i depend a lot on her since i am partially paralyzed totally deaf and half blind and her mobility after that incident is quite restricted now what if i fell from my wheelchair during that incident share posted by unknown 6 02 pm 0 comments monday april 09 2018 today was my most awaited night like always michelle kathreen had a joint birthday celebration and sponsored our kainan sa labas ng bahay dinner it s something we really enjoyed doing since we we re kids our first salu salo dinner sa labas ng bahay was tuyo going back so we had dinner a few hours ago and i was really amazed with what i saw yes saw i saw the food and things on the table i saw the utensils i saw their faces i saw their gestures i saw their moving lips i saw the foods on my plate i saw this i saw that my vision is still kinda blurry but i saw since last year whenever we would eat outside the house with friends and or family i would always complain that it s too dark and i can t recognize the people the food especially the food on my plate so after eating as i say i ll just eat and run and go inside the house once i would finished eating and there were times that i chose not to come outside and have then bring the plate with food to me it s really annoying so instead of staying annoyed i choose ti come where the bright light is from wala naman akong masyadong nakikita kaya papasok nalang ako sa bahay to papasok na ko kasi magku kwento pa ko sa blog why the title teacher michelle s creamy carbonara na masarap share posted by unknown 11 14 pm 0 comments wednesday january 24 2018 today it s 200 filipino nf friends i m not sure if it s okay to be happy about this but i am so glad ever since i met my first nf friend ate cel i ve started listing down the names of my nf friends wala lang gusto ko lang i started writing it on notepad the app and then the names on the list reached 15 so i transferred it to ms excel while we were hoping that we ll be plenty enough to be able to form a support group and then nff support group was born i keep revising and editing the list as our members grew in number when it reached 50 i wished that if only i can group the members according to theeir location so that they ll know who lives near who but i think it won t be fair for some if nobody else is located near them fast forward to today we already have 65 nf friends from metro manila 12 nf friends in rizal 14 nf friend in laguna 13 nf friends in cavite 8 nf friends in bulacan 10 nf friends in southern luzon 23 nf friends in northern luzon 27 nf friends in visayas 17 nf friends in mindanao and 10 filipinos with nf from outside the country once again i have mixed feelings about this happy that we already have a lot of members and it s now a 3 digit number sad that there are a lot of us who have nf and then very happy that we found each other we are really not alone the other night while i was arranging organizing the list i suddenly felt so amazed happy grateful all at the same time and so i posted this it goes something like this when there are members who were able to find nff support group because a random person approached them and asked do you have nf and then told them about neurofibromatosis friends philippines when there a students who send messages to the nff page because of their case study thesis or assignment that is about nf nf may still be not that known and a lot of people are still not aware about it but tears of joy because even if it s something small and only a few people knows about it still there is something it s just like the saying every cent counts big things are made of small things right share posted by unknown 9 19 pm 0 comments labels neurofibromatosis friday december 01 2017 i was sad today past tense i suddenly felt sad so sad i remembered my dream last night this morning there will be a gift giving event like may birthday project that s going to happen on january and i was very happy and so excited no i wasn t the one who organized it but i was really really excited to join and then i woke up while i was taking a shower a while ago i suddenly thought of that dream and then i felt really really sad i was crying without tears but it s a bit dramatic coz the water from the shower was pouring now i am laughing when i think about it haha why am was i sad because ever since may birthday project mbp ended 2 years ago i don t hear not literally or read much about gift giving events like that anymore except for the gift of hearing of ma am iche mommy g s advocacy projects ate cres upcoming event for pwd kids when there was mbp for 9 years it seems like there were lots of gift giving events like that here and there and then wala na i m not talking about those that were organized by a certain group organizations or companies but ordinary citizens like you and me in those 9 years i have proven that we don t have to be a celebrity politician or someone who s rich and has a lot of money in order to do something like that from something that was so small together with my close friends family i was able to start it i did it i continue doing it and surprisingly it became bigger and better year after year from 2007 to 2015 we really had to to end it after the 9th mbp and i seems to me that the joy of caring sharing that mbp also ended with it and i am very disappointed i know it s not my fault for ending it but i can t help but feel so bad para kasing ako lang ang sa tuwa ng mga nabigyan namin kahit alam ko na hindi naman ganon ganyan lang talaga ako mag drama p it s just so sad and i comforted myself with 9 years worth of happy faces from all the mbp and prevent myself from crying hyperventilating i don t really know why i ve suddenly thought about this maybe because it s the december 1 today and btw i m not so sad anymore advance merry christmas everyone share posted by unknown 8 46 pm 0 comments monday november 27 2017 it s a wonderful life when i read ate pam roman s post about the wonder movie block screening of psod i was so ecstatic a post shared by kcat yarza kcatyarza on nov 23 2017 at 7 42pm pst when given the choice between being right or kind choose kind juan dickoy magdaraog organized this event in celebration of his 40 th birthday when he was diagnosed with pompe disease a rare neuromuscular disorder they we re told that he won t be able to reach past 30 and he will be turning 40 tomorrow a wonderful milestone for him and to commemorate this dickoy wanted to do something meaningful it s not just meaningful it s wonderful greatness is not being strong but using strength to carry the most hearts last november 25 dicko...
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