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Text of the page (random words):
we went to my neurosurgeon and had ct scan of the brain to check if something s wrong with my tambay brain tumors because i ve been having headaches and my weak left leg became even weaker so instead of my yearly ct scan check up in may it was done 3 months earlier tadaaa three brain tumors increased in size and the tumor somewhere on the cerebrum tentorium that s located somewhere in the middle of the brain that s about 3 4 cm is symptomatic and needs immediate treatment via fractionated stereotactic radiation therapy fsrt headache while sleeping upon waking up headache whenever wherever the inside of my head feels so hot there are times when somewhere inside of my head would suddenly shake with pain and then i would cringe i would feel like falling and my left leg would jerk kick that happens when my eyes are closed while i am sleeping or while i m seated and resting my weak left leg got even weaker it s really hard to take a step i can t do my walking exercises anymore it s so hard to control my left leg foot sometimes it suddenly stiffens and i suddenly can t control it when i m looking straight ahead i can t really see what s on my right side it s like it turns into gradient black effect i keep on drooling my saliva production is unlimited haha it s hard to chew my food my dentist already fixed my teeth but what really worsens it is my swallowing it s hard food won t enter my throat at once most of the foo ds that i eat just gets stuck around my mouth most of the foods that came in my mouth would come out from my mouth too pieces by pieces all of these were not caused by only one tumor nut one tumor really needs to be treated the most symptomatic one and of course it ll costs a lot that s a lot of problems right but instead of focusing on our problems let s focus on the solution in its place though the solution for it costs almost half a million pesos for just one tumor why radiation because it s hard to be removed and i ve gone through a lot of ope head brain surgeries too the fsrt needs to be started soon how soon is soon in a week or two i don t really want to ask for people s hard earned money that is why i would sell something that i created with my heart brain to raise funds for my medical needs but this time i can t really do that because of some things hurdles and limitations this is why i am knocking at the doors of your heart every cent counts right i m not sure if you need me but i need you you can donate any amount on my bank account remember there s no big or small in helping help is help and helping doesn t only come in the form of money you can also help me and be with me by spreading this posts and sharing this with everyone you can pray with me and you can just be there cheering for me put in mind that i am someone who really appreciates even the smallest act of kindness sincerity given by others and i am very grateful io god for making me this way bdo banco de oro sm megamall branch account name maria kathrina lopez yarza savings acct number 00 02 809 824 88 or bpi express savings account 1899 394 7 51 name maria kathrina l yarza after the treatment i also want to start with rehabilitation therapy again so that i can exercise practice walking and regain my strength back and then i will be able to say i m feeling doing goof despite all the odds again and then i ll be back to being ok na ok na ok na ok na ok and continue with fighting and winning this battle because neurofibromatosis nf is a continuous very unpredictable battle in the end i still believe that god is in control and i thank him for using me share posted by unknown 10 48 pm 0 comments tuesday august 21 2018 cheerful givers and kind hearts for my cheerful friend who need our help this is trisha trisha is one of my nf friends who lives in bicol trisha is a fighter and what i love most about trisha is her very positive and cheerful personality is still intact despite all of the odds in her life this was taken when trisha visited me at home last year trisha has neurofibromatosis type 1 nf1 and was diagnosed with sarcoma malignant tumor on her right forearm and her right arm including her hand got amputated recently but the cancer cells already spread and reached her lungs she was already done with 6 cycles of chemotherapy but the cancer keeps spreading and the tumor on her chest got even bigger and she needs to undergo another series of chemotherapy instead of being sad for losing her arm she cheerfully says it s cute we all know that the cost of any kind of medical treatment is so expensive and it s not a light matter cancer treatment at that it s very costly and she and her family are already running out of funds it s continuously depleting and then the money s gone it went to chemotherapy sessions hospitalizations lots of medicines oxygen tank and other medical needs trisha was a bit hesitant and shy to ask for help at first but because she really don t know anymore where to get money for her much need treatments she bravely asked one of our nf friends for help hmmm can i ask for your help she continues borrow sana ako ng any amount pandagdag sa pambili ng meds and then these words pinched our hearts nahihiya ako gurl but wala na kong matakbuhan people need each other right i need you and your kind hearts to help my friend with this battle because she really needs us you may send your donations via bank deposit to her bpi account or send it through cebuana lhuillier pera padala with her mom as the receiver or you can also deposit it to her mom s bdo account here are the details bpi express account name trisha christine amoroso savings account number 3929228323 money transfer cebuana lhuillier name hermosa esta mobile number 0908 126 4783 address block 18 lot 30 camella heights cararayan naga city bdo savings account number 003500030917 account name hermosa esta bdo savings account number 003500030917 account name hermosa esta share posted by unknown 11 04 am 0 comments wednesday may 23 2018 so fisher mall is really really really pwd unfriendly posted april 23 2018 i decided not to make my un love letter to fisher mall anymore because i don t like hate and i choose action instead i was supposed to write ab open letter to fisher mall but decided not to that coz i feel like they will just ignore it just like how they brush off and didn t accept it when my mom tried filing a complaint to the mall s management the nexy day national council on disability affairs ncda it is ___________________ my mom tried filing a complaint to fisher mall management the next day to no avail wala ___________________ sunday we went back to fisher mall for the second day event my mom went to the ladies cr to look for the janitress who helped us and sign as witness to the photos we took inside the cubicle but she referred my mom to a person from an admin office representative according to ms jendrean lo a tenant relations officer that wide door cubicle is intended for pwd but my mom reitererated how can you say it s for pwd not a single railing inside then ms lo said mam sa ibang floors po may pwd cr ___________________ all floors must have pwd cr and to think that 4th floor is where their events halls are kinda wide cr cubicle we were really so surprised when we entered the cubicle ___________________ so we filed a complaint directly to national council on disability affairs ncda and here s the draft of my letter dear national council on disability affairs ncda greetings last april 21 2018 i have learned that fisher mall in quezon city is pwd unfriendly because it hurt my feelings and hurt my mom s lower back spine i am a pwd my mom is a pwd both of us have orthopedic disability we went to fisher mall to watch the national open age group raw powerlifting completion that was held on the event hall on the mall s 4th floor while watching the event i told my mom that i need to pee and asked her to bring me to the toilet luckily my dad was there to push my wheelchair because the toilet is a bit far from the event hall and since my mom uses a cane to walk it ll be hard for her to push my wheelchair alone so we reached the toilet area there is no pwd toilet good thing there s a designated cubicle for pwd good thing or so i thought since it is a women s toilet my dad can t go inside so it was only me and my mom and that s alright because she s been assisting me in a pwd toilet for years and it s not that hard f since there are bars that we can hold on to that helps us in keeping our balance but were really surprised when we went inside the cubicle with a flat wall and nothing to hold on to except my frail mother we were looking around and tried to figure out how i can transfer from the wheelchair to the toilet bowl we really can t think of any easy way we still can t figure it out and i want to pee already bahala na while i was transferring to the toilet bowl the lower part of my left leg kind of hit my wheelchair i have a big tumor inside it and although it doesn t really hurt that leg reacts and jerks every time that happens it happened and fortunately it happened when i was about to sit on the bowl and so i have to transfer from the toilet bowl to the wheelchair my mom lifted me up again my left leg felt so weak and i can feel my mom s brittle bones and i was afraid t to tighten my hold on her brittle bones i tried holding on to the flat wall but my hand just slipped we were about to fall and then my mom pushed me on the wheelchair so that i won t land on the floor i was slouched on the wheelchair my butt on the air only my hips up to my back were touching the wheelchair i haven t wore my underwear and shorts yet and the worst part is my mother s hips back and spine were aching thankfully the janitress was on standby outside the cubicle door when my mom opened it to ask for help because i was still slouched and hanging on the wheelchair without underwear and shorts because of their lack of sensitivity and concern for the pwds my mom s weak and brittle bones that are often in pain became weaker and she need to undergo rehabilitation therapy she has lupus also the so called pwd cubicle is not big enough the wheelchair can t navigate properly if this happened to us how about the other pwds who will be using that so called pwd toilet cubicle the management kept saying that there are the pwd toilets on the other floor levels and why not on the 4th floor then i don t think it s not that hard to attach bars on the toilet wall that the pwds can hold on to i am really looking forward for you to take action and investigate on this it s not only for my sake or my mom but for the pwds who will also use that toilet in the future sincerely maria kathrina lopez yarza how can i transfer from my wheelchair to the toilet bowl wiwing wiwi na ko talagang talaga ___________________ we are also filing a complaint against the fisher mall management for my mom s injury ___________________ i depend a lot on her since i am partially paralyzed totally deaf and half blind and her mobility after that incident is quite restricted now what if i fell from my wheelchair during that incident i repeat maliit na cubicle lang siguro para sa fisher mall kaya ang dali nilang balewalain pero malaking bagay ito para sa mga pwd ___________________ so ncda wrote a letter to fisher mall quezon city mayor s office and also forwarded my letter to them ___________________ they placed a pwd sticker on the door of the cubicle tabingi pa my mom said may 4 2018 even though her hips were still in pain due to the accident my mom went to fisher mall to file a file a formal complaint again they accepted it this time the letter but i but not their mistake my mom saw the so called pwd cubicle of the said toilet and they already placed small bars on the wall and pwd on the door i repeat small bars maybe they were thinking pwede na yan still there s not enough railings and it s not big enough to fit a wheelchair when we went there the following day after the accident may 22 2nd day of the powerlifting competition my sister even folded my wheelchair while i was seated on the toilet bowl so that she can move around and assist me while i was peeing t hey placed small grab bars inside the cr cubicle that is intended daw for mothers and housewives and not for pwds ___________________ letter from dizon dizon associates all the way from baguio city one for my mom one for me may 21 2018 my mom and i both received a copy furnished letter addressed to ncda from fisher mall s lawyer lies excuses sarcasm insults lack of sensitiveness those were the contents of the letter on that particular occasion the person on duty offered to accompany the mother and daughter to the pwd restroom but the offer was sternly rebuffed talaga lang ha aok this is very insulting whatever share posted by unknown 12 52 am 0 comments monday april 23 2018 you are pwd unfriendly fisher mall i decided not to make my unlove letter to fisher mall because don t like hate and i choose action instead my mom tried filing a complaint to fisher mall management the next day to no avail wala sunday we went back to fisher mall for the second day event my mom went to the ladies cr to look for the janitress who helped us and sign as witness to the photos we took inside the cubicle but she referred my mom to a person from an admin office representative according to ms jendrean lo a tenant relations officer that wide door cubicle is intended for pwd but my mom reitererated how can you say it s for pwd not a single railing inside then ms lo said mam sa ibang floors po may pwd cr all floors must have pwd cr and to think that 4th floor is where their events hall are so we filed a complaint directly to national council on disability affairs ncda and here s the draft of my letter dear ncda greetings last april 21 2018 i have learned that fisher mall in quezon city is pwd unfriendly because it hurt my feelings and hurt my mom s lower back spine i am a pwd my mom is a pwd both of us have orthopedic disability we went to fisher mall to watch the national open age group raw powerlifting completion that was held on the event hall on the mall s 4th floor while watching the event i told my mom that i need to pee and asked her to bring me to the toilet luckily my dad was there to push my wheelchair because the toilet is a bit far from the event hall and since my mom uses a cane to walk it ll be hard for her to push my wheelchair alone so we reached the toilet area there is no pwd toilet good thing there s a designated cubicle for pwd good thing or so i thought since it is a women s toilet my dad can t go inside so it was only me and my mom and that s alright because she s been assisting me in a pwd toilet for years and it s not that hard since there are bars that we can hold on to that helps us in keeping our balance with a flat wall and nothing to hold on to except my frail mother we were looking around and tried to figure out how i can transfer from the wheelchair to the toilet bow...
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