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lung transplant pulmonary fibrosis cystic fibrosis copd pulmonary hypertension and bone marrow lung transplant pulmonary fibrosis cystic fibrosis copd pulmonary hypertension and bone marrow saturday october 13 2012 lung cancer and beyond live strong cancer survivor camp a wonderful cancer survivor weekend http http www youtube com watch v cdlydkaj1wk feature youtu be this video sends a strong message of what lengths a friend will go through to help another friend this tribute is greatly appreciated please visithttp www etsy shop prettiuneek prettiuneek hand crafted jewelry a fun boutique of quality handmade affordable jewelry in silver copper brass gemstones and exotic beads please check often as new items are being added daily or for prettiuneekhair http m youtube com reload 2 rdm mbcvux5qg prettiuneekhair uid nqmpsa4hqb0tlpxgjax5fa desktop_uri 2fprettiuneekhair celebrate life alma posted by unknown at 12 03 pm 0 comments email this blogthis share to x share to facebook share to pinterest location cape may cape may friday december 16 2011 alma update 12 16 2011 here is a summary of what i have been experiencing ever since my transplant in may i have been getting hot flashes i had gone through menopause in 2005 after chemotherapy due to lung cancer the doctors have no idea why i am experiencing the 20 to 30 hot flashes i was having a day at least 8 to 10 of them were during my sleeping hours of which i was waking up every time because they were so severe anyways the solution to the hot flashes was an anti depressant i went on it and that shot my blood pressure up i started taking blood pressure medicine and had an allergic reaction i felt like i was walking on stilts and my legs were constantly hurting and they started stinging a lot i took a look at my legs and there were bright red and hot to the touch i was bedridden for over 2 days needless to say i stopped taking those meds and now i am on another one hopefully this one will work i will not even get into my sleeping patterns let s just say that we had to experiment with different doses and i believe that is squared away however these are just minor symptoms as compared to where i was last year at this time forever grateful to god the donor family my parents my earth angels and my breath celebrate life alma posted by unknown at 10 55 am 0 comments email this blogthis share to x share to facebook share to pinterest wednesday december 7 2011 borrowed time tv show on organ transplants borrowed time is a docu drama that puts organ donors and recipients in contact with one another the show is hosted by damon gault who is himself the recipient of a heart transplant each episode captures the heartache gratitude and life transforming stories resulting from an organ donation damon interviews both recipients and donors prying deeper into their narrative discovering what events led the person to confront the brutal reality of a failing organ please watch a preview right here or on facebook at borrowed time you can also like the page on facebook to see when this will be on television contracts were signed last week thank you damon for your work on bringing awareness of organ transplants to the public david please join me in celebrating life alma posted by unknown at 4 02 pm 0 comments email this blogthis share to x share to facebook share to pinterest saturday december 3 2011 pff research fund to cure pulmonary fibrosis the pulmonary fibrosis foundation pff announced that it has established the pff research fund to cure pulmonary fibrosis a fund created to support research that will assist in the development of successful therapies for pulmonary fibrosis pf for more information please go to http pulmonaryfibrosis org research pffgrants or click here celebrate life alma posted by unknown at 3 39 pm 2 comments email this blogthis share to x share to facebook share to pinterest saturday november 26 2011 8 1 2 yr post heart dbl lung transplant on september 24th chaz devlin rode over 79 miles on his bike after receiving a heart and double lung transplant 8 5 years ago he rode the bike ms city to shore ride 2011 join me in congratulating chaz on this great accomplishment here is a facebook page on the ride and here is their web page congratulations celebrate life alma posted by unknown at 3 46 pm 1 comments email this blogthis share to x share to facebook share to pinterest thursday november 24 2011 happy 10 year lung transplant anniversary it gives me great pleasure to wish my dad happy birthday and happy anniversary yes he celebrates two birthdays and our family was blessed 10 years ago when he received a lung transplant so much for statistics his secret is taking his anti rejection pills on time doing his spirometer daily and listening to his doctors read about his transplant journey here dad i love you dad join me in celebrating life alma posted by unknown at 4 20 pm 1 comments email this blogthis share to x share to facebook share to pinterest sunday november 6 2011 mike keim mike is a 911 dispatcher and he likes to people watch if you put him in a crowded area he is good for hours he does not like scary movies and never eats the ends of his french fries he believes that monopoly is the best game ever family is the most important thing in his life mike is going to be the second person in the world to receive a double lung and bone marrow transplant from the same donor this procedure had to be approved by the fda so mike had to fill out a lot of paperwork for the approval as well as his doctor s and the hospital duke mike was diagnosed at four years old that he had a low immune system scid bubble boy disease he had developed a swollen knee and it got so big that he was not able to put on pants the doctors believed that mike had low levels of igg immunoglobulin g is a type of antibody that circulates in the blood and recognizes foreign particles that might be harmful and rheumatoid arthritis is a long term disease that leads to inflammation of the joints and surrounding tissues it can also affect other organs part of the treatment was receiving ivig ivig is an infusion of igg antibodies every two weeks now at the age of 26 he still received ivig ever two to four weeks this treatment is manageable it is all he has ever known and that it is just part of life the only challenge of sorts is the day of the ivig treatment after the treatment he is tired for the rest of the day he needs a double lung transplant because throughout the years his lungs have been scarred from colds and bronchitis the bone marrow transplant will take away the low immune disease and he will not have to take anti rejection pills for life like the rest of us transplantees mike also has celiacs diseas e a digestive disease that interferes with the absorption of nutrients these patients cannot eat gluten found in many grains and in many everyday products such as medicines vitamins and lip balms as a teenager mike had problems with bloating gas and diarrhea and was misdiagnosed at first a doctor had given him growth hormones and testosterone shots before the celiacs disease diagnosis it seems like this disease can take a while to be diagnosed since there are so many varied symptoms however nowadays more doctors and the public are aware of this disease so for the most part it is diagnosed quicker mike is very approachable is honest and a straight shooter if you ask him a question expect to get his real opionion he says that he always chose the big friends as his protectors being a small framed guy he would seek the big players this way he knew he would always be safe the hidden blessings that came with these diseases for mike are that they have made him stronger made him grow up quicker because of his reality he does not take things for granted and he cherishes the ones he loves more gets you thinking about what means the most he exclaims what keeps mike fighting is that he wants to see his older sister graduate college and become a teacher and he wants to see his little sister become a trauma surgeon as far as his parents go he is going to take care of them as they get older no nursing homes for them he talked to his siblings and told them if anything ever happened to him that all his assets are going to his parents for them to live comfortably and for their retirement he explained his feelings and the siblings agreed with his decision he said a door never closes without another one opening i found with my diagnosis who my real friends were and who truly cared about me i learned to be even more aware of those that i love i met a whole new group of wonderful people i would have never met the lowest point in mike s life so far was the last stay at the hospital it was a five week long stay and he was in icu on a ventilator and could not eat or talk this was the hardest thing that i ever faced in my life at times i was so depressed i could not talk nor eat for 2 weeks and then i was attached to a ventilator machine so i could not move much and laid in bed for the majority of the day fight like mike saving a local hero video click here mike holds special gratitude duke s center for living and all the people from his county cobb county marietta georgia for the entire fund raising they are doing for him they send letters of support or comments on facebook they were able to send his entire family to ashville for hot air balloon ride co workers donated sick time for mike so much so that they maxed out at 250 hours in a few days his co workers made a waiting list and they had to turn them away because of the overwhelming response he refused to clean his locker at work because he is going back to work as soon as he is able to he is going to be a productive human and donate his hours to someone who needs just to pay it forward when he was in need he was helped he actually cannot wait to go back to work i asked mike what had he learned in this lifetime that he would like to share and i quote don t take things for granted cherish the family when my voice was taken away i love you were the first words i said i can tell you that there were times when i was at duke s center for living when i did not speak to mike because i did not want to exert the energy to answer i have to tell you how proud i am of his progress because when i interviewed him a few weeks ago he talked and talked and talked it is a real honor and priviledge for me to have met mike and some members of his family i have grown to love them and i wish them all the best in this journey to health there is no doubt in my mind that mike and i will be chatting and walking and perhaps jogging or running together some time in the future please enjoy a song that means a lot to mike it might become his mantra who am i by casting crowns click for video who am i that the lord of all the earth would care to know my name would care to feel my hurt who am i that the bright and morning star would choose to light the way for my ever wandering heart not because of who i am but because of what you ve done not because of what i ve done but because of who you are i am a flower quickly fading here today and gone tomorrow a wave tossed in the ocean vapor in the wind still you hear me when i m calling lord you catch me when i m falling and you ve told me who i am i am yours i am yours who am i that the eyes that see my sin would look on me with love and watch me rise again who am i that the voice that calmed the sea would call out through the rain and calm the storm in me not because of who i am but because of what you ve done not because of what i ve done but because of who you are i am a flower quickly fading here today and gone tomorrow a wave tossed in the ocean vapor in the wind still you hear me when i m calling lord you catch me when i m falling and you ve told me who i am i am yours not because of who i am but because of what you ve done not because of what i ve done but because of who you are i am a flower quickly fading here today and gone tomorrow a wave tossed in the ocean vapor in the wind still you hear me when i m calling lord you catch me when i m falling and you ve told me who i am i am yours i am yours whom shall i fear whom shall i fear cause i am yours i am yours mike join me in celebrating life alma posted by unknown at 5 52 pm 2 comments email this blogthis share to x share to facebook share to pinterest older posts home subscribe to posts atom join my facebook lung transplant recipient page lung transplant recipient group replacing body parts from nova on pbs 13 5min watch the full episode see more nova sciencenow followers google friend connect impossible is nothing about me unknown view my complete profile leave me a comment or chat with me attitude is everything transplant links american lung association donate life america done vida espanol gift of life donor program instituto nacional del corazon los pulmones y la sangre espanol national heart lung and blood institute national transplant assistance fund ntaf organ procurement and transplantation network optn pulmonary fibrosis foundation register as an organ eye and tissue donor u s government information on organ and tissue donation and transplantation united network for organ sharing my blog list jamiebug cf cepacia lung transplant image photobucket almost 40 in about 2 weeks i will have the honor of turning 40 i honestly can t believe it when i was growing up i watched 7 years ago faces of hope for life my transplant recovery phase 1 yesterday august 2 2016 was a huge milestone in my recovery it was the end of my first phase of recovery home health i was first discharged from sp 10 years ago donate life memorial del stickel md transplant pioneer duke university hospital delford l stickel md professor emeritus in the department of surgery passed away on may 11 2015 dr stickel was a national 11 years ago raw foods wealth 2 health no sugar are you addicted to sugar i have been thinking about ways to motivate myself to go back to eating a lot of raw foods so i started viewing videos on youtube last week i invest 12 years ago blog archive 2012 1 october 1 lung cancer and beyond live strong cancer surviv 2011 43 december 3 november 3 october 7 september 3 august 2 july 19 june 6 copd quiz get the nhlbi dci copd quiz widget counter html hit counters watermark theme powered by blogger