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description=Life is found in the little things. We have 5 little things running around our place and couldn t be happier (or more busy...);

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need braces to learn to walk correctly but so far so good she s battled uti s and constipation due to her condition as well but so far ellie has mastered every goal they have put in front of her even with her spina bifida she is right where she should be developmentally makes me cry just typing that in the beginning we didn t know if she would be able to walk at all and now she is making strides to do just that and at the same rate as other children she s a rock star ellie is a beauty she has striking blue eyes and a full head of lovely hair that also makes for some kick butt bed head her cheeks are so very kissable the bean is social and loves to giggle and play with faces she says momma dada and uh oh someday she ll be a singer we know she can project and hit the high notes already and a friend to many she makes my heart smile with her silly grin can t wait to see where god takes this mighty little woman love you ellie bean the best friday the 13th ever december 13 2014 december 14 2014 crysnh220 leave a comment one year ago today we brought norah estelle hayes home from the hospital jane had been home about a week everett had moved down to cincinnati with ellie and i was on my way down to the hospital to visit the two of them i had visited norah the day before and the doctors were pleased with her progress she was doing well with the bottle and they had taken her feeding tube out the previous night that meant if she ate well for the next 36 hours we could bring her home so when i answered a call from kettering s nicu i expected an update from rounds that morning not the green light to bring home our 2nd baby that day once again i found myself blindsided but elated this time there was one extra problem matt couldn t come with me once a year he hosts an all nighter with the students the annual christmas party there was no way he could get out of it at the last minute so i snuggled everett and ellie and called my mother to see if she could meet me at kettering hospital that evening to bring norah home i also stole an outfit from ellie s clothes so i didn t show up empty handed twice in a row kettering s nicu supplied clothing for my babies no laundry awesome it was also weird knowing that this was the last time i would be pulling into kettering hospital for almost 3 months it had been my second home we always parked in the same place outside the cafeteria the cafeteria staff knew my husbands first name because he got a piece of carrot cake almost every day the doctors and nurses were like our 2nd family it was so strange not walking down the left hallway to the two rooms our 4 kiddos occupied for 2 months since all the other babies had been discharged from kettering s nicu norah had moved into her own room on the other side of the nicu i had a heaviness in my heart walking into her room that evening but it melted away the moment i saw my sweet norah and knew she was coming home to live with us once again i signed the enormous pile of paperwork and they unhooked norah from the monitors i was literally bouncing around the room with joy i took my wireless baby around the nicu and said my farewells to everyone it was so weird to walk around the nicu with my baby in my arms when they are connected to the monitors you can only move a few feet at a time it was freeing and totally weird one of our many favorite nurses jocelyn met me in the hall on the way out and rode with us down in the elevator we were a little sad and a ton happy she and many of our other nurses had become my friend while she cared for my babies the nurses had walked with us through all the ups and downs and i could never express how much their love and concern for our family meant to me i was so excited to have half of our crew home but it was bittersweet to close the door on the kettering portion of our journey the doctors and nurses that cared for me in l d while i was on bed rest dr bombrys and amazing crew that delivered our miracles the doctors and nurses in mother baby and the fabulous crew in the nicu they were all beyond wonderful i was however happy to have only have only one hospital to visit matt and i had been spreading ourselves pretty thin to visit three babies in two different hospitals and adjust to life with jane at home two babies i wasn t sure what it would be like it was awesome life is all about perspective i know that taking care of twins is challenging i tip my hat to all moms regardless of how their situation seems to stack up to mine life with a new person who eats round the clock is hard but i also knew that soon i wouldn t have enough arms to hold all the babies that my body miraculously grew i knew that sooner than i could imagine life would get very interesting so i soaked up the 10 days i had with just jane and norah they were easy babies for those first few weeks we had a great time snuggling and adoring them the first few months with norah were hard she had such bad reflux she was in pain every evening and she let us know it there were many nights we walked around the house or strolled through the yard or jumped on the trampoline or took a car ride to get her to finally fall asleep we would discover a trick that worked and then she would discover that we had found her out and change again she was just miserable but once we got her on the right cocktail of meds a different little girl started to emerge now norah is such a joy she has been the forerunner in every milestone except teeth and climbing the stairs she was the first to roll over the first to crawl to stand up the first to say momma the only one yet to walk she understands her body so well she is more coordinated than her big sister let s be honest that doesn t take much several people have said she will be a gymnast some day and i wouldn t doubt it she has been walking for over 2 months and i can count on one hand how many times she has taken a spill even without the no skid things on the bottom of her socks this girls just knows how to move norah is so playful she has the best smile especially now that she has teeth i just can t get enough of it and her little high pitched giggle is fantastic every night i spend a few minutes playing with each of the babies in their crib norah was the first to really understand how to play and she and i have laughed together so much there have been many cuteness attacks brought on by her little self running away from me in her crib while flashing me that ornery smile i can tell already that she inherited my mom s love for practical jokes i m sure they will get into plenty of mischief in the years to come there has been no binky for norah since she was about 4 months old she is a blankie girl all the way she loves her aiden anais cotton blankets she collects them and carries them around the house don t try to get between norah and a blankie her siblings will tell you it is a futile gesture i can t believe i don t have a picture of her with a blankie to add to this post mom fail norah is unafraid and full of joy though try as i might i could not get her to smile for any of the above pictures she was 3 months early so technically right now she should be at the developmental milestones of a 11 month old that means she started walking at the adjusted age of 9 months that s 7 months younger than her 3 year old sister was when she took her first steps that amazes me she amazes me pretty much on a daily basis she s fascinating because she has such different strengths than i do and i m excited to see where they take her she s my sweet little momma s girl i hope she never looses that i love you norah estelle you make my days bright hip hip hooray jane s homecoming day december 6 2014 december 6 2014 crysnh220 leave a comment time is a funny thing in some ways it feels like forever ago that my little ones were still in the nicu in other ways i can imagine it like it was yesterday this time last year ellie had just been transferred to cincinnati children s hospital medical center for an mri on her spine i was at the hotel on this morning a year ago with my mother when the nicu called and said we could take jane home that night we knew she was getting close to coming home but didn t expect to get her for another few days but because there was a big snow storm coming and we lived about 35 minutes from kettering hospital they let us have her a day early i was so excited but also instantly stressed i was in cincinnati with ellie she was just getting settled into a new nicu and was scheduled to have her mri that morning i wanted to be there with her for the test and stick around for a few hours after to meet with the neurosurgeon to see the results but i had a baby coming home that day our house was ready at least stuff wise but bringing a teeny tiny baby home with no wires attached eeekk how was i supposed to know if her heart was beating or if she was breathing correctly without those monitors i was used to knowing exactly what was going on in her little body all the time then all of the sudden nothing i was elated and terrified at the same time my mom dropped me off at the hospital and i held everett and norah for a few minutes while i was waiting on matt to arrive the nurses were gathering mounds of paperwork we signed our lives away and they handed us a wireless baby it was surreal the day had been so hectic i didn t even remember to ask matt to bring an outfit or a blanket thankfully the carseat was already at the hospital or we may have gone home empty handed the nicu nurses helped us out though and we were on our way turns out jane was the easiest baby ever i don t know if it was because kate had such a hard time in the beginning or because we knew things would be so much more challenging when we had all 4 home but we were in baby heaven she ate and slept well and was sweet as can be i never would have pegged jane to be the first one home but she was the perfect little one to ease us into mega parenthood these days jane is a bundle of energy she delights everyone with her smile and giggles she is a roughhousing ornery varmint she loves to dance and listen to kate and mommy sing it doesn t take much to get her cackling with laughter she s ticklish as can be and loves to play she has eagle eyes and puts every little thing in her mouth we call her a little bully but she s not really she s very curious and doesn t pay much attention to her surroundings as she investigates she doesn t mind when her siblings return that type of treatment she thinks it s normal life with jane is sure to be an adventure her newest obsession is climbing into things i ve found her several times this week face first into a basket with her feet kicking straight up in the air bawling but these past few days she has mastered the art of climbing in and out of baskets toy bins and laundry baskets climbing the stairs up to the attic playroom is also a favorite activity i still can t believe how far she has come she came home at a little over 4 lbs and now she is all muscle and power i know she will be the center of a crowd for years to come she knows how to have fun and how to love happy homecoming my sweet jane jane marie p s uncle josh was moved to dodd hall on osu s campus for rehab today too he s one step closer to his homecoming also everett finally cut some teeth both bottom teeth came through this week and ellie finally clapped today i was taking a video of the kids clapping to send to josh and maria and she joined right in i was so proud thankful november 28 2014 november 28 2014 crysnh220 1 comment i love thanksgiving good food time with family and giving thanks plus it means the official kickoff of christmas in our house all things that i can t get enough of i always have so much to be thankful for but this year i can t sit and think all those things without sobbing i m not even sure that i m ready to write about it to be honest my brother in law is alive and all my children are home those two things alone push my thankfulness to its limit this day last year i stopped by the nicu to drop off a gift to show my thanks to all the wonderful doctors and nurses who were caring for my babies we had hoped to have ellie home by thanksgiving but that didn t happen i was excited to see my extended family but it just felt weird to gather with the ones i loved when half my family was in the hospital i desperately wanted them home with me this year the hospital is housing my sister and brother in law for thanksgiving today had the same emptiness about it but also an extra measure of hope my sister and her husband have already been through a lot in their first year of marriage last august she was in a terrible car accident the day after they got back from their honeymoon she had to be taken care of for weeks at home because she was on brain rest while they should have been blissfully adjusting to their new life together josh was thrown into caring for his wife and stepson eli he was awesome he stepped up and took care of his family i was and am so proud to call him my brother a year later maria still deals with some physical effects of her accident headaches back pain increased risk for blood clots but she is back to living a full life they are expecting their first child together in april then this past friday josh was in a terrible accident on the job his business partner rushed him to the hospital that was 5 minutes from where they were working john s quick thinking and clear judgement saved my brother in law s life josh was rushed into emergency brain surgery he suffered a severe brain injury and his skull was absolutely shattered in the front the surgeon told us that he didn t see patients with this type of injury survive i will never forget that moment our family has been through quite a bit in this past year or so but i have never experienced despair like that with our other hardships there were always several steps between the person i love and death this time death was staring us right in the face my sister melted into my arms and everyone was sobbing a few minutes later we were on our faces on the waiting room floor pleading with god to spare this man we all love it was raw my sister was broken i had no idea how to help her she was shaking a screaming and just trying to come to grips with what could happen i just prayed and prayed and prayed healing for josh protection peace and strength for my sister and her baby matt and i took her upstairs to see if she could see josh yet and i have to tell you once my sister saw her husband a switch flipped she stepped right in and became the rock josh needed to pull though she was right beside him encouraging him and advocating for him watching her i knew god had created her for such a time as this all that she is nurturing spunky unafraid to speak her mind determined and full of faith was is needed for this journey the next 24 hours we were all holding our breath we camped in the waiting room with other members of josh s ...