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nancy says nancy says tuesday july 24 2012 get a way 2012 part 2 a short visit to l a my gabriel is coocoo for strawberries imagine his reaction when we pulled into this strawberry farm he was in heaven the kids picked and picked and of course dad picked the most paul is always the hardest worker in our family i m so thankful for him posted by going for the miracle at 4 41 pm no comments summer get a way 2012 packing for our trip whenever there s work to be done bailee s not far behind i m glad for her help these are out of order sorry working off of pauls mac i m not sure what i m doing seaworld kono s is our family tradition that started on our honeymoon it s frequented by locals and tourists the line is always long but the food is worth it bailee s gnome beach bum with sun bleached hair he went with us everywhere lola was our neighbor at campland she and the kids had a good time we were sad to see her leave but she was thoughtful and left us her email address posted by going for the miracle at 4 33 pm no comments friday june 22 2012 i pretend i m decent at acting i ve realized i pretend a lot not wanting to complain it s old the aches and pains and worries it seems that my doctors are in a good position i ve searched high and low visited lots of them and finally hand picked the ones that will work well with me and more importantly each other the utah guy dr k is the specialist so i m letting him make all the big decisions it works for now the thing is we are on a watch and wait plan that means we let this evil disease have it s way with me while we do nothing well while we watch it every day something hurts today my ankles feel shattered the good news is they re not shattered even more good news is the pain will ease up in a day or two that s what roaming joint and muscle pain does it s random and ruthless and it s real i wish it was only random pain that was the problem my kidneys are bleeding steadily increasingly they bleed my chest still hurts my sinus s feel like someone took a nail gun to my head my lymph nodes are chronically swollen and that causes even more throat and ear pain funny thing with the head it s all connected by the same nerves so if one part hurts it all sort of hurts sort of that s part of the reason we watch and wait it s hard to see where the pain is really coming from my labs are still abnormal c anca and pr3 elevated still that s almost two years now i was offered a kidney biopsy but dr k is confident if we wait on that i ll be okay the risks of a kidney biopsy worries me so if the function is good for now i m ok to wait i m a fighter so i want nothing more to spring into action right now there is just no action in place yet i pray that soon vasculitis specialists will have a plan in place for patients like me patients that have been figured out so early in the game for now i let it kill me one cell at a time i m not trying to be dramatic it s the truth good thing i have a lot of cells i just need to make sure that i don t let a little bit of my spirit die with each cell that dies that itself is a pretty big task it s difficult to not get discouraged so i pretend a lot i smile and i stand two huge things i took for granted two years ago posted by going for the miracle at 11 19 am no comments older posts home subscribe to posts atom about me going for the miracle on our way out the door for church hurry grab a camera we all match today how the family does pictures view my complete profile krav maga click here for krav in phx my bailee http www bailees blogspot com san diego 2007 our garden andrews news http www andrewsoceanavenue blogspot com the nest easter weekend the big 7 day at the farm blog archive 2012 6 july 2 get a way 2012 part 2 summer get a way 2012 june 1 february 1 january 2 2011 23 december 1 november 1 october 2 august 2 june 2 may 2 april 2 march 2 february 4 january 5 2010 15 december 5 november 1 september 2 june 1 march 4 january 2 2009 30 december 1 september 2 august 2 july 4 june 1 may 4 april 3 march 5 february 3 january 5 2008 22 december 5 september 2 august 2 july 3 june 1 may 3 april 1 march 1 february 3 january 1 2007 11 december 3 november 4 october 3 august 1 watermark theme powered by blogger