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Text of the page (random words):
t it s okay to feed your children in different ways i have learned how to operate a feeding tube and pump how to change out an extender i have learned which type of extender i love which pump i love i have learned how to not freak out when a feeding tube pops out of the belly i have learned how you have to be careful because there s now a hole opening up to the stomach i have learned how to replace it with a new one you need patience bravery and lube i have learned how to creep in at night and set up a nighttime feed i have learned that medication is pretty darn easy to give by tube feedings i have learned which syringes i love to use i have learned what flush means i have learned how to measure in ccs i have learned how many ccs flush down meds i have learned how to change a diaper when you can t bend the legs up anymore i have learned which diaper covers fit a 3 year old for modesty and to look like the other girls i have learned which shoes can fit a 3 year old with feet that no longer work in regular shoes i have learned which outfits i need to let go of for her like rompers or anything tight or hard to put on i have learned how she needs to sleep at an incline aspiration risk i have learned how weighted stuffed animals are heaven sent i have learned how to connect and read a pulse oximeter i have learned what do to when it alarms loudly at night i have learned how to get by on little or interrupted sleep i have learned that my sleep is underrated i have learned that two cups of coffee is really my max i have learned that two glasses of wine is really my max i have learned what a pulmonologist neurologist gastroenterologist can do for her i have learned the difference between physical therapy and occupational therapy i have learned how to help her ride as comfortable as possible in a carseat i have learned the blessing of a family beach trip i have learned that some things i used to complain about are actual blessings i have learned what continuous oxygen means i have learned what skin breakdown signs are i have learned how to sleep while someone walks around your house i have learned how to schedule in advance when a nurse is relying upon you to do so i have learned how to schedule impromptu calendar changes and ask for forgiveness i have learned how to read minds i have learned how to read a pulse ox to see if my daughter is happy i have learned how to read a pulse ox to see if my daughter is scared i have learned how to teach a long deliberate blink for yes i have learned how to operate a suction machine i have learned how to operate a cpt shaky vest i have learned how to operate a cough assist machine i have learned how to operate a nebulizer i have learned how to operate a stethoscope i have learned her target heart rate and relaxed heart rate i have learned her seizure protocol i have learned what hospice does i have learned what therapists can help with i have learned when to rely on family girlfriends and when to rely on therapists i have learned the beauty in connecting with other mld moms i have learned the sadness in connecting with other mld moms i have learned how sweet the words mama sound i have learned how to etch that sound into my memory i have learned to record everything on my busting at the seams phone i have learned not to take a moment for granted i have learned not to expect anything i have learned to look for hidden blessings i have learned to look for godwinks i have learned to listen more than i talk i have learned that childhood is fleeting it really is i have learned that family is everything i have learned that stuff is just stuff i have learned that a year can make the difference of a lifetime thank you for allowing me to vent some stream of consciousness emotions this evening a very important evening in our family and for multiple reasons lochlan nearly 14 months started really really walking tonight thank you lock for choosing such a special date that we will always remember buddy thank you all for listening reading and caring xoxoxo at wednesday july 31 2019 140 comments email this blogthis share to x share to facebook share to pinterest tuesday charrie s birthday i can t believe charlotte is three on one hand she still feels just so much like my little baby on the other hand i feel like we have experienced so much life with her that it s hard to think that she s only three if you ve read here for a while you know that we didn t know whether she was going to be a boy or a girl we decided to keep it a surprise my one request was that ian would be the one to tell me the moment she was born if it was a girl or boy i will never forget his words it s another girl i loved that choice of words because it immediately linked the two girls together in my mind i pictured them dressing alike playing dolls sharing a bedroom which they did even if just for a couple of months the bond between camille and charrie is definitely strong and you can tell that char just thinks big sis hung the moon for char s birthday party we wanted a beautiful little celebration with some of our closest friends and neighbors i didn t want it to be overwhelming for her and i also didn t want us to lose sight of what we really needed to focus on our birthday girl you know how it can be when you have these mega parties you re so busy entertaining and running around that you miss out on some of the sweetest most special moments one of the local nonprofits that has been so good to us the sandbox is the force behind all of the party logistics the founder mara worked with her team so make this as smooth and easy for us as anyone could ever hope for i was out of town leading up to char s birthday so they took the reigns and made everything come together ordered the cake i just texted them some inspiration photos brought over trays of chick fil a nuggets and drinks ordered the flowers i just told them what flowers reminded me the most of char picked up the cookies generously donated by sugary smiles provided us with a photographer i mean the list just truly goes on and on having the party in our backyard allowed us all to enjoy the outdoors and the kids could play on the swingset swing in the hammock and enjoy the big tree swing this one because i always get questions about it it really was the perfect day just filled with love and can we even discuss that cake i mean exquisite just sweet and lovely like char there was strawberry filling on the inside charrie girl you are three you give the most magical smiles and you have always been the best little girl we all love you so very much char here s to many more birthdays at tuesday may 21 2019 65 comments email this blogthis share to x share to facebook share to pinterest friday five on friday it s time for another edition of five on friday o n e valentine s day is on the books we had a really nice one camille had preschool in the morning later in the afternoon we had our special visit from the valentines man who rings the doorbell and runs away so fast before you can even see him sadly i happened to be running a diaper to the trashcan when he rang the doorbell so the kiddos had to wait for me to come back in thru the garage before we went to the front door whew he left chocolates camille s favorite dinner is breakfast so she got scrambled eggs heart shaped pancakes with heart shaped strawberries lochlan had a deconstructed version of the same t w o i m trying something new and adding in some collagen to my daily regime i add a packet into my coffee in the morning you can t taste a difference at all i ve been so curious to give it a shot after seeing some of my favorite bloggers using it daily here it is on amazon t h r e e sometimes you just need a little panera in your life to make it a little easier this is the mediterranean veggie sandwich which i just love but i subbed out the greens for arugula and got it on foccacia instead of the tomato bread this is going to sound so specific but they changed the tomato bread they were using and i m just not a fan of the new one f o u r yes this is a thing there is a podcast done by ron burgundy i ll give it a solid b definitely worth a listen when you are up for a little laugh f i v e cheers to a great weekend we don t have much on the books today but i am going to attempt library storytime if i think i can make it in time those librarians they don t play two minutes late and they look at you like you ve lost your mind doors locked and no storytime entry that s okay i love them anyway and love that they encourage me to try to be on time that s it for today hope you have a lovely weekend at friday february 15 2019 46 comments email this blogthis share to x share to facebook share to pinterest five on friday feb eighth it s time for another edition of five on friday and i do hope you ll join along o n e the weather has been fahhh bulous this week and we enjoyed some screened porch time charlotte s new wheelchair is so supportive for her and makes it easy to have her all over the house with us thank goodness for this i call it her kate spade chair check out the black and white polka dot design so chic t w o you may have seen this on my instastories the other night walmart grocery pick up for the win grab some frozen breaded shrimp and a bottle of their boom boom shrimp sauce and you ve got a copycat bang bang shrimp appetizer for all of you who love this infamous bonefish grill dish it s easy to whip up it s friday night now and ian and i just polished off a little bowl of this and super inexpensive if you want a code for 10 off your first walmart grocery order message me on insta t h r e e sisters connecting thursday night good times f o u r my friend caroline has the best recipe for brussels sprouts and the key truly is in that last splishy splash of white balsamic vinegar it takes your dish from roasted brussels sprouts to holy moly salt and vinegar potato chips brussels sprouts in an instant don t be afraid to be heavy handed with that white balsamic vinegar and parm cheese makes allllll the difference f i v e posts this week are charlotte heavy and i know you re not hating it i m not either the truth is that it has been a really sad week for me a week of feeling really depressed i ve met with my therapist i ve explored grief groups and i ve connected with girlfriends locally who are the real boots on the ground types of people i m doing okay now sometimes i just slow down enough to let life hit me and actually let the feelings seep through the hard exterior that happened this week i m okay now and i don t need anything just wanted to be transparent about what s happening that s it for today hope you have a lovely weekend at friday february 08 2019 30 comments email this blogthis share to x share to facebook share to pinterest thursday lochlan is eight months lock dock eight months you are a joy a ray of sunshine you re exactly what we needed a dose of happy you are 20 pounds a big boy everyone loves exclaiming over how big you are you re taking four 8 ounce bottles a day 7 30 11 30 3 30 6 30 and when that last sip is gone and you suck down a puff of air you cry like you ve been stung by a bee you simply do not like it when you finish your milk we had you on donated breastmilk through november and then moved to formula before our disney trip this was the first time i ve ever given a child formula and man oh man is it expensive ha but you made the switch beautifully and i think it s pretty obvious that you haven t missed a meal speaking of meals you like purees okay but you love soft table food you ve eaten a lot of real food including eggs and peanut butter you just want to be a big boy sleeping is great for the most part you re sleeping 7 7 7 30 without needing me in the night awesome awesome child you are in size 3 diapers and size 4 at night you re still in a merlin s magic sleepsuit but i think you re ready to transition to a sleepsack for clothing you re in size 12 month clothing mainly you still love a good ol swing nap but i m trying to be better about encouraging your naps to take place in a crib naps are around 10am and 2pm you re rolling from your back to your tummy and have given us words like mama and dada but they re not consistent yesterday you waved for the first time i love my days with your sweet face and you bring so many smiles to everyone in our family at thursday february 07 2019 160 comments email this blogthis share to x share to facebook share to pinterest tuesday italian wedding soup italian wedding soup aaahhhh this is a recipe my family has been making for years the first time my mom made it for us she printed off the recipe from prodigy anyone anyone and we all fell in love that was 1996 i was fourteen years old i made this for dinner for us last night and it was phenomenal easy to put together and just like a warm bowl of cozy i served it with finger salads which is another recipe i swiped from my mom who found it on pinterest recipe here i didn t change a thing to the homemade vinaigrette but i did add bacon so now let s get back to the soup i t a l i a n w e d d i n g s o u p 1 quart chicken broth 2 5 cups water 3 4 cup acini di pepe pasta amazon 1 teaspoon fresh parsley i subbed for dried 1 2 carrots sliced thin 1 4 1 2 lb spinach washed julienned i put in part of a packet of frozen spinach frozen meatballs of choice i used 20 meatballs 1 egg 1tsp water bring first six soup ingredients to a boil drop frozen meatballs right into soup beat 1 egg and 1 tsp water in a small bowl and stir boiling soup as you slowly drop in the egg stirring constantly cover and turn off heat let sit for 2 minutes serve with grated parmesan or romano cheese oh and enjoy with wine for more of my recipes click here at tuesday january 29 2019 72 comments email this blogthis share to x share to facebook share to pinterest labels recipes older posts home about me april of smidge of this pleased to meet you join me as i diary my adventures crafting cooking jewelry making shopping traveling and spending time with much loved people that make me very very happy view my complete profile search the blog popular posts fresh apple cake charrie s birthday workin on my fitness five on friday the first year blog archive 2019 8 july 1 the first year may 1 february 3 january 3 2018 75 november 1 july 8 june 7 may 11 april 9 march 14 february 14 january 11 2017 196 december 12 november 14 october 13 september 13 august 11 july 17 june 20 may 19 april 17 march 19 february 19 january 22 2016 248 december 24 november 22 october 24 september 13 august 21 july 20 june 22 may 18 april 16 march 24 february 23 january 21 2015 258 december 21 november 22 october 24 september 20 august 22 july 25 june 23 may 20 april 21 march 22 february 21 january 17 2014 224 december 21 november 20 october 23 september 15 august 16 july 19 june 16 may 11 april 23 march 20 february 18 january 22 2013 265 december 19 november 20 october 22 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