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Text of the page (random words):
se because we were too sick to stand my poor little 5 year old cole learned much too early what its like to grab food or meds for mommy or a bowl in case i need to throw up he also learned that he can t wrestle too much with daddy anymore so they would just read or color instead i am so proud of my little boy what would we have done without him during this troubled time when regan lost his job we decided that enough is enough and moved back to utah to be closer to family for help we are living in regan s sister s basement in saratoga springs and we are both seeing a homeopathic doctor in hopes of getting rid of the toxins that all of the antibiotics left behind not too mention all of the worms and spirochetes left in my system so far the treatment is kicking our butts but we re just glad that we found someone that knows something about lyme in utah plus having family to help means everything to us i am so grateful for each and every one of them anyway i am a tutu making machine so please take a look at my website www coocoofortutus com i have listed many pics with prices i accept cash or check via mail and you can get ahold of me by emailing me or calling me coocoofortutus gmail com 860 299 5133 you may also find me on facebook ashley radebaugh whimpey and chat with me there to discuss your order these tutus make great christmas presents thanks for supporting my treatment costs and for your friendship and love hope you have a merry christmas here s a little taste come visit my site www coocoofortutus com spread the word posted by ashley whimpey the one with the fairy dust at 12 25 pm 1 comment sunday february 20 2011 30 reasons why having lyme disease automatically makes you a badass pardon my french but there really is no better word for badass for my fight with lyme disease the other day i read a blog that was truly hilarious a fellow lymie wrote a blog entitled 25 reasons why being a lyme patient may automatically make you a badass i have stolen some of her ideas and decided i should make my own list please take the time to read her list as well at www infectiousoptimism blogspot com this lymie spoke of how strange our lives are and i think most people with lyme s disease would agree we take 6 hour jaunts to the doctor and return to a messy house full of medications and medical bills our fridges and cupboards are stocked full of gluten free products and probiotics the only time we actually leave the house is to see a doctor because the cold outside can literally make us cry from pain we take one or two naps a day and spend some good time looking up our health conditions on google so that we can try to make sense of the life we have been given but the best part of all of this is that it has become normal for us our lives may seem so strange or even tragic to an outsider looking in but to us it s just life and sometimes i think to myself my life is weird to quote this lymie she said at this point i could have had a pity party instead though i smiled i thought about how cool some of my experiences have been despite how weird they truly are and how proud i ve been of myself for making it through some of the outlandish yet astonishingly horrific things that have happened to me and to my body i decided that this all doesn t make me weird i think it makes me a badass so here is ashley s list of why i am also a badass this is a list not meant to make anyone feel sorry for me but to join in the laughter that is my life hope you enjoy 30 reasons why having lyme s disease automatically makes you a badass 1 you take 34 pills a day and can swallow 6 8 at a time 2 you watch grey s anatomy and you know the names of many of the oral and i v medications they give to their patients including correct dosage side effects and reasons for needing that med because you ve had to take most of them 3 you collapse or faint at least 5 times a day and laugh when you hit the ground rather than panic 4 your family calls you for advice on medical conditions and medications as if you were a pharmacist or doctor and you usually have an answer for them 5 you used to rock climb and backpack to be hardcore now your new everests are passing kidney stones shopping for groceries or doing laundry 6 you have 4 or more debilitating migraines a week 7 before the tick bite you couldn t spend enough time outdoors sleeping on a dirt floor on a mountain was better than a bed now you are terrified to even sit on the grass in your front yard or allow your child to play outside 8 you move your husband and child to the other side of the u s to get proper treatment without any family nearby to help through the rough patches 9 it takes the phlebotomists at least 7 pricks to draw blood because all of your veins have been used so much they have collapsed or dried up 10 you drive on the wrong side of the road because you can t remember which side is the right side of the road this almost results in a head on collision going 45 mph with your 4 yr old son in the car and yes my husband took my keys away 11 you have a nickname for the come and go sharp as hell pain in your abdomen kobs kidney ovary bowel stone because each time you go to the e r it is one of those 3 issues 12 before the tick you were healthy and did not believe in medication after the tick bite you have been diagnosed with lyme s disease ehrlichiosis fibromyalgia chronic fatigue syndrome hypothyroidism bipolar depression anxiety post traumatic stress disorder endometriosis mono brucellosis a hiatal hernia gall stones kidney stones anemia distended colon candida 12 lesions in brain insomnia and migraines 13 within the last 3 years you ve had your appendix gall bladder and tonsils taken out because the doctors just didn t know what else to do oh and the day after your tonsils are taken out you catch pneumonia and end up in the icu for a week 14 you are like bella swan only rather than attracting hot vampires and werewolves you attract infectious diseases 15 you have 21 doctors saved in your cell phone 16 you ve been inches from death too many times and your husband knows how to keep you alive better than the medical staff at the hospital 17 you ve seen over 50 doctors in the past 10 years and all but 6 convinced you that you were not sick and that you were creating it in your mind this eventually makes you crazy and you check yourself into the psych ward 18 while driving you can t remember where you are or how to get home and sometimes even how to drive 19 you have to check a calendar to remember when in the world was the last time you took a shower and usually it s been a week or two 20 once in a while you have a dream that you are not sick and you wake up with tears in your eyes 21 you ve gone a whole month without going number 2 22 you ve had to say hi my name is ashley whimpey and i have chronic lyme s disease to a small crowd of people in a circle 23 most girls don t leave the house without making sure their lip gloss is safely tucked in their purse in your purse you have emergency medications in case of severe pain nausea or an anxiety attack in most cases you will need to take all three 24 you ve had numerous iv bags full of something that an average person would never consider injecting into their veins nor will they ever have to 25 you ve had a fever of 101 degrees for about 10 years 26 every day you have to make the choice of whether to be weak and faint from not eating and drinking or in major intestinal pain from eating and drinking 27 when you fill out a symptom survey at the doctor s office you begrudgingly check off 47 of the 60 symptoms listed if you were being completely honest with yourself you d probably check off 52 28 you ve had injections thicker than toothpaste shot into your neck back hips and bum and you didn t even cry or receive a lollypop 29 you voluntarily take oral and iv antibiotics that you know will make you feel like crap and want to die so that one day you can be the wife and mother you have always wanted to be 30 you ve been sick every day of your life for more than 10 years and still manage to be optimistic enough and brave enough to wake up every morning and do it all again i had so much fun writing this list whenever you think your life is weird or that it is eating you up just remember you are hardcore please everyone not just lymies write your own list i d love to read them all posted by ashley whimpey the one with the fairy dust at 8 06 pm 10 comments labels badass lyme sunday october 17 2010 who needs a gall bladder anyway before doctor s appointment last week so i was finally able to get my picc line with i v rosephin for my lyme this is the best way to treat chronic lyme it is the only medication that breaks the blood brain barrier meaning that it will work on my mind as well as my body this should help with my depression anxiety short term memory loss and help me remember how to drive so that i don t all of a sudden forget what side of the road i m supposed to drive on and take the left side of the median with my child in the car yes my husband has taken my keys away my wonderful doctor in new york dr daniel j cameron wanted to have my iv rosephin for a minimum of 3 months bu could be up to a year basically they want you on the picc until you no longer feel sick i had mine for 2 months and was still sick as a dog i had an extremely hard time eating and drinking which caused me to collapse i could barely lift my arms or walk five steps without needing to stop and gain my strength again yikes at least i only had one er visit so i count myself lucky unfortunately rosephin paralyzes your gall bladder so while on the medication we stay on the gall bladder diet it wasn t that bad i don t eat too many greasy foods anyway then one day no i started having gb pain we checked it out and sure enough i had many stones and sludge the doctor immediately pulled my picc out you have no idea how upset i was i just bawled as he pulled out the line because this is why we moved here for this treatment and because of my stupid gall bladder i couldn t continue after my doctor s appointment last week the damage to my gb is irreversible and very dangerous so i am getting it out tomorrow yay it seems a waste the pain isn t that bad for me my kidney stones are worse but hey this way i won t have to deal with anymore passing of stones and i will be able to start treatment over again just another road block i m used to those regan s mom came out for the surgery the little angel it s been fun seeing her and its been great for my boys so in a nutshell wish me luck lets get this gall bladder out and start this thing over again posted by ashley whimpey the one with the fairy dust at 7 59 am 7 comments saturday october 16 2010 to my friend heather dearest heather oh heather heather heather i read your email late last night and i printed it off and read it over and over again before i fell asleep regan read it too he told me ash this is how i know that we are in the right place i have the distinct feeling like i ve read this before much more powerful than deja vu almost like i knew her even before i came to this earth and that she would be a powerful influence in your life before we moved here we were in utah i had received info and labs from a doctor out here that said i must get treated for my lyme with a picc asap he said i couldn t wait any longer but that he wasn t qualified to do the treatment himself we searched for doctors in utah and found a few prospects but something didn t feel right we prayed so hard about where to go that would be the best place for our family the answer came strongly to my husband go to connecticut i was upset that i didn t receive such a strong confirmation i didn t feel like it was wrong i just was so afraid i was afraid to leave my family in particular my mother who goes above and beyond to get me feeling better and my sister melanie who has helped me keep my burdens light and even funny at times how would i get through this without them we didn t have a place to live a job or even a doctor yet we just packed up our things and headed this way regan picked a place on the map of connecticut manchester he didn t know why it just popped out at him first he contacted the bishop and told him of our situation reg wanted to know if the ward was a helpful ward with people that would understand and be able to lift us when our burdens were too great the bishop told us that the ward was miraculous and that we would be in good hands here and we have found that to be more than true but as we searched for a doctor we couldn t find who we were looking for i saw and infectious disease specialist a rheumatologist an internal medicine doc and many er docs but the answers kept coming nothing is wrong with you well you know what happened next i felt like i was going crazy the physical and mental pain were too much to bear i don t believe in suicide but i felt that it was my only option to get out of this painful body and to stop placing any burden on my family not that i was thinking clearly but i wanted to take my life but i was reminded of the time where i actually did try to take my life 2 years earlier and the shame that followed when i saw my son afterward was enough to never try that again so this time i told regan i had a problem and would not be able to wait 2 months to see a psychiatrist i had to see someone tonight if i wanted to save my life for my child we submitted myself to the psych unit in manchester hospital which as you know was the worst experience in my life i was so afraid i was treated like a parasite like all i wanted was drugs and ropes to strangle myself with they took everything from me even my book of mormon in which i needed to feel some peace in group i listened to the others speaking of their situations and how they had no one i felt so lucky for my two boys and needed them again deeply i was so grateful that i had a family that loved me unconditionally even though i gave up on life they prayed and fasted for me they told everyone they knew to pray for me when i was released from the hospital i felt the power of those prayers and the love that my heavenly father had for me i couldn t stop smiling i wish i could say that i held onto that love from everyone i wish i could say that i kept my faith strong and that everything would be okay but i still had no idea what to do about my illness and had convinced myself that i didn t have lyme but that i was just crazy maybe we should just move home there is no point in being here this isn t working out why did god tell us to come here it had been such a horrible experience why would he let me leave my family whom i needed so badly only to find no answers in connecticut then my husband decided to switch car insurance because ours was too expensive the insurance agent regan spoke to also had a friend with lyme and get this she lived up the street from me and was being treated for lyme what is her name heather ...