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favicon.ico: lcmedata.org - Long COVID / ME Data.

site address: lcmedata.org redirected to: lcmedata.org

site title: Long COVID / ME Data

Our opinion (on Tuesday 28 July 2026 14:41:40 UTC):

GREEN status (no comments) - no comments
After content analysis of this website we propose the following hashtags:



Meta tags:
description=Patient-sourced data analyzed with AI to help the Long COVID and ME community make better decisions.;

Headings (most frequently used words):

long, covid, me, data, projects, stay, in, the, loop, about,

Text of the page (most frequently used words):
and (13), the (6), long (6), covid (6), for (5), patients (3), from (3), with (3), treatments (3), data (3), this (2), research (2), community (2), get (2), #projects (2), view (2), active (2), doctors (2), each (2), patient (2), sourced (2), what (2), one (2), surveys (2), who (2), lcmedata, org, contact, project, organized, group, tech, backgrounds, volunteering, their, time, give, back, highly, agentic, about, subscribe, email, address, notified, when, launch, new, stay, loop, first, ever, directory, clinics, that, take, seriously, private, nhs, specialists, pots, mcas, dysautonomia, more, notes, cost, telemedicine, prescribes, trying, like, playing, minesweeper, are, getting, better, worse, experimental, quite, knows, why, aim, solve, running, focused, depth, individual, use, surface, patterns, benefits, worsens, correlates, outcome, treatment, experience, believe, there, another, way, information, needs, quickly, efficiently, analyzed, years, suffering, myalgic, encephalomyelitis, have, been, stuck, between, rock, hard, place, waiting, snail, pace, trials, spending, hours, poring, through, social, media, anecdotes, light,


Text of the page (random words):
long covid me data light long covid me data for years patients suffering from long covid and me myalgic encephalomyelitis have been stuck between a rock and a hard place waiting for the snail s pace of research and trials or spending hours poring through social media for anecdotes we believe there s another way patient sourced data analyzed with ai to get the community the information it needs quickly and efficiently projects treatment experience surveys trying treatments for long covid and me is like playing minesweeper patients are getting better or worse from experimental treatments and no one quite knows why we aim to solve this by running focused in depth surveys on individual treatments and use ai to surface patterns who benefits who worsens what correlates with outcome active view uk long covid me doctors the first ever directory of uk doctors and clinics that take long covid and me seriously private and nhs specialists for pots mcas dysautonomia and more each with patient sourced notes on cost telemedicine and what each one prescribes active view stay in the loop get notified when we launch new projects email address subscribe about this project is organized by highly agentic lc me a group of patients from tech and research backgrounds volunteering their time to give back to the community lcmedata org contact
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    Meta Tags

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