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description=Hello, I m Shane Burcaw. I m 26 years old, and I have a disease called Spinal Muscular Atrophy. I have been in a wheelchair since I was two. I love to laugh, and my life is pretty funny. Allow me to...;
keywords=LAUGHING AT MY NIGHTMARE;
keywords=wmms;

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Text of the page (random words):
s the book support me zoom permalink what made me smile this week i married my best friend on friday september 4th hannah and i tied the knot and became husband and wife it was a private backyard ceremony that we conducted over zoom with our officiant the one and only sarah yunusov cofounder of lamn certainly not the wedding we originally imagined but it was a beautiful moment filled with the most important thing our love for each other visit the following link to watch the little wedding video we made about the special day https youtu be x0ix30sjlvk i m beyond happy and smiling a whole lot 6 years ago 420 notes this is probably inappropriate 6 years ago 69 notes zoom permalink urgent please read my emotions surrounding the following announcement are complicated i m nervous for the ever increasing severity of the current pandemic but also grateful to be in a position to help i m excited because we ve developed a program that i believe will help a lot of people who are struggling right now and i m optimistically hopeful that many of you will join me to amplify our impact here s what s up my charity laughing at my nightmare inc is beyond pleased to unveil a brand new program that we have created to help the disability community during this time of uncertainty isolation and fear before i explain this simple program please know that for the first time in our company history we are opening up applications to individuals with any disability diagnosis chronic illness supporting the muscular dystrophy community is still at the heart of our services but our board of directors felt that this specific program should be open to people with all disabilities the program is called covid 19 resource relief and it s a way for people living with a disability to apply for a 100 visa gift card to help with purchasing essential items during these difficult times the simple application is now available at the link below and if you re approved the gift card will be mailed directly to your home to kick off this program hannah and i have donated 2 000 to fund the first 20 applications we have heard from so many of you how the quarantines and social distancing requirements have drastically affected your financial situation and we want to use our platform to help our hope is that all of you who are able will consider donating 1 to 10 to help us fund 30 40 50 more urgent applications the link to donate is also below please consider joining us in supporting this vital program for many of us who live with a disability quarantine is not a choice but a necessity for survival i highly encourage anyone with a disability who is in need of essential items to apply today again if you are reading this and you re able to donate a dollar or two your gift will help us fund many more applications apply or donate here https www laughingatmynightmare com covid 6 years ago 2 898 notes zoom permalink camera nikon d7500 aperture f 1 8 exposure 1 320th focal 48mm hannah and i recently had the opportunity to do an adorable little photoshoot down here in florida we just posted a really fun video about that experience and about the day my wheelchair broke down last week https youtu be m5w0yf6muvu 6 years ago 235 notes zoom permalink camera nikon d850 what made me smile this week sunday 10 27 a solid day of writing made me smile monday 10 28 we attempted to bake a pumpkin pie using only expired ingredients because that s all we had in the pantry and it actually turned out to be mostly edible we think it made me smile tuesday 10 29 if you ve seen any of our youtube videos from last winter you know that i am a beanie connoisseur unfortunately when we moved out of our apartment back in june our collection of my most favorite hats was lost it has been a crushing hopeless feeling as winter approaches once again and all my cherished hats remain missing however tonight determined to solve the mystery hannah s mom tore the basement apart and located the box of lost beanies everything is right with the world once again and i am smiling wednesday 10 30 andrew and laura sent me their wedding photos they look absolutely stunning but most importantly so do i looking back on all the happiness from their wedding made me smile shout out to addison george photography for this great shot thursday 10 31 i was joking with hannah s niece about grabbing extra reese s peanut butter cups during trick or treat tonight later in the evening she stopped by again to deliver a bag of all the reese s she had collected for me it made my night and made me smile friday 11 01 we got tickets to the minnesota zoo s jack o lantern spectacular a mind blowing art installation with incredible carved pumpkin art what made me smile most about our date night though was that i managed to stay warm while walking around outside at 8pm in the snow hannah insisted i wear 2 pairs of socks 2 pairs of pants 3 shirts and my coat and it paid off saturday 11 02 hannah ate leftover scallops for breakfast today which is so repulsive that it made me smile what made you smile this week tags wmms 6 years ago 228 notes zoom permalink the show must go on don t worry i don t leave the tissues in for the entire video tonight hannah and i are talking about the hardest part of our relationship it s a fun one let us know what you think watch it here https youtu be xao5xycnysy 6 years ago 54 notes zoom permalink last week hannah and i arrived to an empty auditorium it was the first time the two of us had ever performed a full fledged 60 minute lecture comedy hour together we were extremely nervous that nobody would show up to watch us speak our goal on youtube is authenticity so we filmed all of these pre speech jitters i m beyond thankful to say over 75 people ended up attending our talk hannah did not in fact puke on stage but close we hope you enjoy tonight s episode in addition to documenting our first speech we find a man eating spider and cut up hannah s new skirt you can watch it here https youtu be dittpfglgra 6 years ago 75 notes zoom permalink one of the biggest perks of my disability is that i can carry m lady in a wagon behind me is that a perk or just something strange that we enjoy either way we just posted a new video of the two of us exploring wroclaw poland in this episode you can see us using this wagon perk plus watch hannah push me through a muddy abyss watch the episode here https youtu be noemajijgua 7 years ago 168 notes zoom permalink camera iphone xs max aperture f 1 8 exposure 1 30th focal 4mm what made me smile this week sunday 8 11 my brother got married last night i m still smiling this morning as i think about all the special memories that were created last night love you andrew and laura monday 8 12 east coast pizza made me smile after many many months with only significantly inferior midwest pizza sorry midwest you ve got the top spot for cheese curds and wild rice soup but your pizza leaves much to be desired tuesday 8 13 i had my book reading event in new york city tonight and so many people came out that the book store had to stay open for 40 minutes past their closing time hannah and i were filled with love and appreciation by the hundreds of you that attended thank you for making us smile wednesday 8 14 successfully navigating out of new york city without getting severely lost made me smile i maintain that my navigating skills are some of the finest in existence thursday 8 15 the air conditioner at our hotel in indiana dumped about 40 gallons of water on the floor while we slept last night waking up to a swampy carpet was disgusting and smelly but it was so ridiculous that it made me smile friday 8 16 a good beer and a good book made me smile tonight if you re anywhere remotely close to northfield minnesota i highly recommend the cream ale from imminent brewery delicious also if you re looking for a good book i highly recommend city of girls by elizabeth gilbert phenomenal voice saturday 8 17 over 200 of you beautiful people have helped my nonprofit raise over 10 000 for our summer fundraising project with these funds we will be able to provide even more equipment to people with muscular dystrophy if you d like to donate we would be so grateful you can donate right here https www gofundme com f lamn 2019 what made you smile this week tags wmms 7 years ago 297 notes a few weeks ago hannah had her insides tested to find out if she is a carrier of my disease spinal muscular atrophy although it was pretty unlikely that she would be a carrier this was big moment for us if hannah is a carrier there s a 50 chance that any future children we have will be born with sma if she s not a carrier there is virtually no chance that our kids will inherit the disease in tonight s episode of squirmy and grubs we reveal the results of hannah s genetic testing check it out 7 years ago 67 notes zoom permalink camera iphone 8 aperture f 1 8 exposure 1 1736th focal 3mm what made me smile this week sunday 7 28 my brother and his three groomsmen flew out to minneapolis this weekend to celebrate his bachelor party it made me smile that andrew s moment of peak excitement came from him discovering the electric scooters that are available to rent throughout the city he s getting married in two weeks and i couldn t be happier for him and laura monday 7 29 we did two more interviews for our upcoming book about interabled relationships today relating to and laughing with the couples we are meeting makes me smile tuesday 7 30 in no way shape or form should the following smile be interpreted as a complaint about summer and all of its beautiful warmth but today i found myself daydreaming about the cozy feeling of drinking wine inside a warm house on a snowy night i m happy if i never experience another cold day in my life but this thought made me smile wednesday 7 31 i had another spinraza injection today my anxiety about the procedure has been escalating throughout the past week but i m smiling bigger than ever right now because the injection is done and it went exceedingly well i can almost feel the synthetic dna coursing through my body thursday 8 01 dinner and interesting conversation with our new friend jim made me smile today friday 8 02 i watched the world s most adorable chipmunk stretch onto its tippy toes to reach a wilting flower that it wanted to nibble easily the cutest moment of my year it made me smile saturday 8 03 as you may have seen my charity is raising funds to provide 60 000 in adaptive and medical equipment to people living with muscular dystrophy this year over 130 people have already donated in the first two day which makes me smile so much thank you for checking out our work https www gofundme com f lamn 2019 what made you smile this week tags wmms 7 years ago 100 notes please reblog if you enjoy giving or being given sponge baths oh that s only six of you okay then maybe reblog to help us change the narrative around dating with a disability 7 years ago 102 notes zoom permalink we will be in new york city on august 13 from 6 8pm at books of wonder on 18th street shane will be reading from his latest book strangers assume my girlfriend is my nurse there will also be an open q a for everyone to ask us whatever you want and shane will be signing books if you think you might attend please rsvp on the facebook event we created https www facebook com events 2905629632840938 can t wait to meet everyone 7 years ago 35 notes zoom permalink camera iphone xs max aperture f 1 8 exposure 1 24th focal 4mm what made me smile this week sunday 7 14 this probably shouldn t be a smile but i had an interaction this morning that was so ridiculously offensive it made me laugh while eating breakfast at a small diner near chicago the host absolutely refused to address me directly everything he asked us was directed to hannah will this table work for him will he be staying in his wheelchair what would he like to eat every single time hannah would turn to me and wait for me to answer him and yet he continued to address her instead of me my favorite was his final question is this big guy happy today his baffling ignorance made me smile and cringe for him monday 7 15 today was my dad s birthday and he surprised me in the coolest way by donating his birthday to my nonprofit organization laughing at my nightmare inc his birthday fundraiser brought in over 2 000 which is incredible talking to my dad on the phone and hearing his excitement about supporting our work made me smile happy birthday dad and thank you tuesday 7 16 a payment machine in a parking lot ate our 20 bill without giving us the 17 change that we deserved this enraged me but i also smiled because hannah immediately dismissed the entire town as a garbage city wednesday 7 17 a small case of probable food poisoning made me smile today now of course this ordeal was extremely not fun for many obvious reasons especially because it occurred while hannah and i were in milwaukee for business however being stuck to the toilet for 8 hours did give us a great opportunity to start the next season of stranger things thursday 7 18 we stopped at an italian bakery this evening to buy some authentic italian cookies that hannah has been craving ever since she moved away from connecticut five years ago it was located in an old brick building in a charmingly old neighborhood in milwaukee unsurprisingly the bakery had a few steps at its entrance normally this would bother me but i was too excited for cookies to really care today i waited outside while hannah went in to order our treats while i waited on the sidewalk another patron of the bakery came outside and said to me hey i noticed there are steps here can i help you get anything from inside human kindness never fails to make me smile friday 7 19 i wish i was making this up but our hotel room in michigan just literally opened up during a massive storm releasing a waterfall of rain into our room it was so absurd that i can t do anything but smile the best part is that we caught it on camera so keep an eye out for it in a few days saturday 7 20 seeing the beautiful minneapolis skyline come into view after a week on the road made me smile this was an amazing trip and i m so grateful to have met so many awesome people but it s also nice to be home bonus smile the photo for this post is from 7 13 in downtown chicago we were visiting our friend alex in her sick new apartment enjoying her rooftop balcony that overlooked the whole city it made us smile what made you smile this week tags wmms 7 years ago 112 notes zoom permalink normally it s pretty easy for me to let dumb comments from ignorant people roll off my back but tonight we posted a new video and this person s comment rubbed me the wrong way it s probably just the accumulation of so much ignorance being shoved in my face each day in our comment section but i m so tired of the idea that people with disabilities cannot be valuable partners if this angers you you re probably not one 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