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is second home he still loves to paint and is truly gifted at what he does god blessed this young man with such beautiful talent he s doing very well and has adjusted over the months i m happy that he can see the world and that he s learning to cope with changes so much better each day some days are rough but all in all i have to say he s doing great big brother and i are gearing up for fireworks kc isn t a big fan of the noises that they make but we park quite far from the fireworks and don t hear the noises much but have a great view from where we sit we are going to walmart tomorrow to find some fireworks to buy for big brother kc actually loves sparklers he twirls them as he walks in circles never taking his eyes of the sparkles we hope all of you have a great holiday and please be safe we will be trying to stay cool here in arizona as it s been 115 degrees here how is the weather in your state i managed to get this picture of kc looking straight at me after 6 tries it s tough for him to make eye contact if he does it s very quick gotta be fast to catch this guy posted by kc s blog at 9 22 pm 8 comments thursday june 23 2011 hello we are back hello dear friends it s been a very long time we have missed all of you new folks and old friends so good to be back kc just celebrated his 10th birthday he really loves how to train your dragon he adores the dragon and hiccup he has also been watching the preview to cars2 that will be huge for him i can see it in his face and the smile when anything cars2 is previewed kc is doing well he s one big kiddo for 10 years old he s 110 pounds and now his head reaches my neck i m 5feet6inches kc didn t develop language over the years despite our very best efforts in speech kc was in speech since he was about 2 he did learn signs over the years and pecs as well but for some reason we just couldn t get him to acquire any speech i have found that over the years i have learned to read kc s face as well as family we know what he wants only problem is strangers would never be able to do this without being around kc for along time i would say our biggest help through the years was occupational therapy to this day kc is on a therapy ball for at least 2 hours a day he needs the bouncing he needs is badly it regulates him makes him happier and able to cope better we have been through many therapy balls they have been my savior so to speak we have been swimming quite a bit this month since it s been so darn hot here nearly 110 here today kc loves walking around the pool and loves the foam noodle we bought him another he has grown quite fond of is spicy thai food he loves papaya salad and spicy noodles so many good changes for him he s a wonderful boy and i adore every minute with him did i mention that he wears a size 6 shoe yep he goes to the store much more now and we rarely have any headbanging episodes he s doing very well as long as he has ot everyday i only wish i did this years ago had he been going more more than 2 or 3 days a week i think he would have felt so much better i can now see how much it has helped kc s big brother is 11 years old and is a sweetheart he loves kc and they actually go to ot together i asked kc s ot if big brother could sit in and watch and she said yes this is huge because we have learned that this is the best time for the two of them to actually play kc s more focused and laughs and watches his brother bounce and swing he really watches him and laughs hysterically when his brother bounces all is well here in az i am doing well myself we even got a weenie dog he s cute i will write more and post more pictures soon we love you all and welcome any new folks to read our blog and of course all of our friends who have been with us throughout the years thank you and we love you guys tina and boys posted by kc s blog at 12 10 am 4 comments saturday october 16 2010 we are doing well the boys and i are doing well we have been watching movies at the theater and traveling quite a bit we just returned from huntington beach where the weather was gorgeous and refreshing kc has been going on long walks in the evenings every night in hope that he loses some weight he s one big kid he s my little eating machine he likes the movies but as soon as it starts he has to keep his ears plugged with his fingers the entire movie he does well big brother is thrilled that we all go to the movies together now it s good and to just be able to walk out the door and go to a movie is huge i have noticed with age kc is tolerating more i really believe his sensory system is maturing more and he knows how to handle the noises better he loves the computer and is able to color a picture online all by himself we have accepted that kc is nonverbal and we are all working hard with signs he s doing well what a big boy he has become im so proud of this little boy big brother is really growing up he s acting so much older and his role now is protector and helper caretaker it s just the way big brother wants it i ve reminded him a thousand times that he needs to focus also on himself and that he s also a little boy but he wont have it he knows his brother needs lots of help and im certain he will always be there for him big brother is doing well in school and loves all sports now he s quite the football player rough and tough all boy trees i forgot to mention kc is terribly frightened of trees any and all trees if a tree branch comes near him or touches him he screams and acts as if hes about to vomit not sure what happened he s just constantly looking for any tall grass or anything remotely similar to a tree its sad because he goes in to a panic and the tears flow im hoping it passes we hope you and your families are doing well time to do some catching up posted by kc s blog at 3 40 pm 11 comments thursday july 15 2010 surgery for k c it s happened k c s had got an infection in it took him to the burn center in phoenix he had red streaks going up his arm it was awful i m at home and he s still in the hospital i had to hurry home and shower he s finally fell asleep and a child life lady promised she s stay at his bedside til i come back she s been so wonderful k c really seems to like her she s brought him movies connect 4 game and puzzle books he s been crying lots since surgery he had a graft done and has tro have one more next week he kept ripping his i v out everytime i dozed off i am sooooo sleepy his dad will be here tonight so when i go back to the hospital tonight i will be able to come home and sleep i just need 4 hours and i ll be good for a few days at least k c had a picc line in it goes under his arm and into his chest artery they put it in in surgery he can t get this one out when they change his dressing they give him oxycontin 30 minutes before and they won t allow to to go in they say they want his hospital room to feel as a safe zone where mom is and the treatment room the not so fun room it s been such a whirlwind i m sorry if it s a rambled post but i really wanted to keep everyone updated you all are like a big family to us and we need as much support as we can get it helps so much since we don t have family here in country anyways the boys are with college boy right now he s been our friend through alot it s just temporary til their dad is home it s just after eleven p m and his dad will be here around 4 a m then i got a letter in the mail saying the boys open houses are next week for school and we must attend i m feeling overwhelmed and scared to death for k c well thank you all for listening to me vent again i haven t talked to the respite person who was supposed to be watching k c they day he was burned i have gone to the police and they are going to investigate and talk to her god knows if i talk to her i may throw hot boiling water on her hand i m just so mad she has been hiding out more or less and hasn t called once to check on k c if this was an accident as she says the police will talk to her i m trying my best to let the anger go and concentrate on k c but everytime he cries and hurts i remember how we can t find her and get pi i will keep you all updated have a good night everyone prayers all around posted by kc s blog at 11 02 pm 12 comments sunday july 11 2010 venting i am writing to vent today i had mentioned in my previous post that i was going to take adman and big brother to see despicable me and the theatre we did go not half way into the movies k c s respite worker calls and says to come home right away he had gotten burned on hot soup and she was heading to the emergency room with him panic stricken i must have drove 90 miles per hour to the er where we hurried in to the front desk dragging a very pissed off adam and big brother trying to help control adam and calm him from the very fast change and an end to a movie he thought he was going to see through big brother a little over 4 1 2 feet and adam nearly 5 feet 9 inches it was tough we managed big brother found a waiting room with a t v and vcr where pinocchio was playing i ran to check where k c was and the nurse directed me to the room he was in screaming he was trying to bite his burned hand and two nurses trying to calm him the dr came in and gave him a shot which worked wonders sedated him i couldn t believe my baby was hurt so bad when i thought i had the best person watching him where was the respite worker not with k c the nurse said she had left the room to find me as i was coming to the hosp the b never came back she f left k c i m sorry for the language i m just so pissed i was crying felt so god awful bad for going to the movie and leaving k c this was a person i had trusted to keep him safe the nurses say his respite worker was cooking ramen soup for k c when he reached up and pulled the pot handle off the stove hot liquid spilled all over his little hand the top layer just feel off the hosp the transferred us to a burn unit downtown phoenix they scrubbed that burn hard and put on a new skin and prescription ointment and painkillers he s been crying and crying now i feel bad for just leaving adam with big brother i have no family here since my parents are both passed away now i talked to big brother and he said mom i wouldn t let adam get away for my life i cried and cried i need someone to talk too i m making an appointment to see counselor i m overwhelmed need more help with the boys our last in home helper moved to michigan i miss her terribly she s finishing up her degree there ihave to find help good help but first i am going to do everything in my power to see that the respite worker who watched k c is in serious s and should not be around another autistic child again how do i even know that is what happened k c can t tell me prayers people we need prayers posted by kc s blog at 2 54 pm 9 comments friday july 09 2010 good 4th of july our kiddos had a great 4th kc tolerated the sound fairly well we parked far away to minimize the noise visited town square for a bit then headed home he spun in circles most of the time but no crying i m not too sure if he was overstimulated or tonight i am taking big brother ad man and a friend to see despicable me how i wish k c could tolerate it i feel bad for leaving him we go real late usually after 10 p m when he s asleep and have his respite care giver watch over him as he sleeps he wakes alot and we now have locks on everything this months tally k c destroyed the buttons off my cellphone picked them off tore the knobs off the washer actually picked and picked at our couch til he pulled the insulation out and finally he broke the hose from the washer to the wall outlet and watched water shoot out of the wall it was horrific what a flood took the day to fix i did it myself though big brother and i are quite the team of repair people now there are locks everywhere told big brother he just has to get used to it and ad man hates the locks change is very very hard i still don t understand why k c destroys things that he seems to love dearly even his own stuff labels on bottles cans etc he s compelled to pick his lips too even teeth his lips are always rough i try to sneak chap stick on them when he sleeps but that boy wakes at the slightest touch we found a movie he adores coraline he loves it so much i highly recommend it if k c loves it it must be good happy day all posted by kc s blog at 2 03 pm 2 comments thursday june 17 2010 happy birthday kc happy birthday to you kc you are 9 years old and 4 feet 6 inches tall 101 pounds you are changing quickly i have noticed the hair on your arms and legs is getting longer and darker and much to your big brothers oh mom that s not fair i m older and i want arm pit hair attitude you are growing up faster than your big brother you both are the same height now big brother is worried about that he wants to be very tall but his daddy is only 5 feet 5 inches and biological mom is 5 feet 3 inches kc may be taller because of my side of the family you can do many things for yourself now you can pull your shoes on by yourself and socks too but always put them on the wrong feet same with clothes if they are inside out backwards etc you don t notice at all and will wear them like that if i let you you carry your dishes to the sink sometimes without me asking you too sometimes you throw your spoons and plates in the trash it s hard to know what your thinking you know many signs now sign language and hand pulling are your primary ways to communicate words never came to you and i am sad about it of the couple words i heard you say once they never came again never i know they are in your head i can see you trying to think things through we won t give up speech therapy will always be in your future cause i know it s possible cause i have heard it we had an extremely frightening day a month ago i ve not mentioned it to anyone i m still very unsure as to what i should do i m scared to mention it to your therapists you were watching a disney video on the computer and i was in the kitchen i heard you scream a little and i new that was the i m getting angry scream i came into the living room and checked out your area and you too i asked you what s wrong you looked frantic i thought if i let you alone it would pass big mistake you came into the kitchen and screamed super loud in my face and pulled your hair out i have never seen you this mad in my life ever to look at me in the eye without breaking eye contact for more than 2 seconds is just something you do not do even though i had real eye contact and i could totally see the boy without autism in you at that moment it vanished you went straight to the kitchen sink and sat in the living room screaming with a butter knife in your hand i don t know what to make of it i don t want to think you want to hurt me i put the butter knives away for good since them you have been o k i did notice a couple wks after you got a fever but no other symptoms like coughing or runny nose what i did noti...