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29 marbles skip to main skip to sidebar 29 marbles please visit the new home of 29 marbles at http autism gbrettmiller com 18 march 2008 blog maintenance mostly complete back in january i started the process of remodeling 29 marble s and today i announce the completion of that remodeling to the extent that any blog is ever really complete a couple of things you will likely notice 29 marbles has moved from its home on blogger its own address at http autism gbrettmiller com and i ve switched from blogger to wordpress i did this for several reasons but mostly i was taking my own advice to own my data the feed for 29 marbles is still http feeds feedburner com 29marbles so you should not lose your subscription i think you may have received a feed refresh of the last few posts but that should be ok the left hand column is for information related directly to 29 marbles such as the search function feed subscription and category lists the right hand column includes feeds from and links to other autism related resources although i definitely have my own opinion about certain things i also think it is important to see others views that s why i ve included feeds to the autism hub and age of autism along with links to blogs by parents and autistics from i expect that this side will continue to grow i hope you ll continue to read 29 marbles and offer the great comments and discussions that arise from the very important topic of autism what it means and where we re going see you on april 2 labels autism autism awareness blog 07 march 2008 aaaaarrrrrrrrggggggggghhhhhhhhhh 3 comments labels autism autism awareness bio med cause media science vaccines 19 february 2008 blind faith when was the last time you changed your mind about something related to autism if you read back through my nearly three years of posts here you ll see that my own thoughts on the matter have fluctuated quite a bit good thing i m not a politician it s not that i have trouble making up my mind it s just that i seem to learn something new everyday that influences my opinions in a post entitled nestor lopez duran ph d on autism science and faith based advocacy autism dad harold doherty author of facing autism in new brunswick references the following comments from lopez duran what i believe doesn t really matter because beliefs rapidly turn into blind faith even amongst scientists instead good science only occurs when positions are flexible and reflective only of the status of the research data at any given time nestor l lopez duran ph d translating autism about science and faith based advocacy doherty goes on to provide his own thoughts many issues such as the mercury autism vaccine autism genetics environment arguments in autism discussions purport to revolve around science but often depart from the science and embrace the faith based advocacy referenced by dr lopez duran to the great detriment of anyone with an interest in understanding the nature and causes of autism it is very difficult to maintain this kind of cold objectivity when the subject in question is your own child but if we as a society ever want to get anywhere on these questions assuming there is somewhere to get to this is an important lesson to keep in mind on a completely separate note i will be taking a short break from posting here you may still however see my name pop up in comments of other blogs i plan to return on april 2 not coincidentally world autism awareness day 2 comments labels autism autism awareness autism dads blog research science 11 february 2008 autism and new jersey law enforcement over the weekend kristina chew wrote about yet another tasing of an autistic teenager and mentions a bill in new jersey to promote autism training for first responders while that bill makes its way through the new jersey state legislature first responders in hillsborough nj are taking the initiative getting the training for themselves from cops learn about autism to help prevent tragedy with more than 1 200 children and adults diagnosed with autism in the township and thousands more in neighboring communities hillsborough police officers are reaching out to better serve those families during serious law enforcement situations hillsborough police chief paul kaminsky recently participated in a four hour seminar autism shield program for autism recognition and response its goal to educate police officers and first responders with an awareness and understanding of autism and how to teach and live with those affected said gary weitzen executive director of parents of autistic children also known as poac some thoughts from chief kaminsky and what his department is trying to do all of our officers there are 56 law enforcement officers in the hillsborough police department have been trained concerning identifying and dealing with individuals with autism kaminsky said with autism being a part of our community and school system we thought it was important that all our officers be thoroughly trained with the recognition and proper response with people with autism as a result hillsborough s police department recently has developed an emergency data information base which allows parents or guardians of special needs children and adults to voluntarily complete a data sheet and return it to the police department the emergency data sheet then provides law enforcement officers with essential information such as basic identifying information emergency contact information means of communication best way to interact specific fears or concerns the person might have when approached sensory or medical issues and attractions if you haven t already you should think about giving your local pd and fd a call and see what they are doing in this regard and what you can do to help 6 comments labels adult autism asperger s syndrome autism autism awareness law enforcement media news safety 05 february 2008 autism and the transition to adulthood whose life is it anyway today is an election day here in the u s the ability to participate in our government is one of the key transition points from adolescence to adulthood but just one of many transitions that teens and their parents must make for autistic teens and their parents this transition brings with it some unique challenges and considerations over the past several years i ve written several pieces on this subject in keeping with the spirit of the day and what it represents it seems appropriate to repost this one i originally posted whose life is it anyway thoughts on guardianship autism and growing old on 03 march 2006 as part of planning for the future parents of autistic kids must consider many things key among them is this question of guardianship when a child in the united states turns 18 they are considered an adult their own person they can vote they can enter into legally binding contracts they can join the military and if they are male they must register with selective service etc in order to rescind this legal right parents must petition the courts and establish alternative guardianship obviously not a decision to be made lightly on the other end of the age spectrum adult children often must make care decisions for their aging parents many times this results in these elderly parents living out their final days in a nursing home with every aspect of their lives controlled by the administrators of the home again not a decision to be made lightly i think we ve all heard the horror stories the film almost home recently aired on pbs talks about a different kind of way to run a nursing home almost home offers an inside look at the lives of these residents their families and those who care for them as each adjusts to the challenges of growing older almost home filmmakers brad lichtenstein and lisa gildehaus introduce couples bonded and divided by disability children torn between caring for their dependent parents and their own families nursing assistants doing difficult work for near poverty wages and visionary nursing home director john george who is committed to transforming his century old hospital like institution into a true home under george s leadership saint john s on the lake is reinventing its 135 year old medical model of care think hospital with a social one think home his goal is to transform the way people see nursing homes not as institutions of boredom and despair but as vibrant communities where residents live rich and fulfilling lives to succeed he will have to win over skeptical managers resistant nurses overworked and underpaid nursing assistants complacent residents and often overwhelmed family members the key change in my mind is that the residents here retain as much control as possible of their own lives they can wake up when they want to instead of the usual scheduled wake ups meals are tailored as much as possible to what the residents desire not a typical bland hospital menu if someone has lived a good 90 years and wants some bacon for breakfast they should be able to get bacon for breakfast they have a cocktail hour every monday where gasp they can drink cocktails whose life is it to live it is the individual s of course but as the parent of an autistic teenager that is somewhat easier to say than to act on any thoughts from autistic adults several of whom i ve recently gained as readers or parents of autistic adults that have already gone through this are greatly appreciated 3 comments labels adult autism asperger s syndrome autism autism parents parenting older posts home subscribe to posts atom subscribe to 29 marbles in a reader or by e mail enter your email address delivered by feedburner topics autism 51 asperger s syndrome 22 autism awareness 22 parenting 20 autism parents 18 neurodiversity 11 pop culture 10 adult autism 8 media 8 cure 7 diversity 7 religion 7 science 7 bio med 6 books 6 intelligence 6 research 6 news 5 autism dads 5 blog 5 learning 5 vaccines 5 thimerosol 4 iep 3 cause 3 education 3 law enforcement 3 cnn 2 diet 2 food 2 mercury 2 safety 2 school 2 60 minutes 1 dsm 1 savant 1 complexity 1 video games 1 latest from the hub loading latest from age of autism loading autism related books strange son thinking in pictures my life with autism unstrange minds remapping the world of autism autism google news loading 29 marbles archive 2008 18 march 2 blog maintenance mostly complete aaaaarrrrrrrrggggggggghhhhhhhhhh february 5 january 11 2007 32 december 2 november 1 october 4 september 1 august 4 july 4 may 1 april 3 march 1 february 9 january 2 2006 63 december 2 october 1 september 1 august 4 june 11 may 7 april 8 march 8 february 12 january 9 2005 87 december 6 november 9 october 9 september 19 august 24 june 2 may 5 april 8 march 5 by brett miller 2005 2008 except where otherwise noted this work is licensed under a creative commons attribution 2 5 license