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es and minds we can start building more accessible care centered communities now we can combat ableism now we can lay the groundwork for a world that works better for all of us care is not charity or kindness care is the deeply fraught complex abolitionist political work of protecting one another and the planet meeting everyone s needs in balance with the collective good and keeping our communities safe without the use of policing freedom requires care because freedom is not just a right it is also a responsibility freedom means getting to be our whole selves in community with other whole selves without any threat to or assault on our well being freedom means an experience of daily life in which each of us is fully seen and affirmed treated with unconditional dignity and care and embraced as an invaluable person of immeasurable worth freedom then sets an incredibly high standard for community life it requires that every member of the collective work toward the goals of protection safety and unconditional care for all people and for the natural world are we teaching care or control the activities that constitute care are crucial for human life we defined care in this way care is a species activity that includes everything that we do to maintain continue and repair our world so that we can live in it as well as possible that world includes our bodies our selves and our environment all of which we seek to interweave in a complex life sustaining web fisher and tronto 1990 p 40 several aspects of this definition of care are noteworthy first we describe care as a species activity a philosophical term we use because it suggests that how people care for one another is one of the features that make people human second we describe care as an action as a practice not as a set of principles or rules third our notion of care contains a standard but a flexible one we care so that we can live in the world as well as possible the understanding of what will be good care depends upon the way of life the set of values and conditions of the people engaged in the caring practice furthermore caring is a process that can occur in a variety of institutions and settings care is found in the household in services and goods sold in the market in the workings of bureaucratic organizations in contemporary life care is not restricted to the traditional realm of mother s work to welfare agencies or to hired domestic servants but is found in all of these realms indeed concerns about care permeate our daily lives the institutions in the modern marketplace the corridors of government because we tend to follow the traditional division of the world into public and private spheres and to think of caring as an aspect of private life care is usually associated with activities of the household as a result caring is greatly undervalued in our culture in the assumption that caring is somehow women s work in perceptions of caring occupations in the wages and salaries paid to workers engaged in provision of care in the assumption that care is menial one of the central tasks for people interested in care is to change the overall public value associated with care when our public values and priorities reflect the role that care actually plays in our lives our world will be organized quite differently an ethic of care on jstor let s organize our lives around love and care let s write each other letters and call it prayer let s congregate in the place that isn t anywhere at the temple of broken dreams bread and roses are what the humans involved in care the patient and the clinician want from healthcare over this summer both of us read rebecca solnit s latest book orwell s roses 1 which she was inspired to write when she discovered that george orwell had not only written the bleakest and most powerful portrayals of the totalitarian regimes of the twentieth century 2 but had also planted rose bushes costing him sixpence each from woolworths this apparent contradiction between the bleak worldview and the hopeful act of gardening reminded solnit of the political slogan bread and roses which seems to have emerged in the us around 1910 and was used by women campaigning for votes for women and for workers rights describing the power of the slogan solnit wrote bread fed the body roses fed something subtler not just hearts but imaginations psyches senses identities it was a pretty slogan but a fierce argument that more than survival and bodily well being were needed and were being demanded as a right it was equally an argument against the idea that everything that human beings need can be reduced to quantifiable tangible goods and conditions roses in these declarations stood for the way that human beings are complex desires are irreducible that what sustains us is often subtle and elusive bread and roses are what the humans involved in care the patient and the clinician want from healthcare bread is sustenance and therefore life roses are courage and hope curiosity and joy and all that makes a life worth living bread is biology roses are biography bread is transactional and technocratic roses are relational bread is science roses are care kindness and love bread and roses can also describe how healthcare can support care with apologies to those who bake their own loaves the parallel here is with the industrial production of bread so that bread represents the bureaucratic processes that make healthcare efficient and safe preventing waste and error through standardisation regulation and training baking bread is like the technologies and innovations that make unhurried conversations and continuity of care possible and feasible that reduce diagnostic errors and detect and correct harms early and reliably attending to the bread makes sure healthcare retains the potential to attend to the object of care to the bodies and minds the fears and feelings of individual patients and to create the conditions for careful and kind care to emerge roses represent what makes life worth living all that is good in human relationships and the stories we use to make sense of our desperate situations and of what is possible with treatment roses are what gives us comfort in the face of failure pain decay and death that is in the face of living attending to roses brings the subject of care into sharp relief so that the scars of injustice racism inequity and violence can be made visible alongside the scars of disease roses like careful and kind care 3 speak of hope our work of planting and creating conditions of light soil and water makes it possible that a flower will appear in the future just like roses care cannot be summoned or coaxed but must emerge from the right conditions responding to the crisis of care the bmj how to respond to this crisis of care here orwell himself holds the clue the discovery that orwell had planted those roses led solnit to reassess his novel 1984 within all the greyness and cruelty and oppression there is this great truth what mattered were individual relationships and that a completely helpless gesture an embrace a tear a word spoken to a dying man could have value in itself 2 all the joy all the roses of health even in these dire times exist within relationships between patients and professionals and between healthcare colleagues and in the sure knowledge that all these helpless gestures have value in themselves it turns out that the subversive almost revolutionary thing to do within contemporary healthcare is to build quietly and unobtrusively these crucial relationships we now know that continuity of care within a unique dyad of patient and doctor delays disease and prolongs lives5 and thereby supplies bread but it does so by simultaneously giving us the roses of joy trust curiosity care kindness and solidarity a life worth living tends to last longer in fact care like love is abundant and self sustaining a potential of everyone trained and celebrated caring is a demanding human capability that swells with the satisfaction of having opted to run towards the pain that replenishes with the smile and the gratitude with which we evaluate our effectiveness that regenerates when the care and love returns to care givers when they invariably must become care receivers care like roses gives meaning to living we must cultivate care in fighting our way out of this healthcare crisis in working for careful and kind care for all we must follow the suffragettes and demand bread and roses responding to the crisis of care the bmj stimpunks exists because our systems effectively don t let s organize our lives around love and care mission we exist for the direct support and mutual aid of neurodivergent and disabled people we serve our loved people so we can keep on living through the onslaught creed i center the marginalized and the different i center edge cases because edge cases are stress cases and design is tested at the edges i center neurodivergent and disabled experience in service to all bodyminds covenant we pledge to act and interact in ways that contribute to an open welcoming diverse inclusive and healthy community philosophy we steer by these acquired phrases they are compasses and stars that align us on our mission interdependence it is time to celebrate our interdependence interdependence acknowledges that our survival is bound up together that we are interconnected and what you do impacts others interdependence is the only way out of most of the most pressing issues we face today edges our designs our societies and the boundaries of our compassion are tested at the edges where the truths told are of bias inequality injustice and thoughtlessness manifesto this is a manifesto that begins but will never end this is a translation of my world into yours this is a protest of the notion that there is any correct way to live we reject neuronormativity and demand the right to learn and live differently ezra furman temple of broken dreams love and care let s organize our lives around love and care let s write each other letters and call it prayer let s congregate in the place that isn t anywhere at the temple of broken dreams ezra furman temple of broken dreams lyrics imagine a world of love and care a world of love and care youtube do you ever imagine a world of love and care do you ever imagine a world of love and care what would you be doing right now if you lived there human dignity was supposed to be a guarantee for all for all who gets left out of your dream of a good society who gets left out of your dream of a good society who got left out in your dream of a good society dream better dream bigger with me do you remember a time when you needed love and care do you remember a time when you needed love and care you called out for help and no one was there love and dignity were supposed to be the priority for us for us but you got caught in a bad dream where strength is cruelty you got caught in a bad dream where strength is cruelty you got caught in a bad dream of a fucked up way to be dream better dream bigger dream better dream bigger with me do you ever imagine a world of love and care do you ever imagine a world of love and care what would you be doing right now if you lived there ezra furman a world of love and care lyrics dream better dream bigger with me this is what it s actually like music helps us say it keep on livin necroneuropunk by betsy selvam is licensed under cc by nc 4 0 our mission and our pillars are how we serve our loved people so we can keep on living through the onslaught we provide real help against the onslaught i would like to honour all the autistic people who survive the care system somehow all those who survive extreme therapy all those who are brought to their knees reading hellish descriptions of their loved people and all who did not survive this onslaught ann memmott we serve our loved people so we can keep on living through the onslaught look up to the sky sky sky take back your own tonight you ll find more than you see it s time now now get ready this is your time this is your life and this is your time this is your life and this is your time this is your life and this is your time this is your life and you gotta keep on keep on livin gotta keep on keep on livin you gotta keep on keep on livin gotta keep on keep on livin you gotta keep on keep on livin gotta keep on keep on livin you gotta keep on keep on livin gotta keep on keep on livin keep on livin by le tigre we use music all over our website to help us tell our stories keep on livin is a song by and for trauma survivors it s the theme song for our mission activists in the early campaign for aids awareness created a powerful slogan silence death silence about trauma also leads to death the death of the soul van der kolk bessel the body keeps the score brain mind and body in the healing of trauma p 234 penguin publishing group stimpunks rejects the good cripple mythos we re here for the bitter cripple the uninspirational cripple the smoking cripple the drinking cripple the addict cripple the cripple who hasn t tried everything some people with disabilities call themselves crips crip used to be a mean word for disabled it is short for cripple but some disabled people call themselves crips on purpose the word crip belongs to disabled people now disability visibility anthology plain language summary disability visibility project resilience as long as we re getting killed for our differences we have to keep living keep living through it and how many strangers will i upset today with my existence skip through it i guess keep resisting kae tempest i stand on the line lyrics i stand on the line ivorsacademy youtube support our mission stimpunks exists so we can survive i could not live in any of the worlds offered to me the world of my parents the world of war the world of politics i had to create a world of my own like a climate a country an atmosphere in which could breathe reign and recreate myself when destroyed by living anais nin the diary of anais nin vol 5 1947 1955 read our impact report read our testimonials keep on livin surviving is the floor authenticity is what we re building toward authenticity is our purest freedom the freedom to be fully seen and heard in all my glory is my heart s deepest request this is a prayer self love letter a final notice to my inner critic one more voice in the echo thank you for witnessing my purest form the journey of undoing an open letter to who needs it siti girl miami at stimpunks foundation the declaration authenticity is our purest freedom serves as a guiding principle that underscores our commitment to empowering neurodivergent and disabled individuals this ethos champions the right to self expression and the dismantling of societal norms that often marginalize those who diverge from conventional standards embracing authenticity through the stimpunk ethos the term stimpunk itself is a fusion of stimming and punk symbolizing a proud e...
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