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sandi s brain tumor my fight for life skip to main skip to sidebar friday november 18 2011 good news it is now november and my medical status has not changed everything is still stable inside my head the tumor is not growing or shrinking it shrank a little at the beginning of 2011 but no recent progress i m still feeling good and my energy level is slowly coming back i rejoined la fitness and i ve started working out again i hate that i lost so much muscle in 2010 while i sat on my butt watching tv but i had to give my body time to recover looks like i m finally coming around now i ve got to work out first thing in the morning or it does not happen i was like that before getting sick so it s nothing new thank you all for the support both mentally and financially can you believe that my hubby and i have had to pay over 12 000 in the last 2 yrs in medical bills after insurance cancer is expensive have a great day week posted by slmorris07 at 11 30 pm 0 comments email this blogthis share to x share to facebook share to pinterest friday april 22 2011 update on latest mri hey everyone i did end up getting to meet with my neurologist yesterday and we got positive feedback it is still stable not growing not shrinking but definitely not growing dr barnett stated that if she had 2 dozen neurosurgeons who all had seen my scans and the mass inside of my head that she would have 2 dozen people who would be unbelievably shocked that i was sitting in her office and that i was still alive because based on my medical reports i should be dead so good news is that my tumor is not growing that it is stable and that my super neurosurgeon is still optimistic she said to me i don t know what you are doing but keep doing it i am following the instructions of my mds and drinking about 3 glasses of red wine per week just wanted to tell everyone the good news thank you all so much for your thoughts and prayers with much love sandi posted by slmorris07 at 10 29 am 9 comments email this blogthis share to x share to facebook share to pinterest monday january 31 2011 update from my neurologist praise god this morning my neurosurgeon told me that she has never seen someone react this well to treatment and that the majority of people given my diagnosis are dead within one year but that i am still doing great in her opinion guess all of those hrs in the gym paid off thanks sonya for the motivation she said that she could tell a big difference between my oct scans and the scans i got in dec karen mother in law and nurse got a copy of the mri report and said that from what she can tell the tumor has shrunk a decent amount thank you all so much for your continued prayers god is listening and responding love to you all and i hope that everyone is doing great posted by slmorris07 at 2 28 pm 6 comments email this blogthis share to x share to facebook share to pinterest friday january 7 2011 the difference a day can make as happy as i was and optimistic yesterday leave it to the government to mess it up last night the fda pulled the approval for avastin to treat breast cancer there is a debate if this is the beginning of rationing because it is a very expensive drug granted i don t have breast cancer but this gives my insurer an excuse to deny treatment i called united hc and she said that if the fda pulled their approval then they probably would drop the medication as well as i understand it avastin has been the super drug that was really helping my tumor and preventing the blood from being able to re route and form new vessels around the tumor thanks for listening guys sandi posted by slmorris07 at 1 58 pm 6 comments email this blogthis share to x share to facebook share to pinterest tuesday january 4 2011 mri update i got great news from the doctor yesterday dr szabo my oncologist said that the mri last week showed that the tumor is stable and that i am exactly where we want you to be we would be my 3 doctors neurologist oncologist and radiologist i am feeling ok my energy level is coming back and my appetite is finally returning so it s not torture to eat anymore i ve lost about 20 lbs over the past 6 months for the longest time all i craved was fruit or sweets not a diet i would recommend for your health but you will lose weight i have been lucky enough to have a hoard of people praying for me and i have no doubt that god had his hand on my entire recovery surgery looking back there is no question that he went before me and prepared the way the pa physician s assistant that i met with the morning i got my diagnosis had enough drive to call united healthcare and argue with them so that my insurance would pay for the ct scan i was across the street from emory hospital and the on call neurosurgeon just happened to be one of the best in the southeast my surgery was supposed to take 4 hrs and she took 7 she used the extra time to cut off the blood supply to the back of the tumor which worked because the blood supply is still cut off god worked through dr florence barnett to save my life http barnettneurosurgery com and i am so grateful she is one of the best doctors i have had the privilege of knowing thank you all for your continued thoughts and prayers please keep them coming because i don t have this thing beat yet i do have a peace that started the day i got my diagnosis i have not really had fear just a comforting feeling that god was in control of the situation and that i didn t need to worry my greatest fear has been for my father and my husband i can t imagine what my father would do if something happened to me or what i would do if something happened to jj i hope that everyone is doing wonderful and had a fun and safe new year s eve we ll see what 2011 has in store thank you for being interested enough to read all of my ramblings love to all of my friends and thank you again for your prayers they are working posted by slmorris07 at 2 28 pm 4 comments email this blogthis share to x share to facebook share to pinterest monday january 3 2011 sandi update mri results from sonya my sister s mri results are good the brain tumor is still stable and is not growing the doctor said that the tumor is always going to be there but he thinks that a lot of the mass he is seeing is dead scar tissue from what they can tell the tumor still has no blood flow thanks to her wonderful brain surgeon her doctor is very happy with the results and so are we if you are new to my blog you can read sandi s fight for life to learn more about my younger sister who was diagnosed with brain cancer last year donation update i would also like to thank all of you who helped me spread the word and or purchased jewelry or donated to sandi last year belly charms donated 4100 to sandi last year to help with medical bills and living expenses since she has not been able to work since may thank you so much it has made a world of difference to her i am still donating all proceeds from the sale of jewelry in the affirmation and inspiration collection to her posted by belly charms at 11 15 pm 0 comments email this blogthis share to x share to facebook share to pinterest labels sandi updates sandi s fight for life friday november 12 2010 sandi update from sonya there is nothing new on sandi my sister is currently in the middle of another round of chemo she still has an amazing attitude during her fight for life against brain cancer in case you missed it the mri results we got back on 10 11 showed the tumor has actually shrunk a tiny bit that is incredible news it will be a few months before she gets another mri sandi s chemo lasts for 5 days so i am offering a 5 day sale on a few items in her collection on belly charms all proceeds from the sale of these items goes to my sister to help her pay medial bills even with insurance brain cancer is expensive and she has not been able to work since she was diagnosed with the lemon sized brain tumor in may of this year all of the peace and love bracelets are 20 off until 11 16 and shipping is free on them too three color options are available these make great holiday gifts use the coupon code sandi20 at checkout on belly charms click below to see each color option pastel peace and love bracelet gray peace and love bracelet deep purple peace and love bracelet please help me by posting tweeting or sharing this on facebook thanks so much for supporting sandi in her ongoing fight posted by belly charms at 10 29 am 1 comments email this blogthis share to x share to facebook share to pinterest labels sandi updates supporting sandi older posts home subscribe to posts atom my button donate to sandi s fight support sandi copy this code to display banner my story donate share my blog share followers my sister s blog topics birthday 1 blog hop friday 2 chemo 3 cost of cancer 5 giveaways 3 hops and follows 2 monday s little miracles 2 oncologist 2 sandi updates 7 sandi s fight for life 11 supporting sandi 11 treatment 5 search this blog blog archive november 1 april 1 january 4 november 1 october 1 september 1 august 4 july 5 june 10 may 4 blog design by about me belly charms slmorris07