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site title: Every Patient's Advocate A blog about patient empowerment, patient advocacy, medical consumerism, and tools patients can use to help them navigate and survive the dysfunction of the American Health Care System.

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Text of the page (random words):
on sense published february 11 2008 about com death general commentary health health medical consumerism healthcare quality intuition medical medical and research studies patient advocacy patient empowerment patient safety patient tools patients patientude pharmaceutical drugs self help closed tags botox botulism cerebral palsy death smoking the fda came out with a report on the negatives of botox injections it s like deja vu isn t it where is common sense read this post at about com patient empowerment the nocebo effect the potentially deadly version of it s all in your head published february 8 2008 patient empowerment closed link here to find this post at the new location of the every patient s advocate blog thanks for stopping by sorry to make you click again when marines become uncitizens a story of misdiagnosis malpractice and outrage published january 31 2008 patient empowerment closed let me begin this post with a bit of a disclaimer my husband is a retired veteran of the air force 20 years before i knew him but that doesn t diminish my pride in the fact that he served our country his son and our daughter in law are both career air force too and our other daughter in law just completed eight years in the air force so yes we are huge supporters of our american soldiers the story i m about to tell you holds several interests and outrages and raises some important questions 1 since when is a soldier not a citizen first 2 how is it that an accurate diagnosis could turn into a misdiagnosis 10 years later this story is told on cbs s evening news about a young soldier sgt carmelo rodriguez who joined the marines in 1997 during his induction physical the doctor noted a mole and called it a melanoma on carmelo s records but nothing was said to carmelo and the paperwork was filed carmelo went through training has spent these ensuing years in the marines and was deployed to iraq where last year the mole began to get inflamed and filled with pus so the sargeant checked in with the military doctor he was told it was a wart and to wait and see sargeant carmelo rodriguez died 18 months later of melanoma turns out according to the military itself that there are several hundred cases of misdiagnosis of medical problems for soldiers in iraq each year others have died from misdiagnosis and medical mistakes too and i so understand the outrage because i ve been there misdiagnosed and floundering there are tens of thousands of us but most of us aren t soldiers so here is outrage 2 because sgt carmelo rodriguez was misdiagnosed by a military doctor his family has no legal recourse none nada a law passed in 1950 called the ferris doctrine removes that right for soldiers even when injured by the actions of a military doctor but wait there s more and you can read the rest of the post at my new blog location abc s eli stone gotta love a little controversy published january 30 2008 about com general news health healthcare quality media medical and research studies patient empowerment patient safety patients patientude closed tags aap abc american academy of pediatrics autism childhood vaccines eli stone thimerosol vaccinations i ve watched and heard plenty of controversy from those who are either upset or elated that abc will be airing an episode of its new tv show eli stone tomorrow night eli stone is a lawyer who defends a lawsuit imposed by a family who believes that a vaccination caused their child to develop autism from the american association of pediatrics which believes like the cdc the iom and other government and mainstream groups that vaccines do not cause autism to groups of parents and professionals who believe vaccines are at the root of autism they are riled up and making plenty of noise the aap wrote a letter to abc insisting the episode not be aired the parent group that shares the autism vaccine correlation beliefs insists it be shown and my take on the controversy it s completely unrelated to autism vaccinations or anything related to health or medicine read what i had to say on about com want more tools and commentary for sharp patients sign up for every patient s advocate email tips join trisha in the patient empowerment forum at about com or link here to empower yourself at everypatientsadvocate com tax rebates maybe health insurance should pay attention published january 27 2008 general commentary health health medical consumerism health insurance patient tools politics and medicine closed tags health insurance healthcare costs tax rebate note to my regular readers starting today i am beginning my migration to my new blog site www everypatientsadvocate com blog will get you there you ll find most of the post here but you ll need to finish it at the new site so why not link to it right now oh and don t forget to change your feed address new posts will no longer be found here after february 1 2008 so hubby and i are excited about this tax rebate thing looks like we fit in that middle class group that will get 1200 back from the federal government we reflected on the rebate for a few moments and the thoughts by legislators and the president alike why they voted yes i share their thoughts with you the economy is a mess we need to make people spend more money to improve it if we give them money they will have more to spend we want voters to re elect us in november and if we give them money they will like us and vote for us so here s little old me wondering the following mr president and ms mr legislator excuse me but wasn t that my money to begin with i sent you a whole lot more than that last year and i ll be sending you a whole lot more this year i don t believe you are giving me anything and one other question where did all this extra money come from that you have to give back to me all i hear about is the escalating costs of the war in iraq and the hole that has put in the federal budget so who exactly are you taking money away from so you can give it back to me those thought processes would be enough to share in today s post but why stop now i got to thinking that health insurers should begin to take a page from the federal government s book find this entire post at my new blogsite www everypatientsadvocate com blog a reversal for alzheimer s disease maybe read behind the headline published january 16 2008 alzheimer s health healthcare quality media medical and research studies medical news patient empowerment patient tools patients patientude 5 comments tags alzheimer s disease neuro inflammation sharon brangman regular readers of this blog know that my mother suffers from alzheimer s disease that means our entire family suffers from the long good bye my dad in particular has been a saint of a caregiver but he has watched the love of his life descend into the hell that strips them both of their quality of life you can imagine my excitement at seeing a headline about a reversal for alzheimer s disease as i read the story i learned that an 81 year old gentleman with well documented alzheimer s disease had been given a shot of enbrel a drug approved only for arthritis directly into his neck and within 10 minutes he regained a great deal of his cognitive capacity six months later with additional shots he has retained this improved memory his family as we can only imagine was ecstatic but of course if it seems to good to be true it probably is so i got in touch with my alzheimer s point person dr sharon brangman a geriatrician and aging expert i was able to interview her yesterday for my radio show the interview will be aired this weekend bottom line it s always wise to look behind headlines of studies and this one is a good example while dr brangman does believe that there are seeds of good news here there are a number of questions too here are a few of them enough to raise an eyebrow this test was done on only one person the injection has been attempted with others and presumably they improved too but many many more people would need to show similar improvement to suggest this is a step forward for alzheimer s patients in general the journal which published the account of the experiment is the journal of neuroinflammation which is so small dr brangman had not heard of it she questioned why something seemingly so huge was not published in a larger better known professional journal such as the new england journal of medicine the chief researcher owns stock in the company that makes enbrel and is trying to patent the way the injection is administered bottom line the actual science behind the idea of reducing inflammation is bonafide and it s an exciting approach to attacking the inflammation of the brain which may improve cognitive function in many others is it worth being encouraged absolutely is it something we ll begin to see more information about most probably is it a cure for alzheimer s probably not a cure but perhaps a new approach to treating the symptoms of dementia and worth keeping an eye on wise patients understand that medical news can yield all kinds of information but reading behind the headlines provides much more information about their validity and whether or not they apply to our own medical problems or those of our loved ones want more tools and commentary for sharp patients sign up for every patient s advocate email tips join trisha in the patient empowerment forum at about com or link here to empower yourself at everypatientsadvocate com why does the us have the worst rate of preventable deaths among industrialized nations published january 13 2008 death general commentary health health medical consumerism health insurance healthcare quality media medical and research studies medical commentary medical errors and mistakes misdiagnosis medical news patient advocacy patient empowerment patient safety patient tools patients patientude self help 1 comment tags deaths france preventable universal healthcare us from 2002 to 2003 about 101 000 americans died from preventable causes ranging from diabetes to bacterial infections and surgical complications so says a study releases this week the reports are based on results from a study undertaken by the commonwealth fund a private new york city based health policy foundation the study took place among 19 industrialized nations the results were published in the journal health affairs the us ended up at the bottom of the preventable death barrel france japan and australia were ranked at the top researchers looked at deaths before age 75 from a variety of amenable causes which included heart disease stroke some cancers diabetes bacterial infections surgical complications and others they arrived at a death rate and numbers of patients who died before they might have if they had received timely and effective healthcare among the countries reviewed 64 8 of 100 000 french people died from preventable causes and 109 7 of 100 00 americans died from preventable causes during 2002 2003 the same study was undertaken in 1997 1998 and the us came in 15th then so it descended to the health system basement since then between the first study and the second study all of the countries improved their preventable death rates by an average of 16 percent except the us which improved by only 4 percent that may not be as bad as it sounds since the us s rate was at a higher level to begin with why is the us in such bad shape those at the commonwealth fund blame access the fact that 47 million americans cannot afford insurance or healthcare i have no doubt access is a big part of it if you can t afford healthcare then you don t seek it out who wants to spend a lot of money on a doctor appointment only to be told you are sick when you don t have the money to treat the sickness anyway but i add my own two cents worth of reasons first i believe that part of the answer lies in the way access is handled among those who do seek help we have symptoms we go to the doctor and the doctor spends so little time with us that too often the problem assessment isn t handled correctly to begin with it s a problem of misdiagnosis and missed diagnosis i d be curious about the correct diagnosis rates among those other industrialized countries it only makes sense that people will die if their preventable disease isn t diagnosed correctly to be begin with even if it is eventually discovered it may be too late to treat effectively yes i ll admit i m not particularly objective about this part based on my own experience second i believe our american lifestyles lead to preventable death we overeat smoke drink too much alcohol drive too fast live like couch potatoes and then if we do go to the doctor we expect the doctor to give us a pill that will fix our bad behaviors please one pill won t fix a lifetime of unhealthy habits my curiosity expands to the lifestyles in the other countries that ranked higher than the us the answers for wise patients a two pronged attack first begin examining some of your own lifestyle habits to see if you can step up to the health plate yourself don t blame your doctor or lack of access for your bad choices second knowing that your doctor will never in our lifetime have more time to spend with you pick up the banner yourself and begin empowering yourself take responsibility for your own healthcare seek out the doctor when you are prepared to do so the truth is excellent care exists in the us for those who seek it out i know the payment system is a barrier there is no question about that but that s not going to change anytime soon so we patients need to do what we can to improve our own chances want more tools and commentary for sharp patients sign up for every patient s advocate email tips join trisha in the patient empowerment forum at about com or link here to empower yourself at everypatientsadvocate com mrsa victimization and shooting the messenger published january 10 2008 blamers and fixers death doctor communication health health medical consumerism health insurance healthcare quality hospitals medical commentary mrsa hospital acquired infections patient advocacy patient empowerment patient safety patient tools patients patientude self help surgery 7 comments tags dirty hospitals hospital acquired infections mrsa victimization yesterday s post where i told the stories of three 2 victims of mrsa infections raised ire blame and excuses from commentators and emailers alike never mind that they were stories of five people who are infected with mrsa one of whom has basically been left to die never mind that the frustration levels of these patients while trying to get treatment are over the top never mind that these people are victims of dirty medicine the kind where guidelines and controls exist but are ignored in too many places the negative comments were aimed at me it s easier after all to shoot the messenger this post has been moved find it by linking to its new location next page this blog has moved where did everything go not far we just 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