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description=You are not alone Primary immunodeficiency (PI) doesn’t have to feel isolating.;

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Text of the page (random words):
immune deficiency foundation skip to main content understanding primary immunodeficiency pi what is pi how your immune system works genetics and pi could it be your immune system types of pi diagnosis genetic testing laboratory testing newborn screening treatment preventative antimicrobials immunoglobulin replacement therapy hematopoietic stem cell transplantation gene therapy think zebra understanding pi the more you understand about primary immunodeficiency pi the better you can manage it learn about pi diagnoses and treatment options learn more about pi living with pi explaining your diagnosis nurturing your health addressing mental health digestive and liver health fertility and pregnancy other body systems respiratory health vaccines get support ask idf get connected groups idf friends online community peer and group support find other support caring for children and teens navigating insurance choosing a plan appeal or file a complaint thriving at work traveling safely senior adults living with pi living with primary immunodeficiency pi can be challenging but you re not alone many people with pi lead full and active lives with the right support and resources you can too learn more about living with pi get involved give giving circle legacy giving shop with purpose sustainer s club tribute gifts workplace giving advocate partner events fundraise walk and community days diy fundraising share your story volunteer donate plasma get involved be a hero for those with pi change lives by promoting primary immunodeficiency pi awareness and taking action in your community through advocacy donating volunteering or fundraising get involved today advancing research and clinical care research grant program consulting immunologist diagnosing pi getting prior authorization clinician education survey research participating in clinical research advancing research and clinical care whether you re a clinician researcher or an individual with primary immunodeficiency pi these resources will help you advance the field get details on surveys grants and clinical trials learn more about research locate a pi specialist find events resources login donate open search search search menu you are not alone primary immunodeficiency pi doesn t have to feel isolating find support see real pi stories we re here for you receive news and helpful resources to your cell phone or inbox you can change or cancel your subscription at any time subscribe to text or email updates get involved give our resources services and outreach are largely funded by donors like you fundraise whether you join the sustainers club or start a facebook fundraiser all efforts can make a difference advocate even if you re new to pi advocacy there are many ways to raise awareness we ll help you get started volunteer your gift of time makes a difference there are always open positions for peer support and plasma awareness volunteers transforming the lives of tens of thousands each year 1 8 million website sessions linking the community to vital resources 1 774 individuals turned to askidf allowing us to answer 2 226 pi related questions 34 034 individuals living with pi were supported and empowered statistics based on 2025 community impact report walk and community days step up for the immunocompromised community the 2026 walk community days season is here join us at one of our six in person walk cities or our virtual coast to coast walk and help raise funds and awareness for immunocompromised individuals and their families learn more register watch the full documentary on youtube compromised life without immunity takes you inside the rarely seen world of primary immunodeficiency through six powerful stories discover how strength support and medical care make life possible despite seemingly impossible challenges watch for free on youtube or host a screening watch the film learn about the film how well do you know your immune system take our self assessment to find out if your symptoms could point to a primary immunodeficiency pi it s an informative way to gather insights that you can discuss with your healthcare provider take our self assessment a combined impact more than just fun and games when two of the internet s most engaging content creators cdawgva connor colquhoun and vtuber ironmouse came together to support the immune deficiency foundation something extraordinary happened what began as a friendship between a charismatic streamer and a talented vtuber living with common variable immune deficiency cvid has grown into one of the most impactful partnerships in content creator fundraising learn more let us guide you if you are living with pi think you might have pi are a caregiver a healthcare professional or are just looking to learn more we can help i have pi i might have pi i care for someone with pi i am a healthcare professional i want to donate or volunteer who is the immune deficiency foundation read about us learn and share be a plasma hero the more we learn about plasma the more we realize its life saving potential we need heroes to step up donate and save lives promote plasma donation types of pi there are more than 550 primary immunodeficiencies also known as inborn errors of immunity iei explore pi types recursos en español bienvenidos para ver nuestros recursos disponibles haga clic en el siguiente enlace ver los recursos podcasts listen to the latest podcast episode with topics that include diagnosis treatment and a deep dive into navigating life with immunodeficiency listen or subscribe videos recordings join us on youtube to help spread awareness and education about pi and tune in to see what is happening watch videos immunocompromised collaborative joining forces to protect the most vulnerable against infectious disease learn about the collaborative join an event learn more about all the ways to learn connect and engage with the immune deficiency foundation whether online and in person learn about events view events calendar stay informed browse the latest news articles videos and podcasts to find the most up to date information about advancements in treatments portrayal in the media and other programmatic efforts view all resources related resources woman with whim syndrome receives hematopoietic stem cell transplant august 19 2026 read article gamunex c gammaked lots withdrawn august 13 2026 read article plasma donation myths with professor peter jaworski august 12 2026 listen to podcast sign up for updates receive news and helpful resources to your cell phone or inbox you can change or cancel your subscription at any time subscribe to text or email updates facebook x linked in instagram youtube immune deficiency foundation 7550 teague road suite 220 hanover maryland 21076 p 410 321 6647 about press room contact us careers the immune deficiency foundation improves the diagnosis treatment and quality of life for every person affected by primary immunodeficiency we foster a community that is connected engaged and empowered through advocacy education and research donate terms of use policies 2026 immune deficiency foundation immune deficiency foundation is a 501 c 3 organization ein 52 1214782