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vascern (25), 2026 (16), news (13), working (13), group (10), the (9), discover (7), tools (6), more (6), diseases (6), vascular (6), resources (6), and (6), rare (5), clinical (5), contrast (4), text (4), all (4), our (4), research (4), april (4), european (4), june (4), ppl (4), network (4), accessibility (3), reference (3), contact (3), for (3), learn (3), msa (3), ehlers (3), danlos (3), hht (3), primary (3), languages (3), language (3), case (3), events (3), patient (3), groups (3), sitemap (2), reset (2), readable (2), font (2), links (2), underline (2), light (2), background (2), negative (2), high (2), grayscale (2), decrease (2), increase (2), linkedin (2), youtube (2), facebook (2), map (2), privacy (2), policy (2), guidelines (2), newsletter (2), latest (2), from (2), erns (2), publications (2), training (2), summer (2), school (2), ern (2), affiliated (2), syndrome (2), members (2), hereditary (2), haemorrhagic (2), telangiectasia (2), spring (2), meeting (2), paediatric (2), lymphoedema (2), that (2), select (2), your (2), access (2), anomalies (2), vasca (2), neurovasc (2), syndr (2), htad (2), disease (2), through (2), decision (2), support (2), join (2), program (2), learning (2), exchange (2), submit (2), collaborative (2), experts (2), type (2), search (2), open, toolbar, skip, content, site, legal, notice, disclaimer, rights, reserved, terms, authorship, continuing, you, accept, subscribe, updates, united, help, ukrainian, people, with, view, recent, medical, first, placement, alumni, programme, commission, opens, call, partners, calls, esvm, congress, issues, scientific, statement, arbs, marking, eds, awareness, month, week, focus, may, ecrd, prague, roundup, chair, receives, royal, dutch, distinction, order, orange, nassau, inside, български, ελληνικά, svenska, suomi, slovenščina, slovenčina, română, português, polski, norwegian, nederlands, maltese, magyar, lietuvių, latviešu, italiano, hrvatski, français, español, english, eesti, deutsch, dansk, čeština, see, know, barriers, can, make, difficult, find, important, information, why, offer, multiple, each, resource, carefully, translated, validated, native, speaking, preferred, list, cadasil, moyamoya, marfan, loeys, dietz, osler, weber, rendu, read, innovating, discussions, connecting, across, europe, apply, partner, date, start, pages, management, system, cpms, platform, ecp, erasmus, trainings, webinars, pills, knowledge, education, registry, trials, observational, studies, registries, psychology, mental, health, pregnancy, family, planning, pathways, expert, consensus, statements, don, outcome, measures, transversal, representation, goals, future, funding, partnerships, projects, coordination, project, team, structure, governance, networks, about, who, are, follow, pediatric, lymphedema, neurovascular, medium, sized, arteries, heritable, thoracic, aortic, a11y, menu, multisystemic,


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vascern the european reference network on rare multisystemic vascular diseases vascern submit a case menu search a11y accessibility rare diseases working groups hereditary haemorrhagic telangiectasia working group hht wg heritable thoracic aortic diseases working group htad wg medium sized arteries working group msa wg neurovascular diseases working group neurovasc wg pediatric and primary lymphedema working group ppl wg vascular anomalies working group vasca wg follow us contact us contact vascern who we are about vascern european reference networks erns structure governance coordination project team european projects on rare diseases funding partnerships goals for the future network experts patient representation rare disease working groups transversal working groups network map clinical decision support tools clinical guidelines outcome measures do s and don ts expert consensus statements patient pathways pregnancy and family planning psychology and mental health research registries clinical trials observational studies research publications registry training and education e learning pills of knowledge webinars eu trainings vascern exchange program vascern summer school erasmus news events events news newsletter vascern resources in all eu languages all resources it tools ern collaborative platform ecp clinical patient management system cpms search type select a type working group pages resources news events date start facebook youtube linkedin apply to join vascern as an affiliated partner learn more connecting experts across europe learn more collaborative case discussions submit a case learning through exchange join the program clinical decision support tools access tools innovating through research read more osler weber rendu disease hht wg discover marfan loeys dietz syndr htad wg discover vascular ehlers danlos syndr msa wg discover cadasil moyamoya neurovasc wg discover paediatric primary lymphoedema ppl wg discover vascular anomalies vasca wg discover access our resources in your language we know that language barriers can make it difficult to find important information that s why we offer our resources in multiple languages each resource is carefully translated and validated by native speaking members of our network select your preferred language from the list see all resources čeština dansk deutsch eesti english español français hrvatski italiano latviešu lietuvių magyar maltese nederlands norwegian polski português română slovenčina slovenščina suomi svenska ελληνικά български more languages latest news discover more news vascern news 16 june 2026 inside the paediatric primary lymphoedema ppl working group spring meeting 2026 vascern news 16 june 2026 vascern s ppl chair receives royal dutch distinction order of orange nassau vascern news 15 june 2026 hereditary haemorrhagic telangiectasia hht working group spring meeting 2026 roundup vascern news 11 june 2026 vascern members at ecrd 2026 in prague vascern news 15 may 2026 marking eds awareness month 2026 a week in focus on vascular ehlers danlos syndrome vascern news 28 april 2026 vascern msa working group issues scientific statement on arbs in vascular ehlers danlos syndrome vascern news 21 april 2026 vascern at the xi esvm congress 2026 eu calls 15 april 2026 european commission opens 2026 call for ern affiliated partners vascern news 13 april 2026 first training placement of the vascern summer school alumni programme recent medical publications view research 24 erns united to help ukrainian people with rare diseases learn more subscribe to our newsletter for the latest updates from vascern by continuing you accept the privacy policy contact vascern authorship guidelines vascern terms of reference all rights reserved 2026 vascern disclaimer legal notice privacy policy site map facebook youtube linkedin skip to content open toolbar accessibility tools accessibility tools increase text increase text decrease text decrease text grayscale grayscale high contrast high contrast negative contrast negative contrast light background light background links underline links underline readable font readable font reset reset sitemap sitemap
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