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exact hour we got up to leave and the doctor cornered us and said we had to be admitted to er i have blood clots and have to stay here in the hospital a few more days posted by lisa at 12 32 pm 1 comment wednesday january 27 2010 lumbar puncture at hospital okay mom and i walked in for a lumbar puncture test on monday figured it would be about an hour ended up laughing at each other because it was a 7 hour test after getting hydrated on the iv there was the test and then we had to wait 4 hours while they oberserved me and had me eat dinner we had to laugh at each other because we weren t sure what else to do then i had to spend yesterday all day in bed observing the rules so amazing no chemo i ll find out about that today at my doctor appointment so next time find out what s involved with your tests before hand posted by lisa at 11 04 am no comments sunday january 24 2010 sick anyway so i got sick anyway i can move around a bit for about 15 seconds then my ears start pulsing and i crash while i wait for it to end the anti nausea meds help some but can t do much else but watch the world spin i need help getting around poor kyle he s been asking for an ice cream cone for days and then he dr0pped the package and broke them all so sad posted by lisa at 5 13 pm no comments friday january 22 2010 readiing i finished the book the undaunted last week i can t believe they really did all of that excavating i guess i would have been one of the less chosen ones rather than go through all of that i got a call tonight they want to do a lumbar something or other next monday i think they re just wanting to try out every new fangled test that comes along my family is getting sick by degrees first jacob then taija then dad now max all throwing up for a day we ve been laundering and washing door knobs and light switches i hope i don t get it too posted by lisa at 8 29 pm 1 comment monday january 18 2010 chemo tomorrow took the blood test today things went great the other tests all came back okay the ultrasound and mri i get chemo on tuesday at noon i take a little less of the steroids more of the intestine meds posted by lisa at 5 20 pm no comments sunday january 17 2010 feelin groovy i didn t make it to church today upset stomach but i ve felt pretty well since lunch time i even finished a byu lesson only 5 more to go on this class i have to give blood tomorrow and see the doctor and see what the results of my two tests are ultrasound and mri posted by lisa at 8 42 pm no comments tuesday january 12 2010 once some good news i was going to share with you some very good news my brain mri came back with excellent results all the doctors were very impressed that the tumors there are shrinking yea monday dr o grady told me how unexpected the results were then monday night i ended up in the hospital because i d been throwing up for 2 1 2 days and i was dehydrating i spent the evening day in the hospital getting rehydrated i felt tremendously better that night and early tuesday morning the next day i was supposed to have a dr klarnet cancer center appointment and more chemo but the soonest i could get out of kadlec was 11 30 a m we got home and back to the cancer center appointment dr klarnet had a boatload of questions for us that we had absolutely no answers we determined from the blood work that i was nauseated again because i need to return to my steroids full time also my blood platelets levels were skyrocketing another indication that i need to be back on the steroids it shows that my body is under a lot of stress i stayed there at the cancer center getting rehydrated again and getting more steroids and anti nausea drugs they are going to do three tests this week pet scan brain mri and an ultra sound to see if it s a gall bladder problem he said that he s going to start at square one and determine what is going on with my cancer and there will be no more chemo until we find out what s going on either so once there was some good news maybe there will be more later a big thank you for those who brought us dinner tonight we certainly needed it and it was delicious posted by lisa at 10 09 pm no comments wednesday january 6 2010 finally got treatment yesterday i got my chemo treatment we had to go to kadlec due to our insurance situation it actually worked out very well i was put in a room with a bed for me and the nice cozy chair was for mom and they insisted that i order a meal since it was all part of the room coverage answering their myriad of questions was tiring but other than that we re looking forward to next week no steroids this time no extra energy and no abraxane i wish the steroids would leave so i wouldn t look so fat they just keep hanging out in my cheeks i went to the dentist today since a side effect of the zometa bone strengthener is degenerating jaw bones they took some x rays and said that the aches weren t due to the zometa i m so glad but they ll have this x ray to serve as a baseline in case at some point in the future there is a problem posted by lisa at 2 22 pm 3 comments monday january 4 2010 treatment is tomorrow changed insurance as of the first of the year this complicated things as far as chemo is concerned i got my lab work done and visited with the nurse practitioner but i ll be getting chemo at kadlec for the next several times starting with tomorrow we got home after only being gone 3 hours the nurse i got today told me as much or more than the one last week she said that after going through radiation it is expected that the scan on my brain shows larger tumors she said that s why they wait at least 6 weeks before doing an mri for the swelling to go down so drum roll my tumors are responding wonderfully to the chemo drugs they ve gone down in size that s good news for me so glad that mom and dad are here to get me everywhere and remember to ask all the good questions a few side effects my fingers are tingly and numb my tongue tastes everything strange my scalp is still really sore and hanging onto those few whispy locks my appetite is way down i only get a few nibbles down before i m stufffed and more good news saturday i tripped and crashed head first into the bedroom wall no that s not the good news then i landed on my behind and know what i didn t break apart my worst fear and i survived i m in one piece hurray posted by lisa at 4 21 pm 3 comments tuesday december 29 2009 since then today the day after chemo the steroids i have enough energy to be up before 9am and help kyle pick up some toys and check my e mail imagine i ve been rip van winkle for the past week or so i also had to have neuprogena sp shots 3 days last because my white blood cell counts were low they weren t sure i d get a treatment this week but i did and i was glad to get one more treatment down the nurse practitioner mitre saw me yesterday before my treatment this woman knew more or at least shared more than everyone else we ve seen combined she gave me an antibiotic and nose spray for my ear nose infection she told me that the fact the tumors in the brain or bone and grown was not all bad she said that they would look worse for a few months and then finally show what all the treatments had produced she said that the one chemo drug avastin crosses over into the brain and would work on those cancers the abraxane would work elsewhere in my bones i m so glad that i got to see her and find out all that last night max took me in for an mri i asked the fellow who se seen me for the last 3 mri s if the different loud sounds made up a pattern he said yes the different mri sounds make different pictures so now we know why we re all but deafened by those noises yes hmmmmmm we were very fortunate last night to have lorna bring us dinner the relief society gave us a menu and insisted we use it one day each week for a while since we were getting chemo until after 5pm that meal was a true blessing we were also blessed to have kamiakin hs bring us our christmas meal they were very very generous in their gifts to us as well and while we were at max s relatives home some sneaky person left christmas packages for us on our porch as did the school up in richland i am just overwhelmed thank you thank you thank you we have been so blessed throughout all this posted by lisa at 11 59 am no comments thursday december 17 2009 new skills yesterday i had a fun visit with terre tracy and donna they brought over the softest fluffiest bath robe on this planet earth thank you thank you and the gummy worms were wonderful too last night while going through some e mails i came across one that was absolutely wonderful our church s relief society organization put out a call to each of us ladies wanting to know just exactly what skills we are wanting to learn how can they be of assistance in our lives here is what i replied dear ladies of the relief society after i got your last e mail about the skills we d like to learn i had me a great think after pondering for some time i decided that these are the things that i would like to know how to accomplish 1 boeing just came out with a 787 i d like to know how to fly it 2 i d like to learn how to drive one of those oily asphalt rollers 3 i d like to learn to orchesterate the music and lights to one of senske s fancy houses 4 i really want to know how to produce and manufacture my own insulin 5 mom says i should learn how to cure cancer 6 i d like to dispose of 2 dogs and 20 cartons of magazines without my hubby noticing if you could arrange to teach me these skills i would greatly appreciate it thanks lisa posted by lisa at 1 42 pm 1 comment tuesday december 15 2009 feelin a breeze okay so i had chemo yesterday they gave me avastin clear and abraxane milky colored as well as zometa for my bones the bag of steroids i got kept me awake most of the night and gave me energy today i even took a photo of me without my hat aaaaaaaaaaaaagh it s a rather nasty revealing photo of my condition but i thought i d show you what the steroids and radiation have accomplished now you can go tell your kiddies to never never never get cancer though i didn t look this way last time i was bald and i normally have a hat on so that i m less scary posted by lisa at 2 44 pm 5 comments sunday december 13 2009 sunday i m pretty pleased with myself got to part of church today i was too exhausted to stay for all of it had a great talk with karen who has gone through a lot of what i have and has taught me tons about life and i think i ve worked myself all up over the chemo tomorrow keep tossin the cookies as one person says faye brought me flowers and roseann brought me over a warm cancer hat yesterday so nice thank you thought i d share some details with you ever since that first surgery i get to run to the water closet every two hours without fail but to get up off the bed or couch i have to position my right arm and brace it for the inevitable shock of pain that comes when i swing my legs up and over up and over and then use my left hand to manipulate me up so my left hip which is particularly weak can come to a stand at this point in time nobody had better stand in my way i hobble along imagining what it must feel like to be the giant slug jabba from star wars fame and since the steroids have done their thing i m nice and plump to boot no i ve a better analogy with this warm cancer hat i look like a smurf really it s great posted by lisa at 5 45 pm no comments friday december 11 2009 hold to the rod the rod in my arm is sore sore sore with this cold snap we have here in kennewick hopefully it will warm up this weekend dr klarnet my oncology doctor said we re starting chemo on monday he s not wanting me to go for the brain tumors just yet the doctors will have to talk together about this i m just along for the ride it would seem we re really blessed i know i ve had a few cries over this but people have been so incredibly generous we got a delightful bright red bag yesterday thank you to this anonymous person s and the fruit basket from the ward and their singing was super thank you posted by lisa at 6 39 pm no comments wednesday december 9 2009 mri news i told mom today that i haven t had a single bit of good news from any of my mri s so far well to continue in that tradition sunday s mris showed that the cancers in my head have grown the neurosurgeon was very surprised to learn that i have already finished my radiation he wants a more aggressive treatment plan and is going to talk with dr rege radiation doc he did say that the radiation i ve gotten probably killed off a lot of baby cancers that can t be seen actually his office just called and they ve scheduled another brain mri for next week and an appointment to see him is he thinking more surgery the other cancer in my hips and sacral area still there so i had me a little cry on the way out the door oh he told me to load up on b vitamins and get out and get some exercise no more sleeping 18 20 hours per day and the shaking he says it s coming off the steroids and all the trauma my body has been through in the past many weeks posted by lisa at 12 08 pm 4 comments monday december 7 2009 balding my hair is rapidly disappearing each brushful has me wondering it it s my last i ve also been so exhausted since thurday that i have done nothing but sleep and sleep and sleep my sister and her husband came up friday and stayed until today i am so lucky that they came what fun they are this weeek we have three doctor appointments one for my arm one for the mri s done on my head and sacrum and the next day to plan my chemo treatments posted by lisa at 4 20 pm no comments wednesday december 2 2009 finished radiation today i finished my radiation treatments have a certificate to prove it they also sent me home with my lovely white plastic mesh mask each day it was placed over my head and screwed to the table below me can t imagine what i ll do with it wear it for halloween next year maybe they gave me one less treatment on my pelvic area better for my bowels they said so i have the mri sunday arm dr appointment tuesday surgeon appointment for reviewing the mri on wednesday and chemo doctor on thursday in talking with the chemo people today they aren t starting my next rounds until after christmas on the 30th i d like to get it over with but i guess they re thinking to spare me the side effects for now can t imagine why else anyway mom and dad helped me celebrate my finishing radiation by treating me to panda express it s funny cuz i asked her to get me some egg rolls from the freezer for lunch and she had a bag from panda express instead it was marvelous posted by lisa at 9 29 pm no comments tuesday december 1 2009 stray thoughts i ve had this thought the past few days in august max s brother and family came up to visit washington we all went out bowling bowling mind you including me i picked up the ball and tossed it down the lane didn t hit too many but i was playing okay switch that thought to october 10t...