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bobby jones csf bobby jones chiari syringomyelia foundation about us news events videos unite4answers ways to give contact us view this site in other languages donate chiari related diseases i am a patient i am a doctor i am a researcher close x i am a doctor i am a patient i am a researcher chiari related diseases about news events videos unite4answers contact us ways to give view this site in other languages donate built on leadership vision and commitment to find a cure built on leadership vision and commitment to find a cure built on leadership vision and commitment to find a cure bj classic in the news built on leadership vision and commitment to find a cure our mission to advance knowledge through research and to educate the medical allied sciences and lay community about chiari malformation syringomyelia and related disorders i am a patient have you or your loved one been diagnosed with chiari malformation syringomyelia ehlers danlos syndrome or another related disorder maybe you ve had a diagnosis for a long time and you are looking for more information visit i am a patient to learn more about things that matter the most to you you ll find more information about the disorders and better understand what to expect from surgery you can also keep up to date on upcoming events that you can attend and any new research efforts learn more i am a doctor we take pride in our ability to share relevant information with doctors and other medical professionals visit i am a doctor to read more detailed information about chiari malformation syringomyelia and related disorders and find out about our medical and scientifically oriented events you can also learn more about our medical education program consider chiari and find out how to implement the program at your hospital or institution learn more i am a researcher advancing research is a critical part of the bobby jones csf mission as such we make sure that we use our network of medical professionals and researchers to connect the dots between the clinic and the lab we are passionate about encouraging information sharing to spark ideas that lead to breakthroughs learn more dedicated and trustworthy bobby jones csf is the only organization funding research education awareness and advocacy for chiari malformation syringomyelia and related disorders to have both the better business bureau s wise giving alliance seal and the guidestar platinum seal we are rated a 2022 top nonprofit independently by donors patients and families and we recently received a 100 out of 100 charity navigator score the only chiari syringomyelia charity with a 100 rating learn more looking for support join bobby jones csf s support community on inspire to connect with other patients and families living with chiari malformation syringomyelia and related disorders you control your level of anonymity at all times it s really helpful to me to talk to others who are going through the same things especially now with the pandemic it s important for me to know there is a community of people that i can talk to at any time i need to know i m not alone chiari mom in chiari and syringomyelia unite learn more sitemap home about us news events unite4answers video library donate contact us view this site in other languages resources for patients for doctors for researchers chiari related diseases connect join us i agree to receive email communications from the bobby jones chiari syringomyelia foundation leave this field empty if you re human copyright 2022 bobby jones csf 29 crest loop staten island ny 10312 phone 718 966 2593 privacy policy disclaimer
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