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description=debra of America is a non-profit organization providing free programs & EB support services to those living with Epidermolysis Bullosa. Make a donation and help fund research for a cure.;

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support epidermolysis bullosa patients programs advocacy research skip to main content home top menu for medical professionals donate donate donate search debra for medical professionals clinical management of eb hcp engagement events order free eb patient resources patient referral for eb support debra eb physician directory about us what we do meet the team debra international annual reports financials media center contact us about eb understanding eb eb simplex dystrophic eb junctional eb kindler eb getting diagnosed clinical trials approved treatments personal stories video stories news blog how to care for wounds care for blisters care for newborns choose products prepare a bath recognize infection more eb guides get help emergency care wound care distribution eb nurse new families legal aid smile fund mentorships debra care conference eb doctor directory connect with others other resources travel social story for eb doctor visits a guide for kids school resources eb camps eb cards bereavement medical supply companies get involved ways to give fundraise host a supporter led event government advocacy internship volunteer share your story purchase with purpose subscribe to emails events debra hosted events supporter led events team debra endurance events awareness advocacy events epidermolysis bullosa eb is painful rare debilitating genetic isolating pervasive agonizing expensive complex epidermolysis bullosa eb the worst disease you ve never heard of is a rare connective tissue disorder with many genetic and symptomatic variations all forms share the prominent symptom of extremely fragile skin that blisters and tears with any friction learn more leading nonprofit supporting people living with epidermolysis bullosa eb debra of america is a national nonprofit organization dedicated to improving the lives of those impacted by epidermolysis bullosa eb we integrate direct to patient programs and services education advocacy close partnership with treatment developers and research funding to foster meaningful change for those living with eb about debra of america 1 5 million the average dollar amount spent each year on direct to patient programs and services u s fda approved treatments debra of america s work has led to the historic u s fda approval of 3 treatments for epidermolysis bullosa eb in 3 years learn more our programs services wound care distribution eb nurse new family legal aid smile fund mentorship debra care conference wound care distribution wound care distribution program debra of america distributes wound care supplies free of charge to individuals and families with epidermolysis bullosa eb in the united states supplies include bandages dressings ointments and more learn more eb nurse eb nurse educator program our eb nurse educator is available by phone and email to answer questions and provide guidance to individuals with eb their family members the professional community and the general public learn more new family new family advocate program we provide a full support system to the parents and caregivers of a newly diagnosed child with eb including a free care package with a wide range of wound care products age appropriate practical items and educational information learn more legal aid legal aid program we provide tools and guidance to help you advocate for yourself and your family when issues arise for example has your health insurance denied you coverage or your local education system not provided your child with the assistance he she needs learn more smile fund smile fund program we fulfill mini wishes with the goal of bringing joy to those living with this taxing disease one smile fund winner is selected from a pool of applicants every month learn more mentorship mentorship program debra of america s mentorship program offers two separate opportunities for both those living with eb and parents caregivers learn more debra care conference debra care conference dcc this multi day biennial conference is designed specifically for eb families and the professional community to access the best information discover new ideas and connect with other eb families from all over the country learn more get involved attend an event have a good time for a great cause check out our upcoming events both intimate and large that take place all throughout the year and across the country learn more donate a gift from you directly impacts all people living with epidermolysis bullosa eb by providing them with crucial programs and services and funding the most innovative research directed at symptom relief and a cure learn more fundraise fuel our mission and support the eb community with our easy to use diy online fundraisers set up your personalized online fundraising page today to get started learn more more ways to get involved current clinical trials phase 2 clinical trial of tcp 25 gel for deb jeb xinnate ab phase 3 clinical trial of sd 101 6 0 for ebs rdeb and jeb non herlitz intermediate paradigm therapeutics inc tames 02 clinical trial for eb simplex therapy tolasure gel biomendics natural history study of deb eye complications krystal biotech phase 2 3 clinical trial of diacerein 1 ointment for generalized ebs the ebshield study twi biotechnology inc cannabinoid use for symptom management online survey northwestern university research study developing a novel artificial intelligence patient app to recognize scc in rdeb northwestern university pilot clinical trial of topical and intravenous gentamicin for jeb university of southern california view all home donate donate donate search sign up for our newsletter stay updated on all things epidermolysis bullosa eb sign me up 1919 14th street suite 700 boulder co 80302 please send check donations to 1560 central ave suite 433 st petersburg fl 33705 833 debraus 833 332 7287 212 868 9296 staff debra org footer menu about us contact us shop privacy policy cookie policy debra of america has earned the highest possible rating of 4 stars from charity navigator the nation s leading charity evaluator copyright 2026 debra of america all rights reserved the dystrophic epidermolysis bullosa research association of america d b a debra of america is a registered 501 c 3 tax exempt organization all trademarks and brands are property of their respective owners debra of america does not endorse any drugs tests or treatments that we may report this website is for informational purposes always check with your physician before adopting any medical treatment ein 11 2519726 debra for medical professionals about us what we do meet the team debra international annual reports financials media center contact us about eb understanding eb getting diagnosed clinical trials approved treatments personal stories video stories news blog how to care for wounds care for blisters care for newborns choose products prepare a bath recognize infection more eb guides get help emergency care wound care distribution eb nurse new families legal aid smile fund mentorships debra care conference eb doctor directory connect with others other resources get involved ways to give fundraise host a supporter led event government advocacy internship volunteer share your story purchase with purpose subscribe to emails events debra hosted events supporter led events team debra endurance events awareness advocacy events