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ds she is a lot of fun but also a lot of work and i find i m often easily exhausted after spending a few hours there but she is worth it here is a picture from last weekend she is enjoying her new activity center and growing fast hard to believe that she s going to be three months old on the 21st grand babies are precious and a pure joy other than that not much else new here i am looking forward to the warmth and sunshine that spring and a summer brings my favorite season spring so far has not been that great and that seems to be typical for the past few years lots of rain lately and cool days which is not wonderful but when the sun is out it s wonderful and today was one of those days i still hope every day for a cure for stage iv non small cell lung cancer and for any and all cancers and terminal illnesses i ve also learned that you need to enjoy every minute of life and good health something we all seem to forget to do and then when you suddenly find yourself or your friends or family ill it hits home good health is truly a gift and you need to be thankful for every day that you wake up and feel good i wish so much i had cherished all those good days so much more we truly never know what tomorrow may bring hugs to all lisa posted by thepurpleplace at 5 49 pm no comments email this blogthis share to x share to facebook share to pinterest thursday march 30 2017 news oh happy day i have been so behind in keeping up with this blog mostly because i have not been in treatment for so long and because there has not been a lot to report as far as the cancer battle goes for the last six months i have been very lucky to have stayed stable especially since they had to stop the opdivo due to continued side effects with it causing me to develop low grade pneumonitis on tuesday i was back at the hospital for my most recent round of labs and ct scans and i admit i have been really nervous because i have had so much fatigue for the past several weeks today i went for back for the results and i am delighted to report that i am now ned no evidence of disease which means that currently there is no sign on cancer in my body woohoo the opdivo clearly worked exactly as it was designed at least for me and even though they stopped it in late august it apparently had been in my system long enough to teach my body how to continue to fight of the cancer i am elated but in the world of cancer you are not considered cancer free until you are ned for five years and ultimately that s something that would be very rare for anyone with stage iv cancer nonetheless this is so happy news and is very promising it gives me more time and time is what we all need we will continue to hope that the time will be what we need to find a cure for me i had to admit i was pretty shocked since i have been so fatigued lately and that always worries me but my potassium is low and we are double checking my thyoid as it s likely they may both be the culprit plus i do have fibromyalgia and we that in itself can cause pretty severe fatigue now i don t go back until late june except for monthly port flushes and in june we ll be doing a chest xray and if that still looks good i won t even need a ct scan woohoo i now plan to enjoy every day and to really push myself to get out more spend more time with the kids and especially with baby harper it s wonderful to know that i m doing well in the battle but i admit i know many who aren t and i m so grateful to be one of the lucky ones i m still going to support everyone who is battling cancer and hope that we all can do well and beat this nasty illness one day at a time thanks so much for all and kindness and support you have provided to me these past two years it s hard to believe that two years ago monday 3 27 15 that i was diagnosed and now two years later i have reached ned oh happy day posted by thepurpleplace at 12 16 pm 3 comments email this blogthis share to x share to facebook share to pinterest sunday march 5 2017 happiness is a grandbaby h appiness is a grandbaby and i am delighted to let you all know that my sweet grand daughter made her arrival on february 21st a few days after her original due date she s a healthly happy baby and weighed 9 lbs 6 oz at birth mom had a very long and hard labor and after almost 32 hours harper was safely and happily delivered by c section needless to say none of us had much sleep that monday night and we all expected her to be born on monday but she just was too big and not ready to come out on her own we are all so thankful that she was never under and stress and was born perfectly healthy the following morning it was not so easy on her mom but s she is healing well from the procedure the kids are in love with their little girl and they are both wonderful new parents it all seems very natural to them they are such a sweet little family she is an angel and has been a really good baby she sleeps and eats well and when she is up she s very content and happy they are blessed this picture was taken the day she was born the very first time i held her instant love she is now almost two weeks old it s amazing at how fast the times flies by i am so in love with her it reminds me very much of the same wonderful bond i had when my boys were born the love is something you truly can t describe it s the best this little dress is so sweet too bad she s pretty much already outgrown it as she has with many of her newborn size clothes thankfully we did not buy a lot of tiny sizes and she still has lots of of wonderful outfits to wear the first week she was home we had some fabulous spring weather with record breaking temps it was wonderful for now my focus still on all things happy the baby and my trip to see brian i ll be back to the cancer battle soon as my next round of ct scans are coming up at the end of the month and to be honest i m not at all looking forward to them for some reason i feel like something is not quite right and it s never scans are never fun or easy they always cause a significant amount of scanxiety it s hard to believe in some ways that i ve been in this battle for almost two years i hope i can continue to fight for a long long time i want to have many years with this precious child thanks for stopping by i am thrilled to finally have my very own grandchild she s the newest love in my life posted by thepurpleplace at 1 55 pm no comments email this blogthis share to x share to facebook share to pinterest sunday february 12 2017 the cancer battle continues and i m still trying very hard to remain positive and determined to hope for a cure due to continued side effects caused from opdivo the immunotherpay drug i have been on since december of 2015 i have been placed on a treatment break for the past few months and have been closely monitored by ct scans and monthly check ups at my oncology unit thankfully the lung tumor has remained stable which is good news and we do hope that this long break will allow the pneumonitis to finally clear for good and also give my body a much needed break from non stop treatments i been having for almost two years now it s hard to believe but it will be two years on march 27th the day i learned that i had a brain tumor and subsequently learned that the brain tumor was actually a metastases from my primary cancer which was then diagnosed as stage iv lung cancer if you know anything about cancer i m sure you know that stage iv is the worst stage and is also often referred to as terminal cancer a term i totally do not like to use to day there is currently not a cure for stage iv lung cancer but thankfully it is treatable and as long as the treatments work you can bet i m going to fight it s been and up and down battle i did very well with the stereotactic radiation treatment that was first done for the brain tumor it worked perfectly for me and there is no longer any sign of that tumor yay hopefully it will never return but i will continue to have brian scans or mri s forever to be sure there is not any recurrence lung cancer tends to spread to the brain or the bones most often ironically it was the symptoms from the brain tumor that actually lead to the urgent ct scan i had back on that friday in march the day i found out i had a brain tumor some of the worst words you ll ever hear spoken sometimes i think back and it seem surreal i can still remember how scared i was and how much it changed my life in a matter of two days i thought i had vertigo and it all came only two days prior but by friday morning i has started to have difficulty with my speech and use of my right arm i felt a little dizzy too but had no other signs of any illness and never ever expected to then learn that my main tumor was actually in my lung to this date i have never had any signs of lung cancer no cough not chest discomfort no shortness or breath nothing it s almost hard to believe ironically i had been hospitalized exactly one month prior for hip surgery and although i had a chest xray done for pre ops and ultimately four more during that hospital stay no one ever saw the lung tumor they told me that i had pneumonia a fluky post op side effect yet even then i never had a cough or any pneumonia symptoms clearly something had to have been missed i guess i ll never understand how you can be totally fine one month and a month later learn that you have late stage cancer wow did you know that lung cancer is the leading cancer killer i didn t not until i had it i always thought that i would be a much higher risk to develop breast cancer especially in my family my mom is two time survivor and her sister died of breast cancer when she was in her 40 s i was so good about having my mammograms go figure and although i had once been a smoker i have been smoke free for over 10 years and had several clean and clear chest xrays my risk being a former smoker does make my risk somewhat higher but each you are are smoke free you risk becomes less and less i also have adenocarcinoma which is the type of lung cancer found most often in non smokers we ll never truly know if smoking was a factor in my cancer or not but that doesn t matter now and goodness know no one deserves lung cancer but sadly because of the smoking stigma there are actually people who look at those who smoked as if they deserve this and did it to themselves i ve seen that happen in some support group and it s upsetting no one deserves cancer and many people who smoke never do get cancer it s truly a matter of back luck and genes that mutate and can happen anyone we need to let everyone one that lung cancer strikes all it is by far the leading cancer death among man and women 1 in every 4 cancer deaths are from lung cancer more people die from lung cancer than from breast color and prostate combined and many have never smoked if you have lungs and breath you can get lung cancer and it s not only older patients it s now affecting many young healthly non smokers even starting in the 20 s and 30 s it s getting worse instead of better and that s so scary the median age for lung cancer once was 70 now it s closer to 40 50 wow moving on from my public service announcement i know i am extremely lucky to be doing this well with such a horrible diagnosis i am one of the very fortunate lung cancer patient s who has had very good results with immunotherpay and i m so grateful that i had a super oncolgist who persuaded me to try this drug just one month after it had received fda approval to treat non small cell lung cancer at first i declined it i was afraid of all the potential side effects and it really scared me i knew if i tried this i would be an extension of the clinical trial but the more i thought about it i decide to give it a chance and boy am i glad i did i seriously doubt i would have survived this long had i not made that choice i had already been on chemo and had radiation and although that worked for a short time by october of 2015 my tumor was back and more aggressive than when i first started my tumor grew to over 4 cm in a very short time and was no longer responding to chemo now it s only 14 mm which is tiny and has remained that size for almost six months now i m blessed there is not doubt in my mind that this drug saved my life i hope every day that i will be able to resume the same treatment but at this point we just do not know if it will be safe i has caused me to develop pneumonitis three times now and each time it s been worse that itself can quickly become very serious even fatal and it s one of those well known side effects of immunotherpay i m very much in a limbo status right now we did not know what is next for me and that will all depend on my next scans in late march if i have any progression i will need to start treatment again but with what these are the unknowns and the thoughts that keep me awake at night it s really so hard to ever keep cancer off your mind when you are fighting it for now i m try very hard to shift my focus on to happy things my sweet little grand daughter is now due any day and i could not be happier alex and acacia also bought a house and moved into over the thanksgiving weekend the house they bought is lovely and was totally renovated everything is new and they did not have to do one thing when they moved it it s perfect a brand new kitchen lovely hardwood floors three bedrooms including a lovely master with a master bath i love it and could easily move right in and be very happy there i am so happy for them and for their little girl they have now chosen a name for the baby and she will be harper leigh her nursery is now all done and is so sweet i love it and love the colors gray white and aqua she is going to be one very loved and adored baby and we all anxiously awaiting for her arrival here is a picture of one corner or her room i am also going to be heading out to san diego to visit brian my oldest son shortly after harper arrives sure hope she is not too late as i am flying out on march 7th i m super excited to see brian it s hard to believe but it s been a year since i was last there i went out for three weeks last february to escape winter and had a wonderful trip funny thing is that the whole time i was gone last year the weather here at home was fine it was cold and there was one day it went down to zero but we didn t have any snow the entire time i was away this year up until this month we ve had a really easy and fairly mild winter perfect for me but all of sudden we are now having snow ugh we ve already had over a foot this week and are now under another blizzard warning starting later today i swear sometimes i have the worse luck in life i also do not want little harper to be born in the middle of a blizzard and have the worry about the kids traveling to the hospital for her birth not to mention that i would not be able to drive to meet her in a blizzard either so far there is not sign she s planning to come yet acacia had a non stress test on friday and she s...