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journey of the allens party of 4 journey of the allens party of 4 blog background about me our little journal i am wanting to try out this blog thing to see how it goes and use it as a journal view my complete profile family and friends bert and julie cody and lisa crystal and jared david and gaile heidi and jason jacque and tigh jessica and paul kaidence kami and levi kyle and karen lacey and devon mark and karenann merrill and meg mom and dad raychel and paul taryn and tyler teri trisa and jared followers blog archive 2010 54 october 2 halloween latest hospital stay september 3 august 11 july 20 june 18 blog background friday october 15 2010 halloween can you say excited for halloween we were just all trying masks on it was so much fun i couldn t tell you how much fun parker screams so hard when we would put a mask on he hated it i think we tortured him a little but it was so funny sorry parker is planning on being buzz lightyear and lexi is the cutest little devil you ever did see posted by our little journal at 11 00 am 3 comments latest hospital stay this photo was all because he couldn t eat breakfast it was pretty sad and hard for him to understand he eventually got the ok to eat and not go into surgery and from then on out he was a pretty happy camper and so funny he was really quite funny with this hospital stay it seems the older he gets the harder it is to keep him in bed with all his leads he liked taking of everything it was so funny i swear i had to attach everything like 100 times while we were there for only a night and day he didn t want to leave the hospital he loves the room service the crafts the doctors everything he got to paint pumpkins and pictures it was so much fun alexis loved it too parker made it to the potty he really doesn t like how they have to catch and document everything that comes out he says eww gross that s gross i just laughed but he ran to open the door to tell the nurse that he made it so come and clean it up quick because he doesn t like it sitting there but when we opened the door there was 4 doctors of the transplant team coming to check on parker he smiling ear to ear and told them that he made it and they said parker can we see he was so excited they wanted to see his well you know what they made him feel like a million bucks he was so proud of himself he played with dinosaurs and cars and boy he just had a great time we had a visit from ben the therapy dog he is a yellow lab we loved it and parker got to feed him treats he loved him and gave him a big hug we were just absolutely satisfied with everything this hospital stay everything went smooth i loved the nurses and have had them in the past the residents were so accomidating and explained things very clearly they seem to really love parker i swear whenever we are at the hospital everyone says hey it s parker s mom i wasn t in the hospital 30 seconds before a cleaning maid saw us and her face lit up with a smile that was when we were in the emergency room she gave us wave everytime we had a doctor walk in they would say me and parker go way back the nurses said i hear that so much with parker the rainbow team came and visited they are the ones that advocate for parents and doctors to be on the same page everyday all the time they also were old friends who loved parker so much and are there for me as well i told them how grateful i was for this stress free hospital stay it was awesome they seemed appreciative for everything i have done for them i don t know what that is but it was nice and i appreicated their kindness anyway health wise for parker we are home and seem to be doing a lot better we went into see his pediatrician because we was forming a fever and breathing a little different and weirdly tired he was not acting as himself basically we don t actually know why his heart rate jumped up from 107 normal to being 144 while he was sleeping it was so weird they were on top and cautious about everything our first initial thought was he is rejecting but when we looked at his chest x ray it was perfect not a large heart and lungs looked healthy then we did the echo and again it looked the best it ever had his heart was squeazing beautifully we were very relieved and so grateful for those words so we got a lot of blood and were waiting on those results so far everything is coming back very good news so why is all this happening their hypothesis s were 1 we have been treating parker with an albuterol inhaler for asthma with the cough that is has had it seems his whole life to see if that can reduce the cough it didn t seem to help at all but one side effect is higher heart after it was given the higher heart rate should only last about an hour after and this was all happening hours after parker s last dose 2 parker has a viral infection his body is fighting so we really really do not like sick people around parker and are going to not emphasize that enough 3 when he had his heart transplant there is a nerve that connects to the heart that died during surgery that controls the beat of the heart so when we are running it compensates with you and will beat faster and when we are relaxed it compensates again and will beat slower with parker we just don t know we are still treating parker with asthma if i don t see results in a week i am stopping them and no more we saw a lung specialist she said we will do another swallow study just to get an update on parker and draw some blood for allergy testing to see if he is allergic to anything that the cough could be causing oh we just know new meds is a type of albutrol that does not make the heart rate go faster called xophrax zofrax is how you pronounce it and singulair a lung med for asthma that is like a powder parker has to eat oh my heck he hates it it is funny to watch him eat it he is so good to take meds he even doesn t like he is probably the easiest kid to give meds to well with all our hearts we appreciate all the love and prayers with such short notice and can t express enough how much we immediately felt them jordan was able to give parker a blessing in the er it was a beautiful thing and parker gave his daddy the biggest hug i love my family so much more then anyone can imagine thank you the allens posted by our little journal at 10 09 am 1 comment sunday september 12 2010 happy 4th birthday parker oh it was a blast and parker is one year older he found a sense of indendence when he turned four years old on september 2nd 2010 he now thinks he can do about anything it is pretty funny we had a lot of family come it was so much fun thank you for all the birthday wishes gifts and coming the support was awesome sorry for about a million pictures but this is kinda like my diary so sorry posted by our little journal at 6 22 pm 3 comments older posts home subscribe to posts atom