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tle adventure then nap time and a movie night picnic back at the house we set up the projector and watched about an hour of cars before the tiny tots got bored and we moved on to playing with henry s new toys all in all the celebration was great we had such a happy day these are the days i want to bottle up and keep perfectly preserved forever and in terms of a henry update here are the facts height 3 1 39th percentile weight 33 lbs 65th percentile random tid bits henry can count to 6 in spanish 10 with assistance he has a hard time remembering 7 and 10 he can spell his name and knows his birthday henry is incredibly verbal he speaks just as fluently as his sister so i won t bore you with the bazillion words and phrases he has henry is very clumsy and falls often henry continues to be the snuggliest little dude ever he is always there for a hug and or smooch this morning he randomly told me that huggies are like snuggles true henry has very dry warm hands holding his hand fills my little heart when henry melts down crying he often times will say through heavy sobs maaammmmy i need a huggy shweetie snuggler henry is a pretty big manipulator when he does something naughty and i kneel down to tell him that he cannot do said thing he cups my face with his warm paws and says i m sorry mommy i won t do it again then mommy buys henry a pony henry has been in a pinching pretend biting phase with charlotte never too hard but enough to piss her off thankfully he s still perfect henry says charlotte with a hard ch sound and refers to her as my charlotte henry still naps every day henry loves music and sings a lot h has serious passion for baseball and sports in general henry often times wears his pants underwear and shirt backwards when henry rides his tricycle he reminds me of the intro to the show bobby s world henry insists on sleeping with his door open typically with his arms above his head he s a light sleeper so i tend to sneak in for smooches before i go to bed henry loves hard boiled eggs which he calls hard oiled eggs and avocado which he calls adocado he eats like a tank it is not uncommon for him to eat multiple bowls of cereal oatmeal 1 2 hard boiled eggs turkey and fruit all of that at one breakfast henry sometimes sneaks in charlotte s room at night because he doesn t like to be alone henry always falls asleep gripping some toy a car a train a ring etc henry picks out his own clothes and gets dressed by himself every morning he also puts his shoes on and packs up unpacks his backpack daily henry loves trucks and dinosaurs henry s little mouth reminds me of my grandpa henry up until about 2 weeks ago we had henry on a strict no dairy no soy no sunflower oil no coconut diet to try to help with his chronic loose poops it stopped helping so we ve since lifted the food restrictions h is now living his best life henry has a very captivating quality about him people tend to fall in love with him instantaneously upon meeting him he has a loud squeaky voice and speaks very well for his age which tends to catch the attention of strangers henry is a boy to love he is very kind hearted and the sweetest little guy i ve ever met he s also incredibly bright and perceptive as a completely unbiased source you know these things are 100 true henry is happy henry smiles with every inch of his body i love my baby henry looks up to his sister and loves going to the same school as her their teachers tell me that they often play together at school mostly h with c s friends they frequently walk around the playground holding hands or with c s arms around him despite his little pinchy biting phase they are the best of buds henry wakes charlotte up almost every morning he goes into her room wakes her and then they play together until their kiddie alarm clock turns green signaling that they can come out of their rooms at dinner time henry rates my meals with a thumbs up down or sideways posted in family holidays preschooler raising a boy second baby siblings toddler tagged birthday family henry morris leave a comment the dragon posted on may 16 2019 by playinghousewi on january 29th i went to my primary care doctor for a lump on my abdomen i had been noticing the lump for at least a month typically during my workouts but hadn t really thought much of it then during one of the 4 snow days we had in january i decided to google lump on abdomen the results led me to go see my doc the next day at that first visit my doc used the phrase tumor on your abdominal wall about 3 times i quickly scheduled an ultrasound and continued googling as i waited for the ultrasound appointment i became a bit of a recluse it s interesting because i m typically a wide open book but there was something about this fear that was different than anything i had experienced in my life thus far i didn t want to talk about it it was too much mark came to the ultrasound appointment with me we were both so nervous the last time i had been there was to see our sweet henry in the womb definitely a different experience this time the ultrasound tech who was the same tech we had during my pregnancies eventually ended up telling me to relax it looks like a hematoma from a sports injury definitely not something to be overly concerned about okay deep breath i then went to the surgeon my primary care doc recommended he confirmed that it s likely a hematoma i was told to watch and wait for 6 weeks despite not having any real sports injury i do work out at orangetheory 4 6 times per week and they thought that my fruit pit of a lump was likely from a torn muscle a hematoma should go down in size so we d wait and reevaluate after 2 or so weeks i started to feel what seemed like another lump i called and they told me to keep watching by the next week there was definitely another of course i couldn t get back into my doc for another week or two but when i did we began a new little journey there was in fact another and it was time to retire the hematoma theory and move on to the zebra the rarity my doc scheduled me for a ct scan i was back to panicking i spoke to a friend s dad who suggested it might be a schwanoma my doctor had listed everything from a sarcoma to breast cancer nothing was off limits there was lots of waiting only to find out that the ct scan was inconclusive next step needle biopsy i m going to be honest i was not overly concerned about pain from this and was very unpleasantly surprised during and after i assumed it was like a shot i was wrong i had driven myself to the doc and met my husband there i called him on my way back home and all of a sudden the pain and overwhelming emotion hit i had to go all i could do was just drive i had to get home crawl into bed and just be in darkness my doctor had told me that the needle biopsy had something like a 92 diagnosis rate no surprise that after waiting the weekend for results i was told that the results came back inconclusive the next step was surgery for someone who lives in the black and white i was really stuck in grey so much unknown so many people telling me i would be okay that it was probably nothing that i shouldn t worry but me knowing that nobody knew how it was actually going to end up the surgery was hard for me to swallow my surgeon would go in he would perform a biopsy and send it to the lab while i was under depending on the results he would either leave the tumor in remove the tumor only or do a wide resection removing the tumor and healthy muscle and tissue i would get to find out upon waking up the whole thing was so surreal i got to the hospital with mark on march 21 2019 first thing in the morning mark insisted on taking pictures and of course got a good laugh out of me then my parents came in pure dad form he was cracking jokes making me laugh distracting me maybe throwing in a few of his i totally know how this goes comments because my dad knows everything yes i m being sassy then my mil came and i instantly got choked up i pulled it together until my surgeon came to get me then as i got wheeled away i couldn t help but cry my little eyes out and warn the doc not to say anything scary or weird while i was under i got into the surgical room still crying they asked me what kind of music i wanted to which totally threw me i think i said something like folk pop music which in hindsight makes me laugh i have no idea if music ever played next thing i know i was waking up in recovery when i came to i was told that they removed the tumor and just the surrounding healthy muscle tissue not a wide resection okay good the tumor was likely a desmoid tumor which would be confirmed when the final biopsy results came in on march 25th a desmoid tumor is a rare 2 4 people per million sarcoma it is typically not considered cancerous because it does not metastasize to other areas of the body however it is locally malignant and seems to have a high recurrence rate my surgeon made what i believe to be a good judgement call he preserved my healthy muscle and tissue but as a result left 50 positive margins aka 50 of the sides that were touching the tumor still have microscopic traces of desmoid cells i was released from the hospital the same day as my surgery to be honest i m still surprised by that i ve had two c sections and the pain from this surgery topped them both exponentially everything now seems like a blur but the pain was just terrible mark would have to lay me down and lift me up to go to the bathroom in fact he even had to pull my pants off and put them back on for me lovely huh i could barely walk and was most definitely not getting out of bed the next three weeks are a bit of a blur for me i was back in my reclusive state i was hurting and i was scared i had a very hard time talking about what was ahead and talking about the diagnosis in general i was emotionally unstable which was so foreign to me i ve always been more of a stuff the emotions down kind of person but here i was bawling my eyes out over the smallest things calling my parents in sobs just unrecognizable that was the hardest part but the light was my amazing husband our babies and our families and friends who legit kept us together but then a little light we found the desmoid tumor research foundation and they happen to be hosting a patient meeting in mid april our families urged us to go which honestly helped a lot i was at the 3 5 week mark when we went i was still sore but feeling way better and mentally i was starting to get a grip i actually had to be in charlotte for a work convention earlier that week so i met mark in sunny california for the conference we stayed with his family who lives out there we spent a full day exploring san francisco and a full day not really thinking about my diagnosis just being us it was perfect then the next day we had an amazing conference we were able to talk with docs who specialize in desmoids and get answers to our specific questions we left feeling informed and empowered socializing cornering the doc when i got back to wisconsin my care started to transition from general surgery to oncology again that was a bit of a pill to swallow it s just scary i met with a geneticist who did full genetic testing to make sure i didn t have fap a genetic disorder that can cause desmoids i met with an oncologist who ordered my post surgical mri and talked to us about options should my tumor return i ve since had one scan which lasted 2 5 hours ugh the results are decently irrelevant until i have a second scan after my surgery i had an apple sized hematoma it has gone down now but i still have what they think is a hematoma or seroma and scar tissue whatever it is has gone down to the size of my original tumor gotta love that right perfect for my paranoid mind my hematoma at about 4 weeks post surgery i will have my next scan in august at that point we are hoping to see that the indefinitive mass has stayed the same or hopefully gone down in size confirming that it is truly just the after effects of surgery if i have a clean scan assuming no tumor i will continue to have 2 4 mris per year to monitor and make sure i remain tumor free if the tumor returns we will look at cryoblation which essentially freezes the tumor cells chemotherapy and or radiation but for now i live i have taken my head out of the sand and resumed to normal living things are good i feel good i still get pains at the tumor site but i am back to working out and just all around normal life every so often i start over thinking things but 99 of the time i am good and i am grateful this will not kill me and i hope that what doesn t kill you makes you stronger posted in desmoid tumor family healthy living tagged abdominal wall desmoid desmoid tumor 5 comments coffee with char posted on march 5 2019 by playinghousewi mark has been super busy at work lately so instead of him driving henry to school on mondays and fridays while i wait at the house for nana with charlotte c i have been taking henry to school and meeting nan at our favorite coffee shop our little 3 way dates are adorable charlotte really shines in these moments she s talkative and expressive absurdly sweet and charismatic she is just a total gem i love taking pictures of her in these moments as she picks at her muffin or scone or whatever baked good she s conned me into buying her she s like a squirrel nibbling at the most sugary parts first as she speaks with full expression hand motions and all as she soaks in the undivided attention from nan i it s such special time with my big girl posted in family kindergarten preschooler raising a girl tagged charlotte gitel 2 comments hand holding posted on march 5 2019 by playinghousewi sometimes hem just wants to hold my hand while we re in the house while he s eating breakfast as we re walking from one room to another whenever and when he does my heart melts into a little puddle and one of my girl from the same day he s definitely the biggest smoocher i know just a total cuddly lovey pie posted in family raising a boy toddler tagged henry morris leave a comment post navigation older posts search follow playing house on wordpress com follow via email enter your email address to follow playing house and receive notifications of new posts by email email address follow categories addiction baby bump desmoid tumor diy drug addiction drugs family first pregnancy healthy living holidays kindergarten my style new baby new baby new infant 42 weeks post due rcsec second pregnancy preschooler product review professional photos raising a boy raising a girl recipes second baby second pregnancy siblings sugar cookies toddler uncategorized recent posts snuggles glamping finter 2019 bffs ️ goodbye school hello summer archives november 2019 june 2019 may 2019 march 2019 february 2019 december 2018 october 2018 august 2018 july 2018 june 2018 may 2018 march 2018 february 2018 january 2018 october 2017 september 2017 july 2017 june 2017 may 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