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the pizza hut skip to main skip to sidebar wednesday september 3 2008 crazy medical updates on tuesday adalie had her mri she was pretty excited by these warmers little did she know it was so they could find a good vein to poke my sweet baby girl was so brave here she is showing off her big purple bandage holding her i v in place she went on to tell the nurse at least you gave me a purple bandage cause thats my favorite color she did relatively well with the sedation at first she quickly went limp i thought to myself that was easy and then she suddenly started punching and kicking crazy and then went limp again is it just me or do these photos look very familiar since we had a few hours in between the mri and the hearing assessment clinic my sweet friend erin was so good to let us come crash at her place the picture above is so cute to me erin s daughter quinn kept wanting to take care of adalie dr park our ent told addie that since she was so brave she could have a sticker he then came back and told addie they were out of stickers so he took her to get a bear after 11 hours at primary children s this is what we learned adalie s mri was completely normal so because of that they had us meet with the genetics specialists they said they had done some research on adalie s medical history and had found a genetic syndrome that consisted of 3 things malformation of the tear ducts hearing loss and kidney malformation well i don t know if many of you know this but adalie was born without a tear duct on one side she is now losing her hearing so that leaves the 3rd bizarro issue they asked me if anyone in my family had had anything strange with their kidneys i told them that my dad was born with only one kidney and they both began to nod their heads so there is a relatively good chance adalie has this genetic syndrome i have to take her back to primary s on the 15th for an ultra sound of her kidneys if it turns out she does have this syndrome there really isn t anything they are going to do for her they will probably just make sure she has routine hearing checks and kidney ultra sounds you really can t get more bizarre than this now just when you thought you were done hearing about carson last week when i was at the pediatricians dr jopling i was discussing carson s progress i mentioned to him so you saw carson s mri was normal well primary s had never sent our dr the results so i called them and had them fax carson s mri to him then on friday dr jopling called me at work and told me he had now seen the results he then said to me to be completely honest with you lizz if he were my son i would take him up to see a neurosurgeon yes folks thats right someone who does surgery on the brain give me a break i thought my poor baby boy was done with this crap dr jopling thinks there is something on the scan that is not right so tomorrow we have a trip to the neurosurgeons back at primary s stay tuned posted by lizz pizza at 8 58 pm 16 comments tuesday august 19 2008 a day at dog park i ve never been to this dog park before i m not sure my kids have even been this close to water that wasn t their nana s pool addie and carson playing in the sand my dad brad sister ali and brother in law aaron along with their dogs joey and romo invited me addie and carson out for a little adventure aside from getting splattered by wet dogs mixed with mud it was pretty fun the kids got in the water and we skipped rocks until one little grumpy pants demanded that we cut the trip short posted by tony pizza at 11 23 am no comments tuesday august 5 2008 uumg summer party today was my works summer party we had an awesome bbq at sugarhouse park i got some great pictures of addie and her new bff liliana so cute posted by lizz pizza at 7 56 pm 5 comments monday july 28 2008 tanner park yesterday my sister jenn and i took the kids and 3 of her dogs to tanner park the kids loved it and were very happy to be out of the house cuddle bugs adalie chester carson keisha posted by lizz pizza at 7 33 pm 5 comments sunday july 20 2008 private some more i have sent out the email for those who wanted to be on my private blog if you did not get the email and would still like to be included please email me your email address to lizzpizza gmail com the private blog also has a new blog address this one will remain open for tony and his family posted by lizz pizza at 8 22 pm 9 comments saturday july 19 2008 private i am going private please leave a comment or email me at lizzpizza gmail com if you would like to be added to list posted by lizz pizza at 4 46 am 23 comments wednesday july 16 2008 no news is good news so we just got a call from the neurologist about carson s mri his brain looks great no stroke no neurological problems he does have what is called a developmental venous anomaly dva which is an abnormally large or in carson s case significantly large vein surrounding the brain however this has nothing to do with anything neurological nor do they think it will cause any future problems so the only explanation for carson s left sided issues is coincidental however the neurologist had thought he had ordered an important blood test cpk that could give us a little more in site to a neurological problem caused by enzymes in the blood so i have to take him to have that blood test done and then he should be in the clear posted by lizz pizza at 8 14 am 6 comments tuesday july 15 2008 carson s mri carson had his mri today it was a little different than i expected they had me a little more involved with this than i have been in any of his surgeries i think i actually like to hand him over to the professionals instead of helping i had to hold him while they gave him his iv and while they gave him the first dose of his sedation they said to hold him tight because its possible he could start to wig and wig he did he was flailing all over the place then they took him and strapped him to the table and continued to sedate him not quite asleep this was only about 30 seconds later and he was out cold my poor baby boy after the 45 minute mri he slept like this for about 2 hours the sedation was much worse than any of the times he has been put to sleep he was very wobbly and crabby all day i am really looking forward to adalie s mri not posted by lizz pizza at 9 06 pm 3 comments american idol my sister in law kami and i went to the american idol live concert it was so much fun here are a few of the pictures we took chikezie ramiele michael johns kristy lee cook carly smithson brooke white jason castro syesha mercado kami and i had pretty good seats it was so funny when david archuleta came out the crowed went from screaming pretty loud to absolutely killing my eardrums he was so sweet and even got a little teary ah yes david cook yes please what a great musician obviously a great choice for the american idol he also did a phenomenal job rockin out to david cook the encore posted by lizz pizza at 8 40 pm 7 comments older posts home 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