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Text of the page (random words):
should be denied consideration because you re busy please don t tell me there are 50 other people on a waiting list to use general fund dollars please don t tell me that when i ve found the perfect staff that medicaid will only reimburse 16 but staff charge 18 at least let me believe you re trying to figure it out it s my job to try to do my best for my daughter it s your job to be professional and help me do mine and only one of us is getting paid there is so much more to say i m just too tired to write more all my love kelli uncategorized comments off on when a power player takes you down sep 3 she is home by thestatuswoe we picked up issy from treatment it feels wonderful to have her home all of us as a family again living and loving under one roof so much love driving away from the center i m not sure who made this adorable sign please ignore the dog pooping issy wanted a team issy cake like the ones she saw in our pictures molly made her one she loves it she found her cat and went straight to her room home at last issy seeing her best friends at the football game she ran to them issy and mom at the football game we ran into our friend kennedy at school love the team issy shirt and issy is wearing her favorite papanos pizza shirt uncategorized comments off on she is home aug 27 retrain the mom brain by thestatuswoe photo credit here parent training ii you may remember this post about my first time working with issy here or you can just check out this video well you will be glad to know that it got better she tends to get angsty to me always has i think that is pretty typical for most kids even normal ones they always seem to have a short fuse when it comes to their parents our behavior plan is amazing right from the start issy s aggression has gone down and by down i mean nearly disappeared well we saw a spike in behavior when i started working with her 14 years of her having a short fuse with me is bound to affect her however our behavior plan is so kick ass that even with me implementing it her aggressions have gone down we re on the right track when our insurance company saw the data and the behavior spike they determined that the behavior treatment wasn t working anymore and that they were pulling funding of course it was explained to them they didn t care they were done no problem we re ready for her to come home and most importantly so is she so i explained the behavior plan in this post here it s intensive meaning that when you re on duty you re busy but her behavior plan isn t rocket science to put it simply she gets tokens she turns in her tokens to get things she wants sort of reminds me of something oh yea life well she earns token much faster than most of us earn money and we give her tokens constantly for doing the right things when i am working with her i have to carry a boatload of things tokens token board with velcro so it all attaches two timers counter ponytail holder baseball cap obviously i need to carry tokens the token board has to be close for issy to actually put the tokens she earns on it we time many activities so it really helps to have two timers the counter is when i need to count something for example if she starts to get aggressive i need to count how many times she hits me herself or property the counter is the easiest way to do this and if she does get angsty it s best if i get this mop of hair into a ponytail and put a hat on i found this belt on amazon i took off the chains but i love all the loops for hooking things onto it matt calls it my batman belt i love that man here is a video of issy trading in tokens for ipad time nightly prayers some personal thoughts on my training what my instincts are as a mother to do with issy are almost always wrong here are some examples if she is sad about something i should not go and try to comfort her she gets no comfort from it and i ll likely get hit if she wants something i should not give it to her she has to earn everything if she is sitting quietly for long periods of time i should not try to talk to her she ll get mad and hit me i remember feeling that way about my mom and i m not a child with autism hahaha soooooo totally normal if i have to tell her no and i feel badly about it it does no good to explain once we wanted to go to the fair we got there and it was closed i said how sorry i was and it was a bummer i used my sincere but sad voice and got hit just saying no and moving on is better it s generally better to avoid her i need to step in when i know i m going to be successful and not get hit we have 14 years to re shape going up to her at any given time and hugging her and telling her i love her yea that doesn t thrill her so am i doing it for me or her i don t want to spark an aggression so i ll just love her from afar or wait for her to initiate a big ol hug for me there are a million more examples but to sum it up my parenting with her is nearly the opposite of what i have to do with my neruro typical children for about 05 seconds a day i feel very sorry for myself the rest of the day i m so grateful that i ve figured it out because clearly i wasn t doing a great job for the last 14 years well i did fine the best i could under the circumstances but it will be better now so the next chapter in our saga is her transition home thank you for reading kelli autism comments off on retrain the mom brain aug 1 angsty is not professional or helpful i m looking at you recipient rights office in lansing mi waving by thestatuswoe if you read my last blog post about my friend lisa you know that we asked anyone who read her story to submit a recipient rights violation and send it old fashioned snail mail to the recipient s rights office at the main building in lansing many people sent in letters and i m happy to tell you that preston is in treatment preston is in treatment i m not exactly sure how preston got into treatment letters prayers and i suspect there were many people working behind the scenes to move mountains of paperwork for this child they did it a family who was in severe crisis is now on their way to an improved life and getting preston the help he deserves i don t know who you are but thank you you have just given this family a miracle similarly there were people working behind the scenes to get issy help moving mountains of paperwork phone calls jumping through hoops we are so very thankful it seems to me that currently to get a child who has extreme behaviors help you almost need special treatment you have to get the attention of important people i hope that changes i hope there becomes a streamlined process for families who have suffered at this level yes living for years in a life threatening situation is enough suffering so that the attitude is helpful and sincere please say words like this to those families how can i help you mrs stapleton i don t know how you have done this for so long here is our plan for your child what do you think here is a program for you and the siblings run by excellent professionals who have experience with what you have gone through please call us with any concerns we want to help you we want to improve our services for other families so really any concerns you have just call email or text me ok i know that s a dream but i believe it can happen we live in a great state the mitten state we are surrounded by huge freshwater lakes did god do that with the other states noooooooooooo clearly we are favored here which brings me to a recent epic disappointment just the other day i got this comment on my blog about lisa from beverly sobolewski she works at the recipient rights office in lansing i m hoping that she isn t the main director if she is my disappointment just became exponentially worse because this attitude will have a trickle down effect with her underlings i ve seen it before this is the comment it just seems angsty ya know my reaction well i can t speak for the entire state government but this is the attitude that exemplifies what is wrong with our state system in dealing with extremely disabled children and not unlike what i ve gotten from nearly everyone who is in a position to help us and chose to say words that ultimately do nothing to help more the situation forward here is the comment i wish she had written dear kelli thank you so much for bringing this case to our attention it is heartwarming to see so many good people support lisa and preston i wish more families had this wonderful of a support system we have received 50 letters from mi 20 from other states and 2 from canada now that we know about this situation we will open an investigation it will involve talking to her her local cmh and others so we have a complete understanding of her situation we understand that this is an emergent situation so we are pulling all of our resources to help this family our office is here to help families like lisa please don t hesitate to file a recipients rights complaint in the future anytime you feel a consumer is being mistreated it is our job to help best wishes to lisa preston you and issy sincerely beverly i know i know this isn t realistic not yet but someday the attitude in our great state will be one that is supportive and helpful you may say i m a dreamer but i m not the only one thank you for reading kelli autism parenting comments off on angsty is not professional or helpful i m looking at you recipient rights office in lansing mi waving jul 5 mail a letter save a family get some karma for yourself here by thestatuswoe please help my friend lisa and her son preston lisa is a widowed mother of one boy preston he is severely autistic and horrifically aggressive he decimates property injures his caretakers and hurts himself lisa has been asking for help but not getting it sound familiar there are some issues in the state of mi regarding children like preston and my daughter issy no one wants to be responsible to pay for the treatment they so desperately need it s complicated lisa is exactly where i was six months ago when i had lost all hope for my future and issy s only lisa s situation is much worse there is no insurance company that is going to come out of the woodwork for her and play the fairy godmother it is like watching a train wreck i now know exactly how my friends and family felt when it was me helpless horrified mystified that there really isn t any help well we can help lisa it took some people smarter than me to figure it out i m looking at you nicole and suze but here is the information we learned lisa is getting services through her community mental health agency but clearly not enough when you have a problem with your services you file something called a recipients rights violation report well this is where it gets good anyone can fill out a reciepients rights violation report on behalf of another person we can all file a report to the recipient s right officer at the state capital in regards to lisa and preston all of the reports must be followed up on as required by law this will help lisa in the following ways it will let her complaints be known at the state capital and prevent her local community mental health agency from ignoring her it will let important people know that many of us are watching this case and expect intervention and if something terrible happens to lisa before she gets help well there is a paper trail from all of us who love worry care or can relate to her and her needs not only are we helping lisa we are helping the state of mi recognize children with severe aggression and their desperate need for help michigan is an amazing state once they know better they will do better for our kids all you need to do is print out a copy of the recipients rights complaint fill out the 5 blank spaces that are pointed to in red i filled in the rest for you to make it easy then mail the complaint to the capital emailing is not an option i totally wish it was here is what you do click the link print and fill out the 5 spaces on the form mail to mdch office of recipient rights 320 south walnut street lewis cass building lansing michigan 48933 here i provided these examples the form is already filled out except for the information we need you to provide here are the downloadable forms you can click on this version microsoft word version here preston rr form 1 or this one they are the same pdf version here preston rr form 1 want to help more here is a fundraiser http www youcaring com medical fundraiser help lisa preston put their life together piece by piece 47136 if you would like to send help in the form of gas cards target cards walmart cards or anything else you can think of you can send them directly to lisa here lisa sain 9422 tiger run trail davison mi 48423 when i asked about putting her address out there in public lisa laughed she said if anyone wanted to come to her house for unkind reasons they would take one look at her life and run in the other direction i just love her thank you everyone here is mine please take a picture of your envelope and post it here on my facebook blog page here kelli stapleton the status woe i hope there are thousands fingerts crossed for you lisa thanks for reading everyone kelli update preston went into treatment today july 29 2013 welcome to your miracle lisa and preston please check out lisa s blog for further updates autism parenting comments off on mail a letter save a family get some karma for yourself here jun 11 kelli mom implements the behavior plan success does not ensue by thestatuswoe mom training we ve reached the point in issy s treatment where we need to bring in the parents to do the behavior plan so issy can transition home this is a bit of a process so we re starting several months before her expected release date issy has been following the behavior plan at the great lakes center for autism treatment and research for many months successfully the numbers of aggressions has gone down significantly yay issy so i mom show up for my first hands on day with her just so you understand i ve been visiting issy once a week and only had a few problems i also had two seperate trainings on her behavior plan and watched it implemented by her staff i was ready and excited the sooner we get through this step the sooner she can come home carly issy s behaviorist was there to make sure i said and did the right things basically i just had to give her tokens for having quite hands and feet and redirect her when she started perseverating you know getting stuck on certain topics we walked into the classroom issy was so happy to see me and i her i told her i was there to be her worker i sat down next to her and started to work on a coloring page issy started perseverating i redirected she got physical the following is the video from that incident i m the one with the blonde hair carly is the behaviorist thankfully issy had one of the bigger guy workers i ll refer to him as j the video below has no sound thankfully poor gu...