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home hide seek foundation skip to content home about us donate home about us donate donate to hide seek the hide seek foundation the hide seek foundation supports research to find treatments for niemann pick type c npc a rare genetic disease for which there is currently no cure ultimately npc ravages the bodies and minds of its victims who are all likely to experience seizures psychosis depression and hallucinations their speech becomes slurred and they have difficulty swallowing probably requiring a feeding tube death from complications of npc disease usually occurs in the teenage years or early adulthood the median lifespan of an npc patient is 16 years old because it is a progressive neurological disorder one of npc s primary symptoms is dementia npc also offers a profound opportunity to understand treat and cure alzheimer s the hide seek foundation the hide seek foundation supports research to find treatments for niemann pick type c npc a rare genetic disease for which there is currently no cure ultimately npc ravages the bodies and minds of its victims who are all likely to experience seizures psychosis depression and hallucinations their speech becomes slurred and they have difficulty swallowing probably requiring a feeding tube death from complications of npc disease usually occurs in the teenage years or early adulthood the median lifespan of an npc patient is 16 years old because it is a progressive neurological disorder one of npc s primary symptoms is dementia npc also offers a profound opportunity to understand treat and cure alzheimer s parents and scientists created soar support of accelerated research for npc disease as a grassroots response to the absence of treatments for npc the soar collaborative comprises internationally recognized scientists from leading institutions where npc research is conducted the researchers function as a tightly integrated unit allowing for free scientific exchange and have established an extensive network of scientific collaborators click here to learn more about soar learn about soar share this content privacy policy cookie policy make a donation privacy policy cookie policy make a donation privacy policy cookie policy make a donation privacy policy cookie policy make a donation copyright 2026 hide seek foundation all rights reserved website by lookit design notice preferences we hide seek foundation and selected third parties collect personal information as specified in the privacy policy and use cookies or similar technologies for technical purposes and with your consent for experience measurement and personalized ads as specified in the cookie policy you can freely give deny or withdraw your consent using the options in this panel denying consent may make related features unavailable but will not prevent access from content on this website use the accept all button to consent use the reject all button to continue without accepting you can use the preferences tab to customize your experience reject all accept all learn more in this panel you can express preferences for the processing of your personal information you may review and change your choices at any time necessary required for the site to function cannot be disabled functionality enables enhanced functionality and personalisation such as live chats and videos experience allows us to improve your experience based on how you use the site measurement helps us measure traffic and analyse your behaviour to improve our service marketing used to deliver personalised ads and marketing content based on your interests sale of my personal information under us state privacy laws you may opt out of the sale of your personal information sharing of my personal information controls whether your personal information is shared with third parties processing for targeted advertising allows processing of your data to deliver targeted advertising across platforms reject all save and continue