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o bring amber out of the induced coma it is a critical time and we are hoping and praying that this time if it is his will the lord will see fit to bring her back to us again we are confident that he hears every prayer so please continue to add your prayers with ours in the hospital amber is being called sleeping beauty the doctors ultimate goal is to wake her up without seizures and so today the doctors have taken her off the machine that keeps her core body temperature so low in hopes that as her body warms up naturally and the coma inducement medication is removed her brain waves will regulate and allow our sleeping beauty to awaken thank you again for your love and concern faith does not become great until it is exercised as amber s parents we pray that we will all continue to show our father in heaven how much we want amber to remain with us and that we let him know that we have placed amber s care in his loving hands and trust in his divine wisdom love greg and julie helm we love amber so much posted by eclaires at 5 07 pm 12 comments email this blogthis share to x share to facebook share to pinterest holding steady i know all of you are eagerly awaiting news so i just wanted to let you know that the doctors have extended the cold treatment which she has responded to very well beyond the 24 hour mark last night they were keeping her brain very calm at a level 2 on the pentobarbital which is good the doctors are meeting this morning to decide the next step amber and jp s mission president offered these comforting words we may at times wonder about the events that unfold in our lives and the lives of friends and loved ones and for some questions come to mind how blessed are we that we do not question the lord and that we know of an eternal plan and that nothing goes by unseen by heavenly father and our savior jesus christ they are watching we all are praying and the miracle of divine communication blesses our lives amber is in safe hands as we each exercise faith and have hope for her complete recovery thank you for your continued prayers we feel them and hope that you do too posted by eclaires at 10 01 am 4 comments email this blogthis share to x share to facebook share to pinterest wednesday august 25 2010 family fast we would like to invite all of you to join with us in a family fast tomorrow thursday for amber we believe that fasting combined with sincere prayer can strengthen us spiritually bring us closer to god and help us prepare ourselves and others to receive his blessings amber needs his blessings the most recent procedures they have been doing have not had the positive outcome we had hoped for amber began having seizures again this morning when they tried to wake her up the doctors are trying a new procedure today where they put her body into a state of hypothermia for 24 hours they are hoping that this will reset her brain and that the seizures will not return when they bring her temperature back up thank you for your many prayers please continue to pray for her and join in our fast we need a miracle as amber would say we just need to have faith posted by eclaires at 7 28 pm 21 comments email this blogthis share to x share to facebook share to pinterest monday august 23 2010 going well amber has been handling the new treatments very well her brain activity was a little higher than it has been but this is to be expected during this new procedure the doctors will likely not try to wake her up again for at least a few more days so they are keeping her meds elevated for right now but things seem to be going well so far thank you for your continued prayers she needs them we are certainly not the only family who is dealing with such a trying situation looking around the hospital it wouldn t take long to find many others who are deep in the trenches of difficult times but the support we feel from you and from your prayers is unmatched and for that we are extremely grateful you our friends family and neighbors who are reading and following amber s story literally number into the thousands this is incredibly humbling your love and support buoy us up to have such an incredible support group a group of people who so dearly love amber and want her to get better just as we do is amazing we feel your love and your unrelenting prayers and cannot thank you enough posted by eclaires at 11 43 pm 10 comments email this blogthis share to x share to facebook share to pinterest saturday august 21 2010 an update a very positive update we ve had a bit of a breakthrough this morning amber s had more tests scans and screens than just about anybody has ever had many so obscure that the nurses hadn t even heard of some of them and today we ve had a breakthrough the doctors now feel like they know what they are dealing with and will be changing up some of their procedures which will be taking place over the next few days so they will be keeping amber at a steady level 1 5 while they change course a bit the doctors are very positive now that we know what we re dealing with your diligent prayers are working in amber s favor thank you posted by eclaires at 1 32 pm 13 comments email this blogthis share to x share to facebook share to pinterest her eyelids fluttered the doctors are attempting to wake amber up again this weekend and this morning her eyelids fluttered and she has coughed this means she is waking up keep praying that this will continue to go smoothly yesterday they had her down to a level 2 of the pentobarbital the coma inducing medication which has been allowing a lot more brain activity they are trying to keep her calm and trying to gradually pull her out again the doctors allowed jp to put some headphones in her ears with classical music playing quietly to assist in keeping her calm this morning the nurse said her brain is even more active than yesterday but they didn t say that they were seizures necessarily hopefully they ll be able to take her down to a level 1 this morning and 5 by tonight then completely off tomorrow sorry for the delay in updates as we ve mentioned before this is a process and sometimes there isn t a lot of new news amber has been successful at keeping the temperature away the coma inducing medication can be pretty harsh and sometimes it seems that you re treating the symptoms of the treatment and not the symptoms of the true cause but yesterday and today were looking better again all of the scans she keeps having of different areas of her body and different organs continue to come back favorable she looks good this is positive but they feel that waking her up from this coma will allow them to focus on any problems if any that they aren t able to see while she s sleeping to aid in bringing her out without seizures they are going to use an anti convulsion medication hopefully that works well they just want to wake her up and take her body off the pentobarbital because of the sometimes uncomfortable side effects they feel if they can control the seizures and get her to wake up that this would be best for her right now the neurologist eeg specialist will be watching her closely if things get too intense i m sure they will put her back under and start the process again let s pray that we don t have to do that this time please keep your prayers coming thank you so much we ll keep you updated posted by eclaires at 11 56 am 4 comments email this blogthis share to x share to facebook share to pinterest wednesday august 18 2010 the fever is gone good news no fever last night with no fever reducing medication this is great another positive development is that beginning last night the nurses were able to lower the blood pressure medication which is keeping her blood pressure elevated to a healthy level this means that her body is doing a little more work on its own this is definitely a good sign today she was receiving the coma inducing meds at a steady level 4 to give you some idea what that means it will help to know that she was at a level 4 on sunday afternoon after the first attempt at waking her up and then they gradually decreased the medication again to a level 2 by monday night yesterday when they tried to continue lowering the meds below a level 2 and she began seizing they raised her back up to a level 5 to calm her brain so today they brought her back down to a level 4 once again we have to remind ourselves that the doctors said this would be a process they ll calm her brain again to a point when they feel like they can try weaning her off the meds again and try again to wake her up without any seizure activity the doctors remain hopeful and positive everything else looks good today we can t thank you enough for your continued prayers thoughts love and for sharing that with us through the comments on this blog it has been so uplifting to read your thoughts and know of your love for amber we thank you now let s just pray a little harder that amber will wake up for us soon posted by eclaires at 10 45 pm 17 comments email this blogthis share to x share to facebook share to pinterest tuesday august 17 2010 amber s doctors remain very positive things have been a little slow the past two days the doctors have had her on a level 2 of the medication that keeps her under down from a level 4 on sunday afternoon today they decreased it even more and she began having seizures back up again to protect her brain and let it rest they ll try again another day she is still running a fever of about 101 they have given her medication to bring down the fever along with icing her she also has a fan up in her room pointed at her they are successful in cooling her down for a little while but then the fever spikes again and the process starts over a fever is your body s defense mechanism and is typically indicative of an infection the doctors will be running more tests to try to figure out where the infection is that they haven t been able to reach yet it seemed that the antibiotics were improving the infection the abscesses in her abdomen but clearly there is something else going on as well from sheri sorry there isn t great news but the doctors are still very positive when we find the infection we have every hope she will come out of it 110 percent again posted by eclaires at 11 59 pm 6 comments email this blogthis share to x share to facebook share to pinterest stable is good yesterday amber spiked a fever of 101 6 f by last night it was down to 99 4 f they were glad it came down a bit but she continues to stump them today because it s still hanging on originally they thought it might be an allergic reaction to one of the medications but now they are not really certain so all the doctors are still consulting to see if they can find the cause of the fever the doctors continue to check and recheck just about everything and it all remains pretty stable so this is good we ll update you as we learn more or if there are any changes we continue to be very hopeful we are overwhelmed and humbled by the outpouring of love and concern for amber she is such a special person and has clearly affected so many of you in a positive way we love her and are so grateful for your love for her thank you posted by eclaires at 8 34 am 2 comments email this blogthis share to x share to facebook share to pinterest sunday august 15 2010 patience with the process amber is back under the coma inducing medication for at least the next 24 48 hours the doctors believe the cause of the seizing is the infection but sometimes it s hard to really pinpoint what the true source of a seizure is it could just be a coincidence it s just not always apparent what the doctors do know is that the antibiotics are working the infection is improving and the inflammation numbers are down all of her other tests are coming back with favorable results the doctors feel like we are on the right road at this point we don t know how long things are going to take to reset this can sometimes be a long process the good thing is she is stable nothing seems to be getting worse and no additional symptoms have shown up they are watching her for any changes and we feel they are on top of things they are protecting her brain with the coma and that is what is important we are just going to wait for her to heal more they have had success with this process but sometimes it just takes a little longer over the next 24 48 hours they will continually monitor her brain waves watching for improvement and when they feel like there has been enough improvement they will try again to bring her out if she starts to seize again as she comes off the meds then we will just repeat this same process all over again everyone is discouraged that she didn t wake up today but it s not the end of the world this is just a process and we have to be patient we feel positive that she will pull through she is strong we just have to get her body ready to accept her mind so we are just going to wait for her body to heal we continue to be extremely hopeful and thankful for your love and prayers posted by eclaires at 11 51 pm 8 comments email this blogthis share to x share to facebook share to pinterest keep praying as much as i would like to have better news it kills me to tell you that she started seizing again and they had to put her back under for 24 48 hours i ll keep you updated posted by eclaires at 10 02 am 8 comments email this blogthis share to x share to facebook share to pinterest saturday august 14 2010 so far so good the doctors took amber off the coma inducing meds today they anticipate the medication will be out of her system within 15 hours she is expected to start waking up sometime in the middle of the night tonight yes i said waking up obviously the doctors main concern right now is that she does not begin having any seizure activity so they are monitoring everything very closely as they wake her up as of about 7 30 this evening things were looking really good as the medication began wearing off the monitors showed a lot of normal brain activity there were some erratic brain waves but they were minimal and not conducive with seizure activity according to the neurologist also the infection is showing vast improvement from the antibiotics which is very encouraging so far so good i can hardly wait to get an update tomorrow morning i bet you can t wait either i ll be sure to update you as soon as i can posted by eclaires at 11 35 pm 3 comments email this blogthis share to x share to facebook share to pinterest not a lot of new news i know many of you are checking back for an update just lots of doctors and lots of checking we ll let you know when there is new news to share thank you again for your continued prayers jp and the family are reading your comments and i know they feel your love and prayers they are uplifted by your words and by the spirit as your prayers are at work keep them coming heavenly father is a god of miracles he hears each and every one of our prayers many of you conti...