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Text of the page (random words):
d how would we handle liana being in one room and sydney in another and still have adleigh at home i laughed at how crazy this all was i mean how often do these things happen at the same time but during it all i reminded myself that god has his hand on our family i don t need to be in control because he is the next day my friend beth sent me this verse but we have this treasure in jars of clay to show that this all surpassing power is from god and not from us 8 we are hard pressed on every side but not crushed perplexed but not in despair 9 persecuted but not abandoned struck down but not destroyed 2 corinthians 4 7 9 even when we feel like everything is happening at once when we feel we may get crushed or pressed from every side we can overcome because of the all surpassing power of god is in us i am not expected to be able to overcome but jesus can he can lift us up give us the strength and peace to overcome and we can share it with others i know there are a lot of things other people are going through that are far more crushing than ours but if sharing our story can give you hope to trust in the lord then i want to be obedient posted by unknown at 8 44 pm 1 comment email this blogthis share to x share to facebook share to pinterest labels hospital photos sydney 8 21 2014 g tube shunt and school in the last few weeks we have spent a lot of time in the hospital and talking about different procedures i have felt pretty overwhelmed dealing with the medical issues that we are facing in my head i know that each of these procedures will help our kids but you heart just hurts to see your kids go through surgeries and be in pain pastor steven had an amazing message this past weekend that preached on taking a difficult time and calling it what you want so our family is calling this season we our in as catalyst for our girls to be healthier and stronger if you haven t watched the sermon you need to watch it now check it out here i will try to do a decent job of catching everyone up on things since it has been a few months since my last post sydney she is growing up so fast she is saying all kinds of words loves books and stuffed animals and thinks her sisters are the best things ever she has started saying my favorite kid phrase ever hold you in february we went to cf clinic and they were concerned that she hadn t gained much weight we went back and forth several months seeing if we could get her to try fattier foods more food shakes believe me we tried everything but sydney is one of the pickiest eaters of all time and even food that she likes she will sometimes refuse so about a week and a half ago sydney had another round of constipation refused to take the medicines that would help her and didn t drink much water so we were back in the hospital for dehydration her cf doctors decided that it was time to put in the g tube to help get her on the right track so sydney has had her g tube for over a week and is doing pretty good with it she is starting to heal and just throws a fit when we have to connect and disconnect the tube thankfully her feeds are just at night right now liana as i am writing this we are in the hospital with liana 1 week after sydney got out to see if she still needs her shunt she had been having headaches and all her ct scans showed her ventricles were small she also had fluid in her abdomen so when we added all those together her doctors figured this was the time to either do a revision or remove the shunt and our family is praying hard it can be removed we will be in the hospital about a week while they monitor how she does with her tube being drained and then clamped off it is crazy timing since liana will miss her first week of school we did manage to work it out that she could go her first day of school though adleigh she is healthy and happy she has been such a helper in our house as we have been in hospital mode adleigh is going to school without liana which she was a bit nervous about yesterday was our first day of school so it has been a little crazy getting ready for that as well on a fun note adleigh has been talking a lot about wanting to do gymnastics and i think she will be wonderful at it but how do you find the time to add that in and also i am extremely thankful for all of you who are praying for our family there has been a lot going on but we are believing for great things and are grateful we know our god is in control of this all please continue to pray for healing and no shunt also pray for wade s parents as they are taking care of adleigh and sydney they are having to take over care for sydney with the g tube which is a little intimidating i am beyond grateful for our church family and they have made a schedule of nurses that can come help and people are helping us in the hospital as well i will keep you updated on how things are going posted by unknown at 6 59 pm no comments email this blogthis share to x share to facebook share to pinterest 2 20 2014 what are your words saying i love our church and i love our ekidz program my girls come home each week excited to tell me about their bible story and what they learned for the day this weekend they were super excited to tell me about their bible verse may these words of my mouth be pleasing to you o lord psalm 19 14 we had the most amazing conversation about how our words can either build people up or hurt them and how jesus loves when we are kind to others we talked about examples of how we can say pleasing words their examples tell my friends at school that i like playing with them tell my sister we can share the toy say kind words but also do kind things for people like open a door for them i love opening up these discussions with my 5 year olds and hearing what their little minds come up with we have even had several moments this week where the girls started getting mad at one another and saying somewhat mean things but all i had to say was may these words of my mouth and they corrected themselves i think i sometimes fear that kids will be mean because my children may look different or go to the doctor way more but i have girls that truly want the words from their mouth to be pleasing to the lord and i think that when we act that way it opens the door for those around us to act with kindness of course we are all human 5 years olds and 50 year olds will say unkind things but what do you do when you remember that jesus is listening to all the words that you say i love that the bible is for everyone this verse is just as much for me as it is for my 5 year olds what things are coming out of my mouth am i building others up am i voicing things out of love what have i said that could be hurtful that i need to apologize for what things am i saying that i don t truly understand and instead need to show restraint and keep my words in am i showing the fruits of the spirit love joy peace patience kindness goodness faithfulness gentleness self control in the way i speak how much better could our day go if we start by saying may these words of my mouth be pleasing to you jesus posted by unknown at 9 00 am 3 comments email this blogthis share to x share to facebook share to pinterest labels bible church family random thoughts twins 2 19 2014 snow if you are from the south you know that last week we had one of the largest amounts of snow that i have seen in a long time and then the past two days my kids have been wearing short sleeve shirts the weather here is definitely interesting i wanted let you know some of the stuff that we did in the snow that incorporated some of our therapy but liana had fun instead of thinking it was work you probably won t be in the snow again this year but maybe it will be helpful for the next time and pretty much all of these are things you would do anyway but now you can see what a great job you are doing by throwing pt and ot in there 1 we went sledding we don t own a legit sled but we tried various methods to go down the hill we used cardboard laundry baskets and a plastic bin lid in a trash bag our personal favorite ended up being the bin top in a trash bag the girls had to bunch up the trash bag at the end and liana had to use two hands to sled and also even her weight on both sides to not fall off 2 we rolled down our hill both girls got on their side and rolled down our hill liana loved this but it was challenging for her to keep rolling i know that was using a lot of core strength for her 3 snowballs who doesn t love to throw snowballs we had to use two hands to pack the snow and then we worked on aiming it at targets mostly wade 4 snowman i think our family made a pretty impressive snowman the girls helped make snowballs and would roll them on the ground to get them bigger they also had to help with packing and placing the snowman accessories on 5 snow cream the girls actually didn t help me make this but this would have been a perfect opportunity to have liana scoop up the fresh snow with a big spoon and then stir all the ingredients together guess we can do that next time however here is the ingredient for snow cream that i used 1 cup milk 1 3 cup sugar 1 2 teaspoon vanilla extract pinch of salt mix all the above ingredients together and place in the freezer while you get some fresh snow then slowly add in the snow until you get fluffy ice cream i was hoping to add some pictures but my computer needs to load them so hopefully i can update this post soon with those posted by unknown at 8 10 pm no comments email this blogthis share to x share to facebook share to pinterest labels family sydney therapy twins 2 10 2014 crash the chatterbox download this and more from glorydesigns i love being part of elevation church the people are amazing we serve with so many wonderful outreach partners our worship experiences are incredible and we are truly blessed to get to hear an awesome message every week from pastor steven furtick if you didn t get to hear the first week of the crash the chatterbox series you have to listen to it soon you can go to watch it here in the sermon pastor steven talks about how the chatterbox is the lies that surround you from others and in your own head and if you listen to them can keep you from the person god has designed you to be i began thinking about how moms deal with our chatterbox so often how many of you have heard something like this in your mind a good mom would never yell at her kids like i just did my kids would be better off with someone else i am not equipped or prepared to handle this the chatterbox can bring so many more thoughts into your mind that discourages you and pushes you to give up but we have hope in jesus jesus has defeated the enemy he has power over the chatterbox and when you walk in the confidence of being a child of god you can overcome the chatterbox one of my favorite parts of the sermon was realizing we can t stop or control what the chatterbox says to us but we can learn to block it out pastor showed the example of wearing headphones that can drown out the outside noise but we can also plug it into the living word and hear the voice of our father this week when you want to think you aren t good enough you can t handle it you don t have what it takes remember that you are fearfully and wonderfully made psalm 139 14 and use this verse to change your inner thoughts from negative ones to ones that are uplifting finally brothers and sisters whatever is true whatever is noble whatever is right whatever is pure whatever is lovely whatever is admirable if anything is excellent or praiseworthy think about such things philippians 4 8 to get pastor steven s new book and more info about it go to crashthechatterbox com posted by unknown at 2 47 pm no comments email this blogthis share to x share to facebook share to pinterest labels church random thoughts 1 31 2014 our week in pictures i thought it would be fun to give you a few pictures each friday of what our family has been up to the past week sydney loves playing in her sister s hamper and even walked around with it on we practiced a modified constraint therapy and liana did such a great job eating her spring roll with her right hand of course we have a few pictures of our snow day and to finish off the week wade took liana on a daddy date night posted by unknown at 2 48 pm no comments email this blogthis share to x share to facebook share to pinterest labels family our week in pictures photos sydney twins 1 29 2014 red rocker review over the years we have used many different gross and fine motor therapy toys thanks to my husband s generous mom one that my girls enjoyed a lot was the red rocker on one side it is a set of stairs that works on learning to step up and balance the other side is a rocking boat that both girls had enough space to sit in and as they rocked back and forth similar to a see saw liana was able to work on strengthening her torso to stay steady this toy was incredibly helpful when liana was first learning to walk and as she learned how to conquer stepping up on a curb or even helping her learn how to walk up our own stairs if she happened to fall on these steps it wasn t a long fall and we also bought the rails to go with it so she was able to hold on we worked on alternating which foot was the leader and using both right and left hands to hold the rail one of their favorite things to do when they were around 2 was to sit in on the boat side and pretend they were going on safaris they would point to all the animals they saw as wade or i rocked the boat like they were bumping along the road i love having therapy tools that the children don t realize is therapy and this red rocker did just that if your child is in need of working on steps or balance this is a great tool to have we have the one that is plastic but there is also a wooden version enjoy playing here are the girls about 2 years old playing in their red rocker and yes liana was eating purple sand before i took the picture here is a link where you can order from children s factory the red rocker posted by unknown at 2 52 pm no comments email this blogthis share to x share to facebook share to pinterest labels photos reviews therapy toys twins older posts home subscribe to posts atom my bio unknown view my complete profile about the girls the twins story sydney s story twitter updates twitter updates follow me on twitter elevation pastor steven furtick holly furtick elevation church followers blog archive 2014 15 august 2 headed to the er with kid 2 g tube shunt and school february 3 january 10 2013 2 september 1 january 1 2012 1 november 1 2010 5 january 5 2009 35 october 7 september 3 august 1 july 6 june 2 may 5 april 2 march 2 february 2 january 5 2008 148 december 10 november 5 october 10 september 22 august 31 july 32 june 11 may 4 april 6 march 4 february 4 january 9 2007 150 december 6 november 6 october 12 september 11 august 9 july 20 june 21 may 11 april 15 march 11 february 14 january 14 2006 14 december 5 november ...