Meta tags:
description=Tips and humor about life with mast cell activation syndrome (MCAS), Ehlers Danlos Syndrome (EDS), and dysautonomia;

Headings (most frequently used words):

post, remission, posts, hell, bells, and, mast, cells, guest, the, downsides, of, mcas, wrinkle, in, my, can, eat, anything, kinda, top, topics, search, navigation, thank, you, patrons, for, supporting, this, blog,

Text of the page (most frequently used words):
and (65), the (50), she (27), for (25), mcas (25), mast (22), with (22), but (22), was (20), her (19), #remission (18), cells (16), that (16), when (16), this (13), you (13), have (13), can (13), time (13), about (11), protein (11), could (10), not (9), all (9), more (9), never (9), did (9), don (8), years (8), chicken (8), one (8), every (8), before (7), into (7), hell (6), bells (6), how (6), cell (6), body (6), then (6), blood (6), would (6), wrinkle (6), like (6), mom (6), 2025 (5), prednisone (5), post (5), eat (5), even (5), much (5), new (5), cortisol (5), eating (5), help (5), had (5), sugar (5), they (5), first (5), reactions (5), skin (5), medical (4), dysautonomia (4), supporting (4), blog (4), foods (4), now (4), became (4), day (4), symptoms (4), severe (4), life (4), over (4), learned (4), too (4), after (4), get (4), maybe (4), become (4), same (4), than (4), 2021 (4), meat (4), were (4), just (4), plain (4), yes (4), face (4), literally (4), didn (4), out (4), website (3), comment (3), only (3), advice (3), always (3), may (3), humor (3), exercise (3), know (3), wish (3), eds (3), allergic (3), other (3), posts (3), thank (3), patrons (3), spices (3), are (3), low (3), better (3), doctor (3), training (3), blamed (3), stomach (3), threatening (3), sports (3), course (3), which (3), informed (3), endocrinologist (3), best (3), reaction (3), said (3), digest (3), live (3), food (3), because (3), their (3), went (3), without (3), off (3), been (3), room (3), told (3), nose (3), cried (3), them (3), what (3), required (2), comments (2), diagnosis (2), treatment (2), any (2), search (2), poodles (2), hope (2), heds (2), gut (2), butt (2), pots (2), should (2), knew (2), own (2), histamine (2), guest (2), downsides (2), disease (2), trial (2), error (2), few (2), weeks (2), take (2), anything (2), choose (2), athlete (2), fodmaps (2), salicylates (2), good (2), information (2), started (2), began (2), feeling (2), still (2), struggled (2), muscle (2), correctly (2), also (2), helped (2), nutrition (2), took (2), survive (2), often (2), however (2), needs (2), skaters (2), being (2), learn (2), changed (2), asked (2), competitive (2), continuous (2), glucose (2), monitor (2), night (2), suddenly (2), stopped (2), some (2), instead (2), prescription (2), seems (2), meanwhile (2), strength (2), experienced (2), taper (2), steroids (2), well (2), play (2), although (2), finally (2), tested (2), alpha (2), gal (2), felt (2), ever (2), days (2), cause (2), beef (2), far (2), decided (2), produce (2), safe (2), your (2), digestive (2), there (2), times (2), skip (2), meals (2), again (2), prepared (2), pepper (2), oil (2), garlic (2), fresh (2), frozen (2), work (2), meal (2), side (2), white (2), rice (2), why (2), who (2), restrictions (2), flavor (2), august (2), bunny (2), wrinkles (2), indicate (2), will (2), entered (2), wearing (2), perfume (2), bathroom (2), air (2), made (2), younger (2), line (2), caused (2), care (2), routine (2), boost (2), very (2), overactive (2), tissue (2), while (2), around (2), got (2), june (2), 2026 (2), dog (2), sick (2), bags (2), followed (2), buy (2), rotisserie (2), intestines (2), part (2), people (2), walks (2), invited (2), sometimes (2), lay (2), anyone (2), chemicals (2), raising (2), awareness (2), laugh (2), name, email, write, loading, disclaimer, educational, entertainment, purposes, contents, intended, substitute, seek, qualified, professional, questions, regarding, condition, privacy, policy, unhelpful, uncategorized, solitary, confinement, pmdd, kidney, hypermobility, disability, covid19, feels, advocacy, adrenal, insufficiency, topics, facts, tips, becoming, badass, hormones, tilt, table, tortures, mean, tests, bucket, mickey, mouse, eliminated, subluxations, gift, guide, top, older, navigation, ago, celebrated, four, longer, medication, prioritize, rekindled, love, long, smothered, sauce, has, allowed, continue, heal, thrive, high, downloaded, tracker, phone, hitting, goal, manageable, joined, gym, scanner, track, growth, ensure, fueling, pace, steroid, tapers, angers, asking, permanent, back, seat, simply, trying, dangerous, right, bleeding, complication, wonder, understanding, might, intricacies, including, dozens, mediators, ndcs, particular, medications, individual, unlike, these, limited, experience, kid, busy, sidelined, illness, injury, build, invested, juice, boxes, curious, stabilize, fellow, disbelief, google, recommended, amount, jaw, dropped, shoveled, yogurt, mouth, regulates, suggested, test, prescribe, alarm, screeched, plummeted, continued, document, lows, middle, workouts, concerned, research, tanking, conjunction, freestyle, libre, stay, safer, upcoming, appointment, thought, rage, burn, ignorance, having, decision, bad, impossible, idea, increased, explain, attempt, needed, soy, dreamed, sake, tofu, gross, find, alternative, sources, relieved, negative, october, slowly, resumed, assumed, deficiency, behind, second, scared, recall, bitten, lone, star, tick, april, insect, notorious, carrying, red, mammal, products, pork, lamb, coming, refused, fear, anaphylaxis, stop, until, takes, awhile, ige, antibodies, note, call, trigger, system, isn, working, easier, plenty, fragrance, heat, stress, rendered, tract, useless, wanted, see, from, 2016, usually, tolerate, definitely, refrigerated, lunch, hospital, birthday, dinner, someone, limit, worrying, embracing, freedom, simultaneously, vegetarian, technically, pescatarian, minnesota, thing, enthusiastic, eater, say, foodie, learning, basic, knowledge, try, whole, edamame, pod, kinda, overly, expressive, cute, merely, where, smiles, case, ambush, fought, certainly, earned, wear, pride, mostly, botox, terrible, way, protect, freshly, sanitized, scented, trash, bag, amazon, package, scoured, hound, hunting, vocs, laundry, fumes, wafted, sidewalk, coworker, meeting, despite, freshener, give, holding, onto, fact, least, mutated, really, engraving, called, dismissed, kind, maternal, euphemism, googled, terminology, smelling, something, repulsive, soon, stopping, developed, prominent, anyway, rather, feel, disappointed, perplexed, bridge, horizontal, between, eyes, gets, five, included, benadryl, cream, cromolyn, squirted, lotion, combat, shiners, facial, flushing, using, tretinoin, increases, number, fight, collagen, stable, recruit, perks, activation, syndrome, looking, plump, circulation, remodel, connective, humans, evade, sunshine, vampire, wrecked, flawless, two, flew, florida, remembering, beach, vacations, require, sunscreen, nine, successfully, tapered, watch, deflate, corticosteroids, appearance, changes, dreadful, names, moon, buffalo, hump, redistribution, fat, particularly, joints, painful, lost, its, glow, thrilled, slip, arms, clothes, bend, knees, discomfort, gel, type, threaten, last, summer, fillers, removed, want, experiences, others, patron, patreon, sancho, retired, service, boy, everything, keep, happy, ignored, worry, things, aches, diarrhea, bring, present, make, sorry, let, taste, hauled, upon, groceries, filled, colorful, fragrant, herbs, kitchen, clanking, sizzling, cacophony, tingled, salivated, anticipation, sharing, full, swore, energy, physical, cook, either, regularly, portion, freeze, seven, week, fail, happily, ate, leftovers, disgusted, inflamed, irritated, severely, couldn, properly, set, flash, fish, fine, onion, embrace, enjoy, sleep, hang, brother, dabbled, interior, decorating, diy, crafts, engaged, described, human, version, zoomies, surprise, retirement, nobody, loud, closed, door, many, think, hardest, need, anymore, our, together, dramatically, encourage, small, neighborhood, twice, excited, outpace, couple, walk, grass, exhaustion, question, mattered, cake, celebrate, jumped, joy, vibrated, laughter, scary, public, sneezed, violently, pulled, aside, explained, polluting, breathe, fair, guilty, rolling, signature, scent, masking, synthetic, unnatural, says, bath, inflammation, pain, wiped, away, tears, tried, distract, moment, confused, appreciate, interventions, thanked, later, hear, heartbeat, speed, flooded, down, promised, wouldn, leave, swelled, cramped, forcing, throw, wrong, terrifying, anybody, hate, suffers, support, subscribe, journey, menu, youtube, twitter, instagram, facebook, content,

Text of the page (random words):
hell s bells and mast cells raising awareness about mcas eds and dysautonomia one laugh at a time skip to content hell s bells and mast cells raising awareness about mcas eds and dysautonomia one laugh at a time facebook instagram twitter youtube menu what is mcas my mcas journey subscribe support my work guest post the downsides of mcas remission don t get me wrong mcas reactions can be terrifying i don t wish them on anybody i hate when anyone suffers for years i took care of my mom as she struggled with life threatening mcas reactions i could literally hear her heartbeat speed up as her body flooded with mast cell chemicals i told her to lay down and promised i wouldn t leave her side i even followed her to the bathroom when her intestines swelled and cramped forcing her to throw up sometimes the inflammation caused her so much pain she cried i wiped away her tears and tried to distract her in the moment she was often too confused to appreciate my interventions but she always thanked me later when we went out in public i sneezed violently at anyone wearing perfume i wish i could have pulled them aside and explained they are polluting the air we breathe to be fair i too have been guilty of rolling my body in a signature scent but masking your skin with synthetic chemicals is unnatural at best my mom always says that s what a bath is for then one day my mom s scary reactions stopped i didn t question why all that mattered to me was that she felt better for the first time in years she invited people over for cake to celebrate i literally jumped for joy as the room vibrated with her laughter our time together changed dramatically before mcas remission i had to encourage her to take small walks around the neighborhood now she invited me on walks every day sometimes twice a day i was excited at first but then she started to outpace me a couple times she made us walk so far that i lay in the grass with exhaustion of course many people think the hardest part was when she told me she didn t need me anymore yes she literally said that out loud then closed the door in my face and yes i cried it was a surprise retirement nobody prepared me for but over time i learned to enjoy my new routine i had more time to sleep and hang out with my brother i even dabbled in interior decorating and diy crafts while my mom engaged in what can only be described as the human version of zoomies however there is one part of her remission i will never embrace before remission her overactive mast cells inflamed and irritated her intestines so severely that she couldn t properly digest fodmaps or salicylates meanwhile spices set off reactions before they ever got to her stomach chicken beef and flash frozen fish were fine but no garlic onion or even pepper she didn t have much energy or physical strength to cook either so she d regularly buy a fresh rotisserie chicken portion it out and freeze it with plain white rice same meal seven days a week without fail she would get sick of it but i never did i happily ate all her leftovers when she was too disgusted when my mom went into remission she swore she d never buy a rotisserie chicken again instead she hauled bags upon bags of groceries filled with colorful produce and fragrant herbs into the kitchen followed by clanking pots sizzling oil and a cacophony of spices that tingled my nose i salivated with the anticipation of sharing new meals full of flavor she didn t even let me taste them you can t have this it ll make you sick she said i m sorry but you re a dog but i live in the present i cried i don t worry about things like stomach aches and diarrhea bring on the trial and error she ignored me for years i did everything to keep her safe and happy and now that she is finally in remission i am the one with the restrictions sancho retired service dog and very good boy thank you patrons for supporting this blog post want to learn more about my experiences and help others by supporting this blog become a patron on patreon hell s bells and mast cells gut and butt hope humor poodles remission 7 comments june 24 2026 june 27 2026 a wrinkle in my remission last summer i got my fillers removed not the gel type of course i would never threaten my mast cells like that after nine years of prednisone i successfully tapered off and watch my face deflate corticosteroids don t just cause appearance changes with dreadful names like moon face and buffalo hump the redistribution of fat particularly around joints can be painful although my skin lost its prednisone glow i was thrilled i could slip my arms into clothes and bend my knees without discomfort one of the very few perks of mast cell activation syndrome mcas can be looking younger overactive mast cells can plump tissue boost circulation and remodel connective tissue all while training humans to evade sunshine like a vampire i wrecked my flawless skin no more than two weeks into mcas remission when i flew to florida before remembering beach vacations require sunscreen for five years my skin care routine included benadryl cream and cromolyn squirted into lotion to combat allergic shiners and facial flushing now i am using tretinoin which literally increases the number of mast cells in the skin to fight wrinkles and boost collagen yes my mast cells are so stable that i have a prescription to recruit more soon after stopping prednisone i developed a prominent wrinkle anyway rather than feel disappointed i was perplexed the wrinkle is on the bridge of nose a horizontal line between my eyes who gets their first wrinkle on their nose when my mom informed me it s called a bunny line i dismissed it as some kind of maternal euphemism so i googled it and learned not only is that the terminology but it can be caused by smelling something repulsive did mcas give me a wrinkle all this time i d been holding onto the fact at least my mutated mast cells made me younger when really they were engraving my face every time i entered a bathroom with an air freshener every time a coworker entered a meeting wearing perfume despite being told not to every time laundry fumes wafted over the sidewalk every time i scoured a new room like a blood hound hunting vocs every scented trash bag and amazon package every freshly sanitized room maybe wrinkles should merely indicate where the smiles have been but in my case they indicate every mcas ambush i fought to survive i certainly have earned this wrinkle and i will wear it with pride mostly because botox seems like a terrible way to protect my remission or maybe i m just overly expressive and cute as a bunny thank you patrons for supporting this blog post hell s bells and mast cells humor prednisone remission 1 comment august 23 2025 august 23 2025 i can eat anything kinda i have become an enthusiastic eater i would say a foodie but i still am learning basic knowledge about foods and flavor yes i did try to eat the whole edamame pod when my mcas symptoms went into remission in 2021 i could suddenly eat and exercise without worrying about a life threatening mcas reaction embracing my new freedom i decided to simultaneously taper off my steroids play all the sports and become a vegetarian well technically i became a pescatarian but when you live in minnesota same thing why would someone who just experienced severe food restrictions for 5 years choose to limit their foods first of all i never wanted to see chicken again from 2016 2021 plain chicken was one of about 15 foods that my mast cells could usually tolerate if prepared correctly no pepper no oil and definitely no garlic fresh or frozen but never refrigerated my work lunch hospital meal and birthday dinner was plain chicken with a side of plain white rice note i don t call it a safe food because any food can trigger a mcas reaction if your digestive system isn t working chicken was easier to digest but there were plenty of times i just had to skip meals because fragrance heat or other stress rendered my digestive tract useless second i was scared of eating meat if you recall i was bitten by a lone star tick in april 2021 an insect notorious for carrying alpha gal which can cause severe allergic reactions to red meat and other mammal products e g beef pork lamb after coming so far i refused to live in fear of anaphylaxis so i decided to stop eating meat until i could get tested it takes awhile for the body to produce ige antibodies at the same time i knew i needed protein to play sports although i could finally digest soy i never dreamed of mcas remission for the sake of eating tofu gross i did my best to find alternative protein sources but was so relieved when i tested negative for alpha gal in october 2021 i slowly resumed eating meat and felt better than ever i assumed my protein deficiency days were behind me meanwhile my attempt to taper steroids on my own did not go well an endocrinologist informed me that my decision to become a competitive athlete at the same time was a bad if not impossible idea when i increased my strength training and experienced symptoms more severe than my endocrinologist could explain she blamed my mast cells maybe you don t know you re having a mast cell reaction she said maybe you don t know how to help me i thought as i did my best not to rage burn all my cortisol on her ignorance no one would have blamed me for stopped that doctor but i did some research instead and asked could i get a prescription for a continuous glucose monitor my blood sugar seems to be tanking in conjunction with my cortisol and a freestyle libre 3 could help me stay safer and then i would have more information for the upcoming appointment my doctor had never informed me that cortisol regulates blood sugar or suggested i test my blood sugar when feeling low cortisol symptoms but she did prescribe the continuous glucose monitor at 3 am on the first night the alarm screeched as my blood sugar plummeted it continued to document my lows in the middle of the night and after my workouts suddenly my endocrinologist was not concerned about my mast cells of course i invested in juice boxes but i also became more curious about protein which can help stabilize blood sugar my life changed when i asked my fellow competitive skaters how much protein they eat in disbelief i google my recommended amount my jaw dropped and then i shoveled yogurt into my mouth over the years i have learned the intricacies of mast cell disease including dozens of mast cell mediators and the ndcs of particular medications but i never learned how much protein my individual body needs unlike these skaters i had limited experience with sports as a kid i was too busy being sidelined by illness or injury to learn how to build muscle when my mcas symptoms became more severe nutrition took a permanent back seat i was simply trying to survive eating was often dangerous right before remission my stomach began bleeding a life threatening complication however i can t help but wonder how understanding my protein needs then might have helped me with this new information i downloaded a protein tracker on my phone started hitting my goal and began feeling better i still struggled with low cortisol but it became more manageable i joined a gym with a body scanner to track my muscle growth and ensure i was correctly fueling my body this also helped me pace my steroid tapers to this day it angers me that a doctor with no training in mcas blamed my mast cells before asking about my nutrition a few weeks ago i celebrated four years of mcas remission i no longer take medication for mcas and i can eat anything but i choose to prioritize protein i ve even rekindled my love for chicken as long as it s smothered in sauce or spices protein has allowed me to continue to heal and thrive as an athlete high fodmaps salicylates and histamine foods are all good now low protein not so much thank you patrons for supporting this blog post hell s bells and mast cells remission 1 comment may 5 2025 may 5 2025 posts navigation older posts top posts trial and error gift guide for mast cell disease guest post the downsides of mcas remission mcas treatment eliminated my heds subluxations the histamine bucket and mickey mouse the tilt table and other tortures i mean tests i m allergic to my own hormones how i exercise with mcas eds and dysautonomia 3 tips i wish i knew before becoming a mcas badass 4 facts you should know about mcas topics adrenal insufficiency advocacy all the feels covid19 diagnosis disability don t do this dysautonomia and pots exercise gut and butt heds and hypermobility hope humor kidney pmdd poodles prednisone remission solitary confinement uncategorized unhelpful medical advice search search for privacy policy disclaimer this website is for educational and entertainment purposes only the contents of this website is not intended to be a substitute for medical advice diagnosis or treatment always seek the advice of a qualified medical professional with any questions you may have regarding a medical condition 2025 hell s bells and mast cells loading comments write a comment email required name required website