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you can register to walk learn more about the mission of the march of dimes and donate safely securely https www marchforbabies org fundraising team teamid 408318 teameventid 2337734 personid 408318 stay tuned lots coming your way including my first guest blogger eeek posted by bret and heather at 6 58 pm no comments labels cox quadruplets cox quads march for babies march for babies 2016 march of dimes prematurity tuesday march 29 2016 hope after heartache baby noah if you ve followed our blog for a while you likely remember jen chris petersen jen was added to our close knit online support group that is made up of mothers of quadruplets quintuplets and sextuplets just over two years ago when she learned she was carrying quadruplets not quite half way through her pregnancy jen was forced to deliver all four of her precious babies and all four were immediately called to be with jesus i have continued to watch both chris jen as they ve continued to struggle with the loss of their babies and the pain that comes along with the uphill battle of infertility despite the heartache that many can only imagine jen chris never lost hope or took their eyes off of their heavenly father or his plan for their life i am so happy to share with you with their permission of course that today jen chris are welcoming home their sweet healthy baby boy noah petersen although i have never met jen chris in person i can assure you that baby noah is one lucky little dude to have them as parents i m so excited to watch as he grows and know he has his own little army of siblings looking after him from above god is so so good to learn more about their journey click here for this child we have prayed and the lord has granted the desire of our hearts 1 samuel 1 27 posted by bret and heather at 1 05 pm 2 comments labels cox quads peterson family prematurity thursday january 21 2016 all that medical stuff ahh where do i start it s been a relatively low key year as far as medical concerns go thankfully nothing major like last winter seen here and here has been thrown our way all but baxlyn still see their developmental pediatrician who we depend greatly on for guidance with overall development on a regular basis thanks to dr roberts our awesome pediatrician dr reyes and the team of specialists we have our fantastic four are thriving as they grow despite obstacles along the way celiac disease many of you know that baxlyn was diagnosed with celiac disease last march after several years of tummy discomfort shortly after her diagnosis dr russo wanted to have all four of the quads tested as they were all at risk for having it after simple bloodwork at our pediatrician s office we were told that kylee had celiac disease as well we immediately started kylee on the gluten free diet along with her sister in november i took both girls back to dr russo to discuss our progress and get results on follow up bloodwork for baxlyn good news we learned that we re doing something right with her diet her number went from over 100 down to a 9 ideally we would like it under a 4 but a nine is phenomenal considering where we were less than a year ago not so great news is we are still dealing with tummy discomfort baxlyn went from complaining of her tummy hurting dozens of times everyday to only 3 5 times a day 5 days out of the week huge progress but still indicates something is still going on in that little body of hers i know cross contamination is inevitable sometimes but there are times i am 99 9 sure her meal is free of gluten and she still has issues afterwards so frustrating we plan to do another follow up with the gi in a few weeks to discuss further options we also learned in november that kylee was misdiagnosed celiac months before he said while one number that is often elevated with celiac was a bit high other results from the bloodwork along with the fact that she has zero symptoms leads him to believe she doed not have celiac she and the others are all at risk for developing it at any point but right now they re all clear b and kylee celebrating kylee s misdiagnosis at blue goose with flour tortillas for kylee baxlyn continues to amaze me with her great attitude while dealing with celiac while i ve learned a ton over the past 10 months i still have a long ways to go in helping her learn to cope and learn to live on the special diet i try to keep a stock of special treats she can have when the other kids are treated to things such as cupcakes cookies and pizza occasionally we find ourselves in situations where she just misses out altogether and she never ever complains seriously yall she is one special girl with a heart of gold and i m so glad she is mine eyes patches and glasses oh my last update i left you on this subject was that brody was getting glasses and miss b was instructed to be patched for three months after being diagnosed with strabismus him and astigmatism her other than taking a hard fall down the stairs on day one with glasses he s done great and his eyes are slowwwly looking better as time goes on baxlyn happily did her daily patching for three months went back and had made no progress so earned herself a pair of glasses herself she wasn t too bummed and enjoyed picking out both a pink and purple pair if it were up to her she would have a pair to match each and every outfit she had several months into glasses dr chen is still concerned with baxlyn s left eye while she s making progress it s not at the expected rate baxlyn is currently back to patching after school each day for four months this time in addition to wearing her glasses cp botox physical therapy if you ve followed us you know brody and kylee have had routine botox injections for several years now in an attempt to help with their tone issues linked to cerebral palsy i have a love hate relationship with botox and always have we ve had times in the beginning where we didn t see much difference and on the flip side we ve seen it work almost too well which tends to cause more harm than good while kylee has been allowed a break over the past year thanks to her spott surgery brody was scheduled for another round in october long story short after discussing history concerns and seeing how utterly terrified brody was to go through it yet again dr acosta decided to let brody have a break from botox and suggested we try an alternative treatment for his cp an oral medication called baclofen after doing some research talking with some of our other docs and our fabulous physical therapist bret and i opted against the new medication for that and other reasons we decided to get a second opinion from dr delgado a highly recommended neurologist at texas scottish rite hospital for children we had seen dr delgado when they were toddlers but it had been a while here brody is before the doctor came in i m gonna go ahead and stretch so the doctor doesn t say i have to have surgery break my heart i was blown away with the initial visit we had with dr delgado re garding brody in november they spent hours evaluating him sure that sounds like a huge hassle but believe me it s so reassuring to me and everything was checked from his balance his tone his reflexes flexibility strength response to vibration stimulation etc they took multiple videos of him as well walking running etc dr delgado wanted to hold off for a few months and then bring brody back to reevaluate and repeat everything we did in november to see how he changed and if he weakend at all with the extended amount of time between botox injections brody is scheduled to go back the first week of february where we will decide the next plan of action if the neurologist feels like botox may be beneficial we will have the injections the following week i ll explain more on that if we decide to move forward with injections meanwhile we are working hard at home with mrs ashley our physical therapist i can t say enough about this sweet lady and the love she has for my kids my heart will shatter into bits and pieces if she ever leaves us no doubt we ve had a lot of great therapists in our years but none that have ever connected with my kids like ashley does there s something to be said when your child asks every day after school if mrs ashley is coming hate the therapy love the therapist currently brody and kylee have in home pt twice a week love this picture of her and kylee after she drove out to watch kylee cheer at one of her football games kylee and dr mayfield her orthopedic surgeon kylee has her follow up with dr mayfield at cooks in july her little left foot is looking great since her surgery we can see a big difference in her strength her speed and ability to run jump etc her surgery linked at the top of this post has been nothing but successful and we are so glad we made the decision to go through with it even though some believed she was too little and young for such a big surgery for now and hopefully forever she is doing good without botox and is cleared until july when she goes back for a follow up dr mayfield wants to keep a close eye on her as kids with cp often face new challenges as they grow and develop regardless of what happens i know this girl is in the best of hands with dr mayfield neuropsychology both kylee and brody had another neuropsychological evaluation before first grade started they had evaluations last year before kindergarten and it gave us great insight as to where they were and potential challenges that could come with school as well as some great tools we can take moving forward into the classroom setting to help them succeed something i ve yet to mention publicly is that our little brodster was officially diagnosed with adhd last year our sweet guy isn t an overactive hyper kid like many associate with add adhd kids but he struggles a lot with focusing he struggled quite a bit during the first semester of kinder and we ended up trying a medication last december it took some tweaking and a change of medicines but ultimately we have seen some very positive changes in his ability to focus and complete tasks that are given to him at home and at school since starting the medicine our only struggle is appetite unfortunately when he s had his meds he loses his appetite altogether so we re keeping a close eye on his weight gain below a picture of giggly kylee and brody before a long day of testing several local news reporters interviewed us in november in honor of prematurity awareness month you can read two online articles here and here i love being able to share our journey and to hopefully inspire families who find themselves walking a similar road all while raising awareness about prematurity posted by bret and heather at 9 00 am 3 comments labels astigmatism botox celiac cerebral palsy cook childrens cox quadruplets cox quads dr acosta dr chen dr mayfield dr russo glasses physical therapy prematurity strabismus texas scottish rite hospital tuesday january 19 2016 all about blade our sweet blade turned three at the end of october this boy for the most part is at such a fun age his vocabulary is huge and his perception of the world at this age is adorable yet trying at times he s big nuff to do it all and has no idea he s the youngest of the bunch to think that the quads were this age when he was born is insane i felt like we had a decent age gap between the four and blade but now sometimes i look at blade and can t imagine having four his age and about to welcome a fifth he s just a baby himself the summer and fall brought some big things for our little guy you probably remember the quads beaming with pride when they encouraged and successfully coached blade in climbing out of his crib a while back we ended up dropping his mattress to the floor after that and finally transitioned him to an actual toddler bed when his siblings got their new beds over the summer another huge success was potty training i did the three day method with blade just like we did with the quads and he was a total rock star having just one toddler to train we altered our approach a bit this time we didn t quite put our entire lives on hold like we did last time who can with four other kids and we didn t feel the need to tarp the entire house like before a potty a sticker chart and some skittles was all he needed and before we knew it we were diaper free and never looked back like his siblings blade didn t night train at the same time but did on his own within a few months the girls were sick at the time but here are all three boys enjoying some bowling at a friend s birthday party blade s three year stats weight 33lbs 70th percentile height 40 inches 95th percentile he passed his hearing and vision with flying colors and is one healthy little dude which we won t take for granted another first for our lil dude was the movie theatre we saw inside out it was the best nap he ever did have to celebrate his big number 3 we rented several bounce house obstacle course things and invited friends over to play he still loves mouse not mickey mouse it s just mouse and so that s the theme we went with he loved seeing all the balloons piñata and party loot just for him some of blade s favorite things his little pink blankets yes also known as his mimis he is attached and can t be without one at all times he eats just about anything with the exception of tomatoes like his siblings he loves rain boots being outside anything that goes and playing in the creek like mentioned above mouse the dude would watch mickey mouse 24 7 if i allowed him he has a slight obsession with smelling things like his blankets for example and he encourages others to use their sense of smell as well he is constantly asking people to nose it when he wants them to smell something at three i m thankful he s still a faithful napper due to the quads being in school he s up by 7am and takes a 2 hour nap or so after lunch and goes back down around 7pm i m so thankful god gave me some good sleepers blade and korbin love this sweet boy now if time could just slow down a bit that would be great posted by bret and heather at 8 30 am no comments labels blade 3 years old cox quads sweet number 5 toddler transitions older posts home subscribe to posts atom mommy daddy texas united states view my complete profile click to donate followers blog archive 2016 10 april 4 march for babies 2016 prematurity our journey our battle our victory suds salvation it s time for march 1 january 5 2015 15 may 1 april 3 march 6 february 3 january 2 2014 49 december 5 november 8 october 7 september 1 august 5 july 1 june 5 may 2 april 3 march 5 february 4 january 3 2013 63 december 4 november 7 october 10 august 3 july 4 june 3 may 7 april 7 march 7 february 6 january 5 2012 65 december 4 november 5 october 9 september 5 august 7 july 3 june 6 may 6 april 7 march 4 february 4 january 5 2011 87 december 8 november 7 october 10 september 3 august 7 july 6 june 8 may 9 april 8 march 6 february 8 january 7 2010 88 december 4 no...