Meta tags:

Headings (most frequently used words):

cord, is, canada, national, network, for, organizations, representing, all, those, with, rare, disorders, latest, news, upcoming, events,

Text of the page (most frequently used words):
rare (32), and (28), for (25), the (18), cord (15), disease (13), #disorders (12), 2026 (9), canada (9), more (8), read (8), news (8), organization (7), our (7), patients (7), strategy (7), canadian (6), that (6), with (6), about (6), policy (5), health (5), diseases (5), national (5), all (5), are (4), diagnosis (4), system (4), works (4), day (4), lives (4), member (4), help (4), events (4), readiness (4), general (3), common (3), voice (3), advocate (3), healthcare (3), those (3), list (3), their (3), become (3), patient (3), canadians (3), donate (3), now (3), your (3), work (3), from (3), care (3), inviting (3), members (3), what (3), letter (3), phase (3), access (3), drugs (3), governments (3), website (2), information (2), contact (2), please (2), not (2), provide (2), services (2), staff (2), provides (2), strong (2), you (2), join (2), raise (2), awareness (2), amongst (2), public (2), decision (2), makers (2), impact (2), representing (2), affected (2), community (2), lot (2), contribution (2), funding (2), needed (2), improve (2), view (2), upcoming (2), share (2), caregivers (2), moment (2), including (2), organizations (2), survey (2), jul (2), working (2), gaining (2), treatments (2), building (2), calling (2), ministers (2), renew (2), current (2), agreements (2), expire (2), 2027 (2), expressions (2), interest (2), action (2), group (2), has (2), case (2), open (2), federal (2), provincial (2), territorial (2), progress (2), login (2), design, mouth, media, inc, copyright, disclaimers, privacy, info, raredisorders, charitable, registration, 89651, 3355, rr0001, note, does, any, clinical, able, assist, making, referrals, have, successfully, joined, subscriber, thank, loading, newsletter, learn, main, objective, february, 2025, comprised, groups, individuals, families, programs, resources, part, disorder, active, because, volunteer, based, know, how, very, modest, budgets, however, still, need, financial, even, small, gift, means, dedicated, honouring, commitment, donors, suffering, much, advocacy, education, research, make, halifax, nov, fall, conference, story, support, others, family, advocates, one, key, experience, jun, was, mattered, clinicians, researchers, partners, leaders, participate, full, time, secure, keep, momentum, going, faster, genomics, data, capacity, future, premiers, gather, first, strengthen, before, council, federation, meeting, expand, new, move, agenda, identifying, priorities, assessing, actually, needs, change, aug, call, prepared, short, summary, its, relevance, therapeutic, populations, parallels, yescarta, other, advanced, therapies, sep, lifileucel, ontario, why, matters, beyond, melanoma, but, march, without, renewed, risk, begun, deliver, meaningful, while, strengthening, screening, specialist, coordinated, must, build, oct, latest, mission, network, search, exception, fight, campaigns, past, submission, form, corporate, affiliate, membership, board, directors, skip, content,

Text of the page (random words):
canadian organization for rare disorders skip to content donate login about about cord board of directors cord staff work our work strategy access rare disease day membership become a member affiliate member list corporate member list members information submission form news events upcoming events past events campaigns fight for our lives patient d exception contact donate login search website cord is canada s national network for organizations representing all those with rare disorders mission provide a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders about cord latest news view all open letter building phase 2 of canada s rare disease strategy oct 13 2026 news canada s rare disease strategy is working now governments must build phase 2 canada s national strategy for drugs for rare diseases has begun to deliver meaningful progress patients are gaining access to treatments while governments are strengthening screening diagnosis specialist services and coordinated care but the current federal provincial territorial agreements expire in march 2027 without renewed funding that progress is at risk in an open letter to canada s federal provincial and territorial health ministers the canadian organization for rare disorders is calling on governments read more lifileucel ontario case why it matters beyond melanoma sep 29 2026 news cord has prepared a short summary of the case and its relevance to rare disease and rare therapeutic populations including parallels with yescarta and other advanced therapies read more cord rare disease readiness action group call for expressions of interest aug 20 2026 news cord is inviting expressions of interest for a new rare disease readiness action group to help move canada s rare disease agenda from identifying priorities to assessing what actually works for patients and what needs to change read more renew and expand the national strategy for drugs for rare diseases jul 21 2026 news as premiers gather for the council of the federation meeting cord is calling on first ministers to renew and strengthen canada s national strategy for drugs for rare diseases before current agreements expire in 2027 the strategy is working patients are gaining faster access to treatments and canada is building the diagnosis genomics data and care capacity needed for the future now is the time to secure phase 2 and keep momentum going read the full letter read more rare disease readiness survey jul 14 2026 news cord is inviting members of the rare disease community in canada including patients caregivers clinicians researchers patient organizations policy partners and health system leaders to participate in the rare disease readiness survey read more what was your moment that mattered jun 23 2026 news we re inviting patients caregivers family members and advocates to share one key moment from their experience share your story and help improve diagnosis care and support for others read more upcoming events view all cord fall conference 2026 nov 12 13 2026 halifax read more please make a contribution to help improve the lives of all canadians with rare disorders the canadian organization for rare disorders is dedicated to honouring our commitment to our donors and to canadians suffering from rare disorders by funding much needed advocacy education and research because cord is a volunteer based organization we know how to do a lot with very modest budgets however we still need your financial contribution to help us do our work even a small gift means a lot donate now join us and become part of an active canadian rare disorder community cord is a national organization comprised of patient groups representing individuals and families affected by rare disorders cord provides programs resources and a common voice to advocate for health policy and a healthcare system that works for all canadians affected by rare disorders become a member rare disease day february 28 2025 rare disease day is to raise awareness amongst the general public and decision makers about rare diseases and their impact on patients lives the main objective of rare disease day is to raise awareness amongst the general public and decision makers about rare diseases and their impact on patients lives learn more join our newsletter loading thank you you have successfully joined our subscriber list about us cord provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders please note that cord does not provide any clinical services and staff are not able to assist in making a diagnosis or referrals charitable registration no 89651 3355 rr0001 contact us canadian organization for rare disorders general information info raredisorders ca copyright 2026 canadian organization for rare disorders privacy policy disclaimers website design by mouth media inc