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Text of the page (random words):
the same time it feels like so much has been achieved by our little man wysdom arrived in a flurry after a planned induction turned into an emergency c section below is a wysdom is pictured below a only a few minutes after birth wearing a hand knitted cap made by his great grandmother wysdom arrives so much has happened in the last four years that it is hard to describe here is the story of wysdom s birth wysdom and nana a few days after his birth there have been so many things that i could share so much has happened in the past for years having open heart surgery at 6 months blenderized diets getting his g tube put in removing his g tube endless laughter learning to talk and dance going to school on a bus all by himself you bet baby there have been lots of challenges along the way but they have been totally outmatched by the endless joy and love that wysdom has shared with so many wysdom loves to dance and sing hip hop and reggae are his favourites he love his sister blyss water reading books and school wysdom at the 2012 buddy walk wishing you many more birthdays wysdom thank you to all that have been a part of wysdom s journey for the last 4 years posted by sasha blyssfulhealth at 1 16 am no comments wednesday january 18 2012 great news wysdom is g tube free i can t barely believe it wysdom is now g tube free yeah wysdom got his g tube when he was almost 1 year old actually just a month before his 1st birthday we were told that he would likely have it for life however with much determination and patience we have worked hard to get it out wysdom has not used his g tube for almost a year so this week we went for a consultation to see if we could get it taken out yes it did serve us well however for those of you that know our story well also know that it caused us a lot of problems as well i think we might have broken the worlds record for g tube problems and infections one each month almost for the first year so when we got the hospital on monday they decided it was time to take it out and suggested that we do it right on the spot to be honest i was a little nervous and really not prepared usually everything is a bit of a fight so when they were ready to take it out i couldn t believe it our options were to take it out right away plan for sedation or to have him pass is through his bowels well a big red flag comes up when you mention passing it though the bowels so that was a huge no the next option was to sedate him in a lab and then take it out well we all know for wysdom sedation proves to be difficult we have been turned away from sedations and omitted to the o r or another hospital because he is such a high risk so this was not on the top of our list especially since they would end up putting a tube down his throat so the last option was to do it in the office they say that is supposed to feel like a punch in the stomach that it hurts but is quick after asking our trusted nurse who we always see what she thought we went for this route i volunteered julian to stay in the room with him as i felt so nervous and a not as strong as i could have they told me to walk down to the elevators and back on my way back the nurse was already out telling me that it was done and that i walked to slow yeah when i went in wysdom gave me a little cry and then a big smile he has been nothing but smiles since i am sure he feels better he is climbing on all of our furniture and i even saw him standing with no hands yes he is looking for it but i keep telling him it is gone and out so blessed that he is eating and drinking on his own so thankful for such a positive outcome so all of you trying to get rid or your child s g tube or ng keep faith that it can happen even though they don t tell you that beach here we come that is the first thing my sister said since we always had some much problems with the tube we have really restricted wysdom s exposure to things that would irritate the g tube like sands so it looks like we can be free to go to the beach and in the water without having to worry posted by sasha blyssfulhealth at 1 00 am 5 comments labels g tube removal monday november 28 2011 happy 3rd birthday wysdom i can hardly believe that wysdom is 3 i am so excited for this big milestone three years ago i gave birth to a very small 4 pound baby who had a prenatal diagnosis of down syndrome my labour was an eventful one it actually ended up being an emergency c section wysdom s heart could not take the stress of the contractions and after about 12 hours with lots of poking a c section was scheduled you can read the whole story here wysdom was born with a feisty cry he was beautiful and that was all i saw pure beauty i got to hold him before they whisked him away to monitor his heart because he was born with a avsd heart defect although the road has not always been easy especially dealing with open heart surgery an ng tube and g tube having wysdom has been one of the most rewarding things in my life wysdom has blessed our lives with love laughter and such spirit that i can barely describe it never have i regretted having him and if there is one thing that i could tell other mom s with a prenatal diagnosis is that your child is beautiful we could not imagine our lives without wysdom blyss loves her brother so much that she has made her own chocolate cake with decorations bought a present and filled a surprise box full of balloons for her brother if i was asked to share one thing about our lives i would say when you get that prenatal diagnosis of having a child with ds the gloomy delivery of the information they give you and the sad faces are just not accurate very few tell you how your life will be enriched and full of love that you will love your child unconditionally and that you will learn so many new things about yourself happy birthday my big boy we love you more than words can say posted by sasha blyssfulhealth at 2 49 am 4 comments thursday november 10 2011 preschool buddy walk and more well it has been busy i can t believe that i have not posted on here for so long even though it has been extremely busy things are also very good wysdom although he happens to be sick this week with a cold and infection he is doing good wysdom started going to preschool 2 days a week at our local centre he seems to be adjusting really well we stay there with him and can watch him via an observation room he is making lots of progress staying in the room by himself and finally getting him to sit at the snack table right now we have not used the g tube for months and months so we have been seen by our pedi and now going back to the specialist who put it in and setting a plan in place for getting it out wysdom is still eating a pureed blend of food however we have made huge progress with his food we recently had our local buddy walk and the children loved it wysdom was a hoot he held his little sign and waved it at the cars and people this is so funny and really amused us because he never really holds onto anything for that long so it was cute to see him do that i will try to post some new pics and video s soon just wanted to let you know that we are still here and okay posted by sasha blyssfulhealth at 1 44 am 1 comment thursday june 23 2011 i love this kid updates as everyday goes by i find something new and exciting about wysdom he is always amazing us with his great personality eagerness and just pure love of life i can t describe how much joy he brings to everyones life i am so happy he is a part of our life for those that are new to this blog you can read about our journey here i know i haven t been posting as much as i used to i am going to try to keep up the posting a little bit more truth be told both my hubby and i are working on some projects right now that are keeping us very busy oh course wysdom is also keeping busy and so is blyss ha 2 children under 5 is keeping me on my toes some updates standing stander today we got a new stander for wysdom this is his third we really we have had one stander and a pony walker before now we are onto our 2nd stander which i think will be great it takes up a lot of space but we are so happy to have it today when it got set up wysdom went in it like a champ he now has his orthotics and we are really trying to work on his standing and building up his muscles he is eager to stand on some days and other s he is not so keen when he was put in today he was so happy to be standing up to keep him entertained we had blyss put on the let s dance on so while she danced wysdom started to dance can you believe that he has a lot of the dance moves memorized blyss is an avid dancer and she loves music so this is a part of our house so wysdom really picks up on this however i didn t realize how much he can shake and puts his hands up above his head and follows the directions i so have to get this on camera the next time that he does this the funniest thing is that i have learned that he has some strong music preferences he definitely is more of the hip pop reggae loving boy he seems to really enjoy this rhythm eyes we are that we are still patching his left eye he still loves to use just his right eye however we are trying to get him to balance using both eyes it is a bit tricky to do patching since he can take off the eye patch so we have to sit with him and literally hold his hands yup he can take the patch off we have tried sticky patches cloth patches hockey equipment on his arms to prevent him from bending and taking it off suggestion from clinic nothing else works right now so if you have any ideas please let us know g tube feeding is going well we now don t use the tube for any feeds yeah he still has the g tube and we just flush it with water so we are really happy about his progress he is still getting a blended feed that we make up in the vitamix our goal is to get the tube out talking sign language wysdom is doing really well in communicating with us he used a lot of sign language and also says a good handful of words he is so into imitating what we do if we sneeze so does he if we laugh so does he if we dance so does he he so loves his sister and she loves him so much so they are having a lot of fun together as long as he doesn t beat her up oxygen test we have had a repeat pulse ox test and that didn t go that well i am not sure about the results yet but he would not keep it on for the 4 hours needed i seriously got 1 and yes i repeat 1 solid hour done the rest was hit and miss the first one didn t have enough time of storing his stats this attempt we had less ugh otherwise all is good we are really busy however that has been the norm for us for the last couple of years hope to take a video soon and let you see my cutie pie posted by sasha blyssfulhealth at 12 23 am 8 comments labels dancing g tube healthy eating pulse ox stander tuesday may 3 2011 oxygen monitor not fun well to all of you who have your child where an oxygen monitor at night i don t know how you do it we had to have wysdom wear one last night and that was an ordeal to say the least for the first two hours it was okay the monitor did not make any noise and just lit up since we were just doing this for a test night i didn t want to touch and change anything however then wysdom started to get fussy and kind of wake up once he saw and felt that on his finger he threw if off pulled it off shook it off you name it we were only trying to get 4 hours for the study but that was pretty difficult to do i could not image having to do this every night unless there is some other type of device we handed the box in today and are just waiting for the results i think that we will have a sleep study in the future i am actually thinking that his issue might be some sleep apnea and reflux what are your nights like do you experience trouble with the nights how does it effect your schedule posted by sasha blyssfulhealth at 10 06 pm 8 comments labels oxygen monitor thursday april 28 2011 foodmatters dvd giveaway enter today if you are interested in food and your health then this is a documentary that you will want to see foodmatters breaks down what is happening in our society today with our food and illness and how they are connected every wonder if what you are eating or feeding your family is safe foodmatters takes a look at all of these questions top health experts in their field talk on camera about these key issues for your chance to win a free copy of this groundbreaking dvd stop by blyssful health my other blog and enter your name posted by sasha blyssfulhealth at 12 08 pm 1 comment labels foodmatters giveaway older posts home subscribe to posts atom come visit my new food blog recipes product reviews and giveaways http www blyssfulhealth com welcome this site follows our family as we embark on a new journey we have 2 adorable children our son was born with down syndrome and is therefore blessed with with an extra chromosome and we love it this site will share our story of wysdom s highlighting his triumphs cries laughter and general daily fun oh yes and it will also include his big sister blyss fyi this site doesn t promise to have perfect spelling or grammar but it does promise to be an honest and real account of our lives hope you enjoy it and visit often words of wysdom don t miss out on a blessing because it isn t packaged the way you expect author unkown let s connect big sister subscribe to posts atom posts all comments atom all comments grab this visit tube fed kids deserve to eat blog archive 2012 2 november 1 happy 4th birthday wysdom january 1 2011 24 november 2 june 1 may 1 april 4 march 6 february 6 january 4 2010 39 december 3 november 1 september 1 july 4 june 5 may 7 april 4 march 3 february 3 january 8 2009 78 december 10 november 11 october 31 september 6 august 9 july 11 my blog list a walk in lily s garden bridget s light four days with dylan cassidy down syndrome new mama what a new mom needs down with oz 79 retard is hate speech genetically enhanced more alike or just different life as we know it down syndrome and the people who already know life with azaria anya oh how they have grown lila s miracle life soaking it up living learning starting point our unexpected journey glasses for b the unknown contributor i ve moved three s a charm new blog labels g tube eyes ohs down syndrome hospital birthday pics one year old complications constipation eye clinic feeding gas hearing test ng plastic surgeon prenatal diagnosis surgery 21 things we love advocate audiologist birthday poem ct scan dcg down syndrome awareness month first time sitting happy birthday happy first birthday reece s rainbow waving avsd babbling birth conductive hearing loss cpap cvs delivery down syndrome creed eye patches family feeding oral skills fluid in ears g tube surgery heart surgery mom mom g tube mommyhood names ng tube physical therapy poems post op pre op reflux scar sitting skills speech therapy tips therapy things we love tummy time venting vep lemo...