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lab while i was under depending on the results he would either leave the tumor in remove the tumor only or do a wide resection removing the tumor and healthy muscle and tissue i would get to find out upon waking up the whole thing was so surreal i got to the hospital with mark on march 21 2019 first thing in the morning mark insisted on taking pictures and of course got a good laugh out of me then my parents came in pure dad form he was cracking jokes making me laugh distracting me maybe throwing in a few of his i totally know how this goes comments because my dad knows everything yes i m being sassy then my mil came and i instantly got choked up i pulled it together until my surgeon came to get me then as i got wheeled away i couldn t help but cry my little eyes out and warn the doc not to say anything scary or weird while i was under i got into the surgical room still crying they asked me what kind of music i wanted to which totally threw me i think i said something like folk pop music which in hindsight makes me laugh i have no idea if music ever played next thing i know i was waking up in recovery when i came to i was told that they removed the tumor and just the surrounding healthy muscle tissue not a wide resection okay good the tumor was likely a desmoid tumor which would be confirmed when the final biopsy results came in on march 25th a desmoid tumor is a rare 2 4 people per million sarcoma it is typically not considered cancerous because it does not metastasize to other areas of the body however it is locally malignant and seems to have a high recurrence rate my surgeon made what i believe to be a good judgement call he preserved my healthy muscle and tissue but as a result left 50 positive margins aka 50 of the sides that were touching the tumor still have microscopic traces of desmoid cells i was released from the hospital the same day as my surgery to be honest i m still surprised by that i ve had two c sections and the pain from this surgery topped them both exponentially everything now seems like a blur but the pain was just terrible mark would have to lay me down and lift me up to go to the bathroom in fact he even had to pull my pants off and put them back on for me lovely huh i could barely walk and was most definitely not getting out of bed the next three weeks are a bit of a blur for me i was back in my reclusive state i was hurting and i was scared i had a very hard time talking about what was ahead and talking about the diagnosis in general i was emotionally unstable which was so foreign to me i ve always been more of a stuff the emotions down kind of person but here i was bawling my eyes out over the smallest things calling my parents in sobs just unrecognizable that was the hardest part but the light was my amazing husband our babies and our families and friends who legit kept us together but then a little light we found the desmoid tumor research foundation and they happen to be hosting a patient meeting in mid april our families urged us to go which honestly helped a lot i was at the 3 5 week mark when we went i was still sore but feeling way better and mentally i was starting to get a grip i actually had to be in charlotte for a work convention earlier that week so i met mark in sunny california for the conference we stayed with his family who lives out there we spent a full day exploring san francisco and a full day not really thinking about my diagnosis just being us it was perfect then the next day we had an amazing conference we were able to talk with docs who specialize in desmoids and get answers to our specific questions we left feeling informed and empowered socializing cornering the doc when i got back to wisconsin my care started to transition from general surgery to oncology again that was a bit of a pill to swallow it s just scary i met with a geneticist who did full genetic testing to make sure i didn t have fap a genetic disorder that can cause desmoids i met with an oncologist who ordered my post surgical mri and talked to us about options should my tumor return i ve since had one scan which lasted 2 5 hours ugh the results are decently irrelevant until i have a second scan after my surgery i had an apple sized hematoma it has gone down now but i still have what they think is a hematoma or seroma and scar tissue whatever it is has gone down to the size of my original tumor gotta love that right perfect for my paranoid mind my hematoma at about 4 weeks post surgery i will have my next scan in august at that point we are hoping to see that the indefinitive mass has stayed the same or hopefully gone down in size confirming that it is truly just the after effects of surgery if i have a clean scan assuming no tumor i will continue to have 2 4 mris per year to monitor and make sure i remain tumor free if the tumor returns we will look at cryoblation which essentially freezes the tumor cells chemotherapy and or radiation but for now i live i have taken my head out of the sand and resumed to normal living things are good i feel good i still get pains at the tumor site but i am back to working out and just all around normal life every so often i start over thinking things but 99 of the time i am good and i am grateful this will not kill me and i hope that what doesn t kill you makes you stronger posted in desmoid tumor family healthy living tagged abdominal wall desmoid desmoid tumor 5 comments coffee with char posted on march 5 2019 by playinghousewi mark has been super busy at work lately so instead of him driving henry to school on mondays and fridays while i wait at the house for nana with charlotte c i have been taking henry to school and meeting nan at our favorite coffee shop our little 3 way dates are adorable charlotte really shines in these moments she s talkative and expressive absurdly sweet and charismatic she is just a total gem i love taking pictures of her in these moments as she picks at her muffin or scone or whatever baked good she s conned me into buying her she s like a squirrel nibbling at the most sugary parts first as she speaks with full expression hand motions and all as she soaks in the undivided attention from nan i it s such special time with my big girl posted in family kindergarten preschooler raising a girl tagged charlotte gitel 2 comments hand holding posted on march 5 2019 by playinghousewi sometimes hem just wants to hold my hand while we re in the house while he s eating breakfast as we re walking from one room to another whenever and when he does my heart melts into a little puddle and one of my girl from the same day he s definitely the biggest smoocher i know just a total cuddly lovey pie posted in family raising a boy toddler tagged henry morris leave a comment post navigation older posts search follow playing house on wordpress com follow via email enter your email address to follow playing house and receive notifications of new posts by email email address follow categories addiction baby 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2014 november 2014 october 2014 september 2014 august 2014 july 2014 june 2014 may 2014 april 2014 march 2014 february 2014 january 2014 december 2013 november 2013 october 2013 watch me grow sweet henry june 23 2016 3 weeks june 30 2016 4 weeks august 2 2016 2 months old september 2 2016 3 months old september 30 2016 4 months old watch me grow sweet charlotte one week old two weeks old three weeks old four weeks old five weeks old six weeks old seven weeks old eight weeks old nine weeks old ten weeks old eleven weeks old twelve weeks old thirteen weeks old fourteen weeks old fifteen weeks old sixteen weeks old seventeen weeks old eighteen weeks old nineteen weeks old twenty weeks old twenty one weeks old twenty two weeks old twenty three weeks old twenty four weeks old twenty five weeks old twenty six weeks old twenty seven weeks old twenty eight weeks old twenty nine weeks old thirty weeks old thirty one weeks old thirty two weeks old thirty three weeks old bump check pregnancy 2 7 weeks 3 days 10 2 15 8 weeks 10 6 15 9 weeks 10 13 15 10 weeks pregnant 10 22 15 11 weeks 10 29 15 12 weeks 11 6 15 13 weeks 4 days 11 17 15 15 weeks 11 27 15 16 weeks 2 days 12 6 15 17 weeks 12 11 15 18 weeks 4 days 12 22 15 20 weeks 1 5 16 21 weeks 1 day 1 9 16 22 weeks 4 days 1 19 16 23 weeks 1 22 16 24 weeks 3 days 2 1 16 26 weeks 5 days 2 18 16 27 weeks 4 days 2 23 16 28 weeks 1 day 2 27 16 31 weeks 3 18 16 32 weeks 3 25 16 33 weeks 3 days 4 5 16 34 weeks 5 days 4 13 16 36 weeks 4 22 16 37 weeks 3 days 5 2 16 40 weeks 5 20 16 41 weeks 4 days 5 31 16 bump check pregnancy 1 charlotte 4 weeks 1 day taken in the bloated evening before it was confirmed that i was pregnant actually 2 weeks 5 days 6 weeks 2 days taken in the morning don t be fooled by the bulge i ve always had a little bit of a tum actually 5 weeks 7 weeks taken in the morning i m starting to think that might actually be a baby bulge not a fat bulge actually 5 weeks 5 days 8 weeks 1 day taken in the morning if you re wondering why i m always laughing it s because of my husband photographer he makes this weird face like you would for a child gets me laughing every time actually 6 weeks 6 days 8 weeks 1 day or 10 weeks 6 days taken in the morning until my next ultrasound on november 25th i m officially refusing all due dates and am lost somewhere between 8 and 11 weeks please note my sweet puppito in the lower right corner what a babe actually 8 weeks 4 days 9 weeks 4 days taken in the morning i wasn t in the mood for a picture today my husband s remark as you get bigger taking photos is going to get harder and is going to be less fun i concur 10 weeks 5 days december 4 2013 this is my happy face today laced with hormones exhaustion and a whole heck of a lot of snot 11 weeks december 6 2013 i feel like every week of this trimester has looked different but not progressive i m guessing that my bff bloat has been playing a large role 12 weeks december 13 2013 we finally hit the 12 week mark so exciting as for my tum in this picture it doesn t look much different but clothed it s more noticeable could be bloat could be baby could be fat regardless there is more there now than there was before and the baby is the size of a lime 13 weeks december 20 2013 today the little babe is anywhere between 2 5 3 inches crazy how fast he or she has grown and will continue to grow these coming weeks by next week the baby will be 3 5 4 inches crazy stuff anyway my stomach doesn t look so different in this picture but it s definitely more noticeable in clothes 14 weeks 4 days december 31 2013 it s officially my last pregnant day of 2013 as of tomorrow it will be the year our baby comes 15 weeks 5 days january 8 2014 i feel like my little belly is really shaping up to look pretty darn pregnant i know that s the point but i was so surprised when i saw this picture i made my husband examine it at which point he reminded me that he knows because he took the photo ps taken in the morning 16 weeks 5 days january 15 2014 i need to get better at posting on fridays anyway the belly continues to grow not sure if its much different than last week but maybe a little ps toby s not wearing a sweater that is called a puppy bumper which is a weird collar thing to prevent him from fitting through the slats in our fence these are 5 lb dog problems 17 weeks january 17 2014 i haven t worked out once this week which did not leave me excited for this week s photo but our little baby is growing in there and is 4 5 5 and 3 5 oz already 18 weeks january 24 2014 another new week is here and only 2 more until i hit the half way point so exciting i can t even stand it 19 weeks january 31 2014 i can t believe tomorrow is february and that next week is the halfway point time is really flying as of now i ve gained about 10 lbs which is okay maybe a touch high i m feeling great loving life and really enjoying being pregnant in fact this morning i felt a super baby movement that i thought could have potentially been felt from the outside i ll have to pay attention seems like it s coming soon 20 weeks february 7 2014 we are now officially half way through the pregnancy and time really has just been flying only 140 days until we get to meet our sweet nugget also yesterday marked the first day papa mark was able to feel the baby kick such milestones 21 weeks february 14 2014 bump check from nyc happy valentine s day 22 weeks 5 5 months february 21 2014 i can t believe it s already been 5 5 months what a crazy little journey it s been so far my body is definitely changing and things are really starting to feel more real i can t believe this small nugget will be here in under 5 months 23 weeks february 28 2014 i can t believe next week i ll be 6 months that just seems soo pregnant my belly is definitely growing and is still looking pretty darn pointy right silly little baby bump 24 weeks 6 months march 7 2014 where does the time go seriously i cannot believe we ve made it to the monumental 6 month mark i m not sure why it feels so important but for some reason i ve always had 6 months in my head as the time when you become really pregnant 25 weeks march 14 2014 bump check from sunny mexico 26 weeks march 21 2014 i cannot believe i m 6 5 months when did that happen also i must note that i m very glad my stomach isn t as flaming red as it was a few days ago it is getting pretty large though the baby is about 1 75 lbs and 14 now and she s a little kicking monster this morning i m pretty sure she actually wound up and kicked my bladder full force such a stinker 27 weeks march 28 2014 well well well i m definitely getting pretty darn big it s crazy i don t recognize my own body but i m feeling great pregnancy wise and working to fight off this ick also how cute is toby i swear i didn t even call him he just followed us into the room and sat down to watch me so cute 28 weeks 7 months april 4 2014 okay it s official i m getting huge this buddah belly is really shaping up and out and to 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