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m 9 comments email this blogthis share to x share to facebook share to pinterest labels pets friday 30 december 2011 end of chemotherapy the last few sessions had left my dad drained of energy loss of appetite and difficulty breathing the specialist had changed his chemo cocktail of drugs and as explained in my previous posting it was taking a toll on his health before my dad had his 12th second level chemotherapy a ct scan was ordered to see whether the development of the cancer cells had been halted in any way unfortunately it shows that improvement if any was very minimal after consulting the various doctors close friends and families after 16 chemotherapy sessions 4 first level 12 second level my dad decided he has had enough of chemotherapy so the relationship with radiology and oncology department hkl remains as a palliative procedure requiring him to pay a visit every few months my dad was happy with his decision and i was happy that the old man was happy i had always in the past decided on all his medical decisions but this time i let him decide on his own sour sop or durian belanda we have now embarked on a new pathway that is of alternative medicine no its not about witch doctors voodoo dolls or the local tok bomoh its taking the natural pathway fruits berries etc during our numerous visits for his chemo sessions we heard tips and advices from numerous cancer survivors at the clinic among the consistent tip is to take sour sop on a daily basis or locally known as durian belanda after he started taking the fruit on a daily basis his cancer marker showed an improvement and this was after his 10th chemo session during which his cancer marker was increasing all the time a myth or coincidence maybe but quite a number of cancer survivors attest to the power of the sour sop maybe that is why the durian belanda is quite expensive nowadays for those of you who have large plots of unused land maybe this would be a good business venture posted by divechiefkaz at 12 57 am 4 comments email this blogthis share to x share to facebook share to pinterest labels family medical wednesday 21 december 2011 a rave party tiesto style one fine day my old friend zeq suggested for us to attend tiesto s concert in sepang hmmm sounds interesting then he said the magic word my treat that sort of seals the deal hehehe zeq and i share this passion for what i call laid back music more of the music less of vocals we used to listen to cafe del mare during long drives on dive trips however i am not sure that tiesto and cafe del mare are of the same genre when catz heard the news she thought i was kidding after a few minutes of her laughing her head off then she said you nak pergi concert budak budak muda tu can you stand that long i answered kalau penat duduk la kat kerusi then it dawned on me that it is not the same kind of concert as the kenny g concert i attended way way back in london where there were plush dedicated seats in a nice concert hall o m g early signs of regrets starts to surface however it was a few hours away from concert time it s too late to chicken out so i put on my black tshirt jeans shoes and headed for sepang little did i realised i was dressed as a rocker heading for a rave party there were local and international djs spinning their music the atmosphere was just nice with soft wind cooling the scene and a full moon in the background everyone was waiting for the star of the show tiesto to come on stage eventually he came on to the tremendous applause from the crowd suddenly there was an influx of people you can see rows and rows of hand phones videoing is there such a word the appearance and tiesto did not disappoint us much effort went not only to the music but also the video and special effects at last i have to admit that i felt a teeny weeny out of place i spent most of the time looking amused at the antics and dance styles of those around me here are some of my observations the fatter they are the skimpier are their outfits ewwwwww stay away from those who have just left the centre court area coz they are sweaty and smelly from all that jumping around of course the longer you stay the more invisible you are coz more people seems to be making body contact with you as if you weren t there no matter how sexy you are you look really ugly when you are drunk and vomiting everywhere any body movement qualifies as a dance move even just putting your hand up like when in school and you are asking permission to go to toilet at about 1am we left the area somehow the thought of our beds seemed more inviting sign of old age maybe to all youngsters who were looking at us in disbelief we have this to say we have been there done that when you were just an itch in your dad s pants hahaha posted by divechiefkaz at 1 10 am no comments email this blogthis share to x share to facebook share to pinterest friday 2 december 2011 reality hurts it s been months since i last blogged it does not mean nothing interesting happened in my life but i was quite occupied between teaching work and sending my dad for his chemotherapy he has just completed his 12th second level chemo plus the 4 first level chemo totaling 16 chemotheraphy sessions until today i had forgotten about his true condition subconsciously hoping that the chemotherapy was doing it s magic the person that snapped me back into reality was a good doctor friend who took time to call me and reminded me of the truth you see as it was his 12th session he was asked to do a ct scan to determine the extend of the damage done by the cancer and whether the chemotherapy actually worked i guess my friend saw the result and it s not good the cancer is stage 4 has spread to his lungs and liver and it s terminal even though i had watched how life was literally sucked from my dad from happy strong old man to a frail and weak old man i had always told myself that it s the side effects of chemotherapy that inside the chemotherapy was doing it s magic i believed that so much until i forgot that he was a stage 4 cancer patient and that the cancer cells were eating him up my friend had asked me to prepare myself for the worst to spend every available time with my old man the problem that is on my mind is how to tell my mum and my siblings they too have the right to know the truth but i am not sure whether knowing the truth would be best for them or my dad no matter how many times i had been faced with death while rescuing people it is not an easy subject to face much more when it involves someone dear to you i hope and i pray that i have the endurance perseverance and strength to go through all these to the end to carry out my tasks and responsibility as the eldest son the feeling of helplessness is simply overbearing it s true what some people say chemotherapy is a bigger killer than the disease posted by divechiefkaz at 12 17 am 5 comments email this blogthis share to x share to facebook share to pinterest labels family medical thursday 23 june 2011 2nd level chemo the saga continues the reason why i decided to blog about my dad s condition is hopefully it can be a informative source for anyone who has colon cancer hopefully it would ease them to face this condition that saps the live out of a human continuing about my dad s fight cancer saga after his 4th chemo in selayang hospital as mentioned in my previous entry my dad was referred to hkl hospital kuala lumpur formerly known as general hospital for 2nd level chemo my dad was not in favour of going to hkl due to the bad experiences from my late sister s case for the first experience with the oncology department in hkl was an eye opener for him though a bit cramped with people the attending specialist was pleasant soft spoken and full of empathy upon checking my dad she was surprised to see the condition of my dad s hands she was more surprised to find out that there was no medication prescribed for it she then recommended that a chemo port be inserted to ease the infusion of the chemo you have to purchase the device from the pharmacy though as its not provided for by the hospital within days the minor operation was conducted the operation takes less than an hour but you have to wait for your turn my dad was admitted at 10am the operation only done at 4 30pm after the operation mr tan the surgeon told my dad that he can be discharged due to the incompetent ward mo who was unsure how to discharge a patient we had to wait until 10 30pm when the specialists conduct their ward rounds instead of having my dad discharged that mo chose to follow the specialists around the wards and only discharged my dad after that even the specialists were confused as to why my dad was still there after discharged we had to go to pick up the medicine from the pharmacy ourselves when i finally sent my dad back home it was close to midnight that mo has to wisen up to prioritise for warga emas who has just completed surgery as compared to in house patients during our next visit we got some good news there is an option of having the chemo infusion at home thus no more hospital stay my dad jumped at it the moment the specialist has just completed her sentence seeing my dad s eagerness i agreed to it for this option we have to purchase the disposable infusion pump single use ourselves as it s not supplied by the hospital the pump has no batteries or moving parts and operates by pressure it infuses very slowly through his chemo port so now the routine is on friday to take blood sample the following monday from 9am 4pm he takes his infusion at hkl then they prepare his pump and attach it to the chemo port after that he can go home and on wednesday at 12pm i send him to hkl to detach the pump the cycle is every 2 weeks so far he has gone for 1 cycle of the 2nd level chemo alhamdulillah there are no severe side effects posted by divechiefkaz at 10 51 am 4 comments email this blogthis share to x share to facebook share to pinterest labels family medical saturday 14 may 2011 why i haven t blog part 3 final 1 month on and there we were my dad and i listening to mr r the specialist on chemo mr r thought that my dad could not understand english thus he was very blunt and straight forward in explaining about my dad s medical condition he was saying things like it is bad as its stage 4 cancer and has spread to his liver and lungs we don t know how long he will live but its gonna be worst etc etc i looked at my dad but he looks cool then i interrupted mr r and told him my dad understands english you can explain directly to him mr r went red in the face poor dude but we understood that he meant well there are a few options in getting chemotherapy option 1 is a daily dose but he has to come weekly for it option 2 is a 48 hours dose but on alternate weeks option 3 is 5 straight days in the hospital on a monthly basis there is now a tablet form also that you can take at home but its a bit costly after discussing with my dad we chose option 2 the good part was treatment is at ward 4c a 3rd class ward but for chemo he would be placed in an isolation room similar to a 2nd class the first time everyone was nervous including myself coz we didnt know how my dad s body would react to the drug the 3 days in the ward was with little interruption from the nurses its as if we were just temporary visitors first day went by and apart from slight increase in body temperature nothing else happened same goes for the rest of the stay i was grateful that there were no serious side effects the 2nd visit was easier with the ward already waiting for my dad to come in a special mention to my dad s attending physician dr farhan a soft spoken kelantanese whom immediately clicked with my dad he was in charge for administering my dad s medication we have now come to our 4th visit next week during the last visit dr farhan said that the cancer markers were still increasing despite the chemo thus maybe my dad needed a much stronger 2nd level chemo but could only be administered in hkl kuala lumpur general hospital a stronger cocktail of drugs would certainly bring some side effects i am sure my dad and i has gotten much closer since then i was there by his bedside no matter how tired i had worked during the day because i know that the few moments together were very precious to me and him everytime on our journey back home we would stop by our favourite mamak restaurant where we would have father son conversations over lunch the topics has gotten heavier though and i try to digest them while trying to put on a brave face not to show my sadness i am thankful to the al mighty coz i am blessed with the means and time to be with my dad to me it s the greatest gift of all i hope and i pray that i am given the courage perseverance patience time and the means to go through what s ever coming in the future for those of you who have yet to bond with your old man now is a good time to start posted by divechiefkaz at 1 43 am 4 comments email this blogthis share to x share to facebook share to pinterest labels family medical friday 15 april 2011 why i haven t blog part 2 dad s room in ampang hospital a second opinion was requested and my dad was transferred to selayang hospital reputably the cancer centre amongst government hospitals the surgeon in charge of my dad s case mr raj immediately put my dad s fears at ease he was very courteous professional and most of all a knowledgeable and experienced surgeon the prognosis was not good he has colon cancer within days he had scheduled my dad s surgery there were also indications that the cancer has spread to his liver and lungs he stressed that the surgery was not a cure but merely to improve his quality of life the night before my mom stayed overnight together with me at that point i didn t know how or what to feel my dad was understandably a bit nervous but the sleeping pill given to him helps the next morning very early the nurses came to ask him to get ready as he was the first on the list the journey from the ward to the operating theatre seems a long one we said our goodbyes and they wheeled him in the look of sadness on my mum s face was heart wrenching and slowly i put my hand around her and lead her back upstairs to my dad s room somehow we waited and waited and yet there was no news about my dad time passed by 1 hour 2 hours 5 hours could something have gone wrong asking the nurses didn t help either coz every time they gave me the same standard answer nanti kita bagi tau luckily i knew someone who works in icu who then did some investigative work for me belum lagi rul masih dalam ot was the answer that didn t help he called again 30 minutes later to tell me my dad was in recovery room dad post ops still not getting any news from the nurses i went down to ward 4a the surgical ward for post ops cases i went alone to ensure that everything is ok before my mum comes down there he was on the bed on epidural the look of discomfort was on his face but being dad he didn t co...