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Text of the page (random words):
moos crossing home who we are resources blog roll by state claire s signs claire s words books thursday march 21 2013 world down syndrome day and a bite sized blog hop today is world down syndrome day 3 21 for 3 copies of the 21st chromosome so today we are celebrating we are proudly wearing our blue and yellow i want people to ask about claire to ask about down syndrome to learn what is true and what just simply isn t today i am joining in a bite sized blog hop to spread truth and a little cuteness too fact my life is different from yours yep it is but not because of down syndrome or claire my life is different from yours because we are different no two people walk the same path or have the same experiences and while down syndrome may have sent us on a different path different is by no means bad claire is an amazing independent funny girl and i am proud to be her mom fallacy people with down syndrome are always happy and such sweet little angels i know this myth has been shared so many times but it is the one i hear all the time from people outside the down syndrome community so it apparently needs to be shared again people with down syndrome experience all the emotions that any other person does happiness sadness frustration claire is proud when she works hard and accomplishes a goal she is sneaky when she is trying to get away with something she is both loving and a bully with her sister claire is a person just like you and i photo posted by melissa at 8 49 am 4 comments email this blogthis share to x share to facebook share to pinterest labels advocacy claire world down syndrome day thursday march 7 2013 happy birthday bridget happy birthday bridget wednesday is my day off and papa was out to play with the girls yesterday so we decided to have bridget s cake a day early she was not too sure about the candle claire on the other hand was super excited so she got to blow it out first taste claire ate more cake at bridget s birthday than she did at her own bridget had to pause in the middle of cake eating to sign dad and then shoot him a smile signing all done bridget got twin babies for her birthday i hoped this would help by giving them each one to play with even though one of them has been designated as bridget s and we don t make her share that baby happy birthday sweet girl posted by melissa at 10 26 am 4 comments email this blogthis share to x share to facebook share to pinterest labels birthday bridget everyday life wednesday march 6 2013 spread the word to end the word today is the day to spread the word to end the word this is the fifth anniversary of a campaign to end the use of the r word i ve written about the word before how it s use hurts my heart but no matter what i say john franklin stephens says it better he is a self advocate an adult with down syndrome and he is offended by the use of the r word as an insult john franklin stephens open letter to ann coulter on using the r word it doesn t matter if you didn t mean it that way or you weren t thinking about someone with down syndrome when you said it the fact is the word is hurtful and insulting period posted by melissa at 10 08 am 0 comments email this blogthis share to x share to facebook share to pinterest labels advocacy spread the word to end the word monday march 4 2013 all the good stuff thank you so much for all your comments and emails on my last post it s so easy to get caught up in the hard behavior i find it happening more than i like these days then we have a great weekend minimal fighting on all fronts and i feel bad for focusing on the hard stuff it isn t all hard but the hard can be really hard so today i m going to focus on the good stuff the hilarious smart and awesome girlie that claire is yesterday was beautiful mid 60s and perfect park weather after nap we loaded the girls up in the stroller and walked to the park when we got there there were a few kids there and one a set of girls one older and one younger than claire they started playing on the slide together and i was so proud of claire the first couple of times up the stairs to the slide darren went with her at first helping then just spotting by the third or fourth time she was going all by herself up all the stairs using the railing and down the slide all on her own while she s been able to do this for quite a while she always gets a bit overwhelmed and i was proud of her independence today claire is working hard on speaking and will at least try to say any word you ask her to she s learned that her words have power and she s willing to use them her newest thing is bye not goodbye because you are leaving but bye because she wants you to leave usually after you ve asked her to do something she doesn t want to if you ve really made her mad she ll tell you bye then sign to put your coat on and go in the car not just leave me alone but leave the house claire is such a daddy s girl no matter what is going on as long as he is near by she will at least attempt what is being asked of her including getting close to the super scary calves this was a set of twins that were just a few days old we did a similar photo shoot when claire was about bridget s age and claire loved the calves not so much this time but at least dad and uncle russell were there to protect her posted by melissa at 9 33 am 5 comments email this blogthis share to x share to facebook share to pinterest labels behavior claire everyday life friday march 1 2013 i m jealous i read a lot of blogs many of them have families where at least one child has down syndrome most of the kids are similar in age to claire i read these other blogs get glimpses into other families and i am consumed with jealously it s not the perfectly decorated houses the perfect parties or the perfectly organized homeschooling moms i m jealous of the sentence that i am most jealous of is the kids were playing in the living room while i was in the kitchen yes sometimes sentences like those are followed by crashes where something gets broken or it is followed by tears as a toy is stolen or someone is pushed but i m still jealous because i can t leave the girls alone for even one minute claire is still scratching biting pushing and her favorite target is someone smaller slower and younger than her bridget s face always has at least one scab or scratch in some stage of healing a couple of days ago bridget was bitten twice once on the cheek once on the hip and she was sporting teeth marked shaped welts for days there are days when bridget will start crying when claire simply looks at her i literally cannot leave them alone for a second and it is exhausting i m not talking about long stretches of unsupervised time i mean i cannot leave them playing in the living room while i load the dishwasher i cannot walk down stairs to start a load of laundry i cannot wash my hands without making sure that bridget is tucked between my legs and the cabinet so that i can block claire s attack with my body if i need to i know we will eventually get this behavior stuff under control but right now i am sooooo tired of it i m tired of fighting with her i m tired of time out not fazing her i m tired of having to be on when ever i am alone with both girls i m just tired posted by melissa at 10 27 am 14 comments email this blogthis share to x share to facebook share to pinterest labels behavior claire monday february 25 2013 the end of my nursing days the end of my nursing days are rapidly approaching and i m not as sad about it as i thought i would be when i was pumping for claire i hated to quit i felt terribly guilty when i stopped pumping even though i pumped for a year and had enough milk in storage to get her through her first 18 months on breast milk pumping was something i could do for claire since she never nursed with bridget nursing was so easy at first we fit well together i had plenty of milk and we had a great routine established by the time i started back to work a few months later up until january when claire started preschool i was able to nurse bridget at least once during the day on my lunch hour and our nursing was going wonderfully then preschool started and my lunch hour is now consumed by moving claire from preschool to daycare when bridget started sleeping mostly though the night our middle of the night and usually morning nursing sessions disappeared as well these days i may nurse her once a day with my work schedule and what was our nursing time is now spent with my pump with the decease in nursing my supply has really suffered in addition bridget prefers her cup over her bottle or nursing unless she s tired and so it s almost time to be done while i will miss the closeness the quiet time of nursing i m okay with being done since she s okay with being mostly done too posted by melissa at 12 30 pm 3 comments email this blogthis share to x share to facebook share to pinterest labels bridget everyday life older posts home subscribe to posts atom about me melissa wife mother book lover blogger this is my adventure if you have any questions or comments please send me an email view my complete profile subscribe to posts atom posts all comments atom all comments currently reading currently listening to popular posts world down syndrome day and a bite sized blog hop today is world down syndrome day 3 21 for 3 copies of the 21st chromosome so today we are celebrating we are proudly wearing our blue a day 16 describe my dream house i know some people can describe their dream houses very specifically there is only one feature that is certain on my dream house a gian i felt bad recently a friend used the r word it caught me off guard coming from her and i wasn t ready with a request not to use the word the book review bloom by kelle hampton a few weeks after claire was born a birth story starting showing up on the internet it was the beautiful story of a birth followed by day 1 meaning behind your blog name i created this blog before claire i pictured it as a place to keep family and friends updated about what we were up to just like the mo i m jealous i read a lot of blogs many of them have families where at least one child has down syndrome most of the kids are similar in age to clair the comments that hurt a couple of weeks ago there was a woman on one of those daytime talk shows that made some nasty comments about people with disabilities in g step up for down syndrome last weekend was the step up for down syndrome walk this is an annual fundraiser for our local down syndrome association the walk hosted thank god for healthy babies i hadn t planned on going to church this morning darren and claire were down at the farm and bridget and i were slow to get moving swallow study and weaning on friday claire and i headed to denver for her third swallow study it had been six months since her last one and we were hoping that she i joined have you blog archive 2013 10 march 5 world down syndrome day and a bite sized blog hop happy birthday bridget spread the word to end the word all the good stuff i m jealous february 2 january 3 2012 54 december 3 november 1 october 7 september 5 august 5 july 4 june 5 may 4 april 5 march 6 february 3 january 6 2011 82 december 6 november 4 october 3 september 6 august 2 july 6 june 7 may 7 april 14 march 7 february 9 january 11 2010 107 december 9 november 8 october 19 september 5 august 6 july 8 june 13 may 8 april 7 march 14 february 5 january 5 labels choose a label 2010 31 for 21 18 2011 30 day challenge 14 2012 31 for 21 7 adoption 8 advocacy 17 baby 2 10 behavior 6 birth story 1 birthday 5 book review 1 books 2 brian 6 bridget 14 buddy walk 2 buggy 1 cardiology 7 cattle 4 celine 2 christmas 7 christmas warrior 2 claire 92 community group 1 cookies 1 danila 1 darren 7 day care 7 daycare 4 disability blog hop 2 down syndrome 23 early intervention 6 easter 2 eating 4 everyday life 27 eye dr 2 family 5 farm 2 fun 1 halloween 4 heart day 2 hospital 7 house 1 iep 3 jet set fashion show 2 kansas 1 maintenance 1 me 1 milestones 13 mother s day 1 motherhood 1 ohs 19 parenting 1 people first language 1 play date 2 portraits 2 prayers 1 pre diagnosis 2 pregnancy 3 prenatal screening 1 preschool 5 promotion 1 pumping 2 random 1 reece s rainbow 11 rsv 8 school 1 seven snippets fridays 5 siblings 1 sie center 2 signing 3 sleep 1 special olympics 1 spread the word to end the word 2 step up walk 4 support group 1 surgery 2 swallow study 1 t21 tuesday 1 teething 1 thanksgiving 1 tiny hope project 1 toys 2 transition 1 tubes 3 upper gi 1 vacation 4 vaccinations 2 valentine s day 2 vision 1 weekend 13 well child 8 wordless wednesday 8 work 2 world down syndrome day 3 friends fear thou not for i am with thee be not dismayed for i am thy god i will strengthen thee yea i will help thee yea i will uphold thee with the right hand of my righteousness isaiah 41 10 2010 2011 all text and images on moos crossing are property of melissa moos unless 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