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ents posted in accessibility disability environmental health environmental sensitivities healthy environment human rights policy tagged access barriers conferences ehs electrical sensitivities events fragrance free policy iaq inclusion mcs mcs es meetings national center for environmental health strategies wireless harvard medical school associate professor speaks about mcs video posted on may 6 2013 13 comments dr l christine oliver is an associate professor of clinical medicine at harvard medical school and co director of occupational and environmental medicine at massachusetts general hospital this is an excellent half hour presentation dr oliver packs so much about the issues faced by people with mcs into the first 16 minutes of this video if you can t watch the whole video at least watch this much alison johnson finishes off by reading from her important book amputated lives alison johnson is the author producer director of books and documentaries on multiple chemical sensitivity visit http www alisonjohnsonmcs com to download a transcript or to purchase her books or dvds 13 comments posted in accessibility disability environmental health health care multiple chemical sensitivities public health tagged chemical exposures environmental sensitivities fragrance fragrance free policy health health care access for people with mcs es housing indoor air quality mcs and cdc mcs video mcs es sensitive to pollution smoke free suicide video hospital protocols for people with mcs es posted on february 17 2013 27 comments some hospitals around the world are developing fragrance free policies and other less toxic practices but most health care environments can still be dangerous places to be for people with mcs es presenting enormous challenges if health care services are needed as i quoted from the es mcs sensitivities status report in the post canadian statistics on mcs es for es mcs sufferers the ideal of patient centred care is currently in stark contrast to realities within the health care system knowledgeable healthcare professionals and support workers are so few as to be virtually inaccessible most of the time for moderately or severely chemically sensitive persons physicians offices clinics and hospitals commonly are unsafe places to wait consult or undergo procedures because patients can be exposed to many symptom triggers emitted from furnishings cleaning and laundry products disinfectants and personal care products on staff or other patients making their conditions worse fragrance scent free hospital home care and rehabilitation services are very rarely available and there are no chemically safe emergency shelters consequently patients with severe chemical sensitivities may avoid seeking care risking further deterioration and chronicity thereby being caught between a rock and a hard place it can be a difficult decision for many of us when we experience symptoms whether or not to have them checked out sometimes we wait too long other times we just can t go because the going is too dangerous for our health toni bernhard touches upon it in psychology today although mcs es adds another layer of complications to the decisions 5 tough choices you face when chronically ill or in pain if a trip to the hospital is required it s best to be as prepared as possible if it s not an emergency then your choice of the following documents can be forwarded and discussed in advance otherwise carrying paper copies or discs with us at all times could be warranted in case of emergency the following is a list of the best protocols and websites i ve found with important resources and documents for people willing and able to take the risks to advocate for themselves or to provide to others so they can do it on our behalf if we are not able hopefully you have the time to go through them and choose what is most suitable for you before the need arises with any luck you won t need them but it s good to be prepared just in case it will take a long time to prepare your local health care providers with protocols to reduce harm we re nowhere near the eliminate harm stage in advance a lot more needs to be done because until the systemic issues are resolved for too many of us it s far too dangerous to try to access health care the necessary negotiations are not feasible when severely disabled ill and in need of immediate care that does not exist these resources require the ability to work to implement and there s no guarantees that if you make progress once the progress can be built on the next time as far too often it s a start all over again from the beginning process continue reading 27 comments posted in environmental sensitivities health care hospital protocols human rights multiple chemical sensitivities tagged health health care access for people with mcs es health care environments mcs es hospital protocols medicine healthy housing for ann help needed posted on april 14 2024 4 comments my friend ann needs to relocate soon and really needs an accessible place where exposures to pollutants are minimized as much as possible the plays that says here painting by ann cognito she has written about her needs here hello i am a friend of linda s who needs to find safe and accommodative housing my name is ann cognito pen name my legal surname is bucknor i am an older woman with disabilities and serious long term health issues including severe chronic pain multiple causes and severe environmental chemical intolerances probably mcs i m on a very long list waiting for assessment at the women s college hospital environmental health clinic i am also agoraphobic autistic and have cptsd before my health deteriorated so much i used to have a career and owned my home i am very well educated and an environmental activist while i was still able to function more i walked from calgary to ottawa with my support service dog to raise awareness about the climate crisis i am now looking for safe housing again continue reading 4 comments posted in accessibility air quality community disability environmental health health human rights medically required housing real estate tagged accessible housing affordable housing environmental sensitivities healthy housing mcs are you feeling lucky posted on may 5 2023 1 comment some of us are fairly independent no one is fully independent in an interdependent society some of us may need helping hands to exist sometimes in little ways sometimes in seemingly big ways which can seem even larger if policies have been created that make solutions much harder to access or create some people s basic medical needs which make it possible for them to exist are expensive and these survival needs may seem elitist to others who can t afford them because the system is set up to make healthier and for some medically necessary options more expensive and unavailable to everyone even though everyone would benefit from access to them s ociety has also been conditioned to add on a quiet they must be doing something wrong if they can t manage independently and i can t afford those things that i would like to have too or i had to work my ass off for those things why should someone get them for free are you feeling lucky today that your basic needs are being met here s a list of questions to consider continue reading 1 comment posted in accessibility air quality disability environmental health fragrance health housing human rights medically required housing multiple chemical sensitivities tagged accessibility barriers disability housing mcs mcs es a seriously sensitive to pollution update and two requests posted on march 18 2023 4 comments you may have noticed that i haven t posted much in the past 2 3 years and there are reasons for that reasons which have taken their toll on my cognitive and physical abilities i won t bore you with the details as there s not much point in doing so but i do have a couple of requests continue reading 4 comments posted in environmental health help susy find and afford safe accessible housing to prevent maid posted on february 14 2023 2 comments long time mcs es community member susy mallin needs our support now she has managed to survive years of brutal conditions due to the severity of her mcs es but all this has taken a big toll on her and she is out of energy to keep struggling just to exist she needs medically safe low toxicity housing on the sunshine coast area of bc where her family lives housing that is affordable on a senior s fixed income a home where she isn t exposed to chemicals fragrances smoke pesticides and other pollutants all the time for these reasons she can t live in any multi unit buildings you might see the issue with this need housing is unaffordable for so many now especially for people with medical needs for healthy housing made with inert low voc materials people with mcs es don t have a social safety net our ability to live really does depend on community support on you please donate generously so that susy can spend her remaining years in some relative peace please be on the lookout for housing that could be suitable for her in a world that has otherwise made it abundantly clear that she and others with more severe mcs es aren t really welcome and who don t care how much preventable suffering is imposed and endured let s show susy that humans care enough to make it possible for her to exist to be able to live out her natural life in dignity and hopefully even be able to return to sharing her art with us read more and donate here https www gofundme com f help save susys life silver jewellery made by susy when making jewellery was still possible please share widely thank you for anything you can contribute an update on susy s situation march 11th 2023 continue reading 2 comments posted in accessibility disability environment environmental health generosity housing human rights indoor air quality maid medically required housing real estate tagged chemical sensitivity community go fund me invisible disabilities maid mcs survival mcs and housing update posted on january 26 2023 6 comments the mcs and housing page has an entirely new updated resource section divided into a few different categories hope you find it helpful mcs and housing may safe accessible medically required housing be available for all who need it 6 comments posted in accessibility disability environmental health environmental sensitivities housing human rights medically required housing multiple chemical sensitivities tagged invisible disabilities mcs mcs es fragrance free in 2023 posted on december 31 2022 5 comments be fragrance free in 23 it s good for me it s good for thee 2023 is the year for me and for thee to be fragrance free fragrance free in 23 fragrance free in 23 fragrance free in 23 fragrance free in 23 fragrance free in 23 resources the fragrance free checklist the fragrance free checklist help for how to be fragrance free help for how to be fragrance free they said i wasn t fragrance free how can that be they said i wasn t fragrance free how can that be so you think we re being difficult when we ask you to change products so you think we re being difficult when we ask you to change products wishing you all a very fragrance free 2023 5 comments posted in environmental health van living with mcs es posted on june 15 2021 10 comments marie s an artist with severe mold sensitivity and mcs es and has created an amazing slide show and photo exhibits to raise awareness about the plight of people with environmental sensitivities and environmental illnesses despite living in a dilapitated van having to travel to the us for our winters because it s too cold in a van here in canada we really don t have accessible housing for people with severe mcs es i have several good online friends living in vehicles now because there s no accessible housing marie is one of them and she needs a reliable new to her van really soon so that she can continue to live and create the beautiful challenging and awareness raising art she lives for life in a specialized van is hard enough but it s not at all safe in the old one she s been trying to maintain the last few years the old van has come to the end of it s life she has been harassed by unscrupulous men a number of times when the van broke down and she deserves better than this from our society let s make sure she receives what she needs no contribution is too small likewise no donation is too big if you have more than you need can you please donate share and ask the people you know to donate and share too the world needs marie https www gofundme com f help marie leblanc https youtu be ni8 mil8lzu 10 comments posted in accessibility air quality environmental health environmental sensitivities housing human rights tagged art barriers chemical sensitivity ehs invisible disabilities mcs mcs es mold toxic chemicals vehicles video hunger strike for access to safe health care posted on may 12 2021 21 comments ginette lives in quebec and has been trying to access health care safely for years without success the fragrance exposures cause severe symptoms and her health is deteriorating as a result of not being able to have her basic needs met because fragrance she posted this video to her fb profile here s a rough english transcript continue reading 21 comments posted in accessibility action disability fragrance health care human rights policy public health tagged accessibility barriers accessibility standards chemical sensitivity chronic illness disability accommodation fragrance free francais french health care access for people with mcs es mcs mcs es mcs es hospital protocols me cfs multiple chemical sensitivities quebec mcs awareness video by maria rizzo posted on may 12 2021 5 comments this excellent video about mcs es was made in 2020 by maria rizzo who was behind the fragrance free revolution but has not aged a second it is just as relevant today as it was then the only thing that has changed is that maria is no longer with us she lost her life in december 2020 after being subjected to too many exposures when spending time in hospitals with her father she wasn t able to recover from those exposures the broken heart of losing her father and of the world that harms us instead of welcomes us the tribute her partner wrote when he informed the community of her passing can be found here i miss collaborating with maria i miss her creative energy and her ability to do things in clear and concise ways she d still be with us if hospitals and the rest of the world stopped inflicting unnecessary poisons on us all and instead respected our human rights as well as their own vulnerability to 24 7 exposures to unnecessary hazardous substances her death is a great loss to the global mcs es community rest in power maria 5 comments posted in accessibility environmental health environmental sensitivities fragrance health tagged accessibility barriers awareness fragrance free iaq mcs mcs video mcs es 2021 welcome...
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