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ietary staples are a thing of the past that means pancakes waffles grilled cheese french toast pizza all those usual kid favorites they are out and poor mom is left desperately seeking a substitute for picky kid carb fiends keto dieticians are very accustomed to hearing my kid isn t picky at all s he will eat anything at all so long as it is a carbohydrate my daughter was particularly concerned she wouldn t be able to eat enough sweet things she s still concerned about that to be honest i m concerned she s not getting enough nutrients but she s still upset she can t walk into a store and buy a candy bar priorities we ve managed to make a reasonable facsimile of french toast check we have not yet satisfied her need for pancakes she hates the keto pancakes not yet a check i do however have a pretty good keto waffle recipe and i was pretty proud of my keto waffles so much so that i felt safe making waffles for her and serving them alongside real waffles for the other kids i defy you to find a more realistic looking waffle they were not bad if i do say so myself and she liked them until that is she spied some of the other waffles because while i did indeed make many of the real waffles in the same waffle stick maker that i made her waffle in i made the mistake of making some of the real waffles in the mickey mouse waffle maker oh dear what a colossal mistake she was having none of her waffle shaped waffle if it wasn t mickey shaped it was not a waffle the problem is that her waffle batter is pretty small and it isn t very spreadable so there wasn t a great way to make it in the mickey waffle maker uh oh but there had to be a solution starting with the fact that she s been losing weight rapidly so i already knew i had to increase the size of her meals by 160 calories so that would automagically increase the size of her waffle so i started there but that made a still not very spreadable waffle that didn t look very mickey like it was clear that somehow i had to add more spreadability and more volume to the batter so i consulted my sous chef husband we decided to use some of her cream to the batter it took a full 30 grams as much butter as was already in the batter but we came up with a batter that was spreadable the waffle was more fragile and a little tricky to maneuver but it worked and i had a very happy girl posted in uncategorized 2 comments the wawa family august 23 2017 by chezperky abby s diet consists of 90 fat fifty percent of the fat she consumes is in the form of heavy cream specifically the heavy cream she consumes is special 6g of fat per serving cream most heavy cream available in stores is 5g per serving for comparison whole milk which contains a ton of carbs and isn t suitable for the diet is 4 fat her cream is about 40 butter fat the 6g fat cream isn t easy to come by trader joe s sells it but they don t always have it organic valley and stonyfield farms also have a 6g cream but only whole foods carries either of them regularly and even then you have to be careful to check labels to make sure you re getting the 6g cream some independent dairies make 6g cream but you have to contact them directly to find out it s not simple chop has also partnered with wawa to provide the special 6g heavy cram wawa makes a 6g heavy cream but it is not typically available on shelves in regular wawa retail stores however for chop s keto patients who live near a wawa store wawa will special order the heavy cream and have it delivered to your local store weekly this is amazing it saves me having to track down the cream every week and takes some of the stress off still i was wondering exactly what this was going to cost me because this diet is expensive the gram scale alone costs 200 and chop recommends we have two of them fat chance imagine my surprise to discover upon speaking with their corporate offices that the cream would be provided to our family free of charge for as long as she was on the diet two quarts a week as a baseline but if we need more we just need to call if we are traveling and need to switch delivery to another store just call if we need less just call no questions asked we did sign a hipaa release so that chop could send a letter of medical necessity first we even received a wawa mascot in the mail obviously wawa doesn t get nothing out of the deal this week when i went to pick up abby s cream i also picked up milk which i wouldn t normally ahve done at wawa but since i was there anyway and sam was with me and he wanted orange juice so it was a win for wawa but i still consider it a win for us it s amazing that wawa does this and i will sing their praises from here until eternity they also do a lot with funding programs for food insecurity and have endowed chops volunteer program they distribute complimentary beverages twice a day to the inpatient floors of course they also get to plaster their name all over the hospital as part of the deal i m still proud to say we are part of the wawa family right now every little bit helps and this is a lot more than just a little bit posted in ketoge what the keto chronicles uncategorized tagged health ketogenic diet ketokid wawa leave a comment ketokid august 18 2017 by chezperky yesterday marked an important milestone abby s body officially begun the transition into ketosis her morning blood ketone levels were over 2 4 the team here looks for anything over 1 5 so she was well beyond that she is now officially a ketokid tm this was a huge and happy milestone and she earned a bajillion stickers on her sticker chart note that each chart is for one full day each time she fills out a chart she gets a big ish prize yesterday was a fidget spinner and a barbie knock off doll from the dollar store the key to keeping her engaged has been lots of positive reinforcement and as little focus on negative behaviors as possible the same behavior management parenting techniques that are tried and true remain true for a keto kid despite yesterday s successes it was still a tremendously difficult day in addition to the difficulties of the diet i found out first thing in the morning that my cousin had died so my emotional reserves were toast combine that with abby having an extremely hard time managing the switch to a 4 1 ratio yesterday and it was the hardest day so far and we still have training wheels on the test comes when we are home navigating this ourselves one very frustrating thing is that abby is very hungry some of this is psychological the meals are small and you have to make a psychological shift in what your relationship with food looks like some of the hunger is to be expected her stomach is used to larger bulkier meals but some of it may be that the meal plan wasn t sufficient calories for her this was definitely a possibility as her blood sugars took a precipitous drop on wednesday so we added another 160 calories to her diet in the form of a second snack and we are hoping that will correct the issue it did seem to correct her blood glucose but she s still ravenous hopefully that will shift soon but that brings me to another issue she is sneaking food every chance she gets i know she s not just doing it impulsively and forgetting she can t have it because she s hiding it badly from me sorry kid but the mini sugar free chocolate chips all over the floor were a dead giveaway i m worried because she was already a bit of a food sneaker even with free access to fridge and pantry this diet is not going to make things easier for her and will likely exacerbate that behavior in the short term we may need to get locks for fridge and freezer and the pantry hopefully this behavior will self correct before it s a huge problem for abby the practicalities of sneaking food are that when not if i find out that she snuck food i have to do my job to give her brain protection against those carbs whether it s a lick of a lollipop a handful of cucumbers or a giant cookie the treatment is the same give 1 fat exchange serving in addition to the rest of her meal plan to compensate this means that in addition to the fat she s already ingesting she has to have 4 grams of canola oil or 5 grams of butter margarine or mayonnaise no kid wants to do that but abby s adhd of course keeps her sometimes from thinking through the consequences of actions so who s the bad guy moi who else people speak of this mythical lethargy that hits kids when they are making the change over from carb burning to fat burning entering ketosis i was starting to believe it wouldn t happen but while seth and the other kids were here visiting abby fell asleep and took a several hour nap when she woke up and ate her pre bedtime snack she perked right up and was then completely bouncy but crashed again shortly therafter i can t say i was totally hating the nap more of those times please but not forever i m still a jewish mother and i worry i have a draft post started about the meal planning math and recipes but i m tired i only slept for about an hour and a half last night and have no real time left during the day before hopefully discharge today i m basically on my own in terms of figuring out what to feed her the team will check my calculations for me if i want them to and they will do so even after discharge if i email them copies as soon as we get home assuming there s time i ll cook a couple things for her to get through shabbos otherwise there are plenty of other things the most important thing is that i ll need to preweigh anything that i can before shabbos starts but that should be easy enough i hope it s hard to believe the training wheels come off today it s scary but it means that abby is doing well if she weren t stable they would not discharge her and it looks likely that we will go home this afternoon the team here has been amazing they ve adjusted her calories worked hard to find options that will make abby feel mostly normal and they ve bent over backward to help me find foods that will keep abby excited or at least begrudgingly willing to keep trying her meals she s been a real superstar she s almost at the edge of being on the older side in terms of kids for whom the diet is most successful in terms of compliance a baby never knows anything different but an almost 10 year old knows exactly what she s missing out on the whole team is absolutely astounded at how well my ketokid is doing and we are just so grateful to chop and the ketoteam for all that they do more later but i m off to class posted in ketoge what the keto chronicles uncategorized tagged abbadabbadoo admission week chop ketogenic diet ketokid leave a comment it could always be worse right august 15 2017 by chezperky chop keto admission day one today was admission day for abby to start the ketogenic diet the best i can say about today is at least we have set the bar low for tomorrow after today even the tiniest success will mean that it was more successful than today we haven t exactly gotten off to the best start for one thing we arrived late it was mostly my own fault i had too much to do and i messed up my husband had a mid day appointment and i should have told him to take the car not the van so that i would have had more freedom of movement rather than feeling like i was stuck at home while he was away but i figured i had plenty of time except we didn t abby s admission time was 3pm which meant we needed to leave the house at 2 30 at the latest and well we didn t leave on time and i forgot a few things and packed way too much of a couple of other things but don t sweat the small stuff right i called chop on the way and told them we d be here before 3 30 and they said no worries we aren t closing or anything thanks for calling we were indeed here before 3 30 so we weren t that late nothing much happens on day one anyway the restrictions of the diet don t begin until breakfast tomorrow so that s good abby was still able to eat normal food right up through dinner but no pre bedtime snack other than water fair enough we arrived on the floor abby me and our entourage since seth and the other kids came with us to help abby get settled and found out that the kosher keto family i ll call them our keto coach from this point forward that s been helping us get acquainted with the ins and outs of the diet and who have been true cheerleaders and absolutely indispensable to me throughout all of this had left a package for abby with some presents fro sugar free snack pack gelatin like jello cups a bracelet charm making craft project and a quilt tying craft project what a relief she was delighted i had another keto friendly and kosher food i could give her and now i had two other new activities for her to do while here shortly after we got to abby s room one of the kids asked for gingerale and i went to the nutrition room to get some and next thing i knew i slipped on a patch of water that was on the floor and well i was on the floor too i banged my knee and elbow pretty badly and my hip the arthritic sciatic one had shooting pain going through it seth came running when he heard me cry out and he got a nurse i got band aids i was bleeding and ice packs and then things just kept seeming to feel very busy so i sort of forgot about it until later when things were quiet and i realized how much everything hurt ugh this is going to hurt for a while ugh of course i realized a few things i d forgotten which was bound to happen seth will bring them tomorrow much much later when i was unpacking everything i was talking to a friend r and suddenly i realized i did not have our gram scale the gram scale is vital for the diet without it she can t do the diet i must have it i called seth in a panic obviously i didn t pack it except i distinctly remembered packing it it was the first thing i packed so i wouldn t forget it i must have taken it back out of the suitcase when i was rearranging things so i must have left it in my bedroom but seth couldn t find it anywhere he sent me photos of my entire bedroom which made me realize how badly i need to clean and organize my bedroom to prove it it wasn t in the kitchen it wasn t in the basement the garage dining room no where it wasn t in either suitcase any of the drawers i d put things in not the cabinet not on the desk not the bathroom not on top of the fridge how had a 200 scale disappeared i texted my keto coach in a dead panic not to worry she said take a deep breath they have extra scales on the unit she knows someone with an extra scale in lakewood and chai lifeline comes down from lakewood every single day with food so they can bring the scale to me before the end of the week take some deep breaths stop worrying get some rest or at least read a mindless book she said i couldn t help it i was panicking i felt so stupid how could i have forgotten this essential item how could i have lost this expensive tool how were we going to afford another once the freakout program had been started there was no going back finally i dec...
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