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site title: Blogging just to Blog How I got stuck with Celiac Disease AND Crohns Disease. Damn.

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c disease and crohn s disease damn blogging just to blog how i got stuck with celiac disease and crohn s disease damn ghetto ranch chicken may 24 2008 yes you heard me ghetto last night i couldn t figure out what to cook i wasn t in the mood to cook anything stove top so i settled on baking i had bought these thin chicken breasts the other day they were about due to be used getting close to the expiration date now when i say thin i mean like thin eh in the pan they went i kept looking at my options in the fridge not much of a selection been broke for a month or so so my condiments oils and small veggies ie peppers had slowly diminished ah ha ranch mmm so i covered the chicken in pepper and garlic powder and then put just enough ranch to coat the top in the oven at 350 degrees for 25 minutes the last few minutes i decided to put a slice of swiss cheese on top melted goodness it actually turned out quite well served with garlic butter aspargus pan seared and mashed potatoes yum my husband has requested it again go figure the least put together spur of the moment meal he likes the best posted in recipes food leave a comment tags baking chicken recipe cooking ghetto well go figure may 22 2008 well i m back luckily for me i m also feeling better shortly after i wrote my last post my husband took me to the emergency room at highland park hospital where my step mom works and i was admitted unfortunately the treatment i received in the er was horrible after telling me to eat more whole grain bread and over hearing and finding out it was noted in my chart she must be anorexic i fianlly called my stepmom and had her pull strings as the er was trying to discharge me she called my now gi doctor and he ordered a cat scan and i was admitted the inflammation in my colon was almost an inch thick i ended up staying in the hospital for 5 days and i checked myself out i have crohn s disease gah go figure they aren t even sure i have celiac anymore but i think so we ll have to see either way i have medication now and for the first time since last october i am in remission and feeling like a normal human being how great it is anyways i will update more often now but i figured a quick post would do some good for some of the worriers out there thanks for the support posted in uncategorized leave a comment struggle tmi april 14 2008 i m back i m sorry i have been away for so long but unfortunately life has gotten the best of me and my body is rebelling again i am sick very sick march 1st 2008 i started having my stomach issues again nothing horrible just loose stools it lasted for 15 days i searched and searched my diet for gluten and any possible gluten contamination and yet there was none to be found on a whim i removed folger s flavored coffee from my diet even though it had become my sanity and was supposed to be gluten free i thought i had figured it out i got better for 5 days then it hit me again my husband and i have spent many hours trying to figure out what gluten had snuck into my food to no avail then we started on allergies i have no idea how to even go about that one it is now april 13th and i am afraid i don t so much have diarrhea constantly all though it has happened a few days but i can t take the symptoms that have plagued me something is killing me and i don t know what it is i have severe stomach pain 24 hours a day which is worsened by anything i eat i eat mostly all natural non processed foods so i m at a loss after i eat i cannot stand up straight because of said stomach pain earlier today i had such a bad cramp after taking a sip of gluten free apple juice that it doubled me over and made me yell out anything and everything i eat or drink makes me sicker i am now 126lbs at 5 6 that doesn t seem abnormal to most people but to me that s insane i ve never dropped below 140 in june of last year i weighed 160lbs in december i weighed 140lbs then i started maintaining my weight still losing some but not much march i weighed 135 and now 126 i can now clearly see my ribs hips chest bone arm bones and others i am scared i feel like i m starving all the time yet i can t stomach more than half a plate of food with out going into severe pain oh and i can t forget the most recent symptoms my whole freaking body hurts like i got run over by a semi truck lol well i did a few weeks ago i got rear ended with my daughter in the car by one but thankfully we were okay but my car isn t but that s a story for another day all of my muscles hurt like i pulled them my finger nails and toenails now have a purplish tint to them and on two occasions for an hour or so a piece blue tints i had to go see my colo rectal surgeon i had a fissure back last fall that required surgery turns out i had an abscess that caused me to almost go septic which set off the celiac disease i ripped open my incision and have developed another abscess i have to go back in a week to see if i require surgery again unfortunately for me not only does my husband have no time to take off but these abscesses won t go away unless i get better great awesome sarcasm i do have an appointment with my gastro doc in a week and four days she is a very popular doctor and has a long wait in the mean time i have seen my general doctor who has no idea what is going on i m losing blood somewhere according to my blood tests gee i wonder if it s in my intestines so i m going anemic again i also have low protein again gee maybe because i can t eat i m calling my gastro doc tomorrow to see if they ve had any cancellations i need a doctor now i have contemplated going to the er but my step mom who is a doctor who referred me to the wonderful doctors i have now told me that they won t know what to do and just send me home which thinking about it i m sure she s right sometimes the pain gets so bad that i m tempted the worst of all of this is my constant pain is keeping me from taking care of my daughter correctly i can t play with her again i m scared posted in uncategorized 1 comment tags allergy celiac disease disease help pain scared struggle baking march 7 2008 so all of my family and friends know that i m not that great of a baker however i out did even my own expectations yesterday i made chocolate layer cake gluten free and home made cream cheese icing i wish i could claim credit for the layer cake recipe but it was old mill i think but the cheese icing mine after that i made mozzerella chicken sauteed zucchini and eggplant with onions it wasn t the best meal but it was creative for me tonight i m making meat loaf with gf cracker crumbs fresh tomatos onions and such and garlic and butter corn on the cob yum posted in uncategorized 1 comment cheap gf beef sandwich february 29 2008 i bought a package of steak ummms the other day they re just frozen steak slices think italian beef i was starving and sick of eating chips all week i refuse to cook a full blown meal if it s just me and figured what the hell i ll experiment i pan seared some of my gluten free bread flax seed to be precise with a little butter seared the slices of steak they re paper thin so i did two put them on the bread with a little cheese nuked that sucka for 15 secs to melt the cheese a huge dallop of sour cream on the side and wallah the best tasting sandwich and most filling i ve had in a long time just thought i d share i m mighty proud of myself for not eating chips and cheese again posted in uncategorized leave a comment i m back february 23 2008 wow i went poof for a little while things got really crazy at my house my husband s hours are getting ready to change my daughter has been a demon since her teeth came are coming in anyways things have been going better with this gluten free diet there are benefits other than health from it too i actually enjoy cooking dinner now i figure things out from scratch and try new things out my husband seems pretty happy with it too originally he was complaining oh and to those of you out there who lo lo love restaurants go to uno s pizzeria they have a wonderful gluten free menu i had the chicken cheesy one lol i don t remember the real name and was really really impressed it was actually far better than most normal restaurant choices they even owned up to a mistake some server not our own brought out our food mine with a bread stick i immediately went to the manager and they re cooked the entire meal for me i apologized for being such a pain and the manager said don t worry about it it s your health we don t want you getting sick on our accord needless to say i ll be back made new discoveries too more or less figured out what i can have out of the things i thought were completely off limits good for tummy stuffs starbucks minus anything with java mocha chips and two teas lays stax chips oh the chip goodness sodas certain soups and trader joe s sells the most excellent chocolate cake even better than gluten containing i have ever tasted i also crossed paths with another celiac a month ago and then again last saturday i went to a local bar and was in a bad mood i still don t have drinks down so i don t ever know what to order i used to be a beer drinker but obviously that s out so i go up to the bar and start explaining to one bartender that i need to see the label of one of the mixes she looks at me and asks straight out are you a celiac turns out she s been a celiac since she was 5 so needless to say she gave me the run down on the drinks and made me some yummy stuff even has a secret stash of hard cider for celiacs so my husband and i have a new spot for our date nights alright that s enough for now posted in uncategorized leave a comment tags alcohol celiac celiac s disease gluten free restaurant disaster january 15 2008 sorry i haven t written in here recently things have gotten a little hectic with an ex of my husbands and my dogs getting sick anyways my husband and i went out to our first restaurant the other day boy was that a disaster we chose rainforest cafe i had tim call ahead and do the spiel hello my wife is a celiac which means she s allergic to gluten wheat we would like to dine there and were wondering if you would be able to accommodate us so on and so forth the manager chris said that she knew what a gluten free diet was and that they even had a special menu so off we went we walk in and get seated immediately asking to see said manager she comes over plops down at the table and asks me point blank so what are you allergic to now i reply with gluten thinking in my head i thought we went over this on the phone well like what what is gluten in i nearly fell off my chair she had no idea what was going on and she had lied to us on the phone as well because she had no special menu for us so i decide to play it safe and trust the cooks i know they have an allergy cooking section so i hope for the best i ordered fajitas with out the tortilla and am assured there is no gluten the server comes out with our food and places a bowl with my food of rice noodles i pick one up ask what they are am assured they aren t wheat and i take a small nibble wheat sure enough with in the hour i m sick and in the bathroom needless to say i wrote a very very long e mail to the head office i think i m going to stay away from restaurants from now on posted in uncategorized 1 comment tags food allergy gluten free gluten free menus restaurants one more now i know january 6 2008 okay well starbucks chai tea latte makes me sick ugh i asked they said they were pretty sure it was gluten free so i took a risk one more thing added to the not for sarah list i m not sure if i mentioned this yet but all celestial seasonings teas are gluten free hurrah anyways i went shopping the past two days once at walmart then again at the gluten free store bought a bunch of fresh fruits and cheeses meats and random things from walmart then got some interesting things from the gluten free store kinnickinnick s waffles the one s a mentioned previously kicked a lot of butt also make a cheese bread that i picked up still hesitant to try it but it s something new also got some sesame bagels to try with my fruit spread i bought i ll let ya ll know about that later the more i research recipes and tweak them the easier it gets what i ve come to realize is that this disease does suck but at the same time if you re willing to cook real meals for yourself instead of buying pre made at the store it s a lot easier as well as a lot less expensive oh ps brown rice cereal rocks just like kashi posted in uncategorized 3 comments tags cooking food gluten free new foods shopping chai tea january 3 2008 wow this week has been really long right now i m just trying to relax with a cup of chai tea thankfully my daughter has learned how to sit up on her own so she is occupied at the moment things are going alright last night s dinner was rather bland tho we had lemon pepper chicken and stir fry veggies not a favorite breakfast is still my biggest challenge i m sick of gf bagels but the leaves little else so i ate a banana and some mild cheddar cheese i m definitely digging the cheese all though i m all out at the moment i m going to have to pick up some more at the store makes for a healthy snack so i ve come across another aggravation which for a change has nothing to do with my lack of gf food i am sick of people underestimating my disease when i told my mil that i can t have foods with gluten in it she said well a little won t hurt you gee thanks for your input i explain it to people and i get oh well you want to go out to eat no i don t i m not that comfortable yet every time my stomach twinges i immediately wonder if maybe i ingested some gluten on accident definitely stressing myself out got to stop that posted in uncategorized leave a comment now i know january 2 2008 well what a way to bring in the new year last night dh and i had our friend rob over and made some steaks and red potatoes but while they were cooking i cut up some mild cheddar cheese and deer sausage which i was pretty sure was gluten free all was good until right before i was going to go to bed then the vice grip on my intestines decided to tighten and in the bathroom i went my stomach pain was so bad it actually kept me awake in bed for a while hence why i am so tired now so now i know deer sausage bad damn at least the dinner was good it was definitely a tad bit depressing to have the stomach pain and the runs return after feeling relatively normal for 3 days i definitely fought the urge to cry while laying in bed last night i know it s just a minor set back but when you ve been in pain one way or another for so long and you get a break from said pain it just sucks to go back well i m not quite sure what i m going to eat for breakfast today dh is going back to work after his holiday break today so i have to fend for myself maybe a banana and a bagel with peanut butter either way i have to go shopping this weekend as to shopping i heard that walmart has a l...
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