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as fine but the second one left me worse i went home feeling a rush of pressure like fluid going from my neck to my head the same head pain at the bottom back of my head nausea etc i went back to the chiropractor two hours later and he readjusted me and then he said he did an adjustment that is supposed to increase csf fluid flow to the brain i believe that is what i was feeling the fluid pressure rush feeling i went home with a horrible headache and it continued through the next day while i was lying in bed i researched csf pressure headaches along with the other symptoms i stumbled upon chiari malformation that name was familiar to me because my little nephew had corrective surgery for this condition that limits csf flow because of a blockage caused by dissention of the cerebellum into the foramen magnum of the skull chiari malformations are three times more likely to occur with females the mean most common average age of onset is twenty five i was twenty seven when this all began activities like lifting heavy objects or straining cause an attack which has been my trigger on multiple occasions my mother still gets anxious anytime i start lifting something because of a rather horrible episode of vomiting and headache after lifting a potted plant for her tinnitis headache at the back of the head the list goes on and on of the similarities between this chiari thing and my headaches what has always bothered me is that i was fine perfectly fine and then one day everything changed and not one doctor could explain why i m a control freak this health condition changed my life and has made me feel out of control of my body which then leads me on searches trying to make sense of it all on my own someday the world will understand these neurological conditions until then i m responsible for discovering my body s issues i saw my gynecologist before starting the prednisone to see if i could have him manipulate my hormones i ve strange menses to get rid of the migraine he urged me to take the prednisone and to definitely see the neurologist and ask him about the hormone changes with my headaches before we decide on anything i discussed my idea of the chiari and he brought up another he wanted me to research he printed off some credible material before seeing the neurologist on pseudotumor cerebri those seem to have a comorbidity often occurring together this week i had my annual eye exam and i discussed with the optometrist this headache and he ruled out anything wrong with the nerves in my eyes which happen with pseudotumor cerebri it was timely to see him because the night before my headache was behind my left eye and get this for several hours my very poor vision improved significantly in that left eye the optometrist hadn t heard of that before and couldn t explain it while it would be fantastic to have sustained improved vision it actually scared me but to soothe my optical and anxious nerves my eye no longer has that intense pressure making me feel like it will pop out and my vision is just as terrible as usual 20 450 vision i see the neurologist tomorrow i haven t seen one since 2008 i figure it s time i have a few things i m wondering about 1 are these actually migraines or was a diagnosis missed years ago that would explain this abrupt change 2 are there any new treatments i can try instead of the prednisone i ll keep doing the prednisone if it s the only choice but i really don t feel it s a safe long term option posted by lefty at 2 02 pm no comments tuesday january 25 2011 expecting a baby and a beasty in july i am expecting a baby in july the last migraine i wrote about well during the time i was on prednisone my ovulation changed and now a baby is the beautiful result of that pain pretty great deal in my opinion last year we tried for a few months for the baby that was later miscarried this time it was a total surprise and i even had two doses of migranal a drug that will cause uterine contractions and miscarriage this pregnancy is now at 14 weeks and this baby is hanging on so i think it is the prednisone i was on that facilitated this pregnancy also perhaps the reason i had such a powerful migraine the kind that i hadn t had in months is because i had a strong ovulation and menstrual cycle perhaps i wasn t ovulating for a few cycles this is all speculation of course as are all my ideas on why i have migraines what helps to deal with them what treats them well prednisone is not a speculation that drug i know for sure is what helps me overcome the cycles of headaches blessed drug which brings me to my pondering i assume that when this baby comes i am in for a major migraine major i don t know if it will be the day the baby is born or perhaps when i am finished with the post partem bleeding like with my miscarriage last year i don t know when but i do know my body and how it reacts to hormones i do know that when there is a significant hormone shift i get a migraine a migraine that can last days weeks and months if not treated with a strong prednisone taper so what happens in july i am beginning to wonder about this now wanting to make a plan of action a safe for baby plan of action what am i going to do when i get a migraine i am going to breastfeed i guess i should state that for without that i wouldn t be worrying about drugs i would just take the prednisone and carry on but how will the baby be affected through the passing of drugs into the breast milk by prednisone i read online which i hate going there for sources of medical information the information highway for hypochondriacs that some does get to the breast milk also i read that the american academy of pediatrics considers it to be compatible with breast feeding but what about at a high but tapering dose and will it cause the baby irritability and restlessness anyway i am saving these questions up for my next ob appointment i assume i can take it and the baby will be fine but i am so very careful when it comes to drugs and my babies i have had headaches back pain shoulder pain with this pregnancy and i haven t touched a single pill except my prenatal vitamin even with tylonel being okay so very careful so i look forward to this baby and plan for the beasty when i have a plan to treat the migraine i can calm down about it and then because i m carrying a life inside there will definitely being something else for me to worry about because that is what i do posted by lefty at 4 14 pm no comments saturday october 30 2010 i don t want to bow to the beasty so i have already stated on my previous post that i started a prednisone taper on tuesday it is now saturday and this morning i took 40 mg of the steroid about an hour ago i was doing some chores with my husband and all of a sudden it happened visual aura it was a bit gradual at first i just said oh no something is off i can see but i can t the squiggly lines or tunnel vision or one sided blindness those are my particular visual auras that occur my brother describes his as a donut so they vary hadn t happened yet it was just a vague partial blindness i quickly finished what i needed to help him with and then moved into fixing the toilet my next project by then the squiggly lines happened zig zags of light streaking through my right side s vision i didn t finish fixing the toilet at least it is the third bathroom and not the only so it can wait though the zigzags of light only lasted fifteen or so minutes i am out of my abortive medicine and i always get uncomfortable taking prednisone with heavy duty drugs anyway since prednisone is a heavy duty drug already 40 mg is no small dosage for the day my brother takes two tylonel and three advil when he gets his donut migraine and so i am trying that today my left side is starting to ache from the back of my skull to the eye pouring down to the side of my head the pounding is minimal so far i hope it fades one more week on prednisone i hate this mostly because we are celebrating halloween tonight and i am hosting i have an hour before i need to start cooking my husband said right away when i stated my vision was off that we should cancel i don t want to cancel i know i am whiny when i say this it is just that and you migraineurs understand i am sure that i hate these headaches controling my life i don t want them to win cancelling plans is bowing down i don t want to bow not to pain so i am going to fake myself well today the best i can i will rest for a little while and then get up and go and i am desperately trying not to go to that place that questions why the hell i am getting these migraines again one year one year it has been since i have had to deal with these regularly why now no not going there i really do hate this signed control freak posted by lefty at 1 30 pm 1 comment tuesday october 26 2010 trying not to worry i think we migraineurs may have something in common worry worry about is this migraine going to last for the rest of my life okay maybe not that bad but still sometimes the pain makes me go for the drama worry about i have an important day on saturday or fill in the blank for some major life event holiday vacation heaven forbid you have migraines on vacation i hope i don t get a migraine that would ruin the day worry about treatment if the next latest and greatest treatment is going to work or not or if it does what are the side effects worry about how your headaches get in the way of living your life the demands of a breadwinner missing work the demands of a mother or father missing out on the joys that parenthood can and does bring but if you are on your bed or even just in a bad mood trying to cope with the pain you miss out worry even about how people perceive you i hate this one we should not worry about how people think of us but there it is i do i don t even like people knowing i have a headache i don t like their pity i feel that it weakens me somehow don t tell me how bad my life is i am trying to look at my life as a positive one you are only reminding me that perhaps i should be in bed when in all actuality i have to make dinner bathe the children do laundry and help with homework i can t stop so life with migraines can be full of worry and worrying really doesn t do anybody any good it isn t productive in any shape or form and for me it makes me wrinkle up my left eyebrow and that my fellow friends in pain is starting to form a permanent line you ll have to forgive me i m in full swing of being in my thirties and becoming all too aware of my imminent aging process the other night i asked my husband if he thought it would be crazy if someday i had botox injections on my face he thought i was a bit ridiculous i think and suggested that i age gracefully accepting the lines perhaps he doesn t know just how vain i am so to my worry right now i haven t had a horrible time with migraines in over a year no i m not worried about that trust me i m getting to it i had a big migraine one week after my miscarriage this spring i treated it with prednisone on day three and over time it went away since then i only had one migraine on the second day of my period easy right one migraine a month is cake with delicious frosting it is so easy to deal with my period started last week on sunday evening on tuesday day two like clockwork my period was heavier and i had a migraine i expected that i didn t expect to have a migraine every day after that so on friday i figured it would go away when my period went away that used to be very normal for me when my migraines slowed down to just half the month or less it ended on saturday i had a headache that night but only for a few hours and it wasn t that bad then on sunday i had head pain but again wasn t too bad monday headache this morning tuesday headache not good this head pain migraine i hate calling them that for some reason like i am admitting to defeat isn t going away so i saw a doctor today not a neurologist i moved and haven t had bad enough migraines to necessitate a neurologist if this persists i will get back on the neurology wagon but my ob gyn great doctor smart i trust him he gave me my prednisone taper and i have started it i know that the taper will work it has never failed me i don t worry about this migraine but i do worry about the next how close will it be am i going to start slowly getting worse like i used to be it brings me to horrible self pitying tears to think that i have to go back there to that life where everything is about my pain my head my nausea my dizzy spells my fatigue my medication refills my worry and most horrible my worrying and the depression it brings on i have started running that helps with my normal worries and i hope it will help with my migraine worries i am hoping it helps with the irritability i feel when using prednisone a good run always seems to clear my mind and relax me i just have to have faith in my abilities to be proactive about the pain not letting it control me but taking control of it and killing it when it lasts more than three days to the void out there maybe reading this because you are searching desperately on the internet for answers to your pain and your worries i hope you find what you need to eliminate the pain or at least cope well with it and uh try not to worry posted by lefty at 2 46 pm no comments wednesday july 14 2010 a migraine i suppose i should mention since i never write on this blog anymore since my migraines haven t been much in my life i don t mean to sound like i m bragging i promise that i had a migraine when i became pregnant early this spring i had a few migraines though they were nothing really but they were more than usual when i moved to a different state quitting a job that was very stressful and going to no job my headaches went away except for just a few a month so for me just a few a month is nothing even once a week is like nothing really but anyway back to the pregnancy just a few headaches then i had a miscarriage i was just short of eight weeks when i miscarried the baby after delivering the baby and placenta on my own no need for a d c i was so grateful i bled for just one week the day after i stopped the bleeding was a sunday it was also day 1 of a serious migraine it lasted and lasted and lasted until wednesday morning i knew it was a beasty one so i didn t fool around i went to my midwife and asked her to prescribe me a 12 day tapering course of prednisone starting at 60mg the first day and decreasing 5mg a day until the last day of just one 5mg pill i started that morning always good to start prednisone in the morning especially if you re taking 60mg so that there might be a chance to sleep that night after ten days yes ten days of the taper my headache finally went away i firmly believe based on previous migraines and in particular previous unmedicated with prednisone migraines that the beasty migraine i started after the miscarriage would have lasted months bringing me into the cycle of migraines i start...
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