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uke ucc hamburg research data management we re sorry but this website doesn t work properly without javascript enabled please enable it to continue a competence network of the uke hamburg directly to the uke homepage de homepage research research data management diese website verwendet das webanalyse tool matomo ohne cookie funktion eine widerspruchsmöglichkeit sowie weitere informationen zur verarbeitung personenbezogener daten finden sie im bereich datenschutz research data management the evaluation of population based and regional data on the incidence risk factors diagnosis and treatment of cancer is a central and patient oriented form of cancer research epidemiology and tumor documentation are central components of cancer research and involve the systematic collection and evaluation of cancer data tumor documentation as systematic research data management involves the collection of standardized patient data on diagnosis therapy and progression often in clinical cancer registries in order to evaluate the quality of treatment outcomes and processes health care research then uses this data to analyze the frequency distribution and causes of cancer in the population and to evaluate cancer screening program further information on research data management clinical cancer registry clinical and genetic cancer epidemiology ethical and medical law aspects of cancer treatment epidemiological projects national cohort nako the national cohort nako is a nationwide long term health study involving 200 000 adults if you are interested in participating in this health study or would like to find out more about nako in hamburg please visit the following link nako health study hamburg city health study hchs the hamburg city health study hchs is the largest single center long term medical study in the world this study was initiated by the university medical center hamburg eppendorf by hamburg residents for hamburg residents to contribute to the health of the city further information hamburg city health study research data management the mission of this ucc hamburg core facility headed by dr rer biol hum stefan bartels is to evaluate biomedical and health data using quantitative and computer assisted analyses we apply methods of biomedical informatics and biostatistics to integrate and analyze data from researchers at ucc hamburg core facility data science clinical communication platform the german consortium research platform german cancer aid translational cancer research center dktk is an association of partner sites in germany that are committed to translational cancer research the goals of the dktk include improving the diagnosis and treatment of cancer by promoting interdisciplinary research and close cooperation between research institutions clinics and industry the central element of this research network is the clinical communication platform ccp it this innovative technology was developed as part of the german consortium for translational cancer research dktk it provides a platform that specializes in enabling secure and efficient communication and collaboration between clinical partners and research institutions in cancer research the ccp it aims to optimize data exchange study management and the coordination of clinical trials in order to promote translational cancer research and improve the treatment of cancer patients the university cancer center hamburg ucc hamburg is also part of this important research network further information on the ccp explorer and registration options for scientists clinical communication platform ccp it observational health data science and informatics observational health data science and informatics ohdsi is an international collaboration dedicated to using observational data from health research to improve patient care and support evidence based decision making in healthcare ohdsi provides an open platform for researchers clinicians and data scientists to access standardized interoperable data sources and apply advanced analytical methods by developing and implementing common standards such as the observational medical outcomes partnership omop common data model cdm ohdsi enables large scale networked studies based on real patient information the aim is to gain insights into disease patterns treatment outcomes and the impact of interventions in order to have a lasting impact on healthcare systems worldwide contact if you have any questions about research data management please contact dr rer biol hum stefan bartels 49 0 40 7410 55930 st bartels uke de jasmin carus m sc 49 0 40 7410 54913 j carus uke de further information institute for medical biometry and epidemiology baiome the center for biomedical ai institute for applied medical informatics clinical cancer registry in addition to researching the incidence and risk factors for cancer the university cancer center hamburg ucc hamburg has also set itself the goal of ensuring the existing quality of oncological care an important tool for this is the ucc hamburg s clinical cancer registry which collects information on the quality of treatment and can be used to develop and review measures for quality improvement the clinical cancer registry is the central documentation center within the university medical center hamburg eppendorf uke for storing medical data on tumor patients who are treated in cooperating clinics at the uke through its documentation of the course of treatment the clinical cancer registry plays a key role in quality control and quality assurance in the field of oncology in addition data from the clinical cancer research registry a separate database for research purposes can be used for specific scientific questions and research projects the main objective of our clinical cancer registry is therefore the continuous improvement of the treatment of tumor diseases the gießen tumor documentation system gtds has been used for tumor documentation at the uke since 2010 approximately 3 000 new initial diagnoses are recorded each year to this end our employees review data from an average of 100 patients with a tumor diagnosis or suspected tumor diagnosis every day as part of the legal development of early cancer detection and quality assurance through clinical cancer registries early cancer detection and registry act april 9 2013 the data of all cancer patients is collected and sent to the respective state cancer registry in this case the hamburg cancer registry in compliance with data protection regulations the clinical cancer registry has been responsible for the entire uke for the statutory mandatory reports to the hamburg cancer registry since july 2014 in order to ensure the long term quality of tumor treatment numerous clinics and centers at the uke are audited by the independent institute onkozert on behalf of the german cancer society dkg as part of a certification system the clinical cancer registry supports the institutions in the certification process by among other things providing aggregated key figures on primary tumor cases therapies and progress the following organ cancer centers are currently supported by the clinical cancer registry oncology center sarcoma center head and neck tumor center colorectal cancer center pancreatic cancer center liver cancer center esophageal cancer center breast center gynecological cancer center skin tumor center bladder tumor center kidney tumor center center for personalized medicine oncology center for hematological neoplasms in addition the clinical cancer registry supports the uke clinics in answering internal quality questions within the framework of internal quality rounds and structured dialogues in its role as a research registry the clinical cancer registry provides pseudonymized data for specific scientific questions and oncological health care research projects based on sections 12 and 12a of the hamburg hospital act hmbkhg data is used for research purposes within a narrow scope after written consent has been obtained from patients services provided by the clinical cancer registry in light of changing requirements for the registration of tumor data the clinical cancer registry performs various tasks it currently sees itself in the following roles a registration registry a quality registry and a research registry if you have any questions or require further information please send us an email at krebsregister uke de clinical and genetic cancer epidemiology an important task of cancer epidemiology is to conduct research projects to identify risk factors for cancer with the aim of translating new findings into concepts for cancer prevention the university cancer center hamburg ucc hamburg is also conducting large scale epidemiological projects to investigate the influence of lifestyle factors and genetic factors on the risk of cancer and other chronic diseases clinical epidemiological studies investigate the influence of genetic and non genetic factors e g lifestyle factors on both cancer risk and prognosis after a cancer diagnosis in addition new epidemiological and molecular biological methods are being used to identify risk markers and prognostic factors for disease recurrence the studies are primarily conducted in national and international interdisciplinary collaborations in which clinicians and scientists from various fields of basic medical and biological sciences work together the results of the studies should help to identify high risk groups for targeted early detection programs and individually tailored therapies for cancer patients ethics and law the university cancer center hamburg ucc hamburg has a unique combination of scientists and experts who analyze the effects and framework conditions of modern cancer medicine from an ethical and medical legal perspective according to scientific criteria the development of cancer medicine is characterized by increasing complexity this goes hand in hand with the need to continually re examine ethical issues these can arise for example from different perspectives of patient groups on the benefits of cancer therapies or from the evaluation of conflicting decisions these considerations and innovative therapy concepts may also have implications for medical law that need to be analyzed various research projects on these topics are being carried out in close collaboration between physicians sociologists medical lawyers the clinical cancer research registry and the hamburg cancer registry hamburg cancer registry legal framework for tumor boards the use of tumor boards and interdisciplinary discussions of cancer patients has become standard medical practice this raises various medical law issues such as how to ensure proper implementation this includes aspects of data protection medical responsibility and liability these issues are currently being addressed on behalf of the germany wide ccc network of leading oncology centers under the leadership of the ucc hamburg and will be made available as recommendations for action for all tumor centers further information research programs cooperations news we are here for you contact appointment do you have any questions or would you like to make an appointment here you will find our contact details for ucc hamburg mehr stay up to date newsletter the ucc hamburg newsletter provides information about all of the network s events and the latest developments mehr every bit of support counts donation help us improve care for cancer patients whether as a one time donation standing order or even a bequest we appreciate every contribution mehr print recommend bookmark last update 04 12 2025 knowledge research healing through shared competence the uke sitemap data protection imprint universitätsklinikum hamburg eppendorf