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4 everquist 4 everquist wednesday november 27 2024 jammies and fuzzy slippers we have a tradition of getting new jammies and fuzzy socks slippers for hospital stays fortunately we did not need to stay overnight but we still wanted to wear our new jammies at home today lots of playstation games and homework today we channeled the good vibes of grandpa quist and got sev some old man jammies posted by angee and thom at 10 01 am no comments tuesday november 26 2024 home after a 3 5 hour drive home through traffic rain and snow we are done we stopped by mcdonalds for an oreo mcflurry for him he ended up eating two cheeseburgers chicken nuggets fries a mcflurry and a sprite we jammed out to some music picked up a playstation from austin and morgan austin generously let him borrow for his recovery kept carmen for a sleep over and the dude passed out we have had a long day grateful to be home together safe and healing posted by angee and thom at 7 35 pm no comments peace out the narcan made the difference sev was able to hold down a few crackers and sprite chest xray looked great we are cleared to go home i asked for a normal face this is what i get so thankful everything went smooth and according to the plan today you know how i like a good plan posted by angee and thom at 7 33 pm no comments still barfy but more awake sev has not been able to hold any fluids down the anesthesiologist came by and tried some narcan to reverse any remaining fentanyl next up is a chest x ray and holding down fluids posted by angee and thom at 1 23 pm no comments the iv was a little rough two tries and the iv magician couldn t even get it the anesthesiologist had to place one in the cath lab posted by angee and thom at 11 00 am no comments on the other side of the heart cath lots of nausea throwing up chest pressure headache flawless heart cath perfect pressures opened his stent from 10 to 14 he has a good crappy heart fenstration is still open a tiny bit hence the good o2 saturations hopefully this will be the tune up his heart needs to give him back his energy posted by angee and thom at 10 52 am no comments he is in the cath lab it is a little different handing him off to the anesthesiologist he didn t even try to ride in a coup car hops right in like it is no big deal dr gray says it will be a few hours posted by angee and thom at 7 50 am no comments older posts home subscribe to posts atom blog archive 2024 9 november 9 jammies and fuzzy slippers home peace out still barfy but more awake the iv was a little rough on the other side of the heart cath he is in the cath lab back to primary children s a little tune up 2021 1 january 1 2018 4 april 4 2016 61 november 2 april 7 february 52 2015 23 september 8 july 12 january 3 2014 1 january 1 2013 36 september 13 july 10 may 9 march 2 january 2 2012 65 december 3 november 30 october 1 september 4 august 9 july 1 may 2 april 4 march 1 february 7 january 3 2011 58 december 6 november 1 october 5 september 2 august 4 july 5 june 4 may 2 april 4 march 6 february 8 january 11 2010 108 december 12 november 19 october 14 september 8 august 15 july 29 june 4 may 2 april 5 followers the day i became a heart mother one day my world came crashing down i ll never be the same they told me that my baby was sick i thought am i to blame i don t think i can handle this i am really not that strong it seemed my heart was breaking i have loved him for so long i will not give up on this child i will listen to your advise i will give my son any chance no matter what the price i will learn all i need to help my baby thrive i ll even use that feeding tube my child must survive will he need a lot of therapy will he gain the needed weight please god help me do this as i accept our fate when the monitors beep at night it serves as my reminder how many parents would love that sound tomorrow i will be kinder as another angel earns his wings i run to my baby s bed i watch him sleep for quite a while i bend down and kiss his head i cry for the parents whose hearts have broken i look to you wondering why oh lord i just can t know your ways no matter how i try and yet i trust you hold his life and guide us through each day my mind says savor each moment he s here but my heart begs please let him stay from pacing the surgical waiting room to sitting by his bed from wishing for a good nights sleep to learning every med from wondering will he be alright to watching him reach out his hands with every smile my heart just melts despite life s harsh demands for all who see that faded line i look to them and smile you see my child is loved so much i would face any trial that scar i trace with my finger it s the door to his beautiful heart god must have known how much i d love him just as he loved him from the start a heart mom is always a heart mom now wise beyond her years for those who have angels in heaven our hearts share in all of your tears every day i will try and remember i was chosen for him and no other i will always embrace that beautiful day when i became a heart mother stephanie husted mommy to braeden hlhs every heart has a story this is severin s march 4 2010 19 week ultrasound we were told something was not normal about our babys heart april 12 2010 perinatology confirmed tricuspid artesia hypoplastic right heart syndrome transposition of the great arteries april 20 2010 fetal echo confirmed everything that could have been wrong with severins heart was we refer to this day as the holy crap day diagnosis tricuspid artresia hypoplastic right heart syndrome transposition of great arteries coarctation of the aorta ventrical septal defect double inlet left ventrical his pulmonary artery is too big and his aorta is too small july 7 2010 birth of severin july 13 2010 first open heart surgery modified norwood damas kaye stansel coarch repair bt shunt asd created nov 22 2010 pre glenn heart cath added to diagnosis pulmonary stenosis and aorta has a twist november 24 2010 second open heart surgery remove bt shunt glenn procedure replaced 80 of his pulmonary artery april 16 2012 heart cath stent placed in left pulmonary artery due to narrowing increasing lpa diameter 3 times the size and making it normal size november 15 2012 fontan day sev rocked the fontan he was discharged 5 days post op we have never looked back he is healthy growing and so dang smart he sees cardiology yearly and the rest of the time he is a normal little boy about me angee and thom view my complete profile watermark theme powered by blogger