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Text of the page (random words):
ves the past two months or so have been a mixture of traumatic stressful spiritual challenging inspiring and hopeful we are extremely grateful and blessed to now say that relief is also part of that journey ever since my sweet girl had her heart surgery on july 12 we had known since our days in the nicu that she was born with a heart murmur i honestly can t recall if she was given an echocardiogram at that time or not but we were told she was otherwise healthy and moved on with our babies once they were all released one by one to come home two months after their delivery we had the four of them under our roof and began life as a family of six with 32 bottles to give every 24 hours and about 60 minutes of sleep as new parents to quadruplets there were follow up doctor visits to check potentially worrisome issues with their eyes with kailey s hips and so on but her extreme far sightedness actually correct itself as she grew and her hip dysplasia did as well logan and trystan were both in great health and despite harrison s serious illness in the nicu he has zero complications to this day just two small scars one on each side of his chest to remind us of that day in particular we nearly lost our little boy as the kiddos grew and especially within the last year i noticed that kailey s heart seemed to beat extra hard and that it raced at times even though she d be at complete rest and it should have been beating calmly and rhythmically any time we went to our pediatrician office i d ask him or her to listen to her heart and see if there was reason to be concerned earlier this year we had a small issue arise that led to getting kailey s kidneys completely checked out which they did everything turned up normal and i also asked additional medical professionals to listen to and feel her heart but everyone told me the same thing she seems fine however when we went to the pediatric cardiologist they had barely completed the ekg before whisking her into another room where one of the cardiologists himself performed the echo kailey and diagnosed the asd it was just myself and my little girl at the appointment that day and i remember going into shock as i was leaving the building and wondering how this could be happening turns out it was a congenital heart defect meaning she was born with it and it also turned out that we caught it just in time the cardiologist assured me that we couldn t have had an operation on it until about the time she was four so our timing was perfect but he also gently let me know that the hole was so large that had this gone undetected for even a few more years the results would have been fatal the hole in kailey s heart means that the wall that typically separates the heart s two upper chambers known as the left atrium and right atrium was compromised in kailey s case there was almost no atrial septum or wall there so a great deal of her oxygen rich blood or red blood was pouring into the atrium that houses the oxygen poor or blue blood thus causing the right side of her heart to become very enlarged with all the extra blood being forced into it a person s heart we learned actually sits at a slight angle with the right side pointing more toward the front of the chest since the right side of kailey s heart was so enlarged that made it closer to her chest wall and was why i could feel it beating so prominently with just my hand since the day of the diagnosis i ve learned more about congenital heart defects and complications than ever we learned that small asds can often close on their own over time or even be closed by a minimally invasive catheter surgery using an artery in the leg but more extreme cases like kailey s require open heart surgery immediately the husband and i began to educate ourselves on pediatric open heart procedures and everything it entailed what to prepare for what kind of recovery to expect and long term effects the silver lining of having open heart surgery meant the fix would be final and there would be no need for kailey to ever undergo any of this again we spoke with several surgeons one even out of state to both confirm the best course of treatment for kailey and also ask lists of questions we had about the surgery asd repair and recovery by the time we met with dr eric mendeloff founder of the congenital heart surgery unit chsu at medical city children s hospital in dallas we felt that we had learned everything we needed to know and that we d also met the best surgeon for the job dr mendeloff and his staff at the chsu were phenomenal and we will always be grateful to them for their profound care and saving our little girl s life not a day has gone by since kailey s surgery that i don t thank god for giving me that feeling that something was wrong and leading me to the right place to diagnose kailey and repair her heart my mother s instinct has never steered me wrong and i know i have him to thank for that it has been been just over one month since surgery and we truly cannot believe everything kailey has gone through or how amazing she looks and acts now recounting this journey so soon after especially since we had to make a return trip to the icu due to complications less than one week after being released from the hospital is certainly full of emotions for me as a mama but prior to kailey s surgery i d found some books and blogs and other information that proved vital to us surviving this journey as a family and also to help prepare ourselves as parents kailey as a patient and her siblings as her support team in what was to come and how things would happen just like i ve shared my experience with a quad pregnancy and having and raising quadruplets the husband and i agreed we needed to share this unique journey as well for those coming behind us that find themselves facing the same or a similar diagnoses and those overwhelming and fearful feelings of the unknown i ll be back soon with additional posts about the day of surgery her recovery the things we used to help prepare what to pack for a week in the icu and how to help siblings along through a process like this a heartfelt thanks goes out to our family especially our parents who were vital throughout all of it and to our close friends who were a great source of encouragement and support these past few weeks kailey now proudly talks about her superhero heart and we as her parents couldn t be more impressed and thankful with the true superhero that she is 20 comments email this blogthis share to x share to facebook share to pinterest tags in this post personal tidbits quad squad 3 25 2016 good friday celebrations easter decor and free printables our good friday was an especially well good one spent with family just the way we like it earlier this week our family dinner plans changed a bit and i offered to host the casual gathering at our place i grabbed a ham at the grocery store and gave the house my best once over as quick as i could which didn t go as smoothly as planned when i came down with a case of food poisoning never again local thai restaurant on thursday afternoon but the husband rallied and helped get everything in order and it all turned out just fine i returned to the land of the living by friday morning after nearly 12 straight hours in bed cannot remember the last time i did that the ham was in the oven by 3 30pm and my parents plus my sister sabrina and the quad s adorable cousin rayne all came over to celebrate the kids were super excited to see rayne who i later learned was planning to pick a visit to our house over a trip six flags if she had to what a sweet girl fortunately for her she was able to spend the day at the amusement park and then come join us afterward summer my sister and sabrina brought adorable gifts for everyone large stuffed eggs for the egg hunt and a paw patrol mega block set for the kids that entertained them for over an hour and all five kiddos played so well in the play room together sabrina helped me finish stuffing our eggs then she myself and the husband divided and conquered the front yard making it look more like a chicken coop gone golden with so many eggs everywhere the egg hunt was a huge success we had over 200 of them and each kiddo filled their basket up i loved it this year the quads really had it down too they didn t try to open each egg as they picked it up and rayne helped by setting a good and quick example after the egg hunt we stashed the baskets and sat down for dinner in our kitchen ham on the bone baked beans homemade potato salad fruit salad rolls and peach cobbler with ice cream for dessert the kids then played pin the tail on the bunny before watching brer rabbit while the adults got a little down time chatted play on my snapchat find me under texastales and sipped wine later this weekend i ll share a recap on the rest of our easter festivities and what s in the quad s easter baskets but for now here s a snapshot of the only decor i managed this year but it s on our entry table by the front door so i figured it counts double right the cute easter printable can be found here i sized mine down to a 5x7 to fit my frame earlier this week the kiddos had their class easter egg hunt at school and i created these simple printable tags for a quick and cute teacher easter gift i ve got em for you in a pdf download right here they re great for teachers as well as friends and family too you can never have too much lip balm or if you re like me you just want all the coconut things for the past two weeks or so the husband and i have been discussing what easter is really about not just the easter bunny with the kids and reading some books about jesus and his life and they re understanding far more than i expected they would we love all the cute disney 5 minute story books so i was excited to find bible stories in 5 minutes which will be great to convey passages and lessons in terms the kids can relate to other library reads we ve picked up that have been good for us include the miracle of easter by jean m malone and the easter story by brian wildsmith it s definitely been important to us to take a moment here and there to remember the sacrifice jesus made on that cross that day and how willingly he traded his life for ours to know that i am loved and cared for so strongly and passionately as are you is a powerful revelation and one that certainly carries me through and it s a truth i intend for my children to know trust and love with their whole hearts happy easter to you and yours he is risen ps need some extra weekend reading check out my guest post on fellow mom of multiples blog capri 3 where i share 10 ways to make life easier with kiddos 5 comments email this blogthis share to x share to facebook share to pinterest tags in this post books delicious food family and friends holidays home decorating quad squad 3 24 2016 new series school lunch bites i ve always been a lover of food and have long hoped to foster a healthy appreciation for good fare in that of my children but little did i know prior to becoming pregnant with the quads that i d be prepping far more meals then i thought when we set out to become parents thankfully the kids have fairly well developed palates and favorite foods range from typical tot stuff like peanut butter sandwiches and chicken nuggets to oven roasted salmon olives and hummus you may have previously been a fan of my tyke bites posts which will still continue periodically and cover a random day of meals in our household for now though i m introducing my school lunch bites series that ll feature simply that the latest school lunches that have been packed into my crew s lunch boxes for their day at school they currently only go to pre school twice a week and the other days we eat similar style meals at home i take photos of the lunch box food as i remember so not all posts will feature the actual meals made that week and some may be in random order i also get a lot of good ideas from mama blogger lisa of what lisa cooks who ironically has two sets of twins so she comes up with plenty of ways to reinvent boring lunch box combos that are perfect for when i need inspiration because i ve been asked so many times on instagram and facebook here are sources for all the packing items i use lunch containers i love these plastic bento style containers from amazon they even come in a set of four so it s meant to be i use them so often i ll likely purchase a second set soon especially when we bump up to three days of school a week for pre k starting this fall the containers a great size for accommodating various food shapes and amounts just beware that they aren t spill proof i don t pack liquids in these like soup applesauce or yogurt unless i ve got it pre packaged in a plastic ramekin or something liquid containers i have goodbyn containers i use for when i m packing liquids or things that can leak baking cups when packing small pieces of cheese turkey nuts or other such items i ll often use silicone baking cups to help separate and contain them lunch boxes all of these came from ross and tj maxx and are some of the kids favorite characters with that here we go school lunch bites post numero uno the dish cheese quesadillas whole grain chips with salsa apples strawberries fig newtons yogurt squeeze pouch juice box the dish grilled cheese cut into sticks veggie chips strawberries yogurt juice box the dish turkey cheese veggie straws blueberries cantaloupe whole grain crackers fig newton the dish tortilla roll ups with turkey cheese and mustard bananas grapes strawberries frosted cheerios yogurt squeeze pouch juice box the dish hawaiian bread roll leftover barbecue chicken doritos pickles apples strawberries chobani yogurt tube juice box thanks for stopping by and happy eating 4 comments email this blogthis share to x share to facebook share to pinterest tags in this post food quad squad school lunch bites 3 04 2016 things for spring the weather in texas has dutifully warmed up even beyond our normal temperatures this spring making me think our summer is going to be that much hotter but for now we re all basking in the easy going mid to high 60s with a few afternoons peaking at 70 degrees flowers are blooming and i ve broken out all the kids new sandals for the year i wanted to go into the weekend with just a quick post highlighting some of my favorite photos of our spring thus far like a pretty arrangement of grocery store blooms i picked up and displayed on a 3 target tray on our kitchen island flowers always make me happy if blooms are on sale or come in a bunch i often split them up into various arrangements and use roses or carnations or even greenery as filler to get more bang for my buck so far i ve got lots of flowers and greenery both real and faux scattered throughout the house to lend a fresh air for the new season i even saved a couple of blue green hydrangeas and dried them out so i could continue to display them on top of my piano becau...
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