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Text of the page (random words):
g her different is beautiful sign in her bedroom right by her door i see it every time i leave her room and every time it tugs at my heart it makes me proud it makes me sad just like diabetes itself at 1 48 pm 3 comments email this blogthis share to x share to facebook share to pinterest the night before christmas diabetes style friday december 25 2015 merry christmas i hope you have all had a wonderful holiday we have a had a lovely day and christmas eve diabetes however was not quite so lovely i was up until about 4 am waiting on low blood sugars to rise ugh however i used my time to write my own version of the night before christmas i hope you enjoy it and from our family to yours merry christmas the night before christmas diabetes style twas the night before christmas when all through the house not a creature was stirring not even a mouse the stocking were hung by the chimney with care in hopes that st nicholas soon would be there the hubs and i were nestled all snug in our bed while visions of good blood sugar danced in our heads i in my yoga pants and dad not wearing his cap had just settled down for a rather short nap 3 am blood sugar check you get it when from our daughter s room there arose such a clatter i sprang from my bed to see what was the matter away to her room i flew in a flash threw open her door tripped on something she hadn t put away and made a loud crash her dexcom shone with a very bright glow giving luster of midday to test strips lying below when what to my wondering eyes should appear but a number so low it filled me with fear more rapid than eagles her supplies how they came i whistled and shouted and called them by name now meter now test strips now lancet and wipes on smarties on juice boxes on pudding and tabs of all types to the front of her lips not a bit we let fall now eat away drink away eat away all then back to the kitchen i hurriedly flew for more armfuls of juice boxes and glucose tabs too and then i did hear as i rushed back to her room four little beeps the under 55 beeps of doom i drew in my head and was turning around her dad down the hallway he came with a bound she was under the covers from bottom to top her pillowcase was tarnished with random blood drops her hands were well hidden behind her small back testing blood sugar that way would require quite a knack her eyes were still closed she looked sweet and merry until with a sip of juice she muttered i like apple not cherry she was still asleep but fussing a right grumpy little elf i laughed as i saw her in spite of myself but a fluttering of eyes and a turn of her head soon gave me to know i had nothing to dread she spoke not a word but went straight to her work drinking and chewing then sitting up with a jerk her fingers she held in front of my nose a quick test reveled that her bg had rose she pulled her covers back close now that she was out of danger looking again like a sleeping little angel but i heard her whisper as we walked out of her sight thanks for taking care of me mom and dad i love you good night at 11 27 pm 4 comments email this blogthis share to x share to facebook share to pinterest laughing all the way sunday december 20 2015 if we couldn t laugh we would all go insane jimmy buffett isn t that the truth sometimes it s happy and joyful laughter sometimes it s more maniacal but at least we re laughing we ve doing a lot of laughing since i posted last i ll let you decide what kind of laughter it s been it s hard to believe it s been so long but then the past four months have gone by in a bit of a blur and there have been many times that i thought that if i wasn t already crazy crazy was right around the corner here s what we ve been up to at the start of the school year avery got a new school nurse surprisingly i wasn t as uptight about this as i would have guessed just her being older and more knowledgeable about her diabetes helped put me at ease a little but the unknown is always a little scary her wonderful angel of a school nurse for the past few years knew she was leaving and put together a big binder of how to s and even trained the incoming nurse at the end of last school year then a few days before school started that nurse quit so here we were about three days before school started with no nurse cue freak out and maniacal laughter they hired a new nurse and i made an appointment to go in and talk to her the day before school started the three of us walk into the clinic with all of her supplies and orders and such and who do we see not just her new nurse but her old nurse cue the tears her wonderful incredible nurse had come all the way back to spend the first few days at school making sure that her girls were taken care of and that things went smoothly avery said i think she knew i was going to be a little nervous without her so she came to make sure we were all ok what a blessing she is we have also been blessed with a wonderful new nurse she has a big job and she s handling it and learning about diabetes and doing a great job one of the other things that has been keeping us busy is cheerleading i took on the role of the director of the basketball side of our peewee cheer program i m also currently coaching avery s basketball cheer squad that is keeping us quite busy in the fall avery started practice with her competition cheer squad she was thrilled to make the competition team after trying out in the spring competition cheer kind of took us by surprise and presented some new challenges i did not coach her squad so that meant that avery was on her own at cheer practice originally i thought i might have sit in the car during practice but honestly neither jason nor i wanted to sit in the car for two hours twice a week so we let her have at it and try handling her care on her own it was definitely a lot of trial and error we knew that traditionally cheer and especially tumbling made her blood sugar drop like a rock so we started out under blousing and doing minus basals only have her end up high what we didn t take into account was the nerves avery is a good cheerleader she s used to being one of the girls who is able to do the routines well without much practice she s used to having some of the highest jumps and cleanest motions but on the competition squad everyone else is good too and some of these girls were able to do more tumbling than she could so again cue the tears it was a great learning experience for her and she totally stepped up to the challenge she shook off those nerves and got after it she practiced and practiced and practiced and now she s got an amazing toe touch and round off back handspring i m so proud of her effort and perseverance she really handled the diabetes aspect well her coaches were awesome and kept and eye on her but she handled things on her own she would text or call us if she was low or high or didn t feel right to our pleasant surprise often she would text us what she thought she needed to do and she would be right on the largest issue was after practice she practiced for two hours twice a week as she got more confident in her tumbling the more she did at practice so two hours of tumbling and dancing and you can just imagine what that did to her blood sugar sometimes even into the next day it was not at all uncommon for her to run low for an entire day after practice the kicker is we never did figure out a fool proof method for handling it we would think we had an plan and we would try it and it would work and then the next time it wouldn t cue more maniacal laughter or bad words or both it got to the point where j and i would be talking about what to do and we d say well whatever we think we should do let s just do the opposite but what are you going to do she loves cheering we would never keep her from it even though it resulted in many sleepless nights and great frustration for us she just rolled with it just like she always does the lows and highs never seemed to faze her much she pushed through the tiredness and the headaches and just kept doing her thing did i mention that i was really proud of this girl we were a little worried about the competitions because she would be away from us and not really accessible for a period of time we had no idea what the nerves and excitement would do to her blood sugar or how to handle her care we did not want her to wear her dexcom receiver while performing so what we did was have her wear through the warm ups and then give it to one of her coaches right before she was to perform if we noticed she needed to do something we would text her it really worked quite well the nerves never affected her numbers on competition days and it all went really smoothly something else new for us this fall was getting rid of our dexcom receiver when we upgraded to the g5 system we now just use our iphones avery was thrilled to have one less thing to carry around with her during the day she wears her phone in the pouch around her waist just like she always has we love the share aspect because we can check in on her throughout the day and night our phones also alarm and alert us when her blood sugar is too high or too low or dropping quickly this is what the app looks like on her phone and here is an example of the ugly blood sugars we saw just so you know i m keepin it real and not lying y all know my love for dexcom and it just keeps growing i didn t think i could love it any more but i do we love just using the phones i wasn t sure how that would play out and if it would work ok at school but it s been great it works just like the receiver did and she also can text us with questions and we can text her should we need to it s been a nice help in transitioning her to caring for herself all of the independence we have been able to give her this year at cheer practice and competitions and birthday parties and just in life would not have been possible without our dexcom keeping watch i trust that little thing more than i ve ever trusted any piece of technology before i don t know if it would be so easy to let her try things on her own without knowing that dex is keeping a watchful eye on my girl and we will be alerted if there is a problem it s not just nice for us either her teachers and nurse love it too they love knowing that it is keeping track of her and that we are able to see and keep tabs as well my parents have also put the app on their phones so that they can have access to her numbers when she is with them they don t set the alerts her phone alerting is enough for them but it gives them piece of mind and they check on her from time to time when she s not with them too i ll get a text is everything ok her numbers have been low cheer it s nice to know that someone else is checking on our girl i ve also had my best friend put the app on her phone she loves it too she said she loves being able to just look at her phone to see what avery s number is and not have to bother her by asking she likes to check it a lot when she s watching avery just to be sure she s ok i really appreciate that my love for the g5 is really another post entirely but it s been a huge blessing and really helped us give her the independence that she is so craving jdrf has also been keeping us busy as usual i don t think that i mentioned that i was honored as the volunteer of the year for our chapter at our gala in may i was totally blown away and shocked to receive this honor we had a great time at the gala and raised a lot of money for diabetes research gala selfie in the car a is too busy reading to smile we also put together our walk team the bravery bunch to participate in our 7th walk we were thrilled to raise around 15 000 this year in all honesty this was a tough walk year after seven years people just aren t as willing or motivated to donate now i know you may be thinking that i m insane because we raised so much money but last year we raised over 22 000 with all of our cheer responsibilities i didn t have the time or energy to do as many fundraisers as i had in the past we didn t have anyone walk with us this year it was a cold rainy day and we just told the couple that were actually willing to come to stay home and keep dry i get it many of our friends have kids and responsibilities that keep them very busy it s not always possible to walk with us and it s not always possible to raise a ton of money but we just keep at it and we don t give up we know that every bit helps and we know this isn t a sprint it s a marathon there will be bumps in the road we ve just got to keep going school as always is keeping us busy and laughing at least for me the laugh has a bit of crazy in it and makes my eyes twitch avery is having a great year and has two incredible teachers who are teaching her so so so much and really bringing out her confidence and independence i am also having a good year although a very challenging one i love love love my kiddos i have 24 kinders in my class this year when we have 26 we get an instructional assistant i ve had an ia for the past five years before that we shared other assistants this year i m totally on my own in a way i really like that but it s been challenging because i m used to being able to do things a certain way or do more bigger grander things because i have help sometimes i forget that and find myself swamped and overwhelmed our house has been another major cause of laughter mostly the eye twitching crazy kind we started a rather large renovation in september it will finally be totally finished tomorrow it s involved packing up every room in our house into boxes and unpacking them all again and sometimes repacking and re unpacking again it s involved living mainly in our bedroom for a week and being without an upstairs bath shower for a week it s involved so much dust i could build a snowman it s involved having a refrigerator in our living room and it s involved realizing that packing up our necessities involves a rather large box of diabetes supplies we ve been surprised at the change we ve seen in avery the past few months she s wanting more independence that s normal for any kid her age but throwing diabetes into the mix adds another layer of concern we ve let her go unaccompanied to birthday parties and cheer parties and play dates i can t say she always has handled diabetes perfectly but she s learning and she s doing quite well one day her nurse got on her at school for punching her carbs and insulin into her pdm and delivering so quickly that the nurse was not able to double check i understand her concern but we did have to realize that avery made the correct decision and that sometimes at home she just lets us handle it but that doesn t mean she isn t paying attention on her own and with other caregivers she knows her stuff that s a proud and bittersweet moment of realization i miss blogging i miss all of you i love that i still get emails and talk to many of you on facebook and instagram i hope to find t...
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