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Text of the page (random words):
he discovery of insulin in 1922 prior to that diabetes was always fatal it still is without insulin with all the technological advances since 1922 nothing has compared to dr banting s discovery so today i am grateful to a man that worked in a crude lab with no money shunned by many colleagues forced to kill his best friend canine to prove his discovery my kids are alive today because of his diligence his passion his drive thanks to dr banting and his small team we get to have moments even the ones diabetes steals posted by april ann at 11 21 am 3 comments email this blogthis share to x share to facebook share to pinterest monday march 7 2011 2011 diabetesmine technology challenge contest video featuring none other than read more posted by april ann at 5 59 pm 5 comments email this blogthis share to x share to facebook share to pinterest wednesday february 23 2011 one year dia versary interview with t my measly vocabulary is preventing me from putting into words how i feel about passing the one year mark of t s diagnosis instead i thought i would let t do the talking i was surprised at some of his answers and astonished by others i am amazed at the young man he is and feel absolutely privileged and honored to be his mom me one year ago today on february 23 2010 we were in a very different place than we are today can you tell me what you remember about the day you were diagnosed t i went to school and felt really bad the whole day we went and got all of the papers for the home study for school because we had a trip planned and we were leaving that day i remember we went and got the oil changed in the truck and i drank a pepsi when we got home everyone was getting ready for the trip i had all ready packed so i was resting on the couch dad and our friend karen got home from work i remember you were really worried about me and asked karen to check me over we all talked about it and i started feeling really bad we decided i should go to the hospital i remember being really cold that whole day even though it was 70 out we got to the hospital and i sat in a chair you went over to do paperwork and then they called me straight back in front of a lot other people that looked sick i remember being in a hospital bed but not getting into it i remember being hooked up to an ekg machine in front of the nurses station and the nurse who put the iv in i was glad she did a good job i remember getting put into the back of an ambulance to go to children s i remember snippets of the ambulance ride i wished i could see out the front of the ambulance instead of the back when i got out of the ambulance they put me in a hall way and then into a hospital er room honestly that is about it from that day me when you say you felt bad at school what do you mean by bad t i felt like i was moving through molasses i had heartburn really bad and my legs hurt i was cold and i had a headache me do you think having type 1 has changed how you feel about life t yes i do i feel more driven more confident i know that i have ideas and things that can help manage type 1 and i want to make them happen i feel like i have more of a purpose me what are some of the things that are challenging for you about having type 1 t having to teach people about type 1 diabetes the confusion between type 1 and type 2 is frustrating the media portrays t1 and t2 as just diabetes the common person doesn t even know anything about t1 because they haven t seen t1 in the media it drives me crazy that most articles about diabetes i get online are about diet and exercise that is important for all healthy people i eat well and work out a lot and i still have t1 there isn t anything i could ve done to not get it and there isn t anything i can do now to get rid of it i wish media would cover the struggles of having t1 how much work goes into not just staying in range but how much goes into just staying safe i have to think about t1 all the time it s also frustrating to me that there isn t more technology specific for type 1 diabetes i feel like if an ipod or a phone can run hundreds of apps and serve hundreds of functions why can my pump only serve one and that is to do what i tell it to do it s not like my life depends on it or anything rolls eyes me can you talk about the clinical trial you are participating in and how and why you decided to do it t i did the trial because i wanted as many tools as i could to manage the disease the trial offered the best and most effective care i wanted to help maintain the function i still had of my pancreas as long as possible you never told me it would be a cure but that it might help be part of finding a cure someday me was it a hard decision t no i heard about it and researched it when i had gained enough knowledge i really wanted to do it me do you think we prepared you well enough for the trial it s okay if you say no we have always wondered t yeah you guys told me i would feel the worst i had ever felt over and over you told me about the risks the side effects and how bad it would be you told me about the possible benefits you never said it would work though you did tell me there were hopes that it would me did you believe us about how bad it would be t no laughs i was like yeah whatever those people were wimps me were you scared t no not really i was nervous when we walked in me was it worse than you thought it would be t yes it was worse than i thought it would be but it was only as bad as you told me it would be the only time i regretted it was in the beginning when i didn t think i was getting the thymo even as bad as i felt i never regretted it as soon as i realized i was getting the drug me do you think the trial paid off t yes my blood sugars are easier to manage the test strip supplies help too the education and getting to work with dr gitelman is awesome me do you have any advice for newly diagnosed families t learn as much as can so you know what to do and can better manage it take advantage of every opportunity to learn clinical trials aren t for everyone but i think people should seriously consider them i think the trial really changed my life educate yourself and the people around you the more you know the safer you will feel and the more comfortable your life will be me we have talked about the complexity of the cure any thoughts t to me a cure would mean that i would go through some sort of process and then i would never have to poke myself again it would mean that type 1 was preventable it would mean that my pancreas or some other organ made enough insulin that i wouldn t have to think about it any more me how do you want to mark the one year dia versary of your diagnosis t one word party posted by april ann at 7 27 am 12 comments email this blogthis share to x share to facebook share to pinterest labels clinical trial diabetes one year anniversary diagnosis diaversary tuesday november 30 2010 a late t1d sibling day post this post is to honor and acknowledge c c is one of the most incredible humans i have ever had the privilege to love he is probably the most simply complicated person i have ever met and it is amazing to be his mother he is 12 15 months younger than his older brother and 7 years older than his sister he is passionate about reading and football and is a second degree brown belt in shotokan karate he is the one kid in his class that always has the right answer and is referred to as the go to guy by his teacher he remembers facts and trivia after reading it once he has a thirst for knowledge and loves to learn anything that he is interested in in a room full of people presented with a problem c is the guy who provides the solution that leaves everyone thinking why didn t i think of that his brain works different from anyone i know and he uses his gift beautifully c is the only twelve year old i know that can go to the de young museum in san fransisco and stand before the painting of orpheus s head on a lyre by gustave moreau and then proceed to explain the mythological tale portrayed in the painting in front of twenty five people including the docent from the museum he rounded out that day with a game of flag football and karate that evening i have watched him play with the kid no one wants to play with and stand up for what he knows is right even when it wasn t the popular thing to do his sense of right and wrong is black and white and rigid his stubbornness is admirable and ahem challenging for the record he comes by this trait honestly he comes from a long line of pure stubborn i think it manifested brilliantly in c he is a hard diligent worker when he commits himself he is a perfectionist and his own worst critic he is a terrible secret keeper incredibly honest and has a wicked sense of comedic timing that can make laugh until you cry but where c really shines is in being a brother i remember when he found out we were expecting and he was so thrilled t was worried about changing diapers he wanted to be a big brother so badly of course he wanted a boy i still laugh when l was born a girl he said well i will love her but i m not sure i will like her i thought that was so profound and honest for a six year old watching him read her a bedtime story play cars with her and teach her to throw a football makes me misty eyed every time when t was diagnosed it was c who was there for l that first scary night when sam and i had to be with t and the kids were welcomed to our awesome amazing neighbors to stay the night until my parents could arrive from wa state and it was c who stepped in and helped grandma and grandpa keep the house running smoothly through the hospitalization c took t s diagnosis seriously and understood from the start that our life had changed he asked intelligent questions and was eager to learn it has not been easy for him there is no doubt that t1d takes up our time our energy and our focus it has taken attention away from him that he deserved to have he doesn t complain when i come into the room that he shares with his brother several times a night trying not to disturb his sleep or when dr appointments and hospital stays interfere with our family or when wacky blood sugars or migraines change our plans he has learned to check blood sugars how to recognize and treat a low blood sugar and when to get help c learned to draw up insulin when t was doing injections and now he helps get set change supplies together l was with c when she had her first low blood sugar none of us knew at the time that s was what was happening he came into the house from playing outside and told me that there was something wrong with her and that he didn t know what to do now he keeps an eye on her too while he is grown up and mature in so many ways c is wise enough to enjoy and appreciate being a kid one of my favorite sounds on this earth is his giggle he works hard and plays hard one of the many reasons i love and admire him so much i am so grateful he picked our family we love you c thanks for being you posted by april ann at 1 50 am 4 comments email this blogthis share to x share to facebook share to pinterest monday november 8 2010 clincal trial update deciding to allow tanner to participate in the start thymoglobulin trial was by far one of the most difficult decisions our family has ever made our lives were upside down with a new diagnosis our son was recovering from his close call with mortality we were learning a whole new language diabetenese and trying to figure out how to ever be okay knowing that our son s life now relied on a little bottle of insulin and our math skills i barely pulled a c in math all through school thank goodness the kids inherited sams math skills including a clinical trial the magnitude of the thymo trial into the mix felt daunting at best through soul searching and scientific research a final decision was reached we all agreed on to read about the process and details of the trial here t1 is caused by the immune system attacking the cells in the pancreas that produce insulin thymoglobulin is a drug used in organ donation transplants to stop donor rejection in the recipient the start trial is being done to see if thymo can stop the immune system from attacking the pancreatic islet cells still functioning in a newly diagnosed type 1 person to be honest the trial was much more difficult than i had imagined the infusions t went through left him feeling like he had the worst flu ever i wrote several blogs in may documenting the trial the side effect continued for weeks after including side effects we didn t expect i had moments i seriously doubted our decision and judgment moments i wondered if it would ever be worth it there were so many unknowns all i knew at the time was how miserable our son felt and how amazingly positive he remained part of the trial protocol involves very strict diabetes management keeping logs and multiple appointments that include extensive blood work and follow up testing in order to have a full understanding of the results so far you must have some background information in order to understand the significance of the tests t has appointments every three months for blood work and questions and every six months for the next two to five years for a test called a mixed meal tolerance test mmtt an mmtt requires t to eat at least 150 carbs for three days prior to testing then fast with nothing but water for the last 16 hours except for his basal insulin he can not have bolused or have any active insulin for at least two hours before the test begins an iv is placed and blood is taken t tests his blood sugar he then drinks a supplement drink called boost that has a determined amount of carbohydrates and protein he does not bolus administer through his pump any insulin for the boost his blood sugar is tested and drawn every fifteen minutes for four hours all data is collected and evaluated this test helps measure how well his pancreas is producing insulin i will do my best to keep this as brief and as understandable as possible bear with me first i will describe some terms definitions and values and how they apply to a person without type 1 diabetes then i will relate the the same values for a person with type 1 that would be typical for someone t s age and last i will reveal how t s values measure up people without type 1diabetes blood sugar value the amount of glucose sugar present in a persons body to provide energy for all organ systems value for someone without diabetes 70 120 on average children can be as high as about 140 a1c is a numerical value average of the last three months of a persons blood sugar a person without diabetes will have an a1c of between 4 5 9 a person with type 1 diabetes that is t s age 13 and in puberty there are thousands of factors that change blood sugar values in people with t1 puberty is notorious for wreaking havoc with blood sugars in kids with t1 boys produce testosterone a steroid hormone which makes the body very insulin resistant it c...