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Text of the page (random words):
my flight with pegasys my flight with pegasys this blog is about the treatment i have just begun for hepatitis c i have chosen to take part in a research group using pegasys and copegus welcome to my flight with pegasys tuesday october 1 2013 wow i am so sorry i haven t been back here i had no idea people were reading this you want an update this month marks my three 3 year anniversery of being a dragon slayer i have been having a full labs done every six months with no trace of the virus not just a low number under 40 is what it reads when you are testing positive but at a very small viral load nope not me there are no traces found of hepatitis c woot woot in fact all my labs come back showing a healtier me then i had been for twenty years long term side effects my mental and emtional state are still working through the bugs i have to say 80 of my issues during treatment have vanished things like dry skin poor eyesight even nausea have lingered but i am healthy and cured i am due for my 6 moth blood draw jan 1 2014 yes i will continue to test for life for now gotta run or crutch broken foot different story peace people posted by crystal at 10 15 am 2 comments email this blogthis share to x share to facebook share to pinterest thursday june 30 2011 hello i am alive and well had a tia mini stroke on mothers day treatment was stopped at 36 weeks i felt so ill as i was withdrawing then the opportunity came for me to go to joplin mo no time to think god lead me i feel like i did one year ago no symptoms no sides no pain no pity i am here volunteering at a church helping others is the most beautiful way to overcome treatment very very busy post again soon posted by crystal at 12 32 am 1 comments email this blogthis share to x share to facebook share to pinterest monday may 2 2011 shot 15 is near i am going to type as many thoughts as i can and spend less time critiquing my words i may not make sense bare with me l the awful truth these days have been bad i will not sugar coat it for you the brain fog is unreal yesterday is a blur this morning was a dream and i said what five minutes ago a thousand thoughts run through my head i think i really want to express this but can t before i know it it s gone if i try to express it i scramble the words now misunderstood i must explain my train of thought and why i do this it s best to shut up i hurt everywhere the tiniest little thing becomes a major issue i tore the skin under my nail and had to ice it i ache to the bone literally my limbs and organs all feel alien my skin crawls my hair hurts and my teeth hurt again which means i m now going to eat less and probably lose more weight i am holding at 120 lbs this is a 30 lb lose for me i really can t afford much more migraines how do people function in a normal life with these horrible things i pray they end with treatment i have been so blessed to have never experienced these until now my eyes hurt so bad they feel like golf balls ready to explode a warm cloth with a hint of lavender and other herbs is my only relief i m trying to touch on so many things before i lose my way i could not do this without wayne i am 98 house bound between not having a car living on the third floor and being ill i don t get out i depend on him for food medication support everything for those of you who have done or are doing this alone god bless you i can barely feed myself most days i understand the best thing i could do for me right now is to crawl into this hole and ride it out i certainly am not going to quit at this point i may be physically whipped but my desire to destroy this thing is stronger then ever besides i know the lord would not allow me to endure this unless there were some really good lesson here i feel his presence and he gives me strength i ve walked away twice from this i must post posted by crystal at 11 49 am 1 comments email this blogthis share to x share to facebook share to pinterest saturday april 9 2011 todays thoughts my mind is always out to lunch so this will look like a collage of thoughts like the remote i go from play to ff then rw mostly i m on pause i have been struggling with food weight issues i kept dropping 1 2 lb a day nassau vomiting and lack of hunger so now i m calorie counting too wonderful wayne went shopping and got all kinds of high calorie healthy stuff for me to eat drink ensure carnation essentials and chocolate lol i am now holding around 124 that s 26 lb lost since i started tx i feel like i must force myself to eat each day i believe most of it is psychological it s the meds messing with my head physically still not up moving much too weak i did win my appeal last week with ssi a big worry off my mind i can now pay wayne back what i ve borrowed and contribute monthly around here i have no intent to draw this any longer then i have to i want to work again i am just bored off my rocker with no routine goal or purpose each day i m glad i had mental emotional issues throughout my life i understand now how therapy has prepared me for this tx i would like to write a book if i ever get back from lala land there is so much that goes through your mind crazy weird stuff nothing bad just why did i think that stuff most you don t feel comfortable talking about to anyone at this time i have become very distant another side effect i have withdrawn i want people around me but i don t want anyone to acknowledge me talking listening for more then 45 seconds is not a strong point right now i m just not me i wonder if i ll ever be me again i think yes just wiser 3 posted by crystal at 4 49 pm 3 comments email this blogthis share to x share to facebook share to pinterest friday april 1 2011 the roller coaster no amusment ride this week has been a roller coaster ride of emotional ups downs and physical exhaustion thoughts fly in out of my head so quickly one moment i m in an intelligent conversation suddenly i m completely brain dead and apologizing reality seems to escape me i have found pages that i have typed over the past few months they are in a file called adhd appropriately named i find it hard to grasp i wrote this stuff really what else do i not remember these meds are f king with my head big time like a remote play ff rw stop repeat i feel fortunate that i do understand what s going on it doesn t make it easier i am aware that my insanity is taking a toll on wayne i am sad for those who may not realize how tx has impacted their life i am constantly reminding myself this was to be expected it s only temporary and in the end i win for now i will hold on to my marbles hour by hour day by day peace posted by crystal at 2 49 pm 0 comments email this blogthis share to x share to facebook share to pinterest monday march 28 2011 to my dragon i will never surrender i ll not let you beat me there s nothing you can do no force could be imposed on me that would see me succomb to you no obstacle you throw at me will block my path for long i ll simply find another way my desires are far to strong no winds could blow me hard enough to drive me off my course your s could never hope to match that of my driving force nor waves or raging torrents you might muster will ever sweep from this path i ve chosen or all it is i seek so to you i welcome your challenges each one you may throw they only serve to strenghten me and with everyone i ll grow by w a simmons i am one strong woman but when i can t get one feel good day after weeks of sx s i start to lose it i cried last night frustration won i feel bad again today these are the times when you just want to quit now more than ever this is when you kick yourself reach down deep and find the strength physically mentally emotionally spiritually i am so close with 20 weeks to go hcv undetectable and the encouraging stories of those who have been free from this dragon years later this is what you fight for now winning posted by crystal at 11 47 am 3 comments email this blogthis share to x share to facebook share to pinterest tuesday march 22 2011 i have only 21 weeks to go i m so sorry i have not returned til now treatment has been a ride everyday is a new adventure i have 21 shots to go i was blessed to have read so much on here in advance without the knowledge i acquired here i never would have made it this far about 16 weeks in sx began to worsen nausea migraines dehydration my eyes hurt my joints ache shortness of breath has me house bound i can t even stay on my feet for more than a few mins i choose to deal with my aches pains rather then add more pills to my regiment i gave up on whining long ago another side effect there s a pill for that i never want to hear that again roll my riba has been reduced twice i now take 0nly 600mg my s just keep dropping wbc 1 9 rbc 3 01 hemoglobin 9 9 pale i have lost more than 25 lbs nearly 2 stones ensure is expensive but becoming my best friend i eat healthy so healthy i can t seem to get enough calories each day water water water and yet he doctors are impressed with me i ve been told that i m am handling this like a champ others in tx have not fared as well especially mentally emotionally i give much credit to my friends i promise not to go so far so long again posted by crystal at 2 46 pm 1 comments email this blogthis share to x share to facebook share to pinterest older posts home subscribe to posts atom pages home let me introduce myself treatment side effects about me crystal denver colorado united states i have a sweetheart 4 children 5 grandchildren god is my bff view my complete profile blog archive 2010 15 september 5 october 7 november 2 december 1 2011 6 march 2 april 2 may 1 june 1 2013 1 october 1 wow i am so sorry i haven t been back here i had followers travel theme theme images by enjoynz powered by blogger