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gavin s journey skip to main skip to sidebar friday october 22 2010 happy 1st birthday brody lane photo and video editing at www onetruemedia com posted by gavin s mama at 2 04 pm 5 comments tuesday october 19 2010 take me out to the ball game gavin had a wonderful birthday party at gavin field there was a concession stand full of yummy baseball treats refreshments a score board a field to play ball with his best friends young old enjoyed the party gavin scored lots of fun gifts now on to brody s first birthday on friday posted by gavin s mama at 4 37 pm 5 comments wednesday october 13 2010 happy 4th birthday gavin four years ago 2 00pm gavin parker kuykendall was born into this world to make a difference it amazes me how strong this little guy is it amazes me how much he s been through in his little life but most of all it amazes me all the lives he has touched god is so good we love you buddy happy birthday posted by gavin s mama at 10 08 am 5 comments monday september 20 2010 where should i start i think its well past time for an update that is if anyone still reads my blog and why would you it s had the same post for the past 6 months well lets get to it brody turned 7 months then 8 9 10 which brings us to today 11 months so we are way behind poor second child i wouldn t miss a month with gavin but sorry brody it happened brody recently had tubes put in his ears he did fabulous he will have a cardiologist appointment in december if all goes well he will not have to see a cardiologist again brody at 11 months you are crawling all over the place getting into everything you like to cruise around the couch occasionally let go to stand for a moment but for the most part you have no interest in walking you like to be held you love to eat i could list your likes dislikes however you like all foods you love your brother love to wrestle with him kiss him hug him favorite words dada bubba baby dog ruff ruff mooo you like to wave bye bye blow kisses hold up the number one when asked how old are you you are still a mamas boy but have made strides in letting others hold you stay with you brody you are such a sweet lil addition to our family i can t believe you will be one in just four short weeks we love you lets move on to mr gavin we have been in out of the hospital more times than i can count with gavin he had a circumcision in may it went great recently he s had some brady cardia issues that put him in the hospital followed by an appointment in okc dr o prescribed a 30 day event heart monitor gavin did well with it it showed a few episodes of brady cardia but his rhythms looked good he was in the hospital a few weeks ago for a 103 fever had us admitted in okc to watch for infection in heart fortunately that wasn t the case then he had a seizure an hour after we were discharged recently he had his tonsils adenoids taken out in the city because they discovered during the first hospital stay that he has obstructive sleep apnea after about 2 weeks of recovery he is back to himself all of the hospital visits surgeries have delayed school he will start the first of october he is very excited about it even through all the difficulties gavin continues to push on show his feisty spirit we celebrated independence day in florida this year we always enjoy getting to go spend time with family this year our very dear friends the lawrence s were able to join us having little babies with us meant no returning with the usual tan but we still had a great time the summer has been a wonderful one i got to finish it off with a trip to nyc adam had a business trip in nj so my mom grandmother myself tagged along for a fun girls trip in the city it didn t disappoint it is one of those places that is fun to visit but i was definitely ready to come home when it was over well lets get to the cuteness here are some pictures from the last he hm several months posted by gavin s mama at 3 16 pm 6 comments thursday april 22 2010 celebrate today was a day of celebration brody is 6 months old post to follow tomorrow with stats pics and exactly one year ago today we handed gavin over for his third open heart surgery the fontan here is a video montage i put together of our trip gavin s surgery happy heart day gavin we are so proud of how far you ve come god has blessed you in so many ways we love you make video montages at www onetruemedia com posted by gavin s mama at 9 58 pm 9 comments thursday march 25 2010 our latest happenings so i have come to the conclusion that i am horrible at staying on top of this blogging it s hard enough to remember to take pictures of the boys every day here s a run down of our latest happenings gavin had his post cath cardio appointment in the city at the beginning of march dr o said overall his heart and lung function are ok he decided to increase one of his meds bummer we thought he was going to take him off gavin enjoyed putting stickers all over his arm as he waited for dr o on march 22nd brody turned 5 months he is currently trying out the baby food such as cereal fruits and veggies to say he loves it is an understatement he would eat all day if we let him he is about to pop out of his 6 12 month clothing brody rolls from back to tummy tummy to back scoots across the floor on his belly he loves attention toys people talking and looking reading books brody sleeps through the night and overall a very pleasant baby during spring break we decided to venture out to the zoo because the weather was fabulous uh crazy idea to say the least it was packed on top of that i braved it and took my friends baby that is 2 months younger than brody along with us to my surprise all three boys were well behaved and we had a great time these two are bff they are exactly one month a part which is great because moms are bff too lincoln 6mos brody 5mos my other bff s baby and brodys bff too logan 3mos brody gavin is loving school now and his teachers director are the best the director contacted me a few weeks ago about doing a fundraiser for the american heart association in honor of gavin i was touched by her kindness and couldn t believe it when she told me her idea so tomorrow night his school is putting on a parents night out the kids get to enjoy a fun night at school and safari joe with some wild life will be there to entertain the kids all donations will go to aha most of the teachers and their families decided to walk in the heart walk with us so the kids created a bulletin board with their footprints and names it seriously brought tears to my eyes when i looked at the board it says walking for gavin so to all the pals teachers and ms kelli thank you so much for loving my son and supporting a great cause we love you all and speaking of gavin he will have a minor outpatient surgery tomorrow non heart related so please keep him in your prayers posted by gavin s mama at 9 44 pm 2 comments thursday march 04 2010 2010 heart walks dear family and friends that s right it s that time of year again we are gearing up for two heart walks this year we are participating in the oklahoma city heart walk and the tulsa heart walk let us fill you in on why we decided to attend both 2009 was a year full of many up s and down s we started off the year with shocking but exciting news we were expecting baby 2 as most of you know our first son gavin was born in october of 2006 with a very rare congenital heart defect hypo plastic left heart syndrome and other heart defects hlhs is one of the most complex cardiac defects seen in the newborn in a child with hlhs all of the structures on the left side of the heart the side which receives oxygen rich blood from the lungs and pumps it out to the body are severely underdeveloped treatment involves re plumbing the heart to allow the right side to do the work normally done by the left therefore gavin only has one ventricle the right and it does all the work this treatment is done through a series of three surgeries there is no long term prognosis for the series of surgeries since the oldest children who have undergone them are only in their early twenties some children with hlhs eventually will require a heart transplant in april of 09 gavin had his third repair the fontan open heart surgery that allows blue blood to flow passively to the lungs and the single ventricle pumps red blood to the body we went to san diego to follow dr peter pastuszko the wonderful surgeon that operated on gavin during his first two repairs gavin did remarkably well right after surgery but regressed within 48 hours after much needed time to heal and get better gavin was on a plane to head back home gavin has been through so much in his three years of life heart caths suffered a minor stroke seizures ct s mri eegs weekly doctor appointments physical therapy speech therapy home health care and more he continues to amaze us with his energy and sweet spirit this little boy is an absolute miracle and we are blessed with his smile everyday shortly after arriving home we found out we were expecting another boy we were ecstatic that gavin would have a little brother faith s ob referred us back to the pediatric cardiologist dr alice kleiwer to get a fetal echo cardiogram since gavin has such a complex heart condition they wanted to get as much information about baby boy 2 s heart to prepare for his birth after the echo which lasted more than an hour we met with dr kleiwer she informed us that our un born baby had 2 heart defects asd the wall between the two entry chambers of the heart the atria does not finish forming and vsd which is the most common type of congenital heart disease in the case of vsd the wall between the two largest chambers of the heart the ventricles does not finish forming to be honest we were devastated angry and confused after a very eventful pregnancy brody lane was born into the world on october 22 2009 weighing in at a whopping 8lbs 9ounces and a screaming cry that was music to our ears immediately after birth an echo was performed and brody s holes already looked smaller than in the womb we were thrilled and elated to bring our newest son home one month later brody s heart was checked again and it appears that the holes are closing on their own dr kleiwer doesn t want to see brody again until he is the age of one we are so happy for brody s health and the joy he has brought to our life because of the american heart association dr peter pastuszko okc cardiology team medical staff at the children s hospital in okc rady s children s in san diego pediatric cardiology of tulsa gavin and brody is able to receive the best of care we are supporting both the tulsa and okc heart walks as our way of saying thanks for all the hard work that the aha and doctors do in order to save the lives of many others just like gavin this is our third year to participate in the okc heart walk there are lots of other children with congenital heart defects the number one birth defect so please help us in making awareness not only about hlhs but heart defects in general we are creating a team of walkers to help us reach a goal for the american heart association walk we know that not everyone will be able to participate with us but we wanted to invite you to visit our web page by clicking either of the links below if you would like you can make a donation in honor of gavin and or brody on their personal web page please do not feel obligated we truly just wanted to share our project which we are doing in honor of gavin and brody with you we plan to put our hearts into this yearly any amount would be greatly appreciated thank you to all of our heart supporters out there we love all of you and god bless adam faith gavin brody if you are interested send me an email and i will pass along the information afgk03 gmail com posted by gavin s mama at 4 08 pm no comments older posts home subscribe to posts atom please take our button abby hlhs aiden aiden shrones hlhs atticus paine hlhs austin hlhs 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