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description=Julianna Snow In 2015, I started writing about my daughter. She was four at the time, and under hospice care for a severe form of Charcot Marie Tooth (CMT) , a neuromuscular disease. You can find a selection of old posts in the Blog tab, along with an occasional new one. I write about life,…;

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julianna yuri julianna yuri menu skip to content home blog search search for this is a mostly retired blog julianna snow in 2015 i started writing about my daughter she was four at the time and under hospice care for a severe form of charcot marie tooth cmt a neuromuscular disease you can find a selection of old posts in the blog tab along with an occasional new one i write about life death and grief and the magical child who taught me that love is bigger than all of it cmt1j we finally know the gene mutation that caused julianna s cmt cmt1j is a new subtype of cmt caused by an itpr3 gene mutation work is already underway to find treatment more details soon share this share on x opens in new window x share on facebook opens in new window facebook blog at wordpress com subscribe subscribed julianna yuri join 629 other subscribers sign me up already have a wordpress com account log in now privacy julianna yuri subscribe subscribed sign up log in copy shortlink report this content view post in reader manage subscriptions collapse this bar loading comments write a comment email required name required website