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the maughans tuesday july 9 2013 red white blue we had an incredible 4th of july mike and amy came and spent the day with us we went to all the towns festivities and ended the night with fireworks i do have to say small towns have the best firework show posted by the maughan s at 8 30 am 2 comments friday april 19 2013 i couldn t love this more posted by the maughan s at 6 50 pm 1 comment labels adoption monday april 8 2013 another update on miss henslee http misshenslee blogspot com read about our recent visit to the geneticist posted by the maughan s at 1 35 pm no comments labels henslee monday february 11 2013 so beautifully written the following post was done by a beautiful momma that has a darling little girl with rett syndrome we met them this summer read about that visit here visit with leah she has inspired me so many times and this post was just another post that was perfectly written visit her blog http thismareeatsoats blogspot com today i ran 9 miles i m not sure why i was dreading it so much but i was it was supposed to be around 15 degrees but i was going to go early enough in the morning that the forecast of snow wouldn t have started kate had a rough night so i had a rough night and i just couldn t get myself to roll out of bed on time i dreamed that i ran the 9 miles on two separate occasions so when i woke up to realize i actually hadn t run yet i was already exhausted i was mentally going to run 27 miles that morning ugh i spent the morning completely procrastinating before i finally put on all my winter running gear and opened the front door it was snowing and not just light fluffy flakes the kind that are half melted and then re frozen needles pelting you in the face but off i went i had gone no farther than a tenth of a mile before i thought i should turn around to grab my tuck key card that way i can run 2 miles to campus 5 on the treadmill at tuck and then 2 miles back so i turned around i got about halfway home before i thought maren you wuss just run so i turned around again and i ran about a half mile out my fingers were already frozen stiff snot was dripping out of my nose and my face was raw by this point the snow was sticking and i really wished i had put on my stableicers even though i had 8 5 miles to go there was no way i was turning around so i slowed my pace and basically tip toed on the icy spots at mile two i saw another runner he was wearing a ski mask that was smart at mile four i saw another runner she looked like me miserable at mile four and a half i was so beyond done my right sleeve was covered in frozen snot and my nose wouldn t stop running that s when i thought huh leah s nose does this a lot i bet that s kind of annoying a few moments later a song came on my running mix that i wasn t really in the mood for but my iphone was underneath my jacket s spandexy mitten flap and my fingers were too frozen to get it out i was so frustrated that i couldn t move my fingers the way i wanted that s when i thought huh this is just a fraction of how frustrated leah must feel because her hands and fingers don t work they way she wants i continually stumbled on areas of the sidewalk that had been halfway shoveled trying to balance on mixtures of freshly fallen powder and old icy compacted snow that s when i thought huh i bet leah gets tired of continually stumbling because she can t balance very well and after that third a ha i thought you are a piece of work maren layton you are complaining about a 9 mile run in the snow and you have no idea how lucky you are to be able to run 9 miles in the snow who are you running for anyway you wouldn t be out here on a 9 mile training run if you weren t running the boston marathon and you wouldn t be running the boston marathon if it weren t for leah and that s when i started to cry only passersby didn t even know i was crying because my face was already covered with snow that had melted and then refrozen on my face then i came upon a car that had slid off the road at a roundabout and into the snow bank no one was injured but the car was definitely stuck as i fumbled to get my frozen fingers out of the mitten cuffs to help push three others were already on their way to do so i watched as i appoached the car got out and the driver safely drove on his way that s when i thought sweet little leah helps so many people out of ruts i don t even know how she does it but she does the analogies went on and on i m not kidding for the next 4 5 miles i thought of so many circumstances that i had been annoyed about that leah deals with on a daily basis my clothing had shifted and i couldn t fix it something got in my shoe i was hungry she only gets to eat when others can help her i was tired her seizure medications make her even more tired i was cold she has horrible circulation and on and on and on if i hit an icy patch i thought of leah when my nose dripped i thought of leah when my fingers hurt i thought of leah when i felt like i was too tired to run up the hill i thought of leah when a song came on that made me smile i thought of leah when i got a burst of energy i thought of leah and as i turned the corner into my neighborhood thinking of leah i was a mess a sobbing mess i got myself under control by the time i reached my house but my perspective had definitely changed some days are hard some days are really hard some are hard mentally some physically some emotionally but you would never know it by looking at leah she is so happy and easy going and patient and hard working she helps me out of so many ruts each day she helps me to find the strength to run up the hills she gives me bursts of energy and makes me smile and she is teaching me the value of hard work and patience and happiness so yes running 9 miles or 27 in a 14 degree blizzard wasn t necessary easy and it definitely wasn t fun rett syndrome isn t easy and it definitely isn t fun but i have a pretty good coach and if she can get me through these training runs i have full confidence that she can get me through whatever rett syndrome throws our way when i reached my porch i knocked on the door with my elbow my wrist was too frozen had ryan take this picture because today is a day i want to remember and then immediately hugged my little coach snot tears frozen fingers and all posted by the maughan s at 9 12 am 2 comments labels henslee tuesday december 18 2012 update on miss henslee we just got back from katie s clinic for rett syndrome go read about it here http misshenslee blogspot com posted by the maughan s at 10 34 am 1 comment labels henslee monday december 3 2012 happy 3rd birthday henslee happy birthday to our sweet little miss i can t believe she is 3 it was a fun day remembering the day she was born read about that here http jesseandjaymie blogspot com 2009 12 our miracle html we had a fun filled day full of family food and tinkerbell festivities we played pin the wand on the fairy balloon pinata we colored tinkerbell pictures had cake and icecream and then finished the day after everyone went home watching the new tinkerbell movie we are so incredibly blessed to have her we love her more than words can say posted by the maughan s at 1 53 pm 3 comments labels henslee thursday november 1 2012 happy halloween i pretty sure i have the cutest kitty and little doggy around they love really love each other haha we love corley we hired her to come and work with henslee and she has been fantastic jesse had to work so corley came to help me out with henslee at the trunk or treat love this little miss he makes me smile after multiple times of trying to eat the candy before putting it in her bag henslee figured it out she became a pro at trick or treating after one stop of getting a sucker nixon was set for the night this kid consumed sooo much candy daddy had to work so we went trick or treating to him i think it was the kids favorite stop they were the only ones that went to him posted by the maughan s at 3 01 pm 1 comment labels holidays tuesday october 30 2012 pumpkins i new henslee would love this should could ve played in the pumpkin slime for hours this little miss is easily entertained her brother on the other hand did not like the slime one bit this year 2012 last year 2011 time flies i used a drill to get the holes in my pumpkin jesse scraped out all the pumpkin slime for everyone s pumpkin just like my dad did for us when we were kids jesse did henslee s pumpkin and i love it she loves it happy halloween posted by the maughan s at 11 11 am 1 comment labels holidays older posts home subscribe to posts atom jesse jaymie hubby wifey henslee our little miss nixon our little man my business boy meets world aaron and joy joe and karen nate julienne bown family the adventures of missy andy cory and rachel the smith family bracken skye erin jake and ella luke shianne britlyn eric karlie riot jimmy and jen paul kaytie leaps of faith go fly a kite tyler and katie bingham lincoln and anna annaka tanner and 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anonymous brown paper packages ruffles and stuff little birdie secrets sumo s sweet stuff that s so cuegly love actually the creative crate out of chaos sisters stuff eighteen25 yummy bake at 350 bakerella com our best bites chicas cookin dinner i wash you dry labels adoption 31 crafty 4 fam 19 friends 6 henslee 29 holidays 21 kiddos 3 nixon 11 play time 10 us 32 vaca 3 yummy ideas 12 blog archive blog archive july 1 april 2 february 1 december 2 november 1 october 2 august 3 july 1 june 1 may 2 april 1 february 1 december 4 november 2 october 3 september 3 august 4 june 4 may 2 april 4 march 2 february 3 january 4 december 11 october 4 september 1 august 1 july 3 june 6 april 3 march 2 february 1 january 4 december 2 november 1 october 5 september 3 august 4 july 1 may 7 april 3 march 5 february 2 january 1 december 2 november 6 october 5 september 3 simple theme powered by blogger