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the hill family of northwest arkansas a journey into the world of down syndrome the hill family of northwest arkansas a journey into the world of down syndrome sunday september 18 2016 is intellect a barrier to relationships to a lot of people and maybe to me in some degree me before john came into our lives john and people like him were viewed as a burden someone who could not contribute to society john will probably never be known for his intellect or will probably never be a profound speaker but when i observe john and how he interacts with people and them with him i am humbled at his gift of relationship a few things i observe with john is that he doesn t compete with his words or experiences when talking with people because there is nothing he is trying to prove to people except maybe the fact that he loves to play cars and that he wants to be friends it really doesn t concern him that the person is smarter than he is or that your vocabulary is larger than his the color of a person s skin length of hair whether or not they have tattoos or piercing or the clothes they wear does not change how he interacts with people he sees everyone through the same lens and everyone as having the same potential for friendship and a playmate so it saddens me when i see people brush him aside when he attempts to make someone his friend it makes me sad for john but even sadder for the other person for getting to know john comes with more blessings than anticipated and it is this unconditional love for people that john and others like him have that can teach all of us normal people who have the ability to think deeply about things a thing or two about relating to others i often think that one of the reasons for john being a part of our family is to show us what love and acceptance look like posted by jaybirdnwa at 6 16 pm no comments email this blogthis share to x share to facebook share to pinterest tuesday september 13 2016 share the love before we had john we were not really aware of people with down syndrome of course we would see them out and about in the community with their parents or see them as patients but there was no reason for us to get to know them on a personal level at that time in our lives they were just kids who were to be kept at arms length mostly because of fear of people who didn t look the same as us and some out of misunderstanding of down syndrome and some out of just plain ole arrogance but then we had john and we were forced to change our attitudes and our hearts thank the lord that we had 8 months to prepare for him the change didn t come instantly and is still ongoing today but i can say that our hearts and priorities have changed and i can see where john has been used in the lives of others in the 8 years that he has been with us john and i m sure other children with down syndrome are the most loving and forgiving individuals that i have ever met he loves me unconditionally and his memory is short even when i mistreat him and that is the kind of love that we all long for and need in our lives so i share him with others as much as i can by exposing him to others just like i did with my others there have been many people come through the doors of my home mostly teenagers with my other children and all have gotten to know john whether they wanted to or not these same people have returned time and time again over the years and we have seen them include john in their outings and play with john and hug on him the more i see this the more i realize that one of the best things that i can do as john s dad is to share him share him with others because we all need the type of love that john so freely gives so rather then be embarrassed or ashamed of your son or daughter with special needs be proud of them and share their ability that god has given them the ability to love unconditionally posted by jaybirdnwa at 8 08 am no comments email this blogthis share to x share to facebook share to pinterest sunday september 11 2016 teaching john it has been a while since my last blog entry and we have entered into a new phase of life with down syndrome since then life seems to be a continuous period of adapting to life with down syndrome as each day brings a different set of challenges each parent of a special needs child has to navigate the waters of raising a child with special needs the way they see fit and each set of parents chooses to do it differently being both medical people who are familiar with down syndrome my wife and i chose from the beginning to fore go the states admonition of how to help and teach our son and to personalize our help to john s needs john is now 8 years old and is in 1st grade which has brought many challenges but we are facing them head on and with determination of giving john all the tools he needs in order to learn as much as he can we know that there are limits to what he will be able to learn but neither we or anyone else can tell us where those limits are so we push prod tutor read play with marbles raisins count our peas chicken nuggets etc until we find the ceiling to his abilities thus far john has surprised us as to his abilities just as i have stated before on this blog people usually rise to the challenge they are given if people aren t challenged to move toward a goal then they won t reach the goal but if we set goals and challenge them to reach those goals we are surprised at their achievements so we keep on challenging and loving him for who he is and we pray for him that the lord would strengthen him and guide john because we know that god has a plan for john s life posted by jaybirdnwa at 9 12 pm no comments email this blogthis share to x share to facebook share to pinterest older posts home subscribe to posts atom translate company search this blog welcome message welcome and thanks for stopping by our blog my wife who is a local practicing pediatrician and myself who is a physical therapist assistant and a stay at home dad to john have documented our journey into the world of down syndrome and the things that we have learned along the way in hopes of helping others who are either just beginning or anticipating their own journey we hope that you find some useful information here that will help you if you would like to contact us we would love to hear from you to get in touch with the hill s just click here again thanks for visiting and may the lord bless you on your journey nbsp nbsp nbsp nbsp nbsp nbsp nbsp jay hill about me jaybirdnwa northwest arkansas john was born to joy and jay hill on july 29 2008 he is the youngest of 5 children 4 boys and 1 girl 1995 2008 john was born with down syndrome which was detected in the first trimester of pregnancy john was very blessed to have been born without any heart digestive or hearing issues he weighed 7 lbs at birth and was 21 inches long we realize that john could have been born with more difficulties than he does for which we give thanks to god s protective hand view my complete profile blog posts of interest weak muscles and compensatory movements the question of early detection calories baby food and john differences and similarities tools that have helped recent posts blog archive 2016 3 september 3 is intellect a barrier to relationships share the love teaching john 2014 1 june 1 2013 1 october 1 2012 7 october 1 august 1 july 3 may 2 2011 6 august 2 june 1 february 3 2010 4 november 1 october 1 june 2 2009 37 september 3 august 3 june 3 april 1 march 10 february 10 january 7 2008 61 december 10 november 8 october 15 september 5 august 22 july 1 my blog list confessions of the chromosomally enhanced supported employment the end of an era 1 year ago my name is sarah a buckeye legacy 7 years ago a stretched out mom first family wedding 10 years ago the bates motel in pursuit of melting 11 years ago the seal bark surprise golden birthday party 11 years ago the amicks why i am not a hypocrite 11 years ago lila s miracle life soaking it up 12 years ago ruby s life i m ruby 12 years ago downrightfaith com show 5 show all picasa web albums watermark theme powered by blogger