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eds alert newsletter blogging about ehlers danlos syndrome eds alert newsletter blogging about ehlers danlos syndrome welcome to the eds alert newsletter january 7 2009 this is a blog that will collect various links about ehlers danlos syndrome and pull them together into a quarterly newsletter please feel free to refer people who have eds or want to learn more about eds to this blog the information in the blog is organized in the form of quarterly newsletters using categories such as blogs online diaries people talking about what it is to have eds medical articles disability legal issues news etc the most recent newsletter is always at the top of the page and you use the previous entries buttons at the bottom of each screen to scroll back to look for earlier articles to read just the newsletters in reverse chronological order click here there are several places where eds patients can locate medical information along with personal tips from fellow eds patients most are free ceda north american eds mailing list free ceda website archived medical articles and tips ednf us eds foundation has both medical articles free as well as a member only forum hypermobility syndrome association uk forum that focuses on eds type iii hypermobility free ehlers danlos bulletin board support group free eds network cares free us national medical library info about eds free nih research into eds free livejournal ehlers danlos support group myspace ehlers danlos support group facebook ehlers danlos support group as we find new sources we will update this post so feel free to bookmark it here the personal overview from one of our volunteers of what it means to have eds if you need to contact us you can do one of two ways leave a comment to one of the newsletters or drop us an e mail at edsalert gmail com how to follow this blog you can come back every few months and check for new updates you can also sign up to receive the newsletter by e mail you can find the subscription button on the right sidebar or by clicking here and following the instructions if you use a blog reader you can set up an rss feed by clicking here if you ve wandered here from livejournal you can keep track of the eds alert newsletter by adding the newsletter to your livejournal friends list http syndicated livejournal com eds_alert_wp parental advisory finally some of the personal blogs and websites we may link to in the course of collecting information about ehlers danlos may contain content that is adult in nature if you are a parent please take note of this posting policies we only link to publicly accessible entries and websites if you would like your post removed from this newsletter please drop a comment below or e mail us at edsalert gmail com please remember when you re visiting people s personal blogs or diaries that these often contain information of a personal and sensitive nature and to respect their privacy and concerns we only quote excerpts from articles that require subscriptions or paid memberships to access share this share on x opens in new window x share on facebook opens in new window facebook email a link to a friend opens in new window email like loading posted in eds newsletter welcome tagged eds ehlers danlos hypermobility leave a comment news the olympic torch in ashbourne july 17 2012 ashbourne news the olympic torch in ashbourne this is a reposted link from another person s group s website click on the link to read and or participate in their discussion share this share on x opens in new window x share on facebook opens in new window facebook email a link to a friend opens in new window email like loading posted in newsletter leave a comment blog is there a link between sleep disorders and ehlers danlos syndrome july 17 2012 is there a link between sleep disorders and ehlers danlos syndrome sleepdisorders com this is a reposted link from another person s group s website click on the link to read and or participate in their discussion share this share on x opens in new window x share on facebook opens in new window facebook email a link to a friend opens in new window email like loading posted in newsletter leave a comment forum problems finding a kansas geneticist to get a diagnosis july 17 2012 problems finding a geneticist to get a diagnosis discussion ehlers danlos national foundation support community inspire this is a reposted link from another person s group s website click on the link to read and or participate in their discussion share this share on x opens in new window x share on facebook opens in new window facebook email a link to a friend opens in new window email like loading posted in newsletter leave a comment forum drs in st louis mo july 17 2012 drs in st louis mo discussion ehlers danlos national foundation support community inspire this is a reposted link from another person s group s website click on the link to read and or participate in their discussion share this share on x opens in new window x share on facebook opens in new window facebook email a link to a friend opens in new window email like loading posted in newsletter 1 comment news ben eight decides to sell his toys to raise funds for charity july 17 2012 ben eight decides to sell his toys to raise funds for charity from watford observer this is a reposted link from another person s group s website click on the link to read and or participate in their discussion share this share on x opens in new window x share on facebook opens in new window facebook email a link to a friend opens in new window email like loading posted in newsletter leave a comment news us horse whisperer comes to abergavenny june 23 2012 us horse whisperer comes to abergavenny from south wales argus share this share on x opens in new window x share on facebook opens in new window facebook email a link to a friend opens in new window email like loading posted in newsletter leave a comment blog what is ehlers danlos syndrome cnn june 23 2012 what is ehlers danlos syndrome cnn com blogs share this share on x opens in new window x share on facebook opens in new window facebook email a link to a friend opens in new window email like loading posted in newsletter leave a comment news 1 500 back fight to keep nursery open june 23 2012 1 500 back fight to keep nursery open this is staffordshire share this share on x opens in new window x share on facebook opens in new window facebook email a link to a friend opens in new window email like loading posted in newsletter leave a comment news singled out hats off gentlemen it s adequate june 23 2012 singled out hats off gentlemen it s adequate hats off gentlemen it s adequate news antimusic com share this share on x opens in new window x share on facebook opens in new window facebook email a link to a friend opens in new window email like loading posted in newsletter leave a comment news ben eight decides to sell his toys to raise funds for charity june 23 2012 ben eight decides to sell his toys to raise funds for charity from watford observer share this share on x opens in new window x share on facebook opens in new window facebook email a link to a friend opens in new window email like loading posted in newsletter leave a comment news glan clwyd hospital left my son in agony june 23 2012 the leader news from wrexham flintshire glan clwyd hospital left my son in agony share this share on x opens in new window x share on facebook opens in new window facebook email a link to a friend opens in new window email like loading posted in newsletter leave a comment news circus stars lighting up young lives in swansea june 22 2012 circus stars lighting up young lives in swansea this is south wales share this share on x opens in new window x share on facebook opens in new window facebook email a link to a friend opens in new window email like loading posted in newsletter leave a comment blog chiari and cervical instability june 22 2012 chiari and cervical instability living with ehlers danlos syndrome this is a reposted link from another person s group s website click on the link to read and or participate in their discussion share this share on x opens in new window x share on facebook opens in new window facebook email a link to a friend opens in new window email like loading posted in newsletter leave a comment blog opinions and decisions living with ehlers danlos syndrome june 22 2012 opinions and decisions living with ehlers danlos syndrome this is a reposted link from another person s group s website click on the link to read and or participate in their discussion share this share on x opens in new window x share on facebook opens in new window facebook email a link to a friend opens in new window email like loading posted in newsletter leave a comment forum vascular ehlers danlos syndrome june 22 2012 vascular ehlers danlos syndrome discussion ehlers danlos national foundation support community inspire this is a reposted link from another person s group s website click on the link to read and or participate in their discussion share this share on x opens in new window x share on facebook opens in new window facebook email a link to a friend opens in new window email like loading posted in newsletter leave a comment forum medical bracelets june 22 2012 medical bracelets discussion ehlers danlos national foundation support community inspire this is a reposted link from another person s group s website click on the link to read and or participate in their discussion share this share on x opens in new window x share on facebook opens in new window facebook email a link to a friend opens in new window email like loading posted in newsletter leave a comment news london 2012 olympic torch relay day six pictures olympics news london 24 june 13 2012 london 2012 olympic torch relay day six pictures olympics news london 24 this is a reposted link from another person s group s website click on the link to read and or participate in their discussion share this share on x opens in new window x share on facebook opens in new window facebook email a link to a friend opens in new window email like loading posted in newsletter leave a comment tumblr ehlers danlos zebra tumblr account june 2 2012 ehlers danlos zebra this is a reposted link from another person s group s website click on the link to read and or participate in their discussion share this share on x opens in new window x share on facebook opens in new window facebook email a link to a friend opens in new window email like loading posted in newsletter leave a comment forum may is ehlers danlos syndrome awareness month june 2 2012 chronic pain general discussions at dailystrength may is ehlers danlos syndrome awareness month this is a reposted link from another person s group s website click on the link to read and or participate in their discussion share this share on x opens in new window x share on facebook opens in new window facebook email a link to a friend opens in new window email like loading posted in newsletter leave a comment forum books on eds june 2 2012 books discussion ehlers danlos national foundation support community inspire this is a reposted link from another person s group s website click on the link to read and or participate in their discussion share this share on x opens in new window x share on facebook opens in new window facebook email a link to a friend opens in new window email like loading posted in newsletter leave a comment older entries archives archives select month july 2012 june 2012 may 2012 april 2012 march 2012 february 2012 january 2012 december 2011 november 2011 october 2011 september 2011 june 2011 may 2011 april 2011 march 2011 april 2010 november 2009 september 2009 august 2009 july 2009 june 2009 may 2009 april 2009 march 2009 january 2009 october 2008 august 2008 june 2008 april 2008 march 2008 january 2008 december 2007 october 2007 september 2007 august 2007 july 2007 june 2007 may 2007 april 2007 sort newsletters by category sort newsletters by category select category disability 4 eds 3 ehlers danlos 2 hypermobility 2 medical 19 newsletter 520 video 5 welcome 2 search the newsletter subscribe to the newsletter by email subscribe to eds alert newsletter by email recent comments jan on medical hormonal aspects of zert on medical hormonal aspects of h r on what is ehlers danlos syn erin on what is ehlers danlos syn diana cleaveland on news swiss doctor speculates blog stats 89 774 hits top clicks none admin console create account log in entries feed comments feed wordpress com create a free website or blog at wordpress com entries rss and comments rss eds alert newsletter blog at wordpress com subscribe subscribed eds alert newsletter sign me up have a wordpress com account log in now privacy eds alert newsletter view site in reader manage subscriptions sign up log in report this content collapse this bar loading comments write a comment email required name required website d create 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