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2014 by admin welcome to spectrum mum in malaysia i am a mother of 2 children who are now recovered from autism as well as juggling domestic goddess ing and wife y duties i am the president of the thinking moms revolution a grassroots autism advocacy movement with a global reach based in the usa i am also co founder of brightstars life skills for exceptional kids a holistic school for children with autism adhd and learning challenges and the founder of kl biomed a support network for parents with children affected by autism adhd and related disorders in malaysia singapore and neighbouring countries in asia i am the co author of autism beyond the spectrum and my writings have been featured on generation rescue to read my latest blogs on tmr click here like loading posted in spectrum mum in malaysia 10 valuable lessons for autism parents a journey of grace and dignity featured posted on october 12 2010 by admin 36 i am a mother of 2 children who are now recovered from autism in my journey of healing and recovering them i learnt that anything is possible as a mother and autism advocate i share with you some valuable lessons i learnt in my journey when both my daughters were diagnosed with autism in the midst of my grief i had to pick myself up and figure out a way to help my children what do i do where do i go how do i start for families who have just received the autism diagnosis believe in hope without hope you have already lost the fight before you ve even begun always believe that our children can improve and even recover 1 attitude is everything how you respond to something will determine your outcome if you choose to walk down this path full of fear anger hate scepticism negativity sorrow or jealousy expect to receive the same in return the first few months after my daughter received the autism diagnosis i lived in a life ruled by fear fear of the future fear of the unknown fear of taking risks fear of making the wrong decisions fear of whether i can do what it takes to help my child a life led by fear is not healthy it also stops you from moving forward it was a lonely scary journey i realised that this is not helping my child at all the fear is still there it will never go away i think however the difference is i no longer let the fear stop me from doing what is best for my child you ve probably heard of the law of attraction the philosophy of like attracts like is extremely powerful if you have a lousy attitude chances are no one is clamouring to help you and your child more often than not you will meet resistance and hostility reset your attitude you will be surprised to how much more you will receive in return there is an infinite amount of love hope and positivity in the universe you just have to reset your frequency to tune in to that positive abundance 2 fill your space with positivity surround yourself with positive supportive and encouraging people these are the ones who will stay with you along the way and cheer you on don t waste your precious time and energy on negative people who will only hold you back and make you feel worthless they will drag you down instead of helping you up to the ones who make you angry or say hurtful things just smile and walk away don t scream at others screaming doesn t help the situation it only makes things worse if you have done wrong apologise fighting only zaps your energy don t fight in front of your children they can hear you and remember what you said autistic children are not deaf don t forget to hug and kiss your child even if you think they re not listening always tell them how proud you are of them love them and kiss them everyday this is better than any therapy or medication don t forget to surround your child s space with positivity too they need it always treat your therapists service providers and medical professionals with respect they are there to help your child always pay them on time consistently paying them late is a sign of disrespect and lack of character on your part being rude or mean to them is just cultivating negative emotions surely you don t want your child to be treated or taught by people full of anger and resentment right choose hope and positivity expect this to be a journey full of challenges and pitfalls but also expect pleasant surprises and wonderful progress autism never stops it never takes a day off it never gives us a break our children live in autism 24 hours a day always treat our children with kindness and respect we can only guess how it feels to live in their bodies trust me it s easier and happier to travel this journey when you fill your inner space with positivity and surround yourself with the right people 3 you are what you eat clean up your child s diet immediately and focus on healthy nutrient dense foods my daughter responded positively to the gfcf diet within the first week of the diet she spoke her first word i went gluten free casein free soy free and egg free omit all gluten wheat oats rye barley and casein cow and goat milk based products milk yoghurt cheese butter i stopped soy too because soy s biochemical properties are very similar to casein plus majority of autism kids test very high intolerance to soy most asd kids also have very high intolerance if not allergies to eggs incorporate nutrient dense foods in your family s diet go organic and gmo free if possible choose grass fed free range antibiotic free meats very important to reduce or stop processed packaged foods and drinks that contains preservatives colorings flavorings artificial sweetener caffeine stay away from sugar and high fructose corn syrup these really affect our kids and behavior do the diet 100 yes there are other kids eating junk food and bread in front of your child your child will try to eat forbidden foods yes other family members don t want to follow the diet yes grandparents will smuggle a bit of ice cream in there will be transgressions it happens start the diet again find a way to make it work eventually the diet becomes 2nd nature 4 autism is medical many children with autism suffer from gastrointestinal issues oxidative stress nutritional deficiencies immune dysregulation inflammation allergies chronic infections and disorders resulting from environmental toxins treat the underlying medical illness a healthy body means a healthy mind if your child has chronic constipation diarrhea unable to eat frequent infections and illness do not make autism an excuse not to treat your child not everything in autism is behavioral some are medical conditions that needs medical treatment every child deserves good health autism or not everyone deserves good health and medical treatment during illness whether they are young or old make an appointment with a biomedical doctor they will help you address the underlying medical issues that are common in our children click here for biomed doctors there are other treatments that are highly beneficial for children with autism and adhd including homeopathy osteopathy cranial sacral therapy essential oils to name a few please consult with a medical doctor or a healthcare professional to manage your child s treatment 5 finding the right therapy and school there are many types of therapies that are beneficial for our kids in my opinion any therapy you choose should be intensive consistent preferably 1 on 1 therapy for many children who are new to diagnosis larger student to teacher ratio may not be suitable initially it is important to invest in a good quality therapy or therapies that are consistent frequent and conducted by trained professionals choose therapies that are targeted at addressing your child s needs the therapy should adapt to suit your child not the other way round remember early intervention is key i did 1 1 aba therapy applied behavior analysis for my daughter and i can t recommend it enough when she was first diagnosed i did home based aba 15 hours of therapy a week by the time she was 3 years old i changed to centre based aba with 30 hours a week of therapy that made a huge difference in her progress there are pros for home based as well as centre based therapy ultimately i chose centre based therapy as there were many more benefits compared to home based therapy for my daughter doing home based therapy was fine for a while but after some time i found many aspects of her development were not addressed enough if i kept her home all the time centre based therapy helped with social skills generalisation flexibility and also is a gentle transition to a mainstream school environment also on the plus side she had access to many more variety of toys reinforcers and games at the school and there were lots of therapists and other children there to play with i am the co founder of brightstars it is a holistic school for children with autism adhd and learning challenges i set up the school with my 2 good friends who are also mothers of children with autism we have always dreamt of a school that had all the best therapies and programs that we felt were most beneficial to special needs school we dreamt of a school that focuses on quality rather than quantity a school with a 1 to 1 student to therapist ratio a school filled with the best brightest and most compassionate therapists ever a school that was sensory friendly quiet and calm most kids with autism find noisy and busy schools a sensory nightmare so we put great thought in the design of the school i wanted a school that was comfortable friendly and fun most importantly i wanted a school where each child can reach their fullest potential brightstars incorporates a comprehensive curriculum with a 1 to 1 student to therapist ratio each child receives an individual education plan iep aba therapy occupational therapy sensory integration therapy music therapy autism movement therapy social skills playgroup school readiness program and more to find out more about brightstars life skills for exceptional kids click here www brightstars my 6 get connected get connected get educated start surfing join the kl biomed fb group to connect with other parents who are doing nutritional approach biomedical treatments and various therapies don t forget to check out the thinking moms revolution and connect with them on facebook get acquainted with other parents they will be your main source of support on this often long and lonely journey remember you are not alone 7 take care of yourself take care of your physical mental and emotional health don t be afraid to ask for help don t forget to eat well get enough sleep exercise and eat healthy by taking care of my health i was more equipped to handle the stress and rigours of special needs parenting i could do more for my child when i myself was healthy don t forget to nourish your soul go for a massage go to a salon for a hair wash go for a swim go to the cinema walk in the park have an afternoon nap or go for a coffee with a friend try to do something just for yourself once a week without you you child will not improve i take supplements eat healthy try to exercise and i make personal time for myself regularly i feel all the better to face the challenges that autism throws at me everyday not everyone will have the resources to afford this not everyone is blessed with helpful family members or friends who can share the burden and give us the break we need as far as autism parents go i am extremely lucky indeed and i count my blessings manage your resources wisely however little we may have it is hard to strive for recovery when the mum is in deep depression and under extreme stress the goalpost seems further away when we feel bleak dejected and pessimistic if you are married take care of your relationship you are not the only one grieving your spouse is too along the way you will lose your sense of humour try to regain that you will need it have patience learn to forgive don t forget to pray only pray for good things worrying is praying for bad things so pray for good things set realistic goals give yourself small challenges don t sweat the small stuff look at the big picture celebrate the victories small or big mourn the losses but pick yourself up and keep going to the next level 8 focus on what you can do not what you can t do i always tell parents to focus on what they can do don t focus on the things that you cannot do focusing on the things that you don t have can t do can t afford etc is a waste of time and energy instead put your energy into the positive actions that you can do today 9 set realistic expectations be realistic in your expectations there is no miracle cure no magic pill no one size fits all when it comes to autism it takes hard work perseverance and time for our kids to improve expecting a child with 3 years worth of speech delays behavioural issues and sensory disorders to improve drastically within just 6 months of therapy and treatment is unrealistic you cannot catch up with years of delays in just a few short months anyone who promises you miracles cures or instant results be wary think big aim high don t underestimate your special child you might just be pleasantly surprised don t let anybody hold you or your child back 10 forgive yourself it is not your fault your child s autism was not caused by bad parenting blaming yourself only brings you down ultimately you need to move on don t waste your time on guilt it is counter productive it s not helping your child remember to go through this journey with grace and dignity our children are voiceless it is up to us to speak up for them don t forget why we do this out of love for our children a smile goes a long way a thank you even longer don t forget those who have helped you along the way pay it forward in the hopes that you too can help the next new parent that comes your way marissa aka spectrum mum share this share on facebook opens in new window facebook share on x opens in new window x share on pinterest opens in new window pinterest email a link to a friend opens in new window email more print opens in new window print like loading posted in aba autism diagnosis gfcf diet malaysia tagged aba therapy adhd advice autism autism recovery autism school special needs school speech delay 36 replies brightstars open day early intervention program school readiness program learning support program gallery posted on january 13 2016 by admin this gallery contains 1 photo it s not too late to register for open day on saturday 16 1 16 time 10 00am 12 00pm date saturday 16 january 2016 venue brightstars life skills for exceptional kids a 1 03 block a capitol 1 oasis square ara damansara jalan pju continue reading posted in spectrum mum in malaysia leave a reply managing moods behaviour and emotions for autism adhd and learning challenges posted on january 27 2015 by admin reply want to know more how to support emotional disregulation lack of self confidence insecurity low self esteem fear anxiety tantrums meltdowns anger frustration self injurious be...
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